Starting Chemo May 2008
Comments
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Hunny I'm home! Just had the most wonderful visit with robin! I talked the poor girl off with my nervous chatter. I hope her ears aren't too tired from listening to me. It was awesome to say the least. We met up at cracker barrel and had a nice lunch and a mini shopping trip. Thank you so much for driving and meeting up with me!! :O)

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Happy Birthday Adrienne!!!!!!!!!!!!!!!!!!!!! XXOO
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I am in the herceptin chair channeling all of you. Adrienne, Happy b-day here...I think I got you on Facebook. Hope so. Rain! Blech. Loved the photo of Jen and Robin. You both look SOOOO lovely. All is well here. I am thinking I just may be down to five more herceptins after this.
Am working hard until May 17th then I will have real time to check in but I am sending love to all of you...big smooches (but non-contagious ones) to Randie and wondering where our journeys will take us as summer begins to kick in. Love you all.
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Jen and Robin - awww. It just makes me so happy to see these little get togethers all over the place. But I feel like each of you is representing all of us at those get togethers. This week our delegation was in Ohio and with RanD, of course. Next week we go to South Africa. How cool is that? It just gives me goose bumps.
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Oh Jen, you didn't seem nervous. I enjoyed all of our conversation! Thanks for posting the picture. The one I have is identical so no point it adding it to this site. We look wonderful!
Julie, while we would not have purposely chosen to join this group I am so very glad we found each other. We have 20 different yet similar stories - each intertwined with like experiences, each progressing at different levels - each filled with hope for a future apart from this disease - each strengthened by one another. It is humbling to represent our delegation with Jen in Ohio.
Happy BD Adrienne!
Randie-I read an interesting article about plueral effusion and the prodedure you had on the plane ride to Ohio. You seem to be coming along better than the average pt. described. Yay for you!
Jen - did you actually return the Jag? It's so easy to get spoiled. The truck driver comment stil makes me chuckle. Could you imagine someone falsely posting on a site like this and then arranging to meet with one of us? Definately would call for the shovel brigade.
DD gets her wisdom teeth out in the AM, DH has to take care of her. The appt. was made before my Ohio trip was planned. She doesn't have a high pain threshold so DH should just keep her drugged over the next few days.
Night all - sleep well
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Robin~ he actually asked me why I brought it back tonight!?!?!? I was so worried about scratching the thing and wanted it to be back safely. I did have a wonderful time. I kept thinking all the way home... "I talked too much" I tend to do that when nervous. Maybe if things work out when you are back in june we can do lunch again :O)
Much love to all!
p.s. Otter! I got your postcard today. What a wonderful surprise to a fantastic day. Thank you! XXOO
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Great pic guys!You both look fab!
Now, Robin.. I heard the word frizz mentioned in there... if u r using the DevaCurl correctly there is no such thing!
Tired.. bed.. the store is a tiny bit busier. We made the rent and my utilities are not gonna bounce.
Love 2 all.
xoN
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Robin and Jen - YAY!!! There are two very happy people in that picture - it's great!
Otter - Thank you for the postcard and I agree, it could be the CA coastline! What a nice thing to have buried in all the "junk" mail - a gem!!
Rock - Glad you at least got started. I understand the fear - even if it's a benign nothing, it's still something. And my jury service has been fulfilled without even going in!
Julie - The "Naganator"?! BWAHAHAHAHA!!
Adrinne - Happy Birthday!!!

Well, one band concert down and one more to go. Katie was happy she didn't squeak on her clarinet. Her band teacher is great - it takes a very special person to teach beginning band in more than one school!
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Noelle - here's the truth for me. I use the lo-poo and the one condition, like the products, only "shampoo every 3 days using the conditioner on the other days. Have used the an-gel but do not like the way it leaves my hair feeling, and it takes my hair hours to dry when I use it (large, medium or small amounts of product). I agree that if I had it with me here in Ohio there would be no frizz but it's not and I'm spraying my hair with firm hold spray my sister has. Yesterday the humidity took my forehead curls to the stage they were trying to curl toward the center.
There was a little girl who had a little curl right in the middle of her forehead. When she was good she was very very good, but when she was bad she was horrid.
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Jen, I like the idea of meeting up in June. The dates that will work (since it's a wedding trip) is June 29 or 30. Perhaps if we find a meeting point Julie or Jackie could join us. It would be a longer road trip so you'll need to borrow that Jag again

Today I take Mom to a procedure where her back will be injected with steroids/pain killers. It will be done under sedation. Tonight all the sisters, nieces and the matriarch of our family will go out for dinner. Let's hope Mother will be awake enough to participate. Originally her procedure was scheduled for 9 am, it's now being done at 2. Certainly it will be interesting. She will be so disappointed if she is too out of it to join us. Max and Erma's - woo hoo!
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Morning Ladies!
Robin & Jen--You both look great!
Otter-Thank you for the postcard---I could live in that cabin!!!
Life will start getting busier around here--I go back to work May 18--just not sure yet exactly what I will be doing.....they are considering a unit coordinator position instead of working the floor....sounds good to me, but I would be happy with either. UC is 8 hrs a day, M-F, working the floor would be 12 hr shifts, plus every other weekend. I kinda like the idea of 8 hrs and weekends off. (Would be on call occasionally) Best news is a $2.00 hour raise!!! Never thought that I'd be excited about going back to work!
Will be glad when all this rain clears out--I want sunshine!! (Although we did get enough of a break to get the yard mowed-it was turning into a hayfield!!) Decided I needed a new hobby, so I have started scrapbooking--simple, supposedly inexpensive and a lot of fun. Good thing that I am going back to work! Got to get all my scrubs washed and ready!
Randie--Glad that you got your nachos!!! Hope that you are feeling good today!
Love to all!!!!!
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Robin--I would love to get to meet up with you all in June!!!!
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I came home to that lovely Otter post card. You have great handwriting. I like the post card idea. My uncle turns 102 today. May we all live to at least 100. 102 seems pushing it, don't you think? Loved hearing about Jen and Robin and the photo was magnificent. Ciao all.
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Morning ladies,
I would love to try to meet up at the end of June. Or Robin, if you drive, you might pass close to my area of Illinois. Let me know.
Riley is at the St. Louis Zoo today and I'm trying to get ready for our scout meeting on Saturday. Noelle was so helpful and gave me a recipe we can use to make sugar scrubs for the moms.
Love you all,
Julie
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I got an Otter card! I got an Otter card! Thanks, Otter! I feel like Snoopy when he is always dancing around with his head back.
Just got back from taking fresh shorts to the middle school. Katie's friend spilled her pop all over Katie. I thought for sure I would hear from the group at the zoo (2.5 hrs away), but this was much more manageable. And we are always managing something, aren't we?
Later - Julie
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I would just like to say that it is hard to count crochet stitches while listening to May 08 CD. Trying to sing and tap to I Will Survive while countng stitches...not a good combo. LOL
Hello to everyone. Thanks for the BD wishes. Today is 1 year from the day Rock and I started chemo. Sometimes its hard to believe its only been a year and other times it seems like it was so long ago in some other lifetime.
Otter - I also received my postcard. Thank you! It was such a nice surprise. I like that kind of mail

Hugs to everyone.
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I love my postcard Otter! We are heading to Gulf Shores July 20 for a week of vacation! Are you anywhere near there?
Today has been calmer- Adam got his final toe check after his toenail surgery 6 weeks ago, Joes eyes are better and Valerie has managed about 1/2 the school day. Texas released the kids to resume playoffs so games are tomorrow(double header) and Saturday instead of next week- NOT great news for a kid getting over food poisoning but hopefully she will be well enough to play some!
College girl comes home tomorrow- dh is leaving tonight to travel to Arkansas to get her in the morning- I feel sorry for him having to load up her boxes and tubs from the dorm room but at least she has them packed and ready- I think he is a little excited to be going after her (stepdad is a little proud of his college girl).
Hope everyone is having a fun and calm week!
Kristy
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Having peeked at this site during the day, I knew what to expect, and sure enough - an Otter card was waiting for me when I got home. Thanks!! I'm a sucker for old park lodges like the one in the picture.
Linda
(Almost forgot to mention . . . had my second post-chemo haircut last night, and my hairdresser spritzed me with a DevaCurl product afterward - "Mist-er Right", har har har - and it was pretty amazing. It turned my slightly frizzy, way-too-poofy curls into soft, tight loops that reminded me of my grandmother's persian lamb coat. Wow. I'm a hair product skeptic, but I'm sold on this stuff. And it smells, good, too!)
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Hello all. Been reading but not posting again, still really wiped out from the surgery, although I DID start walking again. Walking is how I have always come back from surgery or sickness, and the tummy tuck makes it hard (painful) to walk. But I am getting better and stronger every day.
Rock, we'll be there with you on the 14th and until you know. Love love love and hugs. I know you're not the huggy type, so I really appreciate your good hugs!
Adrienne, sorry I missed your birthday, hope it was fabulous!
Jen and Robin, great picture--glad you got together although it did make me envy you both.
Otter, love you love you.
RanD, status report? Much love and many good wishes..
Linda, persian lamb coat? I can almost see it.
Noelle, glad the store picked up, even a little.
Anyone I forgot, please forgive me.
We are going on vacation. Leaving on the 10th and won't be home until the 18th. Hopefully there will be several days in there without the internet. www.islandhotel-cedarkey.com First we will spend a night in Cocoa Beach and watch the space shuttle launch on the 11th. Then drive over to Cedar Key for three nights, then drive to Chattanooga for four more days to see family.Otter,, how far are you from I-75?
Love all you guys, you are the best.
Love,
Sue
P.S. Eddie hurry back
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I can't believe I forgot to comment on Jen and Robin! sheesh
I love the picture. You both look so flipping fabulous. I know how much it means to finally get to meet face to face with another of the May women. I hope you can do it again soon.
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Kristy and Sue, I've pm'd you about your travel plans.
otter
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Oh dear, I need a make a video. Robin, I'll bet you dinner you just need some Deva lessons to fall in love. PM me your phone number and I will talk you through it. 7 years and I have only lost one customer on this stuff and I swear she used Clorox to bleach her hair so nothing would make it soft.
Linda, Mister Right is lovely, but it is only an herbal/floral water. It is used to refesh the hair at the end of the day, or in the morning to calm pillow frizz. It has no antifrizz qualities. It may be fine until it gets really humid.
How about this. Email me pics with your curls and a list of your issues and I will help u work out which prods will be right for you. Lauren, if you are reading this goes for you too.
What a fecking mess of a day... idiot face assistant has bailed on his responsibilities this week... and left me in the lurch. He promised to come after hours last night and make the bath bombs and the 10 gift baskets that were on his list for Tuesday.. and he never showed up. I came in this morning to nothing.. he called at 10:30 this morning to say he would come today to do it all. After doing last minute Mother's Day wrapping for each customer all day and trashing the store with gift wrap and ribbon( which I would not have had to do if he had done the baskets I asked for) I left for an hour and came back to write a pitch for an article and found out my website is crashed for some unknown reason... I planned to do the gift baskets myself but Luke came back from swim class and I had to go home. Yay!!
I did get to my fave annual plant sale at the Royal Botanical Gardens and trudged around in the sun and the mud to get some perrenials and native plants for the garden...
Love to all!!!
xoN
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Good morning Ladies,
It was a year ago today I was sitting in that chair fearful of what was ahead,..... will it hurt , will i feel it going in , will I be sick as soon as I get home ? But here i am 1 year later and it all feels like a distant memory, like i've moved it to the part of the brain labelled... no need to reopen file at this time. (only just peeking at it today !)
It's a beautiful sunny Friday and hope everyone has a great weekend

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Angels - I know how you feel. Put that file away and go enjoy the sunshine! While you're at it, could you send a some of that sun a little south...say somewhere in the general Seattle area? Much appreciated

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amazing weekend.
with about 15 women, . a photo shoot in my apartment all last night and today.
james-alex, my poet hero, was victim of hit-and-run that severed two of his fingers.
he just turned 21.
gotta go. all is okay. it really is. but i am thinking on you all, hard.mjuch love.
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Oh no rock! I hope he gets to feeling better soon!!
Happy Mother's day to each of you!!!!!!!!!!
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OK, really behind. Just got back from a conference in Madison. I'll try to catch up...
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Whew, that took some catching up.
Kristy, my whole family had ear tubes. Hope all is well. No swimming for awhile.
Otter, I too got the post card when I returned from the conference. What a beautiful location, breathtaking.
Jen and Robin, you girls look amazing. So envious of all of you getting the chance to meet up. Ome day I hope we all can get together.
Angels, I can't believe it will take a year for results. We'll all be here for oyu.
Rock, I'll be thinking and hugging, yes hugging you on the 14th.
HAPPY BIRTHDAY ADRIENNE!!!!! Sorry so late.
All my other girlfriends, so glad your all doing well. They're trying to get me in for the diep on May 29th. Mammo and ultrasound checked out okay so I guess I'll hold on the real one for a little while.
Happy Mothers Day to all.
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That's terrible news about James. I'm so sorry. There are certain actions that boggle the mind, they're so outrageous: hitting someone, then leaving them there, injured, is one of them. Again, I'm so sorry. I hope he gets good care.
It's very strange, this lovely spring weekend, to be thinking back on this time a year ago (as it sounds like several of us have been doing, for various reasons). A year ago I had just had my second AC treatment, and my hair was coming out in handfuls and leaving matted, dead-animal-like deposits in the shower drain. (I'd already had it cut super short, but you don't realize how much hair is on your head until it starts to fall out.) I went to a big bash for Eric's brother's 50th birthday, and had to steal away to nap in their daughter's room. I was shooting myself up with Neupogen every evening. Etc. etc. etc.
Has it really been a year? Has it really been ONLY a year?
Hugs to all (and thanks for all the FB birthday wishes!!!)
Linda
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Happy Birthday, Linda. Haven't had a chance to be on here yet today. Hope you are enjoying the day.
We have a beautiful day today and the bath scrub production for scouts was a success. Thanks again, Noelle for the recipe. I had 10 girls today and we made lotion, bath scrub, cards and decorated gift bags for the moms. I can't get some of the smells out of my nose yet. One mom offered to bring the snacks and she brought just out of the oven apple dumplings. We usually have a packaged treat and a juice pouch, etc. That was so nice.
I hope everyone has a lovely mother's day tomorrow. Everyone here has nurturing, motherly qualities and deserves to enjoy the special day.
Hugs to all - Julie
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