For Daughters Who are Losing Their Mother to Breast Cancer
My mom is stage IV and has had many rounds of treatments over the last 4 years. We haven't given up hope, but we know that we will ultimately lose her to breast cancer. I am an only child raised by a single mom and I just can't imagine the world without her. I would like to connect with any other daughters who are losing their moms (or have have already lost their mom) to cancer. Perhaps we can lean on each other and support each other.
My mom is one of the most caring, generous and strong people I know... perhaps we can share all the good things about our moms in addition to supporting each other re: cancer.
Comments
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Wow, I can't believe I came upon this post! I just posted on here for the first time today, and I am also a daughter of a single mom. I have a half-sister, but we live on opposite coasts. It is my mom and I right now, and she has brain and lung metasteses. She just finished whole brain radiation about a month ago and has no appetite, and she is dehydrated. She has declined more chemo. My post is called 'in the dark'. Please post about your mom's condition, if you'd like. Thanks for this post.
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Knowclu - I'm so sorry about your mom. My mom also has no appetite and is just withering away. She is still continuing treatment but the dr.'s aren't optimistic about it. It's overwhelming to think about losing her. Single mom's are amazing. I'm angry and I feel like we're being robbed. There are so many things in our life and in my son's life I want her to see and be part of .. and it is being taken away. So unfair after all the years she worked so hard to take care of me after my dad died. She is the strongest and most giving person I know.
Tell me about your mom.....
Hugs, Laura
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Laura...
I saw your Stage IV post and I'm truly so sorry that you're facing this. In my case it was my Dad (male breast cancer) but I too was an only child raised by a wonderful father after my Mom passed away. Just wanted you to know that I think you're wonderful for reaching out... you will find strength in others who share your situation... may you find strength in each other! I send you love with the hope that a new treatment can turn things around for your dear mother...
Rose.
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Hi Laura, I posted this on another thread but what you wrote rang so true with me. My mom was also a single mom, raising my brother and I with not much support from our Dad. He has been wonderful since my mom was sick and since she lost her battle to breast cancer two years ago, but nothing could ever compare to my mom and the role she played in my life. My mom also had stage IV breast cancer and fought hard, but the treatments just didn't work. Here is what I posted on a different thread, I hope it helps you. It has helped me greatly to read other people's stories like yours just to know that I am not the only one who feels this way.
Hi there, it looks like no one has posted to this thread for a while but I wanted to send my love and prayers to all of you. I'm 24 and I lost my mom to breast cancer 2 years ago, she was 53. It's been rough without her, she was my best friend. I'm lucky to have a supportive Dad and brother, but they have everything in common and are best friends, so it's hard feeling like I've lost mine. She was the most wonderful person I've ever known. It has gotten easier over these past 2 years, I no longer cry every day, but on days like these it is as if no time has passed and I am overwhelmed by the void I feel with her gone. I have come to terms with the fact that I will have days like these no matter how much time passes. No one can ever replace the love of a mother, especially a mother like mine. I saw someone else post this, and it is something that I have clung to in times of doubt: I feel as if my mom was taken from me way too soon, but I also know that some people live their whole lives not knowing the kind of love, support, security, and friendship that my mom gave me. So instead of being angry about the lost time, I will forever cherish the time I was given. Only the good die young, leaving the rest of us with legacies to fulfill and lessons learned of how to live life well. I will keep you all in my prayers and hope that you may find some peace in these thoughts that have helped me.
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Hi mbs1225 - Thank you for your kind reply. Things aren't easy right now as my mom seems to be losing her mind a bit. She can't seem to remember what she did or said 5 minutes earlier and yet "thinks" she is completely fine. She also thinks she can do more than she can. I'm becoming very worried about her hurting herself. I am hoping things calm down a bit and we can enjoy a nice holiday season with her. I already miss my mom.
xo L
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The worst news.... my mom's liver is failing and it can no longer process her meds. The toxins in her system are part of why she is behaving this way. But the real issue is she now has brain mets. She is now in the hospital and doesn't have much longer to live - a few weeks at most. We're devastated and will be by her side to hopefully make her more comfortable. I just can't stop crying....
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LDevy, I am so sorry to hear about your mom. Only child of a single mum here too. My Mum was promoted to Heaven October 1, so I intimately know what you're going through. I had to put Mum in hospital September 11 (of all days) and then moved her to hospice a week and a half later. By the time she got to hospice, she really wasn't aware of much as we knew the cancer spread to her brain back in about August. She was doing a lot of things you write that your Mum is doing - the memory loss, the strange behaviour. I think, at that point, we really become our Mum's mum, if you know what I mean. It's so hard. I wish I had the magic words to make you feel better, but I really don't. I was Mum's primary caregiver all year this year and although there were times that it really did get tough to be patient, I still feel very blessed that I got all that time with her. I will miss her for the rest of my life, but I did feel relief for her when she passed. No more pain, no more worrying, no more sleepless nights.
Do what you can for your Mum, honey - but don't lose yourself in the process. I honestly felt I lost my mom when the brain mets started, after that it was very different for me. Maybe it was God's way of starting to offer me some distance, I don't know. I know she loved me deeply and that never did change but she became almost childlike after that metastesis (or however you spell that hateful word - I refuse to look it up to learn how to spell it).Know this though: you are doing a great job for your Mum and be proud of yourself, ok? We are no match for this vicious beast and all we really CAN do is stand by and hold our mum's hands as long as we can.
My heart aches for you honey - please feel free to contact me anytime on the road ahead. It's bumpy, dusty and dirty but it IS survivable - you WILL get through this.hugs and love,
Margi -
oh and p.s. One thing I did for my Mum which really helped her when the paranoia would hit her, both at home and in hospital/hospice, is that I put pictures of our family up for her, around her bed where she could see them without raising her head off her pillow. It gave her HUGE comfort to be able to see the faces of her kids, parents, friends and pets. I also left a notebook at her bedside so that when she was sleeping when I left I could leave her a note. She could also write down her feelings for awhile too but soon lost that ability. Quite a few mornings when I went back in, she would have scribbled through the notes we had left her so I think that was her way of writing back to us, maybe. I've just found her notebook again this morning and am going through it. It's quite therapeutic to read it all again and also very fascinating the way her brain was and wasn't working. Hope this helps you some.
Margi
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Hello! I am not the daughter of a single mom but am now the daughter of a single dad. I lost my mother to breast cancer what will be a year ago December 26th. I cannot imagine what it is like for you as the thought of being parentless is so scary to me and painful to even think about! I can't say it is getting easier right now to have lost her as she was my best friend and I just miss her ore and more. There are good days and bad days. I am glad she is not suffering anymore but still angry she had to in the first place. If you need someone to talk to that understands what you are going through at least on some level, please let me know. I am happy to give you my number. We may be strangers but who cares!
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Hello all,
My mom was diagnosed with Stage IV breat cancer (TN) in June of '11. We have been through 3 different chemotherapy drugs and have no had any luck. This fourth one (Havalan) is our best hope at chemo drugs working, so the doctor's said. With this news yesterday I had to walk out of the room.
Her husband and herself have moved in with me at this point. The reason I am writing tonight is because I am losing hope. Everyone keeps saying just pray, keep the hope alive but I am losing it. I'm angry and I have been lashing out at my boyfriend. I think I may need to find some help but I'm not sure where to turn to. Has anyone else needed to find another route of help? I'm thinking maybe a psychiatrist, but am having trouble finding someone who specializes in cancer caregiver coping.
I guess what I'm really looking for tonight is some words of encouragement. You all seem so strong and I feel as if I'm on the verge of losing it!
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There are oncology psychiatrists that will either help you, or get you what you need. I love this thread as my daughters are my best friends....I didn't know until now that they Could go to these boards for support.
you've inspired me to start another thread...some little footprints that they could read forever...
Thank you. -
Hi Malexandra,
I'm so sorry about your mom. As I write this my mom has slipped into a coma and is expected to pass anytime. She moved in with us in early November and has had 24 caregivers in addition to Hospice. It's been on of the most precious, wonderful and brutal times of my life. As much as I'm devastated to lose her... I'm so grateful for our time together both in our lifetimes and the last few months.
All I can say to you is the anger will subside. You have every right to be angry... but someday you will realize how precious the time you have with your mom is and that you will need support from those around you. You'll channel that anger into determination that your mom has the best care and ultimately you have the best memories. What could surprise you is this experience will probably bring you and your boyfriend and close friends even closer together.
There are so many treatment options for breast cancer. If you are concerned that options aren't working then you may want to seek a second opinion or clinical trial. Or it may be that her oncologist hasn't found the right treatment yet. Everyone's cancer and response to treatment is different. Don't give up hope. You're on a long yet rocky road. My mom's journey took just over 4 years... those years were packed full of quality time with us in spite of chemo or cancer.
The best thing you can do is be strong for your mom... and just be there for her. It sounds like you already are. And also take care of and be good to yourself. Go for walks... find outlets and people you can lean on and talk to... and that includes this forum which I've found to be very helpful. We're all walking in your shoes on some level.
You'll get through this. You'll be strong and will be there for your mom. And we'll be here for you to listen.
I hope this helps you find some encouragement and peace.
Laura
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Idlevy,
I'm so sorry that you have to go through this... this disease is ugly, and doesn't discriminate at all.
Thank you so very much for your kind words. I have felt so alone through all of this, but after reading stories on here, I realize that I'm not alone at all. I just need to find some outlet, like you said, so that the anger will subside. I've lost myself through this mess and need to be right again.
Your story has made me realize I need to start really taking in the time I get to spend with her, to cherish it, instead of walking around so heavy. It doesn't seem like I'm doing anyone any good by being angry... I guess I'm just scared, and the way I know how to release that is to be angry. This sure is a scary thing though.
I, again, am so sorry that you have to go through this too.
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Awesome post, Laura. your words: It's been on of the most precious, wonderful and brutal times of my life - I could not have said it better myself.
Michelle, I totally get where you're coming from too. I am now three months past my parents' deaths and am finally starting to feel semi-normal again. This past weekend, i built an online tribute to them and even though that sounds stupid, it helped me like nothing else has to date - to be able to do this for them. I think we all cope with grief differently and, trust me, i started grieving for my mum the minute we got this last diagnosis in January. These boards can be a huge help to caregivers, as can hospice nurses. You do get through it but it does totally suck.
Hugs to you both, Laura and Michelle.
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Margi,
I do find strength in these boards. I have been grieving for my mother since she received her dx as well. I know that she's still here, but I am slowly starting to accept I have no control over what may happen. I know that it's in God's hands, and this is why we don't make decisions pertaining to death. I know I will get through this.
Hugs back to you. Have a merry Christmas!
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Dear Laura,
I am so sorry to hear about loosing your precious mom. It must be very hard on you. I live in Istanbul, Turkey. I am the only child also. My mother has stage IV breast cancer diagnosed 2 months ago. Bone mets, lungs, lymph nodes and where else we don't know yet. She refuses to get Pet CT done. All her ribs are broken already. She moved in with us 2 months ago. She can not walk anymore and it is so hard to see her melting in front of my eyes. There is no hospice or organization which I can call to get help. All alone in the society. I hope, I will be able to stay strong when times come for me also. My heart is with you and I deeply share your sadness. Love xox
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Soley, I can't imagine what you must be going through. What is your mum using for pain management? With broken ribs, she must have constant pain. One of the things hospice can do for us is help us with pain management and, for my mum, they got her on the fentanyl patch - it was a miracle for us. My mum was virtually pain free 75% of the time because of fentanyl. It made the world of difference for her and she also lost her walking ability. My heart is with you too, Soley - you have a very tough row to hoe right now. Prayers and love for you.
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Margi, I am sorry for your loss, please accept my condolences for your dear mom.!
Thank you for sharing the information on pain reliever. I took note on that. She is not on any kind of pain reliever yet. I think these days are not far though.. I am scared that I will not know what to do when it comes. I am jumping from my bed every time she moves her arm or coughs. I am sleeping in the same room with her now. I am listening her breathing and crying silently under my cover. I just don't want to lose her..
Lots of love xox
Soley
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Wow
This is my very first post, I'm so glad I found this forum. My mother was diagnosed 10 years ago with stage 2 BC and she beat it..or so we though. Stupid FDA advisement that after 5 years I believe they should be taken off Tomoxifen signed her death sentence. At 7 years she was taken off the drug...within months the cancer was growing again. She now is deemed terminal. It is growing in her bones, her hips, ribs, and spine. It caused a crack in her C4 neck bone which had to be "spot welded" recently with radioation. She is in intense pain..and is on Adrimyacin..that horrid chemo..because it helps fight the cancer back purely for pain purposes. She's on loratab and takes ibuprofin. I hate watching her slowly die and she was diagnosed originally at age 47, I'm 36 with 3 small kids...and wonder how long do I have with my own kids? I"m so sorry all of our mothers have to have this dreaded disease. I hope to learn more about it as I feel with the other cancers that extended family have on her side...I'm a pretty high risk. -
Hi. I'm so glad to have found this post. I am also the only daughter of a single mother and we have been living together since always. I don't want to be anywhere far from her and having to work everyday while she's in the hospital is killing me.
My mother was diagnosed with Stage I BC last Jan 2010, mastectomy with no mets last Jan 2011 and did NOT go through chemo even after so many angry arguments and confrontations that I've had with her. Last Dec. 2011, she was suffering from severe periodontitis that spread to her sinuses and is still present til today.
Yesterday she had a bone scan and my worst fears were realized when we saw bone mets everywhere. The spots are a bit small I guess but they're in her feet, knees, elbow, spine, ribs, and head. It's very scary and I'm at a loss right now. I'm feeling very, very scared and I don't want to lose my otherwise healthy mother who is so full of life and my biggest inspiration at such a young age. She just turned 54 last Feb. 2 and I'm turning 25 next month. I am not ready for this and I know that she isn't too.
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It was two years and 8 months ago that my mom was diagnosed with Metastatic breast cancer. Fifteen years ago my mom was first diagnosed with breast cancer, she had a mastectomy done and some chemo and that was it. When in 2009 we found out about the recurrence I was in shock and couldnt believe what had happened. I am the youngest child in the family and I was the only one living with my parents at the time. so I was the one who went to the oncologist with my mom and found out everything. I was scared, I was crying for days and weeks. I used to go to college and just sit in the library and cry. eventually I told my siblings about what was going and so they knew.I can never forget those days... Ever since, my life has changed in so many different ways. In the summer my mom decided to move back to her home country Iran, me and my sister came to Iran to visit our family also, but things got out of control, she was hospitalized a month after we came here and ever since she has been really sick. The doctors dont let her fly so she cant go back to US, but its not just that she wants to be here in Iran. My older sister went back to US , even though my two sisters gave me the option of leaving my mom here with them and going back to US and continuing my education, I insisted that I was not going to leave her. So I stayed.
I have done lots of adjusting in last few years, changed my major few times, and had to give up many things , because I wanted to be beside her. I am currently studying with Harvard Extension School and I convinced my mom that I am not going to be behind in school with my stay in Iran. But I must say I do feel really lonely here, all my school friends have stopped talking to me, they even ignore me completely on FB! In Iran, I cant connect with people and I am mainly at home with my mom , and my sister is at work everyday. But I can handle all that just knowing my mom is happier here.
The main problem though is that, things are getting worsen and worsen... nothing is improving. and that makes me scared... the cancer has spread to her bones, spinal cord, and liver, and lungs. In her brain CT they found something but I am not sure what it is I am taking the results to the doctor today, hopefully its not cancer. Recently she has got really weak, she sleeps most of the time and I think she has a lot of pain but she doesn't say anything.
I feel like if god forbid something does happen to her, I will have so many regrets, because I am not doing any of the things I wanted to do for her. I wanted to travel with her and help her enjoy her life, but here I am doing nothing but sitting next to her. I must say also sometimes I become so moody and I say something mean to her, but then I apologize and I let her know that I didn't mean it.But still it kills me jsut the fact that I have done it. we are really close and I just cant imagine losing her. Every time I lay next to her and tell her " Mom I love you, you are my life" I can see the tears in her eye. I am scared if she is feeling that the time is coming and she is not saying anything. I am scared and sad and I don't know what to do anymore, I feel so helpless.
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ssanie -- I am so sorry you have to go through this. I sit here tonight, my mom lying the hospital bed that hospice provided for us at my home. My mom was diagnosed in June '11 with Stage 4 cancer right out of the gate. We had a positive attitude, but she has rapidly declined over the past month and a half.
Do not have regrets, just try to make the most of the time you have with her now. Talk to her and tell her exactly how you feel. Don't take any moment for granted.
With that said, do not be afraid of the moodiness. Everyone has that, especially with being the primary caregiver to your mom. Everyone needs a outlet. The thing that has helped me the most is seeing a counselor once a week. It's an unbiased opinon and someone to vent to.
One of the things that has been my saving grace has been hospice. I'm not sure if they offer that in Iran, but it has helped my family so much. They help bring in any sort of medical equipment to make her more comfortable, and really walk you through the steps. While it may not be time for it yet, talk to her doctor about your concerns. Even if you need to talk to the doctor one on one, do so. I had to ask a lot of tough questions, but once you know exactly what you are dealing with, things have a way of falling into place.
You will be in my thoughts and prayers. I have been where you are, especially with the helplessness. Ask for help, don't try to take it all on your own. I think you may want to tell your sisters that you need help, and hopefully they will be willing to make some adjustments to help you.
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I needed to bump up this thread. I am very open with my 20 yo daughter but my disease has progressed again. I will be on my third treatment this year soon. For those of you carrying for your Moms, unconditional love says it all. For those who are grieving where can I tell my daughter to turn to when the time comes. Hugs to all of you.
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This is an old thread but i want to talk my heart out. I am heart broken today witha huge spike gone through my heart. My mom's doctors told us to come visit her before she slips into coma. She is confused and weak and my poor mom may be dying. Oh how will i get through this pain. Everything i touch ansd see reminds me of her. It will be impossible to carry on. I should be thinking of my dad but no my thoughts keep wandering around to my mom what she must be feeling as she gets closer and closer to death and then my sister who is older but like my little sister and then me and then my heart and throat hurt so bad that i feel like my breaths will leave me. I am flyiing tonight to see her (US to India). I dont know what to say to her, how to say to her, i dont want to scare her that she is dying. I have always given her strength and now i cant ccry in front of her. do i want to take pictures of her and me but not like this. I dont want to remember her like this.we never talked about her death because it was too painful, none of us, neither did we let her talk so i dont know what she wants, how she wants to die and where. she stopped talking to us months ago because of the irritating cough. I hate that motherfucking cough.oh mama, i love you so much, please dont go.
how do people go through this, this is so painful
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Oh Sarika, I am so sorry and I feel your pain. My mother passed 23 years ago. If this is her time, please believe it does get easier as time goes on. I went from crying every day for months, to just being sad and now just missing her and remembering our time together. Don't drive yourself crazy about what could/should be. Take it from a mother, she would just want to hear "I love you" and would want you to continue on with your life. Moms are like that. You will get through this, I promise, even though it doesn't seem like that right now. My best to you.
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sarika --
I know your pain all too well. I lost my mom to cancer on 2/28 of this year. She died exactly 9 months from the date of her diagnosis. It was the hardest thing I ever had to go through, and am still dealing with the aftermath. Losing my mom has taught me that you really cannot blink, or you will miss it all.
All the things you are feeling are warranted. I had moved my mother into my home when she started treatment. To see her everyday and watch her steady decline hurt me to my core. There are still days that I cannot get out of bed because I have a memory of her, while she was sick. What I can tell you is those memories start to go away. I still refuse to look at pictures of my mother when she was sick, and choose only to look at photographs of happier times. I have been told by many people that the good memories will surface eventually... I pray for those memories to flood sometime soon.
Be with your mom and tell her every chance you get that you love her. The day my mom passed away in my home, she came to for a little bit. She said she was hungry, but didn't eat. I crouched down in front of her and told her that I loved her, and she said she loved me to. Then she said the wanted "to go home". I knew what was coming next. She laid back down and the hospice nurse came in and said it wouldn't be long. I, myself, could not be there when she passed. I stayed at a friends home, but she was surrounded by so many people that loved her, and I knew she would understand that I just couldn't see her take her last breath. Cherish every moment you have with your mom... They say the last sense to go is hearing, so I'm sure just your voice will bring her comfort. We played a movie that my mom adored in the background, just so she would be comfortable.
There is nothing anyone can do or say to make you feel any better. It will take a very long time to recover. The pain becomes a bit more managable, or so I'm told. I have days when I can't get out of bed, when the pain is so excrutiating that it takes everything in me not to just scream and be angry. It will take your breath away... It will catch you off guard. You just have to remember that you are all that you are, because of everyday you were blessed to be in her prescence... You will have to be a testament of her strength and persevere through this traumatic time.
"You can shed tears that she is gone,
or you can smile because she has lived.
You can close your eyes and pray that she'll come back,
or you can open your eyes and see all she's left.
Your heart can be empty because you can't see her,
or you can be full of the love you shared.
You can turn your back on tomorrow and live yesterday,
or you can be happy for tomorrow because of yesterday.
You can remember her only that she is gone,
or you can cherish her memory and let it live on.
You can cry and close your mind,
be empty and turn your back.
Or you can do what she'd want:
smile, open your eyes, love and go on." -
Sarika, I can empathize with you. My mom passed away 12 years ago, I was only 24. Although, I prayed so hard for a miracle for her to live, she passed away and I miss her oh so dearly still. I was able to continue breathing because I realized that she is no longer suffering and boy did she suffer like a warrior. I was able to be there the day before she passed away and I just held her and told her that I love her and how thankful I am that she is my mommy. I (all 3 of her children) also gave her permission to die. I know it sounds strange, but she asked that when the time came that we do this for her. I was the last hold out. I just didn't want to!! Soon after, she passed. The moment she took her last breath, I fell on the floor and pounded my fists and kicked my legs- a good old fashion tantrum. I was in a daze for a while afterwards, until I realized it was purely selfishness and SHE was now ok. I also found peace in the fact that she is, and always will be part of me. Sending you LOVE.
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If I were to cry in front of my mom because she were dying, she would most certainly understand it as an expression of how much I love her. I cried in front of my father. He understood it as love and respect. I cried in front of my fiancee. She also understood.
Eric -
what makes it worse is that last week she was with me here in California. We were trying to get her a very expensive NK cell treatment in Mexico. While thye were growing her cells she got worse and worse with jaundice and ascites and she could hardly walk without support because of balance. I asked her " Mom, if they call you for your cells will you be able to travel to mexico to get them" and she said "Yes I will go". I can NEVER forget this conversation. She had so much strength and willingness to live and she wants to live and i cant do anything for her.
Her NK cells didnt grow and i rushed her back home for symptomatic tx. She has been disappointed with every possible cancer treatment and the helplessness and feeling of defeat in her eyes kills me. My mom a sef made woman of grace and beauty lies so close to death and all i am doing is watch. I wish i could physically fight for her, i would put all what I have.
Thanks for your messages, I will be back to post. I feel a bond with you guys.
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Hello Sarika,
I'm so glad and grateful you have shared your feelings here. When I first created this thread I too was reaching out. What I found was a wonderful network of people who knew exactly what I was going through....
It's been 9 months since my mother passed away. She also slipped into a coma for 10 days prior to her passing. As awful as it is... the coma is the body's way of protecting itself from pain and discomfort. I wrote at the time that it was the most precious yet brutal times of my life. It is excrutiating to witness.. yet there is a peace in knowing that you are there for someone who is so important in your life.
From your writings it is apparent both you and your mother have done everything possible. Cancer can be a horrible losing battle. I felt horrible and guilty that I couldn't help my mom phyically fight the disease. But I now feel a sense of peace and know that I did do everything I could to make her last days happy - and that is what you will remember later.
Know that whatever you say or do when you are with your mom will be the right thing to do... just being there is all she will want. Anything beyond that... just do whatever makes you the most comfortable. Just go where your heart takes you. If you cry... cry... If you want photos.. take photos. If there are unspoken words between you... speak them. You will be the one later with the memories and the one who needs to heal and be comforted. Be good to yourself and please let us know how you are doing. We will be here to listen whenever you need an ear.
Sending you support and hugs,
Laura
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- 101 Family and Family Planning Matters
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- 26 Furry friends
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- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
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- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
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- 586 Alternative Medicine
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- 775 Diagnosed and Waiting for Test Results
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- 50 Immunotherapy - Before, During, and After
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- 591 Pain
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- 109 Welcome to Breastcancer.org
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