Iowa City -- July 2013 -- Survivors 2013

Scottiee1

Maryah....Shianne is right, OMG....so much to deal with....sending prayers up for your

grandson....open heart surgery, can't imagine at such a young age, I'm so sorry, and your daughter....sending prayers for her also.....((()))

SwgeeWi

Maryah, hugs and prayers for your grandson and daughter!! So glad you're able to help!

I can't wait to meet everyone!! I've never tried choc. jujubes, either.  I will have to bring these addicting peanuts from a nut place (Wolfie's) in my hometown of Findlay, Ohio.  It's hard to describe, they're coated with this crunchy, savory coating and they are sooooo gooood!

Is anyone else coming in Wed. night? My reservations are for Thurs. (when we thought Michelle was running Friday.)

Love and (((Hugs)))....Sheila

SwgeeWi

Maryah, hugs and prayers for your grandson and daughter!! So glad you're able to help!

I can't wait to meet everyone!! I've never tried choc. jujubes, either.  I will have to bring these addicting peanuts from a nut place (Wolfie's) in my hometown of Findlay, Ohio.  It's hard to describe, they're coated with this crunchy, savory coating and they are sooooo gooood!

Is anyone else coming in Wed. night? My reservations are for Thurs. (when we thought Michelle was running Friday.)

Love and (((Hugs)))....Sheila

shianne29

Love peanuts!!!! The Canadian girls will be there Thursday morning. Depending on what time we get on the road lol. I think it's about a 3-4 hour drive from Chicago. Im trying to figure out a way to bring a creation of my DIL she does amazing cakes and pastries etc. just not sure how well they would travel for 4 days. Or if they would even make it to Iowa lol.

maryah930

I booked my room for Wed - Sat so if I get there early, I can just check into the room.  If anyone else gets there in the AM, feel free to use my room for the day to wash up, drink, change clothes, drink, eat jujubes, jello shots, pee, etc.

Tazzy

love, love peanuts.   In fact would be easier to say what I dont love eating.   No idea when we get there... all I know is I fly into Hamilton on July 13.   Shianne I am like you, cannot wait to meet everyone.   So excited about this.   Now I remember how I felt when I was a kid at Christmas.

Joanne_53

We are scheduled to get to Iowa on the Thursday .... We will have so much crap with us ... Jujubes, chocolate, wine ....

liefie

Marayah, I'm not coming - just lurking here because I'm sooo jealous. Just want to tell you though that my sister developed the rare myastenia gravis, and underwent major surgery while 4 and a half months pregnant with her 2nd child. They could not give her anything for the pain after surgery because of the baby, and she just had to suffer through it. It took time, and my mom had to take care of her baby boy for weeks when he was born months later, but she recovered completely from it to this day. That baby boy is now a strapping, handsome, 6 foot five 21-year old young man . . . hope that makes you feel better. Best wishes to you in all your challenges!

maryah930

Liefie ~ It does and thank you so much.  Ezra, 4 years old, was born with Tricuspid Atresia, so this will be his 3rd open heart surgery to occur sometime this summer.  Dr. K is presenting his case to the Pediatric Cardiology Surgical Board within the next two weeks.  At first, they thought Nicole's symptoms might be psychological (post partum (Ada was born 10/7/2012, my BMX was on the 16th), working, dealing with Ezra's declining cardiac status and his typical 4 year old energy, and my diagnosis/treatments) since they became more pronounced over the fall and winter. 

Most of the tests came back inconclusive to confirm MG, but we're still waiting for the results on one last rare anti-body test. She'll have to have one more MRI (for the possibility of thymus tumors as a cause), but the neurologist started her on medication five days ago as a means to confirm the diagnosis and she fells 100% better and is not up to the full dose.

liefie

Marayah, you certainly have your plate full at the moment - wow! It is a lot to deal with. Just glad that your daughter is feeling so much better. MG is certainly a rare condition. My sister's upper body was so weak that she could not even comb her hair at some stage, and her arms were basically useless. There is hope, and once the docs determine what to do, she wll be fine. Big hugs to you all!

SwgeeWi

(((Hugs))) Maryah!

shianne29

We have to try these!!

http://www.buzzfeed.com/emofly/how-to-make-strawberry-margarita-jello-shots

Joanne_53

You core the strawberries and we can do it. I have the strawberry daiquiri jello and 1 cup of vodka packed already .. Just need to get the tequila for the already packed margarita jello ... mmmmm

maryah930

Funny, when I used to drink tequila, I used to lose my top...now, I can flash and won't get arrested.

shianne29

Maryah, that's too funny!!!

Joanne, first stop in Iowa is a grocers to get strawberries!!

shianne29

Oops that's after we get the tequila!!

SwgeeWi

I hope our hotel rooms have regular sized Fridges for all of our wine & booze!! LOL!

Joanne_53

They do .... That is why I thought of the jello shooters ... I will need the tray from your room though ...

shianne29

We're going to need a few of hose Iowa U boys to chaperone us so we don't get into too much trouble!! Lol

Moderators

So, how many are attending???

Joanne_53

I believe that there will be 9 in total. So exciting ...

shianne29

You, me, Scottie, Tazzy, mcook and her friend, maryah, Juneau, Aimee, Swgee.... Did I forget anyone? I thought I had counted 11 at one point.

Moderators

What happens in Iowa City stays in Iowa City? It sounds as though you're all planning for a wonderful time. Take lots of pictures - we'd love to see them! Okay, maybe not the flashing ones. 

shianne29

Lol, not sure if I want to see those ones either!!

Scottiee1

Don't worry mods, I'm the oldest so will set a good example and keep them in line ...😎😇

Joanne_53

Sure you will ... 😉

iatigger

I dont know that I believe that Scottie, I have a feeling you are going to be leading us down the path of wild and crazy with all your experiences over the years Lol!

shianne29

All I know is, I'm excited!!! And we are going to have FUN!!!

Tazzy

Ditto to that Shianne !

juneaubugg

You ladies are KILLING me!!   First of all... I don't drink. Will there be virgin pina coladas served by any chance? And NUTS!! YUM  but I have Crohns disease... I'm not allowed any nuts or seeds. (I cheat and eat maybe 10 sometimes but that's it).  AND with my diet... chocolate jujubies (I've also never had those)...  Shit man, I'm totally FUCKED! 

(Oh btw - down another 1.2 lbs this week!)