Calling all TNs
Comments
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Laurajane: Love, Love, Love your story about the new man. I am so thrilled for you to find someone as loving and caring. You deserve it and I hope with the new drugs you two can experience this thrilling relationship for a long time. By the way - how do you find the men. Me - I can't find anyone. To have someone to kiss like when we were teens would be thrilling.
Take care and I hope this drug helps, come on miracle - we all deserve one or two.
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I like number 1 and 2. I don't think they have gone too far. I have seem similar t-shirts and at first it is a little shocking (reading the front only) but when you read the back too it makes sense. As to where the money goes.... I have 2 opinions. 1 to a research organization to PREVENT anyone else getting this disease and #2 would be to an orgainization that helps pay for chemo for women who cannot afford it or for situations like Laurajane's where insurance would not pay for the chemo she recently had.
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Swanny...thanks for your input. I too would like the money to go to those who struggle financially. Do you have an organization in mind, or should we come up with a new one?
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Inmate,
I like them all - my fav is #1. In my case, I need "uniboobs rule!"" LOL!
My sister refers to us as "Two chicks and a boob."
Bak, you have every reason to be upset! I can't believe it is still infected!! I am so sorry - and I know it must be scary because you want to get started with rads. I think I ended up waiting 8 weeks for rads - I delayed it so I could consult with another oncologist and the RO didn't want to start in case they wanted to give me chemo first. There are some studies about that discuss length before rads and I know I felt better after reading them but cannot remember where I found them. If I do, I will post.
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I like #1 and #2.
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This thread is like a rollercoaster..I read one post and I cry, another and I laugh, another and I think of when my dh and I used to make out (remember when we called it sucking face?)...
Bak..we have YOUR snow here now..thanks bunches...:) We still have our power..for now.
Ok...today I'm 34 months out from diagnosis..yay me..I guess........yesterday was 3 years from when I found that nasty, ugly, disgusting freaking tumor.....so I'm up and down with this... and feeling myself up night and day...I hope I don't get arrested ...
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Thanks alot for your input on "OZ"...I appreciate it...I haven't read his books or watched his show so I really don't know anything...all I know is that the company I work for is selling kale like we never have before....weird...
My boss said that his son made some Kale chips...he said they were ok..as long as you had a beer to wash them down with...lol.
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Thanks for your info. I've already tried those. I was hoping it was something different. So happy it worked for you. I like the idea of your t-shirts. Are you familiar with the Feel Your Boobies foundation? Make sure yours are different. I'd wear 1&2. I think it would be fabulous to start your own foundation. I would also love to see something about how little "pink" really helps those of us in need.
Swanny-I was actually having dinner with some friends and he and his friend came over after most of our friends had left and offered to buy us a glass of wine. We stayed and talked until the restaurant closed and before I left he asked me if he could take me to dinner sometime. I almost chickened out but my friend talked me in to going out on a date with him. I'm so glad I did. I'm feeling so bad now I don't have the energy to even get dressed let alone my FC is too painful to even think of putting on a bra. Even if we don't go out again because of my health I'm so glad I had that opportunity. It will happen to you too when you least expect it. My fingers are crossed for you.
Lovelyface- I'm so glad your doc isn't procrastinating. Please let us know as soon as you get the results. Praying everything is fine.
Bac- ugggg! So saddened you are going through all of this. Use the C -card and see if that helps them get your power on quicker. With all that we've all been through , pull that card with every opportunity. I do. I also wanted to mention that about 5 years ago when I had staph they tried all different drugs but it kept coming back the one that finally kicked it for me was Clendomyacin (I think that's how it's spelled) it's hard on your tum tum though.
Total- I don't thank you often enough for starting this thread. You described it perfectly tonigh. Thank you. 3 years is awesome. I'm so happy for you.
Good night all. Hope you have sweet dreams. -
YOU have sweet dreams Laura Jane! and all of you...!
Night..Laura Jane, Suze, Mac, Heidi, Swanny, Lisa, Christina, KHS, joyce, lwarstler, linds, babs, michelle, tracie, heather, mitty, inmate, kar, riley, luah, lovelyface, phyliss,hope, white dog, tifj, obxk, mccrimmon, gilly, karen, lory, fighter, slcst, mags, summer, char, lynn, lynmarie, cat, husker sugar,..and everyone else.
We are like the Waltons...
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Goodnight, Titan! It's freezing rain turning to snow overnight here, and I have a 4 hour drive in the morning to Evansville where my niece is getting married tomorrow! Good thing they're an hour behind us. The wedding's at 2 pm, which is 3 pm Indy time. I'll drive halfway back (to my Mom's house) after the wedding and spend the night there before making my way back home Sun. afternoon.
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Wow Titan- you are good, remembering all those names!
Bak- I feel so bad for you. I know what you are going through with the infection, but to have the power out and feeling crappy well...it just sucks!! Have they given you Kelfex (cephalexin) yet? It was working for me, then I had to stop because it made me itch (lots of meds make me itch). I hope you are feeling better soon!
Inmate- I like #1 and #2, although I couldn't wear #2 because of my kids! I agree the money should go to a financial assistance program. Maybe we all need to do a little research about existing groups. I'm not very creative, but perhaps a shirt could say something like "Pink is Pretty, but..." on the front. Can someone help with what would go on the back?
Laurajane- I so wish I could do something to take away your pain. You have such a big heart and I know you would do the same for any of us. Maybe if you don't feel like going on a date with your new man, you could invite him over to your home for a quiet night in. Sounds like he is a sweet guy and would probably bring dinner!!
Riley- Hope you have a great time at the wedding!!
Suze- How are you doing? Hope you are resting up and getting ready for your Disney cruise. My kids are jealous! That will be our next family vacation. We went to Disney World this past June and had a super time!
Wishing everyone a nice Saturday!
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Titan - "sucking face" - hilarious!! That's what we called it. LOL.
Yesterday's CBC at MO showed low WBC (how many acronymns can I put in 1 sentence? LOL)
I had a slight fever last night (99.4) so I didn't call the doctor and then my lower back was killing me. Do you think they were related? I have to go back to MO on Mon for another CBC. If it's still low, then they may adjust my treatment #2. Ugh. Can't go in to work on Mon either since I work in the city and take public transportation. PA said not a good idea. I was looking forward to a few days of feeling "normal."
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Char..the back pain could be from the Neulasta shot...I hated that thing..are you allowed to take tylenol? Or is it too hard on your liver during chemo..I can remember...but I did take aspirin once during chemo for a headache and it made me feel worse.
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Inmate..I like 1 and 2 t-shirts...don't think #3 would go over to well on casual Friday at my work...I could probably get away with 1 and 2 though..
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A bit of good news! Had a pelvic ultrasound yesterday to see if my ovaries are normal - radiologist says everything looks good! I should be able to postpone the prophylactic ooph until sometime after the BMX. Yay!!
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Titan- I'm not sure I had sweet dreams last night they were crazy. I kept waking myself up talking in my sleep. I think all of my fears try and come out when I'm sleeping.
Riley-we woke up to everything covered in ice too. I hope the roads are cleared before you need to make that drive and you have a nice time at the wedding.
Tifj- thank you for the sweet message. Actually he came over to have dinner the night before he left town on business. Just ordered in but it was so nice having his company. I sure wish we could have met earlier and had had the chance to spend more time together. He's so caring and compassionate and has a heart of gold. Oh! The kiss good night wasn't to bad either. LOL
Char- are you doing taxol by chance? My acupuncturist really helped me with my lower back pain that the taxol gave me.
My son has completely distanced himself from me. I keep asking him to spend time with me and all he wants to do is spend time with his friends. I know he is subconsciously angry about all of this and I know it's hard for him to see me this way but I'm so scared he will feel guilt when I'm gone. I don't want him to feel that. It's getting more and more difficult to function. My daughter has stayed with me this whole last week helping me with food and helping me get dressed things like that but she needs a break. My friend is bringing me some soup over today and my daughter will put it in smaller containers so I can lift them. I've become almost anxietel , afraid to go to sleep I'm so afraid I won't wake up. I'm not giving up just facing reality. Hope you all have a great day. -
Laurajane I wished I lived close, I would be there to help you. You are such a strong person and I admire you so much...
I hope your son comes around.
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Laura..how old is your son? You are right....I think that he is distancing himself from you to protect himself from his feelings...when I told my then 18 year old son that I had BC it was like I shot him..I will never forget the look on his face..after that he never mentioned it again..never asked me anything, never came to chemo with me, did not come to the hospital for my surgery..he just lived his life the whole way through..my daughter was with me through everything...she was my bright, happy smiling face..I told her that I did not want to see any tears.....I love my son and I MAKE him love me now..telling him how much I love him whether he likes it or not.
This is so hard for you and your son...I hope he opens up to you soon...
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inmate, I love them all....but I love number 1 the best. Are you selling these? When and for BCO ? I would love to get one.
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Laura, My heart aches for you , you will be in my prayers.
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Laura, I am sorry about how your son is dealing with this. I hope he comes around and opens up to you.
I'm worried that you are going through this alone. Do you need a nurse or home health aid to come to your home? Can you ask your doctor about this? My mom had home health come to her house to help her when she was recovering. It sounds like your daughter is helping a lot. I wish that some of us lived closer to you, I know we all want to help you.
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OK, time for some smiles...
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Inmate, I like 1 &2 the best. Its a great idea and I would buy some too.
laura I'm so sorry about your son I hope he comes around.
I love those Heidi
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My dear Laurajane - I am praying really hard that your young son comes and showers love on you at this time which you so need. Men deal with these type of things differently than we women do. Please don't be afraid to sleep at night, my dear. God is very kind, you are so loved, you are an amazing person and we need you to recover so you can start a new Breast Cancer foundation all by yourself. I would fly anywhere you open your foundation, in this big country, I promise.You have got to get better, I am counting on you. I am certain your new kind friend will come back once he is back in town.
Titan - Congratulations a million fold!!!!!!! 34 months is amazing. What are you doing to celebrate? Don't forget to celebrate this milestone. Thanks for taking your time to include all of us in your post, wow, that must have taken some work!
Inmate - I love them all. Are you selling them? Did you write them yourself?
Bak - I am not sure what the facts are, but I don't think a low immune system can bring the cancer back. I may be totally off the track, but in my opinion, Cancer just doesn't come back when your immune system is down. You know I finished chemo in Dec. 2010 and did my Rads starting March 1st, 8 weeks later. Onc. said he wanted to see my blood come back to normal and my body recovered before doing the Rads.
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My son came back from his friends a day early and gave me a big hug and asked if we could put the arguments we've had behind us. He said he loved me so much and had decided he wanted to stay at home tonight (saturday night!) and hang out with me. No need to ask if I cried tears of happiness. We just ordered pizza and we are going to watch a movie. I can't even remember the last time we did this. It seems like all we've done is argue for the last couple of months. Today when I was meditating I worked on letting go and sending him love, over and over. It worked. All of this is more than worth trying to stomach some pizza. Not very macrobiotic. LOL
Again it's so nice to share something positive with you. Thanks again for all of your encouraging words, sweet sentiments. I feel loved completely. Sending this love right back to you. -
bak, I hope you get better soon, I'm sorry your going thru all of this crap rigt now
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Yay Laurajane!! So glad he is coming around and realizing how much you mean to him!
I have to share my latest BS appt. story. My BS told me that my 2 year from surgery is coming up in Sept. She said I need to plan a big party or travel somewhere. I told her I have kids and that makes it difficult. She said "nonsense! i am sure you can find someone to watch them a few days." She asked if I had ever been to New York City. I told her no and she said "well then you must go." I told her trying to convince my husband will be difficult and she told me he just needed to do this for me. I jokingly asked her if she could give me a prescription for a trip to New York so then my husband would have to take me. She just laughed and said goodbye. As I was checking out, the receptionist handed me a piece of paper. It was a prescription that read "please consider a trip to New York in Sept for the patients well being." I thought how nice of her to do that. My husband just laughed when he read it, but I have put it on the refrigerator where he will always see it- hint hint!
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I'm so glad, Laurajane!! I hope you enjoy your pizza night and movie
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Laurajane, I hope you have a wonderful time with your son tonight!
Titan: Congrats on the 34 months! I loved your "waltons" post. Hope you plan something really special for your 3 year.
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