STFU (Shut the F*** UP)

SweetheartinTX

Adrimycin ( aka Red Devil) and cytoxan right now

Spookiesmom

OT. Savgigi



Monday, July 15 is St Swithans day. AlanS will get us if we don't do it!!!! HeHee



Barb T2, OmniPod since 1-09

ChickaD

Oh Miss Sweet♥....I totally feel your pain with chemo...I am not handling my rounds (on #3) either...they SUCK!

Spookiesmom

ChicaD, what part of Fl & Ohio?

SweetheartinTX

ChickaD



Yeah this is yuck! Hope I feel better tomorrow. Or at least a little better. Is there anything you take besides the nausea medicine? I feel like I have a headache but don't know if I should take some Tylenol or not.

savgigi

OK, Spookie. I will put it on my calendar. I would not want Alan coming after me

camillegal

OK guys get over here and help sweethearthurting----Make sure u keep hydrated, plenty of water or vitamin water loads--See I know that==gingerale made with real ginger and don't lay down yet--di u have a comfortable recliner?

Spookiesmom

Savgigi. It would be a long trip!!

sas-schatzi

Flowers---what nice thoughts for us all. I did find the glasses as you likely can tell. Sounds to me like you are walking and talking yourself into a job at the MO's office. Then you can act as a consultant at other MO's offices in the region. $$$$$$$. So, put on your calendar to learn about consulting "How To's" later this year:) Two lbs to some may see small, but in a cancer patient the was consistently on the downward trend IT'S A BIG ACCOMPLISHMENT.  Along with that Dear Flowers, it tells me you have a way about you. You got that one patient to believe that she could do something. THEN she did it.   You caused her to believe and act. That's huge. Her life sucks. She's exhausted. She's in treatments that drain her enough going to pee is work. YOU got her to follow a diet plan. We can talk til were blue, but if it doesn't change action, then the words are worthless. You gotter' done. ATTA GIRL!

sas-schatzi

Sweetheart I have worked as a nurse with pain docs and absorbed allot. Did allot of study on my own. Worked in allot of different nursing jobs that pain control was an issue. WE can talk by phone if you want. PM'g takes way to long. sassy

sas-schatzi

Sweet Pea,Dwilli & Sweetheart and any newbies this link is to my thread "Just Diagnosed get prepared" It's lots of practical stuff. ChickD has used it.

http://community.breastcancer.org/topic_post?forum_id=5&id=748296&page=1

This is a link to 4 threads that were put together as being beneficial to newbies. I am proud that mine is the first---it was like SO cool, but they have it in logical sequence. Practical, then Melissa does it from a medical point of view, then understanding path report, then a wonderful post about what it is to come out the otherside of BC.

http://community.breastcancer.org/forum/5/topic/785763?page=1#idx_1

marywh

Sweetheart, If I remember correctly, stomach issues were not too bad on adrm. could be a combination of so many drugs in a short span...pain meds , anesthesia, all the stuff they give you in chemo. Thats alot. Hope you feel better. I think tylenol would be ok for the head-ache. Thats what they always told me to take.

dunesleeper

GmaFoley, sorry they have still not determined the source of your pain. Bummer.

dunesleeper

I start work on Sunday! I have to go to PayLess tomorrow for some slip-resistant black shoes. I HATE black shoes. Then to Goodwill to see if they have some black slacks. So, after I get the word that I am on the schedule for Royal Farms, I get phone calls from DSW (shoe store) and Kmart about applications I put in to those places oh so long ago. Yep. All this in one day. Well, at least they are finally WANTING me. STFU!

camillegal

dunes--good luck Sunday--it's always strange starting a job (I think) but u must be ready so u have to tell us how it goes--competely.

juliaanna

Sweethearthurtin', Hope things are getting better for you.  Keeping you close in my heart.

Dunesleeper,  Congrats on the job!  

Hello to the rest of the hooligans!

sas-schatzi

Julia --having any fun---you've got your oldsters. You're watching out for them. What are you doing for yourself? From a  nurse that knows to another nurse, nurses don't watch out for themselves.

juliaanna

Sas, I'm taking care of me. Spending time with my GD gives me respite. I've certainly learned to say "no" to people/requests. I stay away from toxic people and environments. Of course, I have all of you.

My DH is home until Sunday so we are doing things together including yard work. We are planning to spend Saturday with the family at the coast. It will be GD first time.



How are you taking care of yourself, sassypants?

sas-schatzi

Julia, doing okay. But going to break confidence of phone coversation  b/c it is too treasured not to share. You're still in honeymoom status after X years (forget but it's allot ) What fun!

Shellshine

Sweetheart - I have been searching the internet looking for some answers for you.

Definately take tylenol for a headache. If you are too nauseated to take it orally, use it in suppository form, available over the counter.

I'm just not sure what to do about the nausea. I would try all of the prescriptions given to you, one at a time, to see which ones work the best. Try combinations next. Try not to get too dehydrated, it will make the nausea worse... small sips of water, ginger tea, peppermint tea, or anything that appeals to you. If you want to try carbonated drinks, swish a spoon around in the glass to  break the bubbles down a bit. Start with 7-up or ginger ale. This may sound bizarre as hell, but one of my favorite anti-nausea tricks is classic coke, not too cold, with a bit of fresh squeezed lemon, half a glass to start. Stir with a spoon to break the bubbles. Chewing on small amounts of candied ginger may help. 

I've found that placing a cool cloth at the back of the neck does wonders for nausea.

Eat smaller frequent meals, go towards the cooler rather than warmer side in temperature....  rice pudding, tapioca pudding, ice cream, frozen yogurt, fruit ices. I made rice pudding with sweet (mochi or sticky) rice and rice milk for a friend undergoing chemo, she said it helped. If milk upsets your stomach, ask friends and family to make bland rice pudding with rice milk or almond milk. Don't be afraid to use white sugar - you need the calories and if it helps your food taste better, go for it. 

I'm not very knowledgeable about this, just wringing my hands trying to think of what might help you chemo  girls feel better. The THC in cannabis helped my 15 year old brother when he had leukemia. My mom made a  tea for him and he was able to eat a McDonald's Happy Meal (ugh). That was 35 years ago and we still tease her about it.

God bless you, Phylly, Mary, Blondiee, Chicka and any of our other hoolies going through this.  Please let us know what helps the most. Veggy - any thoughts?

camillegal

See Sweetheart I told u, u wpuld get help here--just not from me--not that I don't want to help, I just don't know much about anything--never paid much attention, but we have nurses here and they know alot.

U know Sas and Julia, Shell that's true about nurses and teacher, u'r used to taking care of others so much there are a lot of teachers and nurses on these threads. It's strange almost.

I hope all u chemo people are having a good or decent at least day now Sweetheart if u have any legal questions u ask Phyloillegal anything and chickens is Chevy's department. And ducky (who has been quiet lately is our fashionista) and I'm not bad about the bald thing--I can help on that. And others have talent for all kinds of things so u'r in a good place here.

GmaFoley

As I was writing to Sas I realized this is kinda a STFU moment, so I added it here also - Family arrived late last night - my ultrasound went like this: "She put my arms in every position possible and we still got a steady pulse - don't know what else to say - then she said it must be nerve related without arterial involvement - whatever that means... I'm discouraged - it means what I knew all along - chronic pain that is just going to stick with me..  I got a comment that - "We can hope it goes away soon" - That's a STFU statement if I ever heard one."  I realized this week has been my 2 year mark after radiation.. If I only got a $1 for every time I heard the statement above.. I would have enough money to pay my medical bills LOL.. Lets end on a good note:

camillegal

GMAcan'tfindreason---I know how aggrevating that is--just pay attention u'rself or even write it down how u feel for how long. I know mine is chronic now, but at first it was like doesn't seem bad u have to walk more--Yea well it didn't work that well. I really think there is a lot of stuff thrown at us and altho the cancer is treated some of our bodies are reacting to all that we went thru and other things hppen, but they really don't know all the answers yet. Just my thinking--which we know what that's worth. LOL

GmaFoley

Cami - all I can do is smile - I understand  and I appreciate all opinions including yours.

ChickaD

Miss Sweet♥....mostly the Compazine works for my nausea. .but when not I use something call Emend (sp?)...its long lasting...ask for that prescription.

Ohio porch......in NE area of Novelty  ...east of Cleveland

Florida porch...in SW area of North Fort Myers, FL

GmaFoley

Roseburg porch - South, East & West view 

savgigi

Mornin' Hoolies! Just checking in. I worked 7 12-hr night shifts in a row in LA, then went to Orlando to see my GD sing at Disney World, then took a few days off before I head back to the west coast this weekend. I feel like I just caught my breath and just caught up on reading this thread.

I hope all those getting chemo or having surgery or just in general feeling bad or in pain get relief soon and feel much better.

Thanks to all the hooligans for keeping me laughing.

sas-schatzi

Foley all that we talked, the least probable, but in probable category was arterial. No one tested for it before. Now you have someone that tested and put you through every position to see if pulse disappeared. My question is did they put you in the position that caused symptoms which we talked about? Venous and nerve were/are probable. With TOS all(nerve, artery,vein) have different dx methods.  AND if it ends up none. Then you have a ruled out a set of diagnoses( not mispelled , plural for diagnosis).  We talked about looking at that side of your body as a quadrant. Neck to tips of fingers and to midline of body, to somewhere --below breast-- not quite waist. MY long story about my neck and 3 years in traction--never got a radiologic dx, but the spasms and pain were very real. Just as yours is. I have MRI report(2010) of stenosis at level that was trouble all these years(46 years).  It's a hoot b/c in the 46 years of medical mgt., it was the least of my problems when MRI done in 2010. Was stenosis present for 46years --no. In those 46 years, I do something to aggravate the neck level, I pay for it dearly. We talked position. You have felt changes(pain) with position, that changing position or activity has improved symptoms. Most you figuired out on your own i.e this position caused pain, so you stopped or changed what you did. Do not minimize this. The docs may b/c they don't have a "thing" i.e neuroma, to say what causes your pain. But if you do something and it reduces pain--keep doing it. The hardest thing to do is change behavior (as I sit typing with a cig ). I told you about the most boring year in my life and job change which lead to neck improvement. BUT my life after those 3 plus years in traction, has revolved around prevention since that time. Were there periods where it was a problem since ---yes. Each time I analysed what the offending source was and changed it. What we weren't able to talk about was the part that chiropractic did for me. I'm absolutely not suggesting that chiropratic be a solution to your problem. But for me it was a major solution along with behavior changes i.e physical activities that caused trouble --I changed the activity. Can your neck arthritis, first rib/clavicle space change, shoulder impingement , muscle spasms or other unidentified source be a cause for your pain even though the docs say no, the answer is yes. YOUR pain is real, you know it. IN the end after all dx tests have been done, if they say "We can't find a source for your pain" doesn't MEAN anything other than they can't find a source. Many people don't understand that statement. Many docs don't understand that statement. BUT to often when docs can't find a source, the patient is lead to believe or made to feel, it's all in their head i.e. imagining it. The best analogy I can come up with right now is, all the complaints(medical usuage of word) people on Arimedex had with the drug. I once saw an interview with one of the lead researchers on Arimedex. His statement was that in clinical trials "They never saw(observed/received/documented) the severe musculoskelatal problems and severe s.e.'s  that were seen after the drug was approved." And "That they would have to go back and re-evaluate what this meant". He at least recognized these complaints were real. BUT how many women were/are lead to believe by their MO's, that their complaints are not associated with the AI's. (Tamox not an AI, so, wasn't part of the interview). Foley, no matter what is diagnosed, do not allow yourself to think that this is not real.

Edit. Crips almost a whole page passed while I was writing this one response. Well Foley, it follows what you were thinking.

EDIT: We didn't talk about neck traction as a form of birth control.  Only did it once with the 10lbs of traction on. Paid for that one time for almost three months. After that, the clue phrase was "going to hang up now."

duckyb1

Illinois.......rainy weather depends on where in Washington State you live....Tacoma, Seattle yes.........I lived in Yakima, (the fruit bowl of the nation).......sun almost everyday.....gorgeous place......I could see Mt. Rainer from my kitchen window....

GmaFoley

Ducky - still hot here and will be hotter next week - No rain in sight