STFU (Shut the F*** UP)

Anonymous

When I was going through that blasted red red devil all I wanted was lime sherbet, lemon lime soda, ginger ale and water.



Keep diligent with the nausea pills. Take them before you need them. Waiting until you need them isn't good. Emend was my friend. I would take zofran wait two hours then take compazine. I would also take Prilosec - prescription strength. I tossed my cookies once because I didn't take the meds on time. I kept a pen and tablet close by and kept track of when and what I took. Never had a problem after that.



Eating was discouraging. Nothing had flavor. A lot of times I followed the BRAT diet...B bananas, R rice, A applesauce, T toast. Nibbled a lot. Drank plenty of water.



That's about all I remember.

Hugs

IllinoisLady

Morning.....was writing a rather long post about A/C chemo when I got bumped off so my computer could update itself.  Rude is the word that comes to mind.  Had it told me it was about to annilate my post I could have c/peed in into a different place.  AArrrrrggggg.

So Chick....this is for you.  Back in 2008 I had the same chemo...the A/C and it kicked my butt royale.  I guess I was just too old.....I couldn't even remember what nausea felt like......only had  it a couple of times with my pregnancies.  By the time i started trying to use the methods that worked so well for others.....seemed like my body was into miss-behavin' and did not want to give that up.  The other women I had chemo with said....take the anti-nausea meds starting right BEFORE you even take the chemo and keep on for a few days.  It worked for them. 

I lost 38 #'s ( but thank goodness I had it to lose ) during the 6 mos. of my chemo txs.  I also came by the white diet late.  Potatoes, eggs, banannas, tapioca, yogurt,  --- anything that is white and bland.  White bread for toast is great at this time.  I did seem to notice a craving for Jello......and maybe because I craved it....it didn't do any damage and stayed down. 

Also.....after I had gone as far down as I could and started back up the other side......I seemed to always crave tuna fish on toast.  I put apples and raisins and celery in my tuna fish ( who knows maybe it was something I made it with, I don't know ) but I always but always wanted only that and would eat it all day after I made it.  Alway laughed a bit while eating it......thinking....guess I really like that poison.  The chemo is not enough for me...I now must have some good old mercury poisoning. 

Still, I'm a believer that your body knows what it needs and will ask you for it.  How many gallons of ice cream I have let my loud mouth body have.......amongst other and sundry goodies of wide variety.  Cream horns...total yum.  Cappuchino cheesecake...yum - yum. 

I'm digressing here......I had the A/C for three months.  Apparently since I never got a handle on the nausea thingy ( I think you will lthough easily ) I just went ahead and tossed my cookies or whatever was there duing the 3 months of Taxotere......and nausea and vomiting are not even a se for that. 

I gave myself Nuepogin shots ( for 7 days after each tx. ) after every round of chemo and stayed quite healthy......it was during a very cold and snowy winter here and I never developed as much as a sniffle.  So even though there were a number of challenges.....i did get through the chemo and was even quite proud of myself for my stamina. 

My biggest method for the hard, hard days was to tell myself.....you will feel better after the next ten minutes.  A lot of times I did not, but I'd just start all over again with that refrain......just give yourself ten minutes and it will be much, much better.  So for 6 mos.  I lived a good portion of my life in tem minute increments.    Usually anyone can get through almost anything for ten minutes. 

If you feel the urge to nap....I would.  I did a lot during that time period and it did not seem to affect my night time sleeping.  Your body is working hard while it is acting as Conan the Barbarian killing all those cells and destroying your hair and all that junk.  Be kind and take that nap.

I did say before that I was a champion sleeper and I was.  My best method for not getting the drowsies soon enough to suit me is  ( I have a t.v. in my bedroom ) that I turn on the boringest program I can find and quite soon ( I have a sleep timer )  I am falling to sleep in self defense. 

I hope you path becomes really, really smooth.  Now maybe I will try and go back ( I saw your first post about chemo on the page just back of this one ) and read what I missed.

Going to the show today.....not sure of the name...a comedy my gf says with the bad word every other sentence.....will I become de-sensitized ????

Hope you all have a great day. 

I know my spell checker had to have flown the coop long time ago so excuse any mistakes.

Jackie

sas-schatzi

jackie so many good thoughts in your post. LOL on the ten minute thingy. I used to say that when work got really choatic.  Basically, ER days. "We can do anything for the next ten minutes". Got us through many a time. You can imagine the choas when I used "Okay were in one minute mode"

sas-schatzi

Cami would you stop that , I'm gonna tell Mom on you       BTW I 100%agree with you.

------------------------------------------------------------------------------------------------

STFU, I have to study my thyroid report.

Edit:16:30 still learning, but have to eat  Edit: 17:15 learned enough, on the diagnostic treadmill for awhile longer. Edit 19:10 Kept learning, Attack mode starts at 8am 7/12/2013

ChickaD

Love all the good words Jackie♥

blondiex46

Chevy no tamixofin ever...never took it he told me it would make he gain weight...

chickie I want to rent your florida porch, love ft myers was there last year.....

sweetheart, good luck with the port...ah the red stuff...

dunes, congrats on the job....take care of yourself tho

GMA great pix

Mary so excited you are getting your porch..and more

Shell I am so excited for you and proud...you should be proud of yourself and thanks and the lung thing, we after the bathroom walk which is like right there, the oxy level was 71, 79, 76, apparently normal for me is 93....on the PET scan it says plural effusion - new....so who knows.....

Thanks Phyllie that works....of course the port didn't work, tried heprin so they just took it out of my arm....got chemo and zometa then was having trouble breathing again, gave me oxygen....today got a call and they want me to get a chest xray so tomorrow I will go and get it, the reason is they are looking for fluid in my lungs like I had last year and had to get it taken out....

I get emend through the iv when I get chemo along with another anti nausea medication which doesn't really work, dr. told me to take a zofran before I went....them I use compezine then I get high if I feel like, he also said I could use ativan for it if none of them work..

camillegal

OK u hooligans--WTF are u talking about now--But first--I loved u'r post Jackie, u always make so muchbsense--10 minutes--love that. But all this snti-nausea sruff it was all given to me in my port--I didn't take one pill for it. But the first four months I did work as much as I could went out to lunch every day that I worked and ate scrambled eggs with toast-not pot or anything else that's all I could eat, my gf's were getting sick and tired of looking at eggs everyday--I told them I didn't give a chit and I always got plastic utensils. Then after surgery was another year and 1/2 of chemo and all I wanted was ice cream--vanilla-but the really good stuff--but I didn't work then just silly, it reminded me of tastes for pregnency like a certain taste u need to have. And I thought this is very hormonal even tho I had no uteris or ovaries but why did thst happen? see why I have so many theories LOL And the red devil was rediulous but as I told u I'd hold my pee and when I got home would pee and not flush the toilet and my dgt would be there and get hysterical--I laighed so hard, but it only worked one time. She's not that stupid-so my fun with that one didn't last long.Cuz she tole my other dgtr and they didn't think it was funny. So u see that's how I deal with everything. That's why I'm not alot of help to anyone for advice cuz I rhink so differently I want to help but my words are hard to come by with some seriousness--I'm terrible

Chevyboy

No Cammi..... You have the BEST sense of humor!  Even tho I only understand 1/2 of what you write, I just know you, and I know what you are saying.... sometimes..... maybe never.

And what do you mean about WTF are you talking about???  Do I have to know now?

I don't know anything about everything, and nothing about all those meds and red-devil you gals talk about....

 I just know they are NOT fun, and usually make you really sick..... I'm so sorry.....  I just think of you all, going through chemo.... and to have you still post here, going through hell, is just beautiful!

Jackie ALWAYS makes sense....!  Ha, ha!    She is just the opposite of me....  That's why I love her.....  My Daughter in Orlando always goes to sleep with their TV on..... I would go nuts!   She has always done this..... maybe I did it to her?    But even when she was in College, she said she had to have some noise to fall asleep.....  And me?  I can't hear a damn thing anyway....so it's pretty quiet around here.

Hi Blondie....So I can use that excuse for why I gained weight?  Ha!  I just took it for 14 months...that was enough.

And Marywiththeporch!  About TIME!  I am so glad you can go out in a bug free zone now!   We are all jealous!

Veggy, you said lime-sherbet!  I LOVE sherbet!   Any kind.... You know I found key-lime marshmellows, so I am going to make that Key-Lime Pie from WW, with the lime yogurt, Sugar Free Lime Jello, and cool-whip.... in a graham-cracker crust!   The lime marshmellows just sounded GOOD, so I'll save you all a piece!

Hi Ducky, Sass, Savgigi and Chikki!  Hope you all are doing good!

GrammiFoley.... I sent that sign on to my Daughters! 

camillegal

Oh Chevy u can copy from here, I can't--don't try and tell me how just let me think u'r smart--cuz if u start that bucket chit, the only thing I know about buckets is water, mops and put one next to u bed t nite when u'r tummy hurts.

sas-schatzi

Chevy, My two standard jokes about hearing loss, you kind have to figure it out.

1. The car always runs well

2. You always miss out on the good gossip

Chevyboy

Oh Man, Sass!  I miss out on what DH says 1/2 the time, but that is not always a bad thing.  AND without his teeth, I don't even TRY anymore, Ha!   And I have hearing aids IN!   It's still really hard to understand any S's, or F's....  I mean I can't hear them even when I say them. 

But it could be worse.    At least I have hearing aids AND hands that are beginning to resemble hands again!    DD said they almost look like normal skin!     

I KNEW how allergic I am to Paint Stripper, insecticides, Epoxy, etc.  When DH uses epoxy on something, it HAS to stay out in the garage until it dries.    Twice I've wound up in emergency because of the hives, shaking, and welts I get.    So I should have KNOWN that what I was putting on Lacee for her Hot-Spots would give me trouble...   But I'm getting older, and I can't reason things out like that....Ha!  

Yes Sass.... the car DOES always sound good....  DH says, "Is that the brakes squeaking?"  And I say what brakes....  And WHO CARES who is mowing their lawn????   Like I need to KNOW that?  And who needs to hear thunder IN the house?   I can go out if I need to hear it.   And trucks going down the street?  Again, who cares?   I think he just asks me because he KNOWS I can't hear it.    Not important!  If a truck runs INto the house, then I would probably hear it.  Maybe....  

Chevyboy

sas-schatzi

Chevy you got number one What about number two? Happy dance about hands RE: truck---DH can't see either

marywh

Speaking of dhs, wish you could have seen mine today. You know those cartoons where the boat springs a leak and the cartoon guy plugs one leak with his fingers and 2 more leaks start? Well thats what happened to him today on our porch. He was trying to stop all these leaks and more kept coming..It really shouldnt have been funny, but it was...Of course it rained all day and our roof was torn up in spots, but he thinks hes got all the leaks running away from the inside walls which is a good thing.

sas-schatzi

Mary amazing and you didn't even say STFU

camillegal

Mary---NO PICTURES---that would be fun to see, for us not him. LOL

Chevy I know it'a not funny but I kniw I'm just starting to notice if there is a certain tone, voice, TV whatever I don't hear it well--like I used to--so I;m staeting to say I wasn't listening It's so much easier for me. But my SIL has worn a hearing aid since he was little and if the TV is on and we're talking my GS thinks we're yelling at each other. And I realized we're not hearing each other --This isn't fun, but I feel worse for him than me. LOL

I haven't been on the ball latey (shut up Chevy), I mean I've been so tired al the time but it must be the pain meds cuz I hurt so much and I'm no martyr, I don't like it so I'm a little down (shut up Chevy) I'm the perfect straight woman for Chevy.

It's supposed to be warm the next few days, I haven;t been in a pool in 7 yrs, at least--so I'm going to try ==It's the getting in an out probably go in easier cuz once I've climbed up I can just fall in, but getting out between my weak arms, bad knees and back--everyone will laugh and I don't care but if I laugh and I will I'll have less strength and no one can help me cuz they laugh to hard. I know this cuz everytime I fall they're litterally laying on the floor with me laughing and I'm peeing laughing. So this should be interesting, I;m no petite woman. OK I'll STFU

Anonymous

OMG cami, I'm dying! You are too funny and sweet! I hope the pool will be SO much easier than you think. If not, tell them to STFU for peetie wheeties, and HELP you!



blondiesweetie, aarrrrgggghhh! I hate it when the port doesn't work! That is even MORE annoying than some dink (Chevy's word) clicking his car alarm 8,000 times outside your bedroom early on a Sunday. You pay thousands of $$$ for a port and they say " Oops! Here let us stick you somewhere else. ". I once asked for my money back. Uh oh, sorry, this is about you, not about me.



And Blondie, we do NOT want your plurals to be effusive or even effaced. Tell the x-ray tech that before they do it, okay?



Sassy - you go get 'em!



marywetporch - sorry things are soggy right now.



Chevy - "who needs to hear thunder IN the house". OMG, you're right! rofl!

Shellshine

Veggy, Lillinois (Lilli), Mary, Blondiiee  and evryone who gave SH info on chemo - Thank You!

Anonymous

Dunesleeper - I love Royal Farms.  In my past life I worked as a consultant for them performing food safety inspections and keeping them in compliance with the nutrition labeling laws.  You will see my former boss some day, a very nice and smart guy named Ed Sherwin.  The fried chicken from Royal Farms is the bomb!  And they also have Tasty-Kakes.  Huh, some nutritionist I am.  Just remember to wash your hands Sister Warrior and Good Luck!

SAS - thank you for your comments about my work with a fellow BC patient.  I really do love what I do.  Tomorrow at 2pm (Friday), I am giving a presentation to the doctors and staff of my Oncology Center so that they are clear on the steps to properly refer a patient for Medical Nutrition Therapy.  I am even bringing some healthful but yummy snacks.

Now a question for you Hoolies.  For one month now, I have been in misery with joint pain and stiffness in my fingers, shoulders, hips, knees, elbows and feet.  Finished Chemo on May 1 and finished RADS on June 30.  I have taken every pain med from Norco to Duiladid to Fioricet to Extra Strength Tylenol and Tylenol PM and even Celebrex and I have very fleeting and only temporary relief.  What is up?  To make matter worse, after the bilateral salpingo oophorectomy next week, my MO wants me to start on Femora whose #1 SE is joint pain and stiffness.  I refuse to fill that script and will have to talk to him again about this pain and ask him to think about another AI.  Any suggestions?  And not to mention the insomnia!!!!  Ok, now I will STFU but still need HELP!

(wilted) Flowers

P.S. - One other good thing for nausea are Ginger Capsules taken twice per day.  I got some inexpensive ones that really helped keep the nausea at bay at the (evil) Wal-Mart!

camillegal

Oh Flowers I don't have any real actual medical advice like our girls will give u but I can give  my theory. All this crap that we get seems to wake up every piece of arthritis that we might have had but barely bothered u, also peripheral neurapathy has become another frightful mess to have--when I finished I do remember the Dr saying u'r arthritis has realy gone all over, but the chemo and rads did wonders, You have to tell u'r Dr. right away cuz if there is a way to halt more stuff from happening u need to do that. Now of course this might be for now and the flare u will go away, but don't take it for granted. OK like I said u will get some real advice from some of the girls, I just know I started with the neurpathy, and arthritis, then I went to severe arthritis and scoliosis, then I went to degenerative disc disease, maybe if I opened my mouth more it would have not gotten this far, I don't know, maybe it would have--but I do know other women that started aching like crazy so tell them how u feel so maybe they can fight it so it doesn't get so far. That's just my theory and mine alone---so maybe it will help.??? I hope so 

mostlymom

"Gabapentin may also be used to treat other nerve pain conditions (such as diabetic neuropathy, peripheral neuropathy, trigeminal neuralgia) and restless legs syndrome."  this is what helped for my pain - i had relief with the 1st dose - i hope it works for you.

sas-schatzi

Flowers, I have Post polio. S/S of PPS are varied, but I was behind the eight ball with AI's. I developed fibromyalgia with my first AI arimedex. I longed for just my old muscle, bone, &joint pain, fatigue, insomnia, weakness after I went on AI's. Prior to Ai's, I managed with just Valium and with very careful s/s management. The individual reaction to AI's is all over the map. So, what happened to me doesn't mean it will happened to you. My pain control regimen was on the extreme end b/c I started on the extreme end, then got worse. Fentanyl patch 25 mcg, my way of using it was posted a few pages ago. Oxy for breakthrough was rarely used. Valium for neck, TMJ muscle spasms and other muscle spasms used when present PRN, but not in conjunction with other benzo's. Ativan(benzo) 2-4 mg@ bedtime with 10 mg of Melatonin for insomnia. Savella 25 mg-NSSRI(low dose) for the fibro, it has a mid range antidepressant effect. Tried Femara. Aromasin sounded like it would be worse than Arimedex and Femara for me, but gave it a try. Tolerated it from June(?) 2010 till end of Aug 2012. Went off it one month before brain sx b/c of AI's affect of reducing immunity, and resumed one month after.. I wasn't going to risk a brain infection. Mo wasn't happy, but Oh well.

In a do over, I would add regular massage therapy, and a return to the old polio treatment of hot packs.

Phylli Thanks, plan to be at endocrin's office when it opens at 8. I'll get the ball rolling and keep it moving.

sas-schatzi

Flowers  have fun with your presentation and goodies, I'll be waving from the back row :0

GmaFoley

Well the BS called me to touch bases with me after the last negative ultrasound for thoracic Outlet - He said that the test only ruled out the vein and artery constriction and is willing to refer me to a neurologist to check out the nerve situation.  Come to find out my sleep doc is also a neurologist and could potentially test me for the nerve impingement.. But that is also what my pain does too and he wanted to do the inplanted nerve stimulator.. I am so confused right now.  BS also said it would be good to touch in with my new primary and see what she thinks on his Idea - neurologist or thoracic surgeon??  I also told him about left ankle being extremely more swollen than the right - and he told me to call my primary this morning after taking measurements - he said if the left calf is a cm more swollen that the right - i should check for a blood clot and please call my primary asap.. ANOTHER veinous study!!! no no no.... STFU!  I just want to enjoy july with my grandkids!  

Ok - New rule - always end on a good note! 

Chevyboy

Oh Honeys!  I slept later!  Damn!  That's funny sass... You named Jackie "Lillie"!  Yes, good one!  I have to go tend to DH, HE got up early too!   Cammi!  You wild woman you!  I KNOW what you mean, each time you say "shut up Chevy" because YOU mean it too!  Ha,ha, and HAH! 

I'll be back later .....  promise! xoxoxo

sas-schatzi

Phylli@ Go's office 7:53 he had BX order ready, written last night with copy sent to central scheduling. Called central scheduling not received, Recalled office@ 8;15--office sent to wrong fax number   Now going to bug insurance. And make sure Jayesh will be in town. Office will call when fax sent. So, I then can bug central scheduling. No preliminary blood work, tells me my analysis was correct. Called Jayesh's office he's in town asked if he prefers any particular doc to do BX. Round robin calling. I'm shooting for BX mon or tues. Let's see if I can getter done.  Everyone's being very cooperative and sweet:) They don't mind me being proactive(pushy)

GmaFoley

Praying for you SAS - Hope everything is ok!

sas-schatzi

Foley, Thanks, I know how to work the system. I'm in attack mode, but I do it nicely. My fav ENT doc is in town with no vacations schedule. If sx required he'll fit me in. I'm one of his favorite nurses.

IllinoisLady

Lili is saying good morning to all.  Cam, you know so much and you have a heart the size of all outdoors.  Enormous attitude as in so good.  Don't know for sure, but I think swimming.....or floating, or just 'moving' in the water is tremendously good exercise.

I wouldn't care about getting in or out of the pool.  I too don't always "look" the greatest ( so you can believe I so hate it when I fall ) getting up.  It is total effort and I usually have to find some way to get to my knees, then put my hands down and force myself up with them.  If my hands ever go bad I don't wish to mention how deep the do-do will be for me. 

Anyway....I feel so for anyone having se's from the AL's.  I really have done quite well on Arimidex/Anastrozole.  I did go through a bad period for a brief time, but just about the time I was going to CALL for help.....everything resolved.  The biggest issue I think is my lack of patience many times.  Frustration level can go through the roof. 

Anyway.....hope you enjoy that pool Cammi and get lots of good activity and great muscle stimulation out of it. 

Shame on you Chevy....but hey enjoy.  I think it is sort of fun getting up a bit late....though I do tend to punish myself by feeling that I have to do the things I would have done or at least started.....so mycoffee time is pushed by ( just forgotten for he time ) until I accomplish what needs to happen for the dogs to be quiet, etc.

Tons of things to do today.....just because its Friday I guess.  I am enjoying not having to get up and go to work, but being home will not become my work and I bet I stay close to teh work schedule I had....just working here at home now.  What freakin' fun.  And the worst part -- no one is going to pay me. 

Well you know what idle hands are.....so onward and upward for the day.

Lili

Anonymous

chevy - I get up late every morning!  Most mornings I feel like Lilli and need to get up and get things done, but I DON'T!  Haha!  Then I feel guilty or lazy or something.

I've been off work since March and just this morning decided "WTH, I have cancer and am in the middle of chemo.  I don't have to answer to anyone, including ME!" How is that for a great attitude in the  A of M?  Yes, I know.  I'm a slow learner.

Foley - You have been through so  much.  Just put all the docs in one room and make them duke it out until they come up with the right answer!  If they don't, slap them around and send them back in until they get it right!  I hope you get some permanent relief SOON! Constant pain is so debilitating, and annoying, and anger-making, and and takes up too much time feeling it and thinking about it. 

sweet-tart - I agree with Jackie about staying ahead of the nausea. Take your Zofran or compazine and if your stomach is still not settled in a couple of hours, take the other one. I usually start with Zofran and then go to compazine. My doc gave me prescriptions for both at the beginning of chemo. I also get Aloxi with my infusion.  If that is not working, call the doc's office. 

I also agree with veggy about keeping a log/journal of when you take meds!  Add a line for symptoms.  For me that is essential because I have CRS!  That way when I call the doc's office to complain about something and they say "how many days have you had that symptom, Mrs. Graham?"  I don't have to say "How the hell would I know?  I'm sick!"  That doesn't work so well.....especially after the first 10 times.

In addition - if you are having pain, stay ahead of that also. Do NOT feel like you're wimping out. You're not. Just think of it as managing your treatment.

Having said that about nausea and pain, also manage your diarrhea or constipation. There are good threads here on BCO about those two things. They can make you as miserable as the nausea and pain, so don't discount them. (Also be sure and read the links that Sassy posted. She's amazing!) Mine was so bad that I had to - well nevermind - but INSIST that your doc's office help.

Same thing with sleep. Take the meds. Your doc will prescribe them.

You may think, STFU! That is a lot of crap to remember. Yep, it is. But you are now officially "special". You get that designation with your diagnosis.

Sassafrasspants - So glad you are out kickin' ass and takin names!  Me - I'm driving over to the coffee shop for a lovelysoothingdelicious triple latte.  Yummmmmmmmm.