Starting Chemo May 2008

sweet dreams randie! I hope things are going well :O)

Maybe we could make a pancake base, and add whatever we want to our batch.  I vote for blueberries.  Lots of 'em.

ranD, how are you feeling today?  Hope that breathing is going okay.

Hugs...

otter 

Angels...Have a safe trip!

Sue, you look amazing...

Randie, you feeling okay? Sure hope to hear from you soon.

Well apparently things were worse than I thought. I started counting how many HF I was having in a day starting last sunday. Today I went in for my herceptin and talk with the doc and I told her how many I was having... 7-12 on the good days. She looked at me shocked and said that was unacceptable to have to deal with for the next 5 years. So now I am on another med to see if it will help any. I'm currently taking 2 tablespoons a day of organic flax seed oil and she added in effexor to  it now. If this one doesn't work she will try another one. They gave me samples of the effexor to test out for 5 weeks. Better than spending the $130 on them and it not working like the other 2 I've tried. The flax seed oil is sold in health food stores in the fridge section. It's named barlean's organic flax oil. The lemonade flavored kind isn't too awful if you mix it with a shot of cranberry juice. If nothing else, it's good for the heart.

Herceptin was uneventful yet again. I think 5 or 6 left to go. Depends on if doc has me stop at the beginning of september or the end.

Anyone heard from rand today?? I tried to call but didn't get much out of the person I talked to. I'm not sure if it was a nurse or not but didn't recognize the name. I pray it's working rand!!!!!!!!!!

Jen and I are meeting next week!

Swingin' by...

Thanks for posting the update, otter.  Now I won't worry too much.  Rest, Randie.

Angels - I'm with you.  We have a jam-packed weekend, starting with me working tomorrow, which I don't normally do.  Then Saturday is the baby shower for my friend who adopted that I am half in charge of - although it was really fun to go shopping tonight with other people's money!  And Sunday Katie has one more gymnastics competition before we take about a 3 month break (not from gymnastics, just competing).  Whew.  I'm tired already. 

Hope everyone has a good weekend!

Thanks for the update ranD.  Glad to hear they are making progress on fixing your leaks, even though it's slow progress.  (I'm glad it doesn't take the tire shop that long to find a leak!)  A 4-foot hose?  Sounds like an astronaut doing a space walk.

Robin, I'm jealous. Jen, I'm jealous.    Take pics.

It's been unusually quiet here (on our May forum)--maybe we've been trying to let ranD get some sleep.  We're on the boat.  Gotta change the oil in both diesel engines and the generator. (Big job--twelve gallons of oil???  Accompanied by lots of cursing, I predict.)

Hugs...

otter 

(otter is speechless)

I was trying to think of something clever but I'm with Otter, speechless. So glad to hear Randie feeling better thanks to the miracle of good drugs! I think we've been quiet so as not to wake her.

Had my appointment yesterday with my PS to review the results of the CT scan. Looks good to go with the diep reconstruction ; however I don't have as much tissue as they would like so there's a possibility the may need to take some muscle. I really don't want that at all. While I was there he took out 160ccs of saline from my expander. God does it feel better. He's trying to decrease the whole that the expander has created. Looks like were trying the week before Memorial or that week. I'll know later next week for sure. Monday is the follow-up mammo from the biopsy scare. Sure hope all goes well or I'm hacking that one off too! 

Beautiful outside, gonna go and plant some flowers. Love you all!

Mary 

Wow to everything since last I was on here...poems, exquisitely fitting and touching quotes from astronauts, and especially good news a while ago from Randie.

Don't know if you recall I said my husband was off this past week.  more on that later.  see otter's reference to predicting lots of cursing...or cussin'.

Listen, I'm sorry I spilled the Rotel queso dip and didn't bring quite enough chips, but I just thought we might need a little spicy/salty to go with our sweet stuff.  I really didn't think that was bad enough to banish me to under the sink, or maybe my breath mints weren't strong enough.  And I know, I know, I should've brought the Tums.

Everyone's poems are beautiful.  Now I feel like I should go back and write a new one!

Rock, quit deleting, I TOLD you I wouldn't be able to remember...  You must be worried about the colposcopy (sp?) and hysteroscopy.  Scanxiety and biopsxiety are part of the alligator wrestling most people don't realize we have to do.  Having to have those AFTER a cancer diagnosis adds a whole new dimension to it.  Not trying to scare you, only trying to say that we know what it's like and we're not gonna tell you "Oh, not to worry, just have a positive attitude"; we are worrying with you.  Unless, however, you are the most remarkable person I've ever met (sort of met) and truly do not feel a shred of "Oh, dear...".  Hope things are going well on the other fronts...talking on couches and all.

Jean, Jean, thank you for the CD!  I haven't had a chance to listen yet; I'm waiting for a private "moment"  in case it renders me a quivering lump.  Your homemade ice cream was great. 

Roxi, did Randie have anything to say about her O2 saturation levels?  Thanks for sending the update; I haven't had the nerve to get on FB again.  Apparently it searched my email for everyone who had ever contacted me, everyone in their contacts from group emails, contacts of contacts, contacts of contacts of contacts, and everyone who ever thought of contacting me or them, and ask them to be my friend.  I feel like a stalker.  Also, I could have given you some fat and skin!  I missed the link to the actual DIEP, I guess, just saw the one of the surgeons.  When we know when it is, we'll start packing and planning our menu.

By the way, (I'm the only one with straight hair, I guess) I prefer rooster head to bed head.  I sleep on both sides, with an occasional stint on my back.  THEREFORE, when I arise from my beauty sleep, all my hair, such as it is, is sticking straight up in the middle of my head.  (I guess I could spray it orange and call it a Mohawk, but I'm Choctaw).  Wait, I forgot Sue has straight hair, too, I think.  Anyway, y'all with the beautiful curly hair...now of THAT, I'm jealous. 

Sue, you DO look gorgeous!  Glad that went well for you and hope you are feeling better every day.

eddie, can you get any of that on youtube?  I'm not sure how to look that up.

otter, want some earplugs?  (Personally, I thought your ShamWow did a good job with the water...maybe it was all drool from....well, you know who sleeps with her mouth open)

Noelle, are you getting enough rest, or do we have to call out the big guns again?

Wow, angels, you've been, are, and will be scootin' around!  Hope it won't wear you out too much.

Karin, YOU RIDE A MOTORCYCLE and I can't even run a Vespa?  I bow before your awesomeness.

Jen, hope work is up and running next week for you.  I've forgotten what kind of birds they were by now, but I wonder what it is that nests that early up there.  Same with (I've forgotten who had) the phoebes.

Cris, how was your baby shower.  Just survived two showers, both for daughters of very, very good friends for whom this will be their first grandchild.  Mama Mia!, huh...I guess I'll just have to rent it.

Kristi, more congrats on Herceptin (was kidding about cooking for them!), AND the wonderful news about your daughter's softball and college offer.  (I, of course, think she should go to The University of Texas )  Keep us posted on the playoff places if they keep going, but of course if you have more time during club play, we'd have more time together probably.  Don't know if Sue is able to sit in the sun yet or travel too far and back again.

robink, your summary of your journal of '08 was incredible.  Wish I'd kept such a journal...why don't I start now???? Wellllllllllllllllllllllllllllllllllllllllllllllllll

Whew, I'm starting to fade and having more trouble thinking, and the Perpetual Motion Machine is coming back into the house. 

Julie, Gracie, adrienne, squishes--good poems, too.

Kerryyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyy!!!!  Love ya!

Don't know if I have the courage to go back to FB...how many pages behind will I be there?

love you all; special hugs (gently) to Randie.

eyes

Linda, I have to take notes on what I really want to comment on, which is often a lot.  If I don't comment, I hope you will all understand.  It doesn't mean you don't matter to me; it means I've taken another step down the road to.....DUH, my name was what????

Sheesh, I hope your colposcopy is uneventful, too.  These things are so stressful after you've had that call..."Uh, Miz SoAndSo, we'd like to see you in the office as soon as possible...".  Or, better yet over the phone, "Your results of the fine needle biopsy show waa wa waaaa carcinoma. We'll be setting up an appointment with...wah wah waaaa, waa waa, waaaa waa. If you waaa, waa, or you could waaa wa waa wawaaa, waaaawa.  Just let us know, ok?"  Oooh, I'm getting all mean again.  Better go to bed with MY boyfriend, trazadone.  love to all and hope nobody other than y'all finds me on this board.  eyes

hey still DAT and morphed up...small correcction...drug inc=duced mistake...they put a new tube in the virginal left side tomorrow and we start all over...

love you gys, even if i do have to step over crunchy items gettin to the loo....'

could not do it without you all , my family and GOd.....randie

It must be nice out this weekend and everyone is out playing. :O)

Thinking of you RanD!