Moody/Karens daughter Olivia
Comments
-
I feel so helpless- I can only imagine how Karen and dh are feeling! God, I pray that you watch over Karen and dh, that they draw strngth from you to care for themselves so they are able to care for Olivia. I pray you hold Olivia in your arms and that she feels the warmth and strength of your presence, knowing that she does not have to do this alone.
-
I looked over Karen's posts and drew out the symptoms that she has told us about. I'm putting them down here for anyone else who's trying to help with research:
The motion of the wheel chair made her sick
At first they thought ENT to check inner ear, but as I mentioned, the testing they did in the room pretty well ruled that out as a cause, but has raised suspicions for neurological causes.
gallbladder disease runs in my family
Olivia had been feeling bad for about 6 weeks but in the last 2 weeks she has lost 8 lbs
they did ultrasound on her whole abdomine. Kept coming back to do more pics of her liver & pancreas. Then they came in and said going to do nuclear scan called "HIDA" tomorrow specifically for liver, pancreas & gallbladder
She is only going to the bathroom once a day and not very much output
they are keeping Olivia hydrated and keeping her fairly comfortable with the anti-nausea meds. As soon as the meds wear off though we know it as she gets soooooo sick
Doc has upped her fluids, but she still has only been once today. About 200cc's if we are lucky.
ultrasound they did yesterday was pretty "inconclusive". It showed a group of "predominant" blood vessels in the lower left lobe of her liver. However, this isn't enough info to make a diagnosis, and could just be normal for her liver
The child had dropped down to 81lbs when we got here saturday afternoon and is down below 80lbs today.
She has not been able to drink one drop or eat one single crumb of anything since last friday
Her tongue was so thick, white and dry.
Deep inside our brains is a cavity that contains the pituitary gland. I know some things this gland does but guess I will be an expert very soon. Anyway, the cavity in Olivia's brain has no gland........One thing we do know is that is does control one part of the brain that triggers nausea and dizziness. It controls hormones and cortisol production too.
--------------------------------------------
Ok, I watch too much "House"! Anyway, I thought it might be helpful to look at all the clues together.
Karen did say that they ruled out an inner ear thing, but that was what struck me as I read through the list. LABYRINTHITIS is what I was thinking:
URL of this page: http://www.nlm.nih.gov/medlineplus/ency/article/001054.htm
Alternative names
Bacterial labyrinthitis; Serous labyrinthitis; Neuronitis - vestibular; Vestibular neuronitis; Viral neurolabyrinthitis; Vestibular neuritis
Definition
Labyrinthitis is an ear disorder that involves irritation and swelling of the inner ear.
See also: Meniere's disease
Causes, incidence, and risk factors
The are likely many causes of labyrinthitis. It commonly occurs after an ear infection ( otitis media ) or an upper respiratory infection. It may also occur after an allergy, cholesteatoma, or taking certain drugs that are dangerous to the inner ear.
During labyrinthitis, the parts of the inner ear become irritated and inflamed. This interferes with their function, which includes the ability to keep your balance.The following raise your risk for labyrinthitis:
Drinking large amounts of alcohol
Fatigue
History of allergies
Recent viral illness, respiratory infection, or ear infection
Smoking
Stress
Use of certain prescription or nonprescription drugs (especially aspirin)Symptoms
Abnormal sensation of movement (vertigo)
Difficulty focusing the eyes because of involuntary eye movements
Dizziness
Hearing loss in one ear
Loss of balance, such as falling toward one side
Nausea and vomiting
Ringing or other noises in the ears (tinnitus)Signs and tests
A complete physical and neurological exam should be done. An ear examination may not reveal any problems.
Usually, the diagnosis of layrinthitis does not require other tests. Tests will be done to rule out other causes for your symptoms. These may include:
EEG
Electronystagmography
Evoked auditory potential studies
Head CT scan
Hearing tests (audiology/audiometry)
MRI of the head
Warming and cooling the inner ear with water (caloric stimulation) to test eye reflexesTreatment
Labyrinthitis usually goes away within a few weeks. However, symptoms may need treatment. Your doctor may prescribe an antibiotic to treat the infection. Medications that may reduce symptoms include the following:
Antihistamines
Corticosteroids such as prednisone when symptoms are severe
Medicines such as compazine to control nausea and vomiting
Medicines to relieve dizziness such as meclizine or scopalamine
Sedative-hypnotics such as ValiumTo prevent worsening of symptoms during episodes of labyrinthitis, try the following:
Keep still and rest when symptoms occur.
Gradually resume activity.
Avoid sudden position changes.
Do not try to read when symptoms occur.
Avoid bright lights.
You may need help walking when symptoms occur. Avoid hazardous activities such as driving, operating heavy machinery, and climbing until 1 week after symptoms have disappeared.Expectations (prognosis)
If you have severe vomiting, you may be admitted to the hospital.
Severe symptoms usually go away within a week. Most patients are completely better within 2 to 3 months. Continued dizziness is more likely to last in older patients.
Hearing usually returns to normal.Complications
Injury to self or others during attacks of vertigo
Permanent hearing loss (rare)
Spread of inflammation to other ear areas or to the brain (rare)
References
Polensek SH. Labyrinthitis. In: Ferri FF, ed. Ferri's Clinical Advisor 2008: Instant Diagnosis and Treatment. 1st ed. Philadelphia, Pa: Mosby Elsevier; 2008.
Update Date: 9/27/2008
Updated by: Daniel B. Hoch, PhD, MD, Assistant Professor of Neurology, Harvard Medical School, Department of Neurology, Massachusetts General Hospital. Also reviewed by David Zieve, MD, MHA, Medical Director, A.D.A.M., Inc. 9/11/08Will keep looking...
((((HUGS))))) and prayers to the Moody family!
Diane
-
Thanks Diane...it's nice to see it all in one post. I am not good at research or any type of home diagnosis...but for those that are..this is helpfull
(((((HUGS OLIVIA))))))
Lisa
-
I called Karen to tell her that Hanna had responded to her request. While I was talking to her they brought Olivia back to the room from having the endoscope done and she had to go. She did tell me that they had a peaceful sleep last night which they were thankful for. Karen is hopeful that it is Olivia's gallbladder because Karen had the same symptoms (not to that extent) as Olivia and she went through test and more test before they found out it was her gallbladder. This would be an easy fix!!!!! As far as the pititary gland, there are some of the gland tissue there which is apparently enough to keep her hormones levels where they should be. A person can function with this condition if born with it but if the gland is destroyed from a head injury then it would not be as good.
I pray that Karen will hear the words that she has waited so long to hear "we have a DX and it is a simple fix and your Olivia will be healthy again in no time" I ask this is Jesus name.....
-
Thanks for all the research you are doing for Karen and Olivia.
-
I will not be at my computer for about 24 hours but will continue to pray...
-
LInda - Thanks so much for keeping us all posted on Olivia. Like everyone else, I check this thread regularly all day long. I am so very much praying and sending hugs to Karen and Olivia and their family!
-
Just realized this was occurring. My thoughts are with you, Karen and Olivia.
Tina
-
linda, thank you so much for keeping us posted. Wouldn't it be a relief it was 'only' the gallbladder. Thinking of Karen and Olivia so much!
GG
-
Sending up more prayers for Olivia. Our family is just sick at heart over this and are praying that the cause will be found soon and Olivia will be on the road to recovery.
-
Just checking in also....still praying for clarity and a diagnosis and an end to what has been a nightmare for the entire Moody family. I do agree that at some point soon it would be good to involve specialists in the appropriate disciplines at a pediatric hospital like Hopkins Pediatric. I am praying for a fresh perspective....
-
You are both in my prayers.
Valerie
-
Thanks for the upate Linda! Praying for Olivia, Karen and family.
-
-
I am keeping Olivia and her family in my prayers. The main prayer being that our God will continue to keep his healing hands over Olivia now and until her illness is taken from her.He is the Almighty Healer, Comforter and Savior.
-
This is so upsetting. Karen, I will pray.
Spring.
-
Coming in tonight to see what's been happening. Have read back.
Sending additional prayers for resolution, comfort, support, encouragement, answers of all sort.
xx00xx00xx00xx00xx00xx00xx
-
What faithand fifty said.
"Coming in tonight to see what's been happening. Have read back.
Sending additional prayers for resolution, comfort, support, encouragement, answers of all sort."
Pam
-
Love & Prayers!
-
Lifting Olivia and her family in prayer. Just heard about this.
-
I have just logged on and before I even begin to read all these posts, I wanted to post a wonderfully hopeful update!
First let me say I am so sorry I havent been able to post and read posts since thursday a.m. We have had so many specialists in here through out the day. Then, I just wasn't in the mood to read, write, or talk to anyone. I know that may not be fair, but I couldn't help it.
Last night Olivia had lots of visitors and she LOVED it! Really raised her spirits! She rested so much better last night and was able to deal with her nausea, so I sing the HIGHEST praises to God ever!!!! In addition to that, I convinced them to switch her nausea meds to Kytril, Zofran, and Reglan. This seemed to take most of the dizziness away and she was able to get out of bed to go to the bathroom! She even got up 3 times this morning, once by herself.
Pastor Robby and Laura came down this morning and Pastor Robby annointed her and prayed over her. Besides the healing power of Jesus, the fact that Pastor Robby took the time to come do this blessed her beyond measure. She was so thrilled!!!!
Then came time for preparing her for the day's "events" and needless to say, it has been tough, tough, tough. She has had to have the psychology team come in to explain to her the endo-scope procedure and that she would be asleep (which of course she fears) and explain that she would wake up with a feeding tube----------I can't remember what hysteria number she was up to, but I believe she used any up she had left!
Endoscope went very well. Dr. said esophagus, stomach, etc looked great, so he has placed the feeding tube into her stomach rather than small intestine. The goal now is to see if her tummy can tolerate anything at all in it.
When she got back to the room she was in a bad state of mind. She wanted to die, she didn't want to live anymore. She was begging me to kill her and wanted to know why didnt we just let her starve to death, etc. This was soooo difficult. The psych team decided to give her something to calm her down before she got so depressed that we had a whole other issue to deal with. The drugs were liquid and went through her feeding tube.......SHE DIDN'T GET SICK!!!!!!!!!!!!!!!!!!!!! PRAISE GOD!!! The liquid hit her tummy and she didn't get nauseaous. The meds made her sleep about 30 min. When she woke up the psych dr was here and she is doing much better.
So where do we go from here? Couple of things will happen now. First, what the GI doctor is hoping, is that the stomach was merely inflamed and irritated for what ever reason over the past 6 weeks. The inflammation progressed to the level of which everything that touched her tummy upset it causing the nausea. They have been giving her mega doses of Nexuim since we've been here and had added Reglan to the mix wednesday.
So it is possible that these too things, plus keeping her tummy empty for these 6 days gave the meds clear room to work with nothing coming in (liquid & food)to keep it irritated. They started giving her amino acids that are suppose to be soothing and not cause cramping or other discomforts, according to doc, tonight about 6pm. It is going in super, super slow. Like 1 tsp every 30 mins. If she can tolerate the amino acids she is getting tonight, then tomorrow they will begin to add baby formula, and build on that.
If she cannot tolerate this "stuff" they will have to push the tube on into her small intestine to bypass the stomach and start testing for "neuromuscular disorders of the stomach" a.k.a. "gastric dysrhythmias".
So, I am praying so hard that all goes well with the nutrients. I am praying that we have actually DONE the treatment and are in the recovery process. Last night I just wanted to start the treatment process. I have to admit, when she went into surgery today, I was almost starting to feel hopeless and that they would never figure this out. But seeing her getting some nutrition, no matter how has been the biggest relief I have ever felt in my life (I think, cuz I cant remember everything...LOL)
Positive thing: Drew (my 19 year old son)has been so worried about her, and has been getting people at his work to pray for her and he has been sending her texts with words of encouragement, love and telling her God will heal her! That in itself has been HUGE for us.
Anyway, she and the rest of us certainly covet your prayers, and visits, and love as you all have been my strength because I have had no strength! I thank God everyday for each and every one of you and we cant wait to get our lives back real soon.
The nurse just came in and asked her how she was doing and she gave her the "thumbs up" sign!!!!!!!!!!!!!!!!!!!!!!!!!!!!! WOOOO HOOOOOO
Please continue to pray that this baby girl can get to eating real soon so we can start hitting all the places she wants to eat real soon!!!!!
We love each and everyone here on this board!!! I cant wait to start reading all these wonderful, strengthening words of love and encouragment to Olivia. God Bless You All!!!!!
-
Oh, Karen, this is wonderful news! Thank goodness! Hugs to Olivia! Continued prayers here!
-
Such great news! I hope it continues to go well!
-
Moody ~ Wonderful to hear from you and thank you for updating all of us. As you can see Olivia is in all of our hearts & prayers!
-
HALLELUJAH!!!
Hope. Hope. Hope. Hope. Hope. Hope. Hope.
Hope. Hope. Hope. Hope. Hope. Hope. Hope.
Hope. Hope. Hope. Hope. Hope. Hope. Hope.
Hope. Hope. Hope. Hope. Hope. Hope. Hope.
-
Praise God....progress! Continued prayers for improvements and strenght.
-
Karen,
What wonderful news!. Like others, I have been visiting this site off and on every day for the past few days. I am so glad Olivia is starting to feel better. That "thumbs up" must have been fantastic to see. My prayers will continue that Olivia continues to gain strength and get better. Take care of yourself as well. - Sandy
-
Karen
Praise God
Thank you for the update. I have been praying that you would give us some good news. Thumbs up!!!! wow you must have felt like a ton was lifted off your shoulders. I know you must be thrilled about Drew's response to all this. Praise God again!! Now I will pray that she will continue to improve and be able to keep lite foods on her tummy, gain strength and be able to go home. Tell Olivia to keep exercising those thumbs by doing the "thumbs up" LOL
Keep us updated with lots of good news
-
Karen... YES!!!!!!!!!!!!!!!!!!!
The fact that Drew is there.. praying... so beautifully God at work..
I love you sister.. Keeping hangin' tough and we are all going to keep praying. The ladies here at BCO are AMAZING! IF I may add this here... I love you women.. you are an inspiration to me. You are all so kind and unbelievably special! It's an honored to know you, to meet you, and to be with you on a message board like BCO.
Karen... Olivia.. and all the Moody family... God Speed!
Laura
-
Great update! We continue to pray.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team