New York, New York

Survivorwoman

Anyone wants to meet up?

GraceBer

Hi all,

The moderators kindly provided me a link to this thread. I live in the city (Astoria, specifically) and my first need I had when finding out that my lump was cancer this afternoon was to find others in area to talk to. I have so many questions, but right now they're just all jumbled up in my head as I'm still in shock.

MsRockyG

Hey Everyone! I don't mind meeting up. I probably need someone to talk to in person or just to get out the house for a little while, so I can stop thinking...lol.

I live in Manhattan - East Harlem. Where & when do you guys usually meet?

GraceBer

MsRocky - I'd be happy to meet up. Although, we've been just been diagnosed and it would be the blind-leading-the-blind, we can at least be some support for each other and share our experiences and resources.

Shari0707

new yorker here.. finished active treatment in June.. on tamoxifen now.. always willing to talk and/or meet up.

MsRockyG

Mornings are good for me after I drop off the kiddies. But I am pretty much flexible to meet anytime or day of the week. What your schedules like? Do you have any places in mind?

Survivorwoman

Hi Ms Rocky , Hello Shari: Welcome to the New York group! We don't have regular meetings or specific time. We just get together as we like when we feel the need for it. If you are looking for regular meetings, I very much recommend the Share meetings that are on Tuesdays near Times Square. http://www.sharecancersupport.org/share-new/support/groups/#breast there is one coming up on December 3rd. It is for Young Survivors. If you ladies go, please tell Lisa and Catherine that Katia says hi and that I told you about them . Both ladies are really great!

MsRockyG

Thanks Survivorwoman! Might not be able to go this Tuesday - I have my first appt with the BS. But I will definitely check them out!! And thanks for the link...

Survivorwoman

May I ask, in which hospital do you get treatment?

MsRockyG

Survivorwoman-I have not received treatment yet. I was Just Dx Monday (11/25) after a Biopsy on 11/22. My hospital is Mt. Sinai ( Dubin Breast Center). But I am also considering a second opinion at Sloan Kettering - depending what the BS says...I'm also considering a Holistic approach (herbs) ?

Survivorwoman

I am sorry that you had join our "club". But fear nothing. You will get through everything. Mount Sinai is one of the best. -- I went to Bellevue/NYU. -- Keep us posted about your pathology. All will be well.

cookiegal

Thanks for chiming in, if you are newly diagnosed I HIGHLY recommend finding a formal support group! I was lucky to find the right fit right away, it was an enormous relief.

When we used to get together it was more of a field trip/ escape vibe, it is uplifting but not a substitute for a real support group.

YSC has a group for under 45's but they have migrated to organizing through meetup.com.

GraceBer

Hi all,

I'm sorry I've abandoned this thread.  I decided to take some time off from online groups because my anxiety was really tearing me apart.   But I'm now post lumpectomy and I received my full pathology yesterday.  Friday is my first appt. with the MO.  Survivorwoman - I'm also getting treatment at NYU.  

I'm still looking into a support group, perhaps this Young Adults Survivors SHARE group is one I should be checking out.  Otherwise, I've been reaching out to a lot of organizations and speaking to a lot of survivor volunteers over the phone.  They've been a godsend. 

Shari0707

I had abandoned BCO for a bit... I go to SHARE, YSC and Mt. Sinai support groups.. Do I know any of you?

lillaura22

Hi - I just found this after I posted another thread looking for women in New York, I'm specifically looking for women in their 30s (as I am 32). I had heard about SHARE, but have not joined yet. Was thinking of doing one of their online visits before committing to a group get together which I think is in a couple months. What are your thoughts on SHARE, are there a lot of women who join for the sessions? What other groups would you recommend trying?

MsRockyG

Shari, I went to the Mt Sinai support group 2 weeks before Christmas.  I believe I met you & Monica.   I was not able to return with the Holidays & my kids schedule.  I went away for New Years because I was starting chemo on Jan 6; & I had the Port placed on Jan 2.  Hopefully I will feel strong enough to return soon.  That first round of chemo rocked my big self...lol.   

Shari0707

lillaura22- I am 32 years old as well.. YSC is the place for young ones but I actually like some of the other groups better.  SHARE  has a young survivors group but it doesnt have a huge turnout so they had gotten rid of it and may b starting it up again.

MsRockyG-- why am I drawing a blank? need to know ur real name.. come back as soon as you can!

Shari0707

lillaura private message me if you want

MsRockyG

@Shar, Raquel Gonzalez is my real name.  Remember when Monica kept calling me Rocky?  I was only there once.  Glasses, heavy set, 42 y/o, Puerto Rican - ring any bells?  I think I was there the week before Christmas?  I'll try to come back in 2 weeks.  Next Monday 1/27 is my 2nd treatment, so I will probably not be up to Group...(Look at my Avatar)

Shari0707

I remember you! Ms. Rocky.. Hope ur well. Come back when u can.. How's the family 

MsRockyG

Hey Shari, glad you remember me!  lol.  Tell the ladies hopefully I'll get a chance to see them the Monday after next week.  I have my second chemo on  Monday - 27th.  The family is good, but they are having a hard time with the hair loss.  I bought 2 wigs and some head wraps & turbins - the turbins & head wraps actually look better on me than the wigs.  I'm not worried about my hair - its the pain I don't like....

lightandwind

I think this conference is in your area if anyone is interested. 

http://www.breastcanceroptions.org/complementary_m...

juneping

i would like for a meet up if there's one. didn't realize there's one for meetup..

UES / East Harlem...early 40s...

cookiegal

listen if some of you want to start a new thread...it is all good. I am out of the field trip game, but we did gave fun.