Moody/Karens daughter Olivia

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  • EWB
    EWB Member Posts: 2,927
    edited February 2009

    I feel so helpless- I can only imagine how Karen and dh are feeling! God, I pray that you watch over Karen and dh, that they draw strngth from you to care for themselves so they are able to care for Olivia.  I pray you hold Olivia in your arms and that she feels the warmth and strength of your presence, knowing that she does not have to do this alone.

  • badboob67
    badboob67 Member Posts: 2,780
    edited February 2009
    I looked over Karen's posts and drew out the symptoms that she has told us about. I'm putting them down here for anyone else who's trying to help with research:
    The motion of the wheel chair made her sick

    At first they thought ENT to check inner ear, but as I mentioned, the testing they did in the room pretty well ruled that out as a cause, but has raised suspicions for neurological causes.

    gallbladder disease runs in my family

    Olivia had been feeling bad for about 6 weeks but in the last 2 weeks she has lost 8 lbs

    they did ultrasound on her whole abdomine. Kept coming back to do more pics of her liver & pancreas. Then they came in and said going to do nuclear scan called "HIDA" tomorrow specifically for liver, pancreas & gallbladder

    She is only going to the bathroom once a day and not very much output

    they are keeping Olivia hydrated and keeping her fairly comfortable with the anti-nausea meds.  As soon as the meds wear off though we know it as she gets soooooo sick

    Doc has upped her fluids, but she still has only been once today. About 200cc's if we are lucky.

    ultrasound they did yesterday was pretty "inconclusive".  It showed a group of "predominant" blood vessels in the lower left lobe of her liver.  However, this isn't enough info to make a diagnosis, and could just be normal for her liver

    The child had dropped down to 81lbs when we got here saturday afternoon and is down below 80lbs today.

    She has not been able to drink one drop or eat one single crumb of anything since last friday

    Her tongue was so thick, white and dry.

    Deep inside our brains is a cavity that contains the pituitary gland.  I know some things this gland does but guess I will be an expert very soon.  Anyway, the cavity in Olivia's brain has no gland........One thing we do know is that is does control one part of the brain that triggers nausea and dizziness.  It controls hormones and cortisol production too.

    --------------------------------------------

    Ok, I watch too much "House"! Anyway, I thought it might be helpful to look at all the clues together.

    Karen did say that they ruled out an inner ear thing, but that was what struck me as I read through the list. LABYRINTHITIS is what I was thinking:

     URL of this page: http://www.nlm.nih.gov/medlineplus/ency/article/001054.htm
    Alternative names   
    Bacterial labyrinthitis; Serous labyrinthitis; Neuronitis - vestibular; Vestibular neuronitis; Viral neurolabyrinthitis; Vestibular neuritis
    Definition   
    Labyrinthitis is an ear disorder that involves irritation and swelling of the inner ear.
    See also: Meniere's disease
    Causes, incidence, and risk factors   
    The are likely many causes of labyrinthitis. It commonly occurs after an ear infection ( otitis media ) or an upper respiratory infection. It may also occur after an allergy, cholesteatoma, or taking certain drugs that are dangerous to the inner ear.
    During labyrinthitis, the parts of the inner ear become irritated and inflamed. This interferes with their function, which includes the ability to keep your balance.

    The following raise your risk for labyrinthitis:
    Drinking large amounts of alcohol
    Fatigue
    History of allergies
    Recent viral illness, respiratory infection, or ear infection
    Smoking
    Stress
    Use of certain prescription or nonprescription drugs (especially aspirin)

    Symptoms   
    Abnormal sensation of movement (vertigo)
    Difficulty focusing the eyes because of involuntary eye movements
    Dizziness
    Hearing loss in one ear
    Loss of balance, such as falling toward one side
    Nausea and vomiting
    Ringing or other noises in the ears (tinnitus)

    Signs and tests   
    A complete physical and neurological exam should be done. An ear examination may not reveal any problems.
    Usually, the diagnosis of layrinthitis does not require other tests. Tests will be done to rule out other causes for your symptoms. These may include:
    EEG
    Electronystagmography
    Evoked auditory potential studies
    Head CT scan
    Hearing tests (audiology/audiometry)
    MRI of the head
    Warming and cooling the inner ear with water (caloric stimulation) to test eye reflexes

    Treatment   
    Labyrinthitis usually goes away within a few weeks. However, symptoms may need treatment. Your doctor may prescribe an antibiotic to treat the infection. Medications that may reduce symptoms include the following:
    Antihistamines
    Corticosteroids such as prednisone when symptoms are severe
    Medicines such as compazine to control nausea and vomiting
    Medicines to relieve dizziness such as meclizine or scopalamine
    Sedative-hypnotics such as Valium

    To prevent worsening of symptoms during episodes of labyrinthitis, try the following:
    Keep still and rest when symptoms occur.
    Gradually resume activity.
    Avoid sudden position changes.
    Do not try to read when symptoms occur.
    Avoid bright lights.
    You may need help walking when symptoms occur. Avoid hazardous activities such as driving, operating heavy machinery, and climbing until 1 week after symptoms have disappeared.

    Expectations (prognosis)   
    If you have severe vomiting, you may be admitted to the hospital.
    Severe symptoms usually go away within a week. Most patients are completely better within 2 to 3 months. Continued dizziness is more likely to last in older patients.
    Hearing usually returns to normal.

    Complications   
    Injury to self or others during attacks of vertigo
    Permanent hearing loss (rare)
    Spread of inflammation to other ear areas or to the brain (rare)


    References   
    Polensek SH. Labyrinthitis. In: Ferri FF, ed. Ferri's Clinical Advisor 2008: Instant Diagnosis and Treatment. 1st ed. Philadelphia, Pa: Mosby Elsevier; 2008.
    Update Date: 9/27/2008
    Updated by: Daniel B. Hoch, PhD, MD, Assistant Professor of Neurology, Harvard Medical School, Department of Neurology, Massachusetts General Hospital. Also reviewed by David Zieve, MD, MHA, Medical Director, A.D.A.M., Inc. 9/11/08


    Will keep looking...

    ((((HUGS))))) and prayers to the Moody family!

    Diane

  • my3girls
    my3girls Member Posts: 3,766
    edited February 2009

    Thanks Diane...it's nice to see it all in one post.  I am not good at research or any type of home diagnosis...but for those that are..this is helpfull

    (((((HUGS OLIVIA))))))

    Lisa

  • Linda54
    Linda54 Member Posts: 2,689
    edited February 2009

    I called Karen to tell her that Hanna had responded to her request.  While I was talking to her they brought Olivia back to the room from having the endoscope done and she had to go.  She did tell me that they had a peaceful sleep last night which they were thankful for.  Karen is hopeful that it is Olivia's gallbladder because Karen had the same symptoms (not to that extent) as Olivia and she went through test and more test before they found out it was her gallbladder.  This would be an easy fix!!!!!    As far as the pititary gland, there are some of the gland tissue there which is apparently enough to keep her hormones levels  where they should be.  A person can function with this condition if born with it but if the gland is destroyed from a head injury then it would not be as good. 

    I pray that Karen will hear the words that she has waited so long to hear "we have a DX and it is a simple fix and your Olivia will be healthy again in no time"  I ask this is Jesus name.....

  • Linda54
    Linda54 Member Posts: 2,689
    edited February 2009

    Thanks for all the research you are doing for Karen and Olivia.

  • rockwell_girl
    rockwell_girl Member Posts: 1,710
    edited February 2009

    I will not be at my computer for about 24 hours but will continue to pray...

  • Mykidsmom
    Mykidsmom Member Posts: 1,637
    edited February 2009

    LInda - Thanks so much for keeping us all posted on Olivia. Like everyone else, I check this thread regularly all day long. I am so very much praying and sending hugs to Karen and Olivia and their family!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2009

    Just realized this was occurring.  My thoughts are with you, Karen and Olivia.

    Tina 

  • ngcm05
    ngcm05 Member Posts: 134
    edited February 2009

    linda, thank you so much for keeping us posted.  Wouldn't it be a relief it was 'only' the gallbladder.   Thinking of Karen and Olivia so much!

    GG

  • bkc
    bkc Member Posts: 320
    edited February 2009

    Sending up more prayers for Olivia. Our family is just sick at heart over this and are praying that the cause will be found soon and Olivia will be on the road to recovery.

  • whippetmom
    whippetmom Member Posts: 6,920
    edited February 2009

    Just checking in also....still praying for clarity and a diagnosis and an end to what has been a nightmare for the entire Moody family.  I do agree that at some point soon it would be good to involve specialists in the appropriate disciplines at a pediatric hospital like Hopkins Pediatric.  I am praying for a fresh perspective....

  • livesstrong
    livesstrong Member Posts: 1,799
    edited February 2009

    You are both in my prayers.

    Valerie

  • marshakb
    marshakb Member Posts: 1,664
    edited February 2009

    Thanks for the upate Linda!  Praying for Olivia, Karen and family.

  • Hanna60978
    Hanna60978 Member Posts: 815
    edited December 2011
  • artsee
    artsee Member Posts: 1,576
    edited February 2009

    I am keeping Olivia and her family in my prayers. The main prayer being that our God will continue to keep his healing hands over Olivia now and until her illness is taken from her.He is the Almighty Healer, Comforter and Savior.

  • Springtime
    Springtime Member Posts: 5,355
    edited February 2009

    This is so upsetting. Karen, I will pray.

    Spring. 

  • faithandfifty
    faithandfifty Member Posts: 10,007
    edited February 2009

    Coming in tonight to see what's been happening. Have read back.

    Sending additional prayers for resolution, comfort, support, encouragement, answers of all sort.

    xx00xx00xx00xx00xx00xx00xx

  • Dejaboo
    Dejaboo Member Posts: 2,916
    edited February 2009

    What faithand fifty said.

    "Coming in tonight to see what's been happening. Have read back.

    Sending additional prayers for resolution, comfort, support, encouragement, answers of all sort."

    Pam

  • Hood1980
    Hood1980 Member Posts: 537
    edited February 2009

    Love & Prayers!

  • Naniam
    Naniam Member Posts: 1,766
    edited February 2009

    Lifting Olivia and her family in prayer. Just heard about this. 

  • moodyk13
    moodyk13 Member Posts: 1,180
    edited February 2009

    I have just logged on and before I even begin to read all these posts, I wanted to post a wonderfully hopeful update!

    First let me say I am so sorry I havent been able to post and read posts since thursday a.m.  We have had so many specialists in here through out the day.  Then, I just wasn't in the mood to read, write, or talk to anyone.  I know that may not be fair, but I couldn't help it.

    Last night Olivia had lots of visitors and she LOVED it!  Really raised her spirits!  She rested so much better last night and was able to deal with her nausea, so I sing the HIGHEST praises to God ever!!!!  In addition to that, I convinced them to switch her nausea meds to Kytril, Zofran, and Reglan.  This seemed to take most of the dizziness away and she was able to get out of bed to go to the bathroom!  She even got up 3 times this morning, once by herself. 

    Pastor Robby and Laura came down this morning and Pastor Robby annointed her and prayed over her.  Besides the healing power of Jesus, the fact that Pastor Robby took the time to come do this blessed her beyond measure.  She was so thrilled!!!!

    Then came time for preparing her for the day's "events" and needless to say, it has been tough, tough, tough.  She has had to have the psychology team come in to explain to her the endo-scope procedure and that she would be asleep (which of course she fears) and explain that she would wake up with a feeding tube----------I can't remember what hysteria number she was up to, but I believe she used any up she had left! 

    Endoscope went very well.  Dr. said esophagus, stomach, etc looked great, so he has placed the feeding tube into her stomach rather than small intestine.  The goal now is to see if her tummy can tolerate anything at all in it. 

    When she got back to the room she was in a bad state of mind.  She wanted to die, she didn't want to live anymore.  She was begging me to kill her and wanted to know why didnt we just let her starve to death, etc.  This was soooo difficult.  The psych team decided to give her something to calm her down before she got so depressed that we had a whole other issue to deal with.  The drugs were liquid and went through her feeding tube.......SHE DIDN'T GET SICK!!!!!!!!!!!!!!!!!!!!!  PRAISE GOD!!!  The liquid hit her tummy and she didn't get nauseaous.  The meds made her sleep about 30 min.  When she woke up the psych dr was here and she is doing much better.

    So where do we go from here?  Couple of things will happen now.  First, what the GI doctor is hoping, is that the stomach was merely inflamed and irritated for what ever reason over the past 6 weeks.  The inflammation progressed to the level of which everything that touched her tummy upset it causing the nausea.  They have been giving her mega doses of Nexuim since we've been here and had added Reglan to the mix wednesday. 

    So it is possible that these too things, plus keeping her tummy empty for these 6 days gave the meds clear room to work with nothing coming in (liquid & food)to keep it irritated.  They started giving her amino acids that are suppose to be soothing and not cause cramping or other discomforts, according to doc, tonight about 6pm.  It is going in super, super slow.  Like 1 tsp every 30 mins.  If she can tolerate the amino acids she is getting tonight, then tomorrow they will begin to add baby formula, and build on that.

    If she cannot tolerate this "stuff"  they will have to push the tube on into her small intestine to bypass the stomach and start testing for "neuromuscular disorders of the stomach" a.k.a. "gastric dysrhythmias". 

    So, I am praying so hard that all goes well with the nutrients.  I am praying that we have actually DONE the treatment and are in the recovery process.  Last night I just wanted to start the treatment process.  I have to admit, when she went into surgery today, I was almost starting to feel hopeless and that they would never figure this out.  But seeing her getting some nutrition, no matter how has been the biggest relief I have ever felt in my life (I think, cuz I cant remember everything...LOL)

    Positive thing:  Drew (my 19 year old son)has been so worried about her, and has been getting people at his work to pray for her and he has been sending her texts with words of encouragement, love and telling her God will heal her!  That in itself has been HUGE for us.

    Anyway, she and the rest of us certainly covet your prayers, and visits, and love as you all have been my strength because I have had no strength!  I thank God everyday for each and every one of you and we cant wait to get our lives back real soon. 

    The nurse just came in and asked her how she was doing and she gave her the "thumbs up" sign!!!!!!!!!!!!!!!!!!!!!!!!!!!!!  WOOOO HOOOOOO

    Please continue to pray that this baby girl can get to eating real soon so we can start hitting all the places she wants to eat real soon!!!!!

    We love each and everyone here on this board!!!  I cant wait to start reading all these wonderful, strengthening words of love and encouragment to Olivia.  God Bless You All!!!!!

  • AnnNYC
    AnnNYC Member Posts: 4,484
    edited February 2009

    Oh, Karen, this is wonderful news!  Thank goodness!  Hugs to Olivia!  Continued prayers here!

  • azsunn
    azsunn Member Posts: 201
    edited February 2009

    Such great news!  I hope it continues to go well!

  • 2new1s
    2new1s Member Posts: 1,995
    edited February 2009

    Moody ~ Wonderful to hear from you and thank you for updating all of us.  As you can see Olivia is in all of our hearts & prayers! 

  • faithandfifty
    faithandfifty Member Posts: 10,007
    edited February 2009

    HALLELUJAH!!!

    Hope. Hope. Hope. Hope. Hope. Hope. Hope.

    Hope. Hope. Hope. Hope. Hope. Hope. Hope.

    Hope. Hope. Hope. Hope. Hope. Hope. Hope.

    Hope. Hope. Hope. Hope. Hope. Hope. Hope.

  • GrammyNancy
    GrammyNancy Member Posts: 666
    edited February 2009

    Praise God....progress!  Continued prayers for improvements and strenght.

  • ssyoung
    ssyoung Member Posts: 114
    edited February 2009

    Karen,

    What wonderful news!.  Like others, I have been visiting this site off and on every day for the past few days.  I am so glad Olivia is starting to feel better.  That "thumbs up" must have been fantastic to see.  My prayers will continue that Olivia continues to gain strength and get better.  Take care of yourself as well. - Sandy

  • Linda54
    Linda54 Member Posts: 2,689
    edited February 2009

    Karen

    Praise God

    Thank you for the update.  I have been praying that you would give us some good news. Thumbs up!!!!  wow you must have felt like a ton was lifted off your shoulders.  I know you must be thrilled about Drew's response to all this.  Praise God again!!  Now I will pray that she will continue to improve and be able to keep lite foods on her tummy, gain strength and be able to go home.  Tell Olivia to keep exercising those thumbs by doing the "thumbs up"  LOL

    Keep us updated with lots of good news

  • Estepp
    Estepp Member Posts: 6,416
    edited February 2009

    Karen... YES!!!!!!!!!!!!!!!!!!!

    The fact that Drew is there.. praying... so beautifully God at work..

    I love you sister.. Keeping hangin' tough and we are all going to keep praying. The ladies here at BCO are AMAZING! IF I may add this here... I love you women.. you are an inspiration to me. You are all so kind and unbelievably special! It's an honored to know you, to meet  you, and to be with you on a message board like BCO.

    Karen... Olivia.. and all the Moody family... God Speed!

    Laura

  • psalmist
    psalmist Member Posts: 214
    edited February 2009

    Great update!  We continue to pray.

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