1st Ta Ta Sisterhood Reunion in Vegas

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  • sftfemme65
    sftfemme65
    edited November 2009

    MISS YOU TRACEY!!!!

    How awesome if some of us could go on that cruise!  It would be fun fun fun....not to mention warm!  I love the ports.  I want to swim with the dolphins lol. 

    Sandy Im glad you and Janet found me!

    Teresa

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  • firstmate
    firstmate
    edited November 2009

    packergirl,

    I am so, so sorry about the loss of your dear friend!  Hopefully you have lots a pictures to bring back all those golden memories!

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  • Laceyk
    Laceyk
    edited November 2009

    Sorry to hear about your friend Packergirl.  I have lost 2 in the past month.  I am going through chemo (tx #2).  I am so tired of being grounded.  I live in Alaska and there is not much support here.  I would love to get together with some of my fellow BC survivors.  Just missed the Vegas Trip.  I hear there is a cruise in May.  Is anyone going?  Let me know.  PLEASE.  I feel alone in all of this and some type of get together and fun would be great medicine for me.............I am more than willing assist in planning something.   I need support now!  Please let me know if you hear of anything coming up, or if you need help in planning something.  Thanks everyone for the kind welcome!Embarassed

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  • MooreTennis
    MooreTennis
    edited November 2009

    Laura -  I posted this on the EC thread too - count me in for the slumber pary.

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  • Laceyk
    Laceyk
    edited November 2009

    Estepp,   What are the dates for the Feb 2010 sleepover in KC?

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  • SusieZeeMears
    SusieZeeMears
    edited November 2009

    I can't believe how much we are all going thru either personaliy or our friends & family. It is soooo awesome that we all pull together with Love/Support/hugs/phone calls/e-mails/slumber parties :)

    Thank you all for your concern for the lost of my friend & my Heart goes out to all of you going thru it to. 0:)  Healing power prayers to those healing from surgery & those getting ready.

    I'm so upset about the post of the woman faking BC-I've got 3 friends who just found out that they might have BC & the fears going on in their minds along with not having insurance-it's hard enough to get other's to click on the free mamograms,then to hear this lady pull this. No wonder some won't give this cause a 2nd thought-be it free or out of their pocket.!!!! ARG

    Sorry it's been awhile for me to post-I've made it this far with one week left. It is getting harder, the pain has increased & the hernia grew 3x's it's size.The emotomia is larger too & belly button  moved south again.  It's one day at a time right now & I'm praying I make it to the surgery date, better for both the surgeon & myself on surgery going well & my healing faster. Was told I'm facing a possibility of a bag again-depends on how bad things are inside & surgeon won't know till he get's there.So..........along with that news, my Onc now want's me to see another specialist, only this time a immune one. The disease specialist couldn't figure out why my body keeps getting these infections. Neither my Onc nor myself wnat to do another IVIG till we know for sure that they are helping-very expensive..around 8-9 thousand dollars for the day!!! I need to get this surgery out of the way & then see the Immune Specialist.  Sorry if I repeated myself

    I love you all & miss you terribly   At least I can read here, go back to our photos(girls-get yours downloaded!!!) & relieve "I WILL SURVIVE" watching us dance our hearts out!!!!

    Take care  Chow  XOXO Susie

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  • firstmate
    firstmate
    edited November 2009

    LaceyK,

    Alaska is far away, and I am sure you can feel quite isolated as you go through your treatment.  Feel free to PM me anytime you need to chat!  Please join us on any of the get-togethers.  The Vegas trip was such a phenomenal event, I will go anywhere to meet us with this group of wonderful women!

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  • firstmate
    firstmate
    edited November 2009

    Susie,

    I am so, so sorry that you are having so much difficulty with your health.  Your are such a sweet lady and have had to deal with so much this last year.  Hang in there!  I am sending healing vibes your way!

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  • Laceyk
    Laceyk
    edited November 2009
    1. Thanks FirstMate.  I really wish there was some type of a get together to look forward too! 
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  • SusieZeeMears
    SusieZeeMears
    edited November 2009

    Jazzy-did you see what I did??!!!!!!! OMGOSH-I got a photo of myself!!! Now all I got to do is figure out how I did that??!!  LOL LOL  I'm soooo proud of me, you proud of me too??!! HA HA

    Thank you Robin  XOXOXO

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  • kjbell
    kjbell
    edited November 2009

    Susie-Conrgrats! When you figure out what you did, tell me how to do it...lol! It is a beautiful piture of you and Aurora! 

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  • Estepp
    Estepp
    edited November 2009

    You photo challenged girls... killn' me....ROFLOL... but it is fun to watch you get better...hehe.... GREAT pic Susie... :)

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  • Estepp
    Estepp
    edited November 2009

    Ladies..

    Tomorrow morning... Good Morning America...

    Our own.... Dr. Marsha Weiss from BCO.. and Dr. Susan Love will discuss the new " mammogram rules"...grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr

    Please watch... and write GMA.com to SUPPORT who you see fit..

    I leave it to you to watch.

    Let us discuss it tomorrow.

    I personally ... am appalled at the topic...... and I PRAY for Dr. Weiss..

    Watch and respond.

    LOVE

    Laura

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  • Jazzygem
    Jazzygem
    edited November 2009

    YAY SUSIE!!!  LOL  I had to come and log in since I mostly read the posts via email.  LOVE the pic!!  YOU ROCK!

    Wow Laura guess I'll need to watch tomorrow!!

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  • sftfemme65
    sftfemme65
    edited November 2009

    Lacey,

    Im considering the cruise in May.  It looks like a great time.  2 women I know on another board went last year and said it was so much fun


    Teresa

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  • rockwell_girl
    rockwell_girl
    edited November 2009

    Laura I'm shocked they are saying to wait till we are 50

    my case no family history and found 7 clusters at my 1st mamo

     I just posted on another thread about this : (

    ladies please get your 1st mamo at age 35 than 37 than every year after 39

    I wish I would have...

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  • sftfemme65
    sftfemme65
    edited November 2009

    Hey!  Not one post today?  LOL I mean yesterday the 19th or the 18th for that matter.  Tongue out

    Well, I am 2 weeks and 3 days from my exchange!  Im getting excited.  Turned out I didn't get skinner for it, dang it.  But I will just have to keep working on that.  How is everyone doing? 

    Teresa

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  • Jazzygem
    Jazzygem
    edited November 2009

    Don't forget to sign the BCO petition!!!

    http://community.breastcancer.org/forum/110/topic/744011?page=20

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  • firstmate
    firstmate
    edited November 2009

    Well ladies, I spent the last three days packing, moving, and unpacking.  As Laura would say, Grrrrrrrrrrrrr!!!!!   I am trying now to read all the threads and keep up!  I hope everyone is doing well!

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  • Estepp
    Estepp
    edited November 2009

    Robin... now you can sit on your butt and just read these thread over coffee all weekend...:)

    Thanks for the thread Jazzy! How you healing??

    Teresa... go over to EC and get your name up for exchange..... it is getting really CLOSE... waooooooooooo... so far... my boob has not fallen... ::)... so far so good.....

    Also.. I will be out of town  all weekend before... I will be home Sunday night... so... text me with anything you wann say.... or let me know... or to even test me a big.. wahoooooooooooooooooo :)

    I will be at your surgery.... PM me ALL the info... Chemo brain is really messing with me... Pm it all to me.. tell me when I should get there.... whatever you need...:)... and whomever you bring with you... I can go with them to fill your RX for those lovely pain meds.. ( and DR. R. will give you whatever you tell him works the best for you...:) and just hang with them... you tell me what you want.. and I will figure out a way to get there and make it happen....:) I have grandkids that day.. but I am working on getting help here at the house with them.....

    I know Sandy... it is freakin' nuts..., and sooooooooooooooooooooo wrong.

    Komen is NOT NOT NOT supporting it... THANK GOD.. that would have done Komen in 100% for me.....

    So far... only Susan Love and Avon support it...

    BAN THEM BOTH

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  • jancie
    jancie
    edited November 2009

    I know this sounds evil but I hope some Avon lady has the nerve to show her face at my door trying to sell me their products because she surely would hear it from me.  I could have her wanting to run away from my door step within minutes and not even utter one cuss word.

    I threw out my Susan Love book in the trash when it went out this week.  Funny thing was I got it free from a member of my support group here in SLC and never even read it.  Glad I never bothered.

    Just as an update, saw my oncologist today, it has been 5 weeks since I started Tamoxifen.  I don't feel any different than before.  I had already gone into chemo pause so I am not sure if this stuff is working or not.  I did ask for a petscan since I never had one done.  He didn't want to schedule it, said that he normally schedules those when patients have symptoms and asked me if I was trying to get it done because I met my deductible for the year.

    My response "oh no....my cost is only $100 and my husband has the money and will pay for it, I want it for peace of mind and also to have a baseline in case something does happen in the future, we know where we were prior to something happening"

    After INSISTING, I did get him to schedule a Petscan which I will have done in January before I see him next in February.  I had to schedule it around my trip to San Francisco.

    I did mention the "new recommendations".  I could tell he was more than likely inundated with questions from his patients for the past two days so I didn't push him but he did say that he doubted that anyone was really going to listen to the recommendations.  He really didn't want to talk about it but did make some sort of comment "they are running out of money" whatever that means.   I took it to mean the insurance companies are running out of money and are looking at ways to reduce their costs. 

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  • sftfemme65
    sftfemme65
    edited November 2009

    Hi ladies.  I am wide awake in the middle of the night again.  I spent the day running cattle with a friend of mine and her amazing family.  I never had such a good time.  I smelled like cow poo and it was awesome!!  I love the heck out of cows LOL. 

    My surgery is 2 weeks from monday.  Im very excited to get this going.  I see my Onc on monday.  Nervous as usual.  I am going to ask for some scans to be done.  I am 2 years out now and I think I need these done. I have never had a PET.  Should I?  I know they dont want to do them unless you are having symptoms but I dont think I agree with this.  What do you guys think?

    Whats this about Avon supporting these stupid ideas?  I hadn't heard this. 

    I got an interesting letter today from a company that has been hired by my insurance company.  They are telling us that if we have any dependants on our plan, we can have them removed by Dec 21st without getting into trouble.  They will be looking into all dependants covered and verifying.  I personally could care less about them verifying but I was kinda surprised by this.  Maybe your doc is right Jancie and the insurance companies are in trouble. 

    Teresa

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  • FACECRAFTER
    FACECRAFTER
    edited November 2009

    I don't know if anyone realizes this but the radiation form a PET scan is many times more than a CT or an XRay.  And the radiation is spread- an injectible radioactive dye is put into your vein and travels throughout your body.   If they were to find anything, they would use an ultrasound to see it.  My BS at Moffitt Cancer Center said that we need to watch the amount of radiation we receive.  Of course, we would get a PET if it was called for, but I was certainly talked out of getting on routinely, as a baseline.  

    She is aware that I had radiation, and lots of CT and PET scans, but she  said women need to be more aware of the amount of radiation in a PET.   JUDY

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  • SusieZeeMears
    SusieZeeMears
    edited November 2009

    Hey Hey TA TA'S!!

    1st let me say I hope all of you are healing & getting healthy!! Wishing you all a warm & loved filled Thanksgiving!!

    2nd-just where did some of you hear that Avon & Dr. Susan Love were for this?? I haven't read it & would love to. I was just chatting with a friend & she is a Cancer survivor as well,but heard different-just want to find out why. Plus I've heard that when your asked to do a petiton,they need your actual signature, not just your name-so..I want to make sure I get mine where it will help. I along with all of you am outraged-I would not be here if I hadn't found mine myself-the mamaogram just confirmed it!!!!

    3rd-I'll be out for about a week. Checking in tomorrow at 8:30am, at least I get to see Aurora off to school. Starting the wonderful bowel prep today-yeah. Don't know what I'm in for excatly till surgeon get's in there. Bryan will post up dates on FB, perhaps Jazzy...if your up to it-can pass them on to you here??!!

    I love you all & will be in touch soon     HAPPY THANKSGIVING    I'm Thankful for all of you!!!

    Take care  Chow  GOD Bless  XOXO Susie

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  • jancie
    jancie
    edited November 2009

    Judy - thanks for the information on a Petscan.  I have never felt comfortable with the fact that all I got as far as scans in the beginning was a bone scan and a chest x-ray.  I always felt that they should have done a CT or a Petscan to make sure that the cancer hadn't spread to other areas.

    Yes, my lymph nodes were clear but cancer can spread via the blood stream.  So.....I want peace of mind, I want to make sure that I am doing everything medically possible to fight this dreadful disease. I tend to take the more aggressive approach but that I am sure is partly due to my Alpha personality Laughing  I don't plan on having regular Pet/CT scans done, I just want a baseline to begin with, make sure there isn't some stray cancer somewhere else in my body and then if not....wait until I become symptomatic and go from there.  I would much rather catch things earlier versus later.

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  • Estepp
    Estepp
    edited November 2009

    Pets and Ct and Mri... a little bit of radiation each time.... I have had 4 bone scans... 3 Ct's... 2 Mri's of brain.. in 1 1/2 yrs... I will do one more FINAL set in March... then I will ONLY have them if I have a symptom.. too much rads.... :).....

    Susie... Go to GMA.com... this is the show that Susan Love KILLED her career...

    then google "Avon and Mammograms..."

    Teresa... wahoooooooooooooooooooooooo... :) My boobs still lhave not fallin'... it has been four weeks...:)....I look forward to being there to support you !

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  • Linda54
    Linda54
    edited November 2009

    Laura,

    so glad you still have perky foobs...

    just wanted to pop in and say hi to everyone and I hope you all have a blessed Thanksgiving

    I pray that everyone is doing well and hanging in there

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  • FACECRAFTER
    FACECRAFTER
    edited November 2009

    Laura- MRIs and Ultrasounds have no radiation...You can always get them safely and without worry..

    Happy Thanksgiving everyone!!  JUDY

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  • Estepp
    Estepp
    edited November 2009

    REALLY Judy... this was my Onco's reason to NOT do anymore.... hmmmmmmmmmmmmmmmmmmmmm

    I will look into this! Thank you !

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  • Jazzygem
    Jazzygem
    edited November 2009

    WOW LAURA!!  Let us know what you find out!

    I am missing all of my Ta Ta sisters!  I am so dang emotional and sad...thinking it could be my hormones from my hysterectomy and maybe even the anesthesia.  I hope it gets better soon.

    Thinking of Susie today.  Saying prayers for her and her Doctors.  I will post an update when Bryan calls me.

    HUGS to ALL OF YOU!!!

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