Does anyone besides me hate the holidays?

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited December 2009
    I would say your libido issue is in your woo-hoo, not your head! Wink
  • sbmolee
    sbmolee Member Posts: 1,085
    edited December 2009

    Libido is impacted by lots...medication, stress, worry, etc.  I agree with kmccraw423 - how could your libido NOT be affected by all you have gone through!  Hang in there.

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited December 2009

    Libido is affected by many things, physical, mental and emotional.  One of the biggest impactors on your libido is your doctor's attitude! 

  • mumito
    mumito Member Posts: 4,562
    edited December 2009

    I don't even know what a Libido is any more.

    Ya HOO xmas is over now we can relax.

  • eastender
    eastender Member Posts: 29
    edited December 2009

    Thanks ladies for your input...I will be down at SCCA today for another mri on the brain this time!  I am going to see if I can catch Martha or Heidi her RN.  I want to show my S/O  your replaies, but then that will be another fight and I am not up for those anymore. Happy Monday.  Karen

  • GramE
    GramE Member Posts: 5,056
    edited December 2009

    And I am resolving NOT to make any New Year's resolutions ....  !!!!! (edited to correct spelling, maybe that should be my resolution?)

  • 3katz
    3katz Member Posts: 1,264
    edited December 2009

    Libido . . . what's libido? Sigh! Just another lovely side effect. That and getting old sucks!! Yay Christmas is over - we took our tree down yesterday. I have been guilted into having a party on New Year's Eve. Why do I sucumb to that?? We have had parties on and off throughout the years. Why can't anyone else host? Either I host or there is no party. WTF?

    Elizabeth - how is your visit going? I hope you were able to make it and that your cold went away.

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited December 2009

    3katz, I've been tempted to stop picking up the ball with keeping in contact with some of my friends over the years.  Maybe you should just not host and when anyone asks why there wasn't a party just say you were too tired, or too sick, or too old, or too something to host a party this year and no one else knows how! Either you'll get a chuckle or someone else will step up to the plate. 

    eastender--hope the test goes well--I'm claustrophobic and would never even attempt to get into an MRI machine.  Maybe you should take a copy of our posts and just hand them to the doc and ask her opinion?  You wouldn't have to fight anything and he message would get across, hopefully. 

    lefty-I made a resolution many years ago to stop making resolutions.  Haven't broken it yet!  

  • konakat
    konakat Member Posts: 6,085
    edited December 2009

    Hi all --  It was wonderful seeing my b/f -- simply wonderful.  Let your imagination run wild and it will still be too tame for my weekend. Tongue out

    But my cold got worse -- I feel like crap.  AND, I not only forgot to take my dose Effexor before leaving, I forgot to pack it too!  The withdrawal SE's kicked in on the way back -- bawling my eyes out interspersed with road rage (I OWN the left lane -- get the f*ck out of my way!). 

    I also brought back some more of my belongings and finally "imported" my car -- bought in Canada but they still have stupid paperwork.  I don't think referring to the border control officer as the "little girl in the box" expedited the process (more Effexor withdrawal rage).  She looked 12!!  And was too f-ing chipper and cute!  B*tch.  BTW -- the American border guy was a hottie -- fantasies of him being Santa's young buff grandson and me the naughty elf caught smuggling in Canadian maple syrup...

    Anyhoo, I miss my b/f.  We do talk on the phone 2x a day but it's just not the same thing.  I'm heading back in mid-January, can't wait.  Of course he's doing fine -- which I should be happy about, but part of me wants him to be as miserable as I am.  I was happy to come home to my cat though...

    New Year's -- blech. I'll be alone with my cat feeling sorry for myself.  But oh, oh, I get to look forward to having my stupid port put in Jan 5.  Oh, oh, chemo Jan 8.  Oh, oh, results from all my scans and echo.  Whoopie!  I've avoided the port too long -- no good veins anymore in my arm so I have no choice.  I don't want it.  But that's another story...  Cry

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited December 2009

    konakat--I'm glad you got a visit in with your BF.  I'm sure phone calls are nowhere near as good as actually see him.  Too bad effexor withdrawal made the trip back more stressful than necessary. It sounds like you're New Year is going to start out with something less than a bang.  It's so hard in the treatment phase, you don't have any control over your own life anymore.  I remember feeling like the radiation center staff thought they owned my body and my sole purpose in life was to make sure my left boob was in their waiting room whenever they wanted it there.  Does your doc know you don't really want a port?  Did your doc discuss any options?  I go through my yearly torture of mammogram, poke & prod the remaining boob sessions, shots and pills sessions all in the first week of January every year.  I use more xanax in that one week then I usually use in a month. If you don't have a prescription for something like that you might want to talk to your doc about getting something.  

    All this stuff takes a lot of the fun out of the holiday season, doesn't it?   

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited December 2009

    Ah Elizabeth...at least you ended the year with a bang!!! More than I can say for myself...sigh. Embarassed

    Friends-with-benefits are usually better than bf's anyway.

  • konakat
    konakat Member Posts: 6,085
    edited December 2009

    Unfortunately my veins are fried -- I refer to myself as a chemo junkie ho (no offense meant to junkies and/or ho's) -- I have been getting IV chemo (and/or herceptin) at least every 3rd week for over 2.5 years. No break.  Jan will be my 14th straight month of chemo (taxol then gemzar).  Ugh.  I'm thrilled if it only takes 2 sticks to get an IV started (my record is 5 tries), or only 3 times to draw some blood for my labs.

    I've resisted getting a port for over a year, now I gotta.  I'm worried about infection from the on-going, endless chemo.  I'm a big baby, I admit it!  I know my onc wouldn't have me do it if it wasn't safe, I'm just being paranoid...  He knows how I feel.  I could get a Picc line put in but it would only postpone the inevitable.  It would drive me nuts too -- and my cat would probably think it is a new cat toy and attack it in my sleep.

    Now that Effexor and chocolate cheesecake are coursing through my veins I feel a bit better.  The combo of a wicked cold, holidays, port, b/f withdrawal are the ingredients for a massive self-pity party. 

    Haha Barbe -- by "bang" do you mean excitement in general or that I got "banged" in Boston?  hehehe.  I'm kinda lonely without a permanent fixture of a male in my life.  Yeah, sucky attitude.  Gotta concentrate on friends who would like to get rid of their hubbies or wish they were single...But when you feel like hell, it would be nice to have someone around.... <- more whiny self-pity.

    Yeah -- it does seem that we don't own our bodies anymore -- we have a new "normal".  Sigh...

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited December 2009
    Elizabeth, don't assume tht having someone around makes it easier! Sometimes I just gotta be ugly....Yell
  • konakat
    konakat Member Posts: 6,085
    edited December 2009

    Yah, I know -- some women here are putting up with jerks.  I want one of the nice hubbies/partners!  I'm tired of doing everything myself -- my apt is a mess, I unpacked boxes and have nothing to store my crap in!  I'm gonna start tossing stuff out, I can't stand the mess.

    I'm thinking of cancelling my port placement on Tues -- screw 'em for now -- the nurses can keep digging around for a vein.  Ports freak me out. I have a cold, didn't get a neupogin shot with my chemo, I'm scared I'll get an infection and that will be that!  I've emailed my sister about it, I'm gonna ask on the stage iv board about cancelling, if I'm being a paranoid idiot or not...

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited December 2009

    konakat--if you don't feel comfortable getting a port, DON'T!   If you are afraid of getting an infection, cancel and talk to your onc about it.  Have a consult appointment set up with the surgeon who will be putting in the port, explain your fears, hear what can/will be done to prevent infection.  We (as in all patients) have the right to know who is going to be performing a procedure, thier credentials, their rate of complications, the infection rate at the hospital/facility where the procedure will take place, yet usually we are just given a place, date and time, and never even meet the doctor.  Assuming it even is a doctor performing the procedure and not a PA or someone like that.  If you go into a procedure feeling frightened or unsure you are only going to have a harder time coping, more  pain, and and increased risk of complications--including infection.  Demand to be treated like a person, a human being, and not a peice of machinery on an assembly line. 

    Is there a reason you didn't get neupogen this last time?  

  • wendybird
    wendybird Member Posts: 8
    edited December 2009

    I was diagnosed the Monday before Christmas.  I never got to finish my last minute Christmas shopping and I forgot to send out my Christmas cards.  Then my Christmas was a nightmare.  My family stared at me all day and want to talk about my diagnosis which always ended with me and my mother in tears.   It has been over a week now, but I still cry every day.  I know that it will only get worst and I just want to wake up from this nightmare.

     The Holidays suck! 

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited December 2009

    wendybird--I'm so sorry you've joined this club, and the time absolutely sucks out loud!  I cired every day for months and only stopped because I was exhausted emotionally and from radiation.  I remember just how dark and horrible the time right after diagnosis is.  It does, eventually, get better.  It will get better when you've had all the consults and have a treatment plan.  Then it starts to feel like you are doing something.  Did you have a lumpectomy or mastectomy? 

  • wendybird
    wendybird Member Posts: 8
    edited December 2009

    Thanks NativeMainer.  My biopsy was negative, so they did a lumpectomy for the mass and took a duct.  During my surgery follow up I found out that the pathology report came back as cancer.  I eventually have to go back for them to take out "the margins" but in the meantime I have a bunch of testing scheduled for 2010.  The hardest part is that all three doctors (OB/GYN, radiologist, breast surgeon) told me not to worry and that they were 99% sure that it was a non-cancerous papoloma due to my age, 28.  I was totally unprepared and taken off guard.  It still feels unreal.

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited December 2009

    Oh, boy that's a hard way to go.  One of the reason's I have a hard time beleiving anything the docs tell me is that my Dad died of a stomach cancer the doctor was 99.9% sure was not stomach cancer, just irritation.  By telling us not to worry they just set us up for a bigger shock later.  It will feel unreal for a while.  Then it will go back and forth between seeming unreal and totally overwhelming.  Stock up on kleenex, tell the freinds who will be supportive and helpful, and keep in touch here.

    Make sure you get some sleep every night.  Don't be shy about getting a prescription from one of your docs if you need help getting to sleep or staying asleep.  Sleep loss makes every thing else so much harder to cope with.  

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