Calling all TNs

Luah

Lovely: I've always thought of recurrence as the same cancer showing up anywhere - locally (same breast), regionally (nodes or other breast) or distantly (which is mets). A new primary could occur too. From what I've researched, TN tends to recur earlier than ER+, distant recurrence is higher than for ER+, and more likely in soft tissue (not bone) than ER+. But even as some of our wonderful sisters are gracefully managing their way through such scenarios, most TNs thankfully don't recur.   

Painting: your sister sounds awesome!  

Lovelyface

Luah, thanks so much for the explanation, it is so good to know.  Interesting to note that you mentioned "nodes" separately from other breast.  I hadn't separated those in my mind. The part which is disturbing is that distant recurrence is higher than for ER+.   And I had no idea that it is more likely to recur in soft tissue than the bone which at least for this weekend makes me worry just a little less.  I have had persistent pain in my neck/head area, was thinking what if it has come back in the bones.

I love the part "most TNs thankfully don't recur".  Thanks again.

ksmatthews

I really need you all to say alot of prayers for my friend Janet. They just found out Wed. that she has lung and liver cancer and they have only gave her days. I went to visit her today and she was unresponsive this breaks my heart that Cancer is going to win another battle..

Babs37

My doctor told me that if I were to have a lump in the other breast, it would be a new primary, not a reccurence, even if triple neg....

Babs37

So sorry ks.......

tracie23

praying

Titan

Hi Michelle!  Glad you stopped in...this thread is here when you need it..glad you stopped by...it's great hearing from people that have been out of here for awhile...that's a good thing!

saw the Optometrist today,,I am horribly nearsighted..but no need for the bifocals..yet..OMG...I don't want them...it's amazing..with BC..sometimes its hard to remember to see the dentist and eye doctor and the ob gyn...its like everything is about my boobs.

Suze35

Got home today, still feeling awful but at least I'm home. Found out a lung tap really isn't all that bad, at least mine wasn't.



I'll catch up tomorrow hopefully. Love you all!



Susan

LuvRVing

Welcome home, Suze!

LuvRVing

As of today I have officially finished 20 months of treatment including my last rad.  I am so very done!!!

karbarn

@Lovelyface and @Mccrimmon - NED is a term when examinations and tests can find no cancer in a patient who has been treated for cancer of any stage. One does not have to have been diagnosed with mets to be considered NED. Essentially it is remission. If cancer is no longer detected, we are considered NED.

Huskerkkc

Glad you are home Suze and congrats Luv. Great news for both of you!!

inmate4232010

LuvRVing.....yeah to being done!  I too finished my last chemo today after 20 months.  Ain't it great!

Suze....awwww home.  enjoy your own bed tonight!

Still haven't heard from Bak.  I she still in the hospital?

bak94

Wow, this is a busy thread! I found out yesterday that I did test positive for c-diff.They put me on more antibiotics. The staph infection is gone thank goodness but I guess all those antibiotics is why I got the c-diff, which I think was worse than having chemo. Feeling better again but it comes and goes. I started school, just 2 online classes and I am having a hard time getting into it. I am taking philosophy and psychology, both interesting but my mind just keeps wandering when I try to read. Most of the students are about 18, with just a few of us older students. With the business classes I have taken there were many more people in their 30's and 40's and beyond.

Still waiting to start radiation, but my scar that re-opened needs to heal and I need to get rid of this c-diff. I hate that it is taking so long to start rads!

Glad you are home Suze.

KS-sending prayers to your friend.

Luvring-you must be tired of treatment! That is a long time.

Hi inmate-hope you are feeling good!

Thinking of all of you!

mccrimmon324

Glad your back home Suze. 

Congrats on your last chemo Inmate. 

LuvRVing, Congrats on being finished. 

Luah

Suze: so glad you're home, be comfy and regain your strength!

Inmate: Congrats on your last chemo - may it be forever!

LuvRVing: Hope you're celebrating - congrats on being done!

LuvRVing

Thanks everyone!  Mentally celebrating, for sure.  We are going to Florida in February, but the real celebration will be at the end of May when we head to Paris with our two adult girls.  Now that will be a celebration!!!

TifJ

Suze- how wonderful to be back home. Rest and feel better soon!

Michelle- Congrats on finishing! What a long haul you've had!

Inmate- Woo Hoo for you! As Luah said, may it be forever!!

Bak- so sorry you are dealing with this. I hope you get to feeling better soon. I see you have been following Coolbreeze's thread about her c-diff- that crap is nothing to mess around with!

Off to a fun lunch with my 2 best friends. I am taking them to the Melting Pot here in Kansas City to thank them for everything they have done for me since dx. I have truly great friends!

Happy Frday the 13th!!

mccrimmon324

LuvRVing,

We'll be in Paris and Rome at the end of March.  This is our "do-over" trip since I was diagnosed the week we got home last year.  Now that treatment is over, I have hair and we're getting closer I'm starting to get very excited. 

LuvRVing

Heather - there are quite a few of us who are going to Paris this year.  I think we should start a thread so we can share planning and our experiences.  Would you be interested in that? 

mccrimmon324

Absolutely!  One of my bosses asked what it was about Paris that we all loved so much that we would go back.  I really couldn't answer except to say, there wasn't anything we just didn't absolutely love. 

gillyone

I have Norton antivirus on my computer. Every now and then it sends a little message to me on screen. "Scan complete. No threats detected."  Ha!!!

gillyone

Nothing as exciting as Paris for me. But I am off "home" to England in March to see everyone.

inmate4232010

Wow ladies Paris sounds like a wonderful place to go to celebrate!

I too have good news: My scan came back clean as a whistle!  After 20+ months of treatment I find myself at a bit of a loss what to do now.  I guess that will be the fun part, answering the question:

What do I want to do when I grow up?

Thanks so much for all of your support.  I am humbled by the strength and compassion you all have show in the face of your own challenge.  Much love to you all! 

mccrimmon324

Congrats Inmate!!!! 

mccrimmon324

Gilly, England sounds just as exciting as Paris to me. 

Hope60

Inmate -  Congrats!!! I'm so happy for you!!!

I also hope to go to Paris this year.  I've never been there, and its on the top of my wish list. I didn't have the money or energy to make the trip last year, when I finished treatment (also wanted to have some hair....lol)   So this is my year to make it happen!

Hope60

LuvRVing - sorry, I didn't see your post earlier.  Congrats to you on  finishing treatment!!!!

Lynn18

Congrats to Luv and Inmate, for finishing your treatments and wonderful news, Inmate, about your scans.

Susan:  I am glad you are home now and hope you feel stronger each day.  I have heard Disney cruises are wonderful, hope you can go and have a great time. 

Paris sounds fun.  I think we all deserve to go! 

ksmatthews

Congrats to all the ones with good news, finishing treatments.  Have fun in Paris!  I sure would love to go.

Also want to say a big thank you for all the prayers for my friend, but sad to say she passed this morning.  I hate f'ng cancer!!!