New York, New York
Comments
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BigApple09...
AMEN!
Well stated!
God Bless!
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Thanks, Biggie. Have you considered taking over the Oprah show slot when she gives it up? You could/should give Tyra and Wendy Williams some competition!
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Sweaty:
I so would, but I don't think anyone is interested in watching a peppy middle aged lawyer.
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Wendy..
Well said...
See you on the 13th..
Hugs,
Francine
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Well, don't know if I'll be there on the 13th. Everything here is still up in the air. Geesh, you think something would be easy.....................If I don't make it, have a great time.
Sweaty- sorry things haven't worked out better. Some of it is still too early to tell, tissue has to decrease swelling, heal etc.
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Wendy -- Wise thoughts on the subject of second-guessing. I think it's natural, actually, and in spite of what I wrote above I certainly did a lot of that in the beginning... so maybe I'm coming from a different place now. I do agree you have to feel what you feel.
Sweaty -- Hopefully, you can mourn the loss and move forward / look ahead. And remember: if you are truly unhappy you can go back and revise (if you are up for that). I agree with Wendy that there is comfort in knowing that the choices we've made now have given us the best chance of staying alive. When I was a girl (heck last year) I never imagined I would someday lose a breast ... but now that I have and I am still alive to tell the tale, I'm okay with that. It isn't the story of my life I wanted to tell. But it's the story I'm stuck with. So I am making the best of it. That is me. That doesn't have to be you. Do what gives you comfort.
Lilah
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Lilah -
I didn't have a mastectomy, so I consciously didn't make the choice which gave me the best chance of staying alive. I decided to live with a fairly high recurrence rate in order to keep my body as intact and "normal" as possible. I still get to deal with the recurrence risk, but things aren't looking so "normal" anymore.
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Sweaty - given that you are stage 0 and not invasive, I have to say I would have made the choice you made if I'd had your pathology. Did you have any nodes (sorry I can't remember if you posted that info). I had two lumpectomies before I chose the unilateral MX. After the second lumpectomy my right breast looked mangled. I would have kept it in all it's ugliness if I could have. But there was till one close margin so more surgery was required and because of the IDC I felt I had to do the MX. Now I worry occasionally about having kept the "healthy" one (which will be lifted and reduced when I have my exchange). But I'm hoping I made the right decision there. We all make the best choices we can in the moment... with really limited knowledge (no matter how much we read or educate ourselves in the five seconds we get to do that before a decision must be made).
Lilah
Lilah
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Lilah -
No, there was no mucking about with my nodes.
I took almost six months to make my decision.
My healthy, lifted and reduced breast is the one that's really mangled.
I posted what I did because you kept emphasizing that we make the choices giving us the best chance of staying alive. I don't entirely relate to that statement, and certainly not to having made my choices in a rush.
With a pissant level of disease, I'm really angry about the level of permanent damage. I did THIS to myself? For THAT? But yeah, I did it because I wanted to try and avoid a slow, painful death. If I could have left myself alone and been dead in a week or two, I might well have chosen that.
I'm just pissed off. Mega. And I don't know what sort of hell rads and Tamox will be.
To change the subject - what's going on, Flash?
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sweaty you are entitled to your feelings.
I will say, I get some peace from the wide margins that surgery allows. I feel like I got a little extra protection over a traditional lumpectomy.
In my experience the cancer and non cancer breasts are healing at a different rate. The scars fade during rads on the cancer side. I used some scar fade on the healthy side.
I did feel a bit freaked out at times, alienated is the best word.
I did start a thread for this procedure I will bump it for you.
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well, going to try again for pet/ct on wed. Geesh, if another snow storm stops it, I think I'll scream. Hopfully, this one pet/ct will be enough and we can get this show on the road. Getting really, reallly annoyed with PT that does nothing. sigh... who would ever think you'd want back surgery and willingly affect your whole life with a year of recuperation. Yup, I think I'm ready for it. the cons no longer scare me, just want to finally be myself.
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Keeping my fingers crossed for you Flash, that you can get into the city and get that scan done!
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Flash...looks like we won't get a good dumping of snow this week for a change, so you should be good to go....of course, the city is on a fault line and....oh never mind!
You will get there!!! Fingers crossed!
Best of luck and God BLess!
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Hey, NY gals... I probably should have introduced myself before now but I was dxed with DCIS in late November and had my lumpectomy (AND biopsy in second spot of the same breast, aargh) yesterday at Columbia-Presbyterian. I think the procedure went well and I feel a lot better than I thought I would, one day out. Now I just have the miserable wait for results. When I made my follow-up appt today for next week it was "fun" to note how blase and unsympathetic the person was on the phone, warning me that even more than 7 days out they might not have the results. Really made me miss my days in Baltimore and upstate NY.
If you get together on March 13 I would like to come if it's all right. Always happy to go to a bar.
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Hi Kitchenwitch,
Nice to meet you on the boards but it will be better to meet you in person on the 13th. We are a fun group of women if I do say so myself and the more the merrier!
We all hate the waiting game so you might as well have some fun while you wait (of course valium is always good for the anxiety part of waiting
)
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Checking into say that the shit has really hit the fan with my mom, she was admitted to the hospital during last week's blizzard and I'm not sure if she's going home, to rehab, to a nursing home, whether she'll be evicted or not, etc etc etc. So I'm dealing with that crappy situation. Hopefully I'll still make the gtg, Lord knows I need a drink, but there's a chance I'll be a no show. I'll see what happens.
I've been staying at my mom's a lot, trying to clean out her apartment. If she loses posessession, well, hopefully I'll find any important papers first. And if she goes home, that place needs to be stripped bare and given a fresh start Her housing court date is the 15th, so I have a lot of work to do.
Does the drama ever end??????? Meeting with oncologist today to discuss Bottle O'Tamoxifen (how very St. Paddy's Day). With my known ADH and LCIS, coupled with my stress level and resultant bad eating habits, I'm thinking I'd better swallow the pill.
Glad to hear things went reasonably well, Kitch!
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Thanks, Omaha - hope to see you all on the 13th. You do seem like a terrific group.
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Welcome Kitch!
Look forward to seeing you on the 13th....we'll be the rowdy foxy group!
God BLess!
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Momster wins another round, she went AWOL from the hospital today. She'd had enough, walked out the door and went home. I soooo need a drink. Several drinks. In fact, there isn't enough intravenous Bloody Mary in the world....
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Hi Ladies,
Oh Sweaty.. do hope you work things out with your mother. I can see how difficult things must be for you. Feel free to vent here anytime.
Welcome Kitch.. looking forward to seeing you on the 13..Yes we have all played the waiting game.This is a fun group of ladies..
Flash..how are you doing. Any results..a date for your surgery?
I had a bad time last week. At a routine checkup with my BS on Tuesday she felt something in my lifted breast which she thought to be fatty necrosis or scar tissue but asked me to have a mamogram and a ultrasound to be sure. Well the folks at the hospital did some job on me with the mamo( squeeze. squeeze ) and then the ultrasound. They felt I needed a biopsy to be sure. Well I walked out and called the BS and asked her if she could do the biopsy immediately. She said yes ..even though she did not have office hours. She tried to reassure me that all would be fine but one never knows. She was just so compassionate to me .We flew to Florida on Thursday just before the snowstorm hit and did not get the results till Friday morning. B9 , B9. what a load off my chest..but it was quite a difficult week. Worst since my DX over a year ago.Happy to report the good news to all.
See all in a week,
Hugs,
Francine
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Francine -- so glad to hear it was benign! I can imagine the agony of it all.
Lilah
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Francine!!! So good to hear B9!!!! Sorry you had to go through that....but the operative word is
B9!!
Ladies....time for a head count for our GTG next weekend! Can you please reply here as to whether or not you will join us, and then PM me your cell phone so that we can connect Saturday if you/we have any issues.
Looking to see as many of you as possible next Saturday!
God Bless!
PS...don't forget to wear your green! Ha!
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Francine thank goodness for those boringly B9 pathology reports >>>hugs<<<
Yes to the GTG on Saturday.
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Yes. Angel.
I too will be there next Saturday.
Francine
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Angel,
Change in plans I won't be able to make next Sat. I'll try for the next one
Enjoy and Happy Patricks day.
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Well,
Had Pet/CT on wed. Have to go in tomorrow to pick up the disk. We'll see if it has enough info for the spine guy or if I have to go for another CT of just the lumar area. The wheels are moving very slowly forward. First I have to get results of Pet/CT and make sure I'm still NED.
Fran- Wow, it never ends, does it. Hugs to you.
Francine- Phew!!!!!!!! Love that NED. He's a great fellow.
Won't see you next Saturday but I'll be thinking of you folks.
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What time is the gtg? Day or evening? I can't remember.
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I am planning on attending Saturday. Looking forward to meeting everyone.
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Hi All1
This is an afternoon GTG! 1 PM! Cookie Gal...can you post that on top?
Flash...so sorry this is going so slowly....patience is such a necessity with all of this but crud....so sorry it is taking so long. We will miss seeing you, too!
Bonnie Jean! Welcome to our group! Look forward to meeting you this Saturday!
ERIN GO BRAGH!
God Bless!
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Crap. If it's afternoon I doubt I'll be able to make it. I'm most likely going to have to work this Sat. Maybe I'll phone and come up there afterwards if you're still hanging around. Will PM you.
Got my tattoos yesterday. Weird.
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