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  • sueps
    sueps Member Posts: 2,266
    edited May 2009

    Mel I am glad your back is feeling better... isnt it awful getting up with pain... xxx

    I am like OUCH OUCH OUCH (expletives if you may) each morning I get up...my bones hurt so bad!

    Hahaha I just imagined us then all getting up in the morning ... and it was something like MJackson Thriller LOL xxx 

  • honeygirl
    honeygirl Member Posts: 1,718
    edited May 2009

    Sue , understanding and talking through your feelings , which is what you just did , is a BIG step to change. In my Opinion , and I have that after knowing you here for the last 2 yrs. , I think you are trying the best you can. You have been through sooo much trauma , starting with your mum's passing , and then all the bootface trauma , its gonna take its toll. But you keep going. Some unfortunate people end up in the fetal position on the floor. You my dear , are doing very well. You have a very strong will. And that is your best and worst feature. Because when you get to the "black hole" days , you seem to go into it with all the strengh you have. I say , it you can , you just need some way to vent. Either through exercise , yoga , or talking to a psychologist. I think you will be just fine. You do so well here , and like Makraz says , you rant very well , and we even feel better!

  • honeygirl
    honeygirl Member Posts: 1,718
    edited May 2009

    OH Sue lolololOLOLOLOl! Yes , we are all  the front row of the "zombies" in Thriller!lolololol

  • honeygirl
    honeygirl Member Posts: 1,718
    edited May 2009

    Hereeeeeeeee we go!

  • sueps
    sueps Member Posts: 2,266
    edited May 2009

    Mel ... you are so right ! Oh my thankyou for sorting some of it out... and reassuring me that I do get out of this ... yes I do need to vent ... I will find a way ... I can feel it lol ... it is screaming from within!

     That is my coping mechanism ... adn this is the hard part ... the bit inbetween the running and the venting... I cant wait to level out again!!! 

    No one understands me like you all do... xxxx

    thankyou from my heart xx 

  • sueps
    sueps Member Posts: 2,266
    edited May 2009

    LOL ... can you imagine us all doing this... of course it would be ALL of us.... I CAN !!!!!!! HAHAHAHA 

    I can see it in my head !!! spoof video on you tube ... I can see us now! xxx lol 

  • sueps
    sueps Member Posts: 2,266
    edited May 2009

    I am laughing so much here HAHA ..... 

  • sueps
    sueps Member Posts: 2,266
    edited May 2009
  • honeygirl
    honeygirl Member Posts: 1,718
    edited May 2009

    Me too Sue!lol I swear , I don't think I have ever ment anyone who can put in words what a situation is feeling like , like you do!!! You really do need to write a book , a movie , sitcom , something. your talent is so great. Although , I have cried with you here in fear or saddness , You have given me the greatest belly laughs ever!

  • honeygirl
    honeygirl Member Posts: 1,718
    edited May 2009

    And heres your script,

    It really is!

  • honeygirl
    honeygirl Member Posts: 1,718
    edited May 2009

    Hi ivorymom , hope you got your meds straightened out.

  • geebung
    geebung Member Posts: 1,851
    edited May 2009

    ((((((Sue))))))! I'm sorry you have been feeling down. I'm sending you a great big, warm, bear hug right now. Are you ready? [[[[[[[((((((({{{{{{{Sue}}}}}}})))))))]]]]]]]

  • geebung
    geebung Member Posts: 1,851
    edited May 2009

    Mel - I'm so glad your back is feeling a bit better. Praying that you feel much, much better soon. Gentle bear hugs to you too.

    Jane xoxoxxo

  • honeygirl
    honeygirl Member Posts: 1,718
    edited May 2009

    Aw , Thanks so much Jane. Thats just what I needed! Right back atcha!

  • geebung
    geebung Member Posts: 1,851
    edited May 2009

    Hi Ivorymom and welcome! Sorry you have to be here but so glad you found us.

  • sueps
    sueps Member Posts: 2,266
    edited May 2009

    MEL HAHAHA THANKYOU !!! 

    IVORYMOM lol lol .... thats it we are Zombies... after that yellow brick road we get to dance thriller hahahah

    Oh I wish I lived in America ... I am stuck miles away from my bestest sisters! GRUNT  

  • sueps
    sueps Member Posts: 2,266
    edited May 2009

    Oh thank you Jame ... I feel them bear hugs squashing me  and they sure are warm and full of love !!!   x x x thankyou thankyou heheheh x

  • sueps
    sueps Member Posts: 2,266
    edited May 2009
  • geebung
    geebung Member Posts: 1,851
    edited May 2009

     Love to everyone. My dh is arriving soon. Seems ages since we spent any quality time together - sigh! Hope you all have some happy moments this weekend. xxx

  • geebung
    geebung Member Posts: 1,851
    edited May 2009
  • sueps
    sueps Member Posts: 2,266
    edited May 2009

    Hey Mel you sure have aged on that photo you posted ... my your hair ... what the hell ... its turned white.... I see the anti wrinke cream didnt work neither

  • honeygirl
    honeygirl Member Posts: 1,718
    edited May 2009

    Anytime ivorymom. Some of us have been here for two yrs. or more still venting! Don't mean to scare you , it does get better , but from time to time we all have to just let it all out! And no better place than here , where everyone understands. Like , I am two yrs. out now. And I still get the question from people at work. The "how are you doing"? And its now the hi , how are you , you can just tell by the way they say it and look at you "sideways" , they mean , "has your cancer come back" or like "I can't believe you are still here"! But of course , as Shirlann gave me my best come back , "So far , so good" and I just walk away. Sometimes I would like to say , "you know what , I was actually having a day that I didn't think of bootface , but thanks to you , you've made sure thats not gonna happen"!lol But I have to remember they mean well...

    OK Sue , so you think I look alitte wrinklely in my pic!?! Don't like my white hair huh? Then you should be glad I covered my mouth , cause I lossed all my teeth!lol

  • honeygirl
    honeygirl Member Posts: 1,718
    edited May 2009

    ivorymom , I love that song "its raining men". Deffinately gets me movin' and in a better mood.

  • Makratz
    Makratz Member Posts: 12,678
    edited May 2009

    Hi Mel,  Busy weekend here.  Had a first communion party today, soccer, sleepovers, etc.  Tomorrow my sister in law graduated from college so that will be an all day event. 

    I am so glad your back is feeling better.  Back pain is the worst!  You guys have been a chatty bunch tonight!  I agree with Mel, Sue, it's a good thing you are getting your feelings out here!  You need to get it out,and we are willing to listen...........so......let us have it!!  I hope you are feeling better!!

    Where is this wrinkley pic of you Mel?? Do I need to search FB??

    Having some reeebs and relaxin', hope you are too!

  • kmccraw423
    kmccraw423 Member Posts: 3,596
    edited May 2009
    Ladies - I hadn't thought about it like being a Zombie -  just felt like I was in a fog, putting one foot in front of the other and going through the process without much thought or feeling.
  • livesstrong
    livesstrong Member Posts: 1,799
    edited May 2009

    My,My, have you all been chatty.

    Mel -thanks so much for helping Sue out yesterday.

    Sue - you need to come here more often to let it all hang out. Wait till UB & I get over there - we'll have a good talk. By the way, I think you might need a med's adjustment.  Please don't stop the pills till you talk to the doctor.  MAKE SURE YOU GO NEXT THURSDAY MISSY!! I want you feeling good when we arrive!

    Love you all,

    AE

  • cloudhowe
    cloudhowe Member Posts: 236
    edited May 2009

    Hi Guys

    Nettie back fom AWAL.

    Been hellish tired, but chemo is over, at least for now! The s/e - sore mouth - I had that a LOT of the time, sore feet and shins, bone pain from the jabs the awful "end problems" - need I say more (?) are diminishing but the FECing fatigue is getting worse, so much that I am struggling to say awake ALL the time. No one can give me an idea of how long I can expect this to last, but I have so much to do, financewise etc that it is putting a real dampner on my life, and my social life - I'm Nettie Van Winkle!!!  Having a snooze in the corner while a band is playing (that was last night, before they work me up, took me home and tucked me up!!)

    Well, I am seeing my Breast Consultant in the morning at 10.30 so if you could spare a prayer for me from across the pond ... Will find out if it's to be a mast or lump. They will do total lymph node removal, thats for definite as is my HER 2 pos status, so I will be on Herceptrin for 18 courses (all day - for a year) def rads too, think about 6 weeks daily as the bootface invaded my wee lymph glands. Might also need more chemo once they have looked at the tumour.

    That is what I definitly know thus far, will know more tomorrow about timings. The surgery hold no fear, I have had great pain in my skeleton through injurry, ruptures disc , scititica (Mel, sweetie, back pain in uber commanding. You have my deepest sympathies. Mines was the vertebra at the very base of the spine, where al the nerves congregate. Sore, sore, sore, sore, sore!!!)

    I went for Chiropracty, which help a lot. expensive, but witin 6 weeks of 2 sessions a week, I was 75% better! Still sore at times because back injuries heal so slowly as there is no blood or oxygen supply. Have you tried chiropracty, it doesn't work for all, but sure did for me. TENS machine to  helped when I was really bad, for  my shoulder too. They are now DIRT cheap. I like to take natural things as much as poss - I have enough poison going through me at the moment!!!

    I was wonderful to see all of your pictures, I've said it before, you have such beautiful children  andit is wonderful to see you all, through the trauma and loooking great. It gives me such hope when you feel that everything that you are has been taken from you.

    Nancy, so glad you dad is much better, Treasure the time you have with him!

    Cathi, laughed like a drain at the pic of Margot giving you a tongue facial, you look like so much fun. How is Margot? Still stealing the show? I was gutted to see that Jacklyn is havign to go through all of this. Al the reassuances that Cervical cancer is usually ralatively minor to no avail. But if she has the spirit of her mum, and the humour, she will come shining through.

    Sweet Sue - hello, hello, hello!! I know the weather has been shite in Scotland too, and I'm feeling the cold at the moment. My poor wee garden plants are dying that I grew from seed in the horrible months post DX.

    I    am loving American Idol, the final 3 were awesome, but wee Chris is so beautiful I just want to stare at him. Think Adam's got to win though. Alison was great. Janis Joplin is one of my all time heros and "Cry Baby" was a filling homage.

    Anyoldhow my dear brethern, my hoover and my fridge have both died today - covered by extended warranties so I  must get on and get them reported before the curtain of weariness decends!!!! Oh God, rains on and my duvet is on the rope.

    Must dash

    Hugs 

    Nettie xxx 

  • my3girls
    my3girls Member Posts: 3,766
    edited May 2009

    Hi Sue....good to see you sister!! I can totally relate to the up and down's...esp..the downs..unfortunately!  I think it can be allot of things...and all of the things you mentioned.

    I have been feeling down lately too..but mostly because, like Cathi..I have been dealing with headaches.

    Sue..are you on any AI's?  I would talk with my doctor about the anti depr. you are on. There are so many different ones..maybe you just need to switch or change your dosage. Sue, don't change your own dosage without consulting your doc. Anti dep..are something you don't want to mess with. How are the boys Sue?? We haven't heard much about your dear little men in awhile!  Any new pics you can share with us?  Thanks for the sweet comment about Olivia..she is a sweet girl..and I sure am going to miss her when she moves!!!

    So..I was off for 2 days...got lots of errands accomplished on Friday..then started to feel tired and not so good Friday night.  I wanted to scrapbook all day on Sat..and woke up with a migraine! I had a pain killer left over from summer...but it hardly helped!! Anyhow..yesterday was a wash...I felt bad all day! Here I am back at work, feel better, but not myself!! I am calling my oc tomorrow. I want off the Arimidex!! Ever since I went on that....I have not been good.  She can put me on the tamox again, that was not so bad...but I don't like this!! How much estrogen blocker do I need?? I don't have ovaries....I am not that overweight. I read, the only other thing that produces estrogen is your adrenal glands...so take me off!

    Done ranting..back to work...

    Barbe..hope you enjoyed your b'day.  Nancy...hope you got your herbs planted.

    xoxo

    Lisa

  • 1Cathi
    1Cathi Member Posts: 1,957
    edited May 2009

    Wow a busy weekend here, everyone chatting away.

    Sue I agree maybe your meds need adjustment,   I know sometimes I need to get something, but I am too darn stubborn. My mom used to take Zoloft as Barbe mentioned it worked wonders for her as she was going through the renal failure and Liver CA.

    Nettie glad to here from you again, yes Margo steals the show every chance she gets, I'll post a picture for you from this weekend.

     My granddaughter Alexcis was over we just had a blast,  we took 2 great bike rides, Saturday we spent most of the day at the beach, it was the first time I went in the water with the new suit, I was so nervous about getting wet and having the suit shift around, but all was perfect it stayed in place -YEAH , it actually clings tighter when wet. The water temp is now 84 degrees  - just perfect for us natives,  we hate cold water.  Alexcis is so proud of herself now because she rides with out the training wheels so it was our first ROAD TRIP.  She road a long way,  we of coarse had to stop for ice cream though.

    Linda I don't know how to describe what I felt about the Farrah story (I didn't know about Ryan either or that her sister died from CA).  I wish as she said that her story WOULD MAKE A DIFFRENCE in CA research and treatments, but it won't.  I am not sure if admire is a good word, but for her to open up and share her journey with the world is something, I cried  a lot , and when she showed her bald head, all that hair she used to have WOW!!!!  The thing I felt so sad about for her was the stupid reporters, all well and good if your in the lime light and healthy - but for gosh sake the woman is dieing, LEAVE HER ALONE!!!  Anyway I though it was very moving and like I said never a real big fan, but I applaud her and appreciate & commend  her sharing such a terrible time in her life. And I hope and pray she finds peace.

    Wishing everyone a WONDERFUL EVENING!!! XOXOXOXOX -Cathi

  • 1Cathi
    1Cathi Member Posts: 1,957
    edited May 2009

    I know those of you on FB have seen these  - sorry for the repeat.

    These were from this weekend.

     

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