The Hermit Club

blondiex46

Lily, so sorry, i unfortunately had to give my dog to my daughter cause i couldn't afford it

Sound like fun jazzy.

Weekend is over...

karabesque

Hi! i just found this thread and I can totally relate to so much that was said early on. Now, it seems like the hermits have found friends. How nice! Is this still about the issue of not wanting to be social? I could really commiserate with someone...

JazzyGirl, where in NM are you? I live in Santa Fe...

Here's to this site and not feeling alone!

Lily55

dinner would be great! I have three dogs and three cats, did have more before, its dire here for animals, all mine are rescues, if I gave any up they would be first on the kill list in the pound, 10000 dogs are killed in spanish pounds every DAY........they are my famil

Jazzygirl

Kara- I am in ABQ. Let's chat off line! I will PM you!

M0mmyof3

Hoping to finish Philippa Gregory's book "The King's Curse" if not tonight, then some time this week.  

Jazzygirl

My friend I am visiting this coming weekend up in CO after my biz travels to Denver suggested this place. Can't wait.

http://www.joyfuljourneyhotsprings.com/gallery.htm

Bippy625

hi my gals,

Been busy and hangin in the drinkin thread. Ha! Another newly acquired skill. It is wicked fun there though.

Blondie you are on my mind and in my heart. Sorry about your doggie. Feelin ok today?

New job is fine, boss is an ass but they all are here. Whatevah! Making some dollahs for vaca and wil keep searchin in the meantime. Nice co workers and I will miss them. Hot hot hot here, hate it and it is unbearable. Thank goodness for a/c. Nothing else going on with me.

Hi Jazzy, mommy, teka, camile, foots, lily, and anyone else I missed. Hope you are all doing ok

Jazzygirl

Hi Bippy- what job did you find now? I think all bosses are arses, I have worked for only a few really great people in my life.

So are there drinkers on the drinking thread? My passion is Zero Vitamin water these days. Great for the work outs!

I am heading out of town for a biz/fun trip (to Colorado) and will talk to you guys on the other side of that.

Bippy625

jazz, i am back to slingin files. A ho never changes her ways.....i'll stink it up there for awhile, until I get weary of the stoooopid and continue to search out the perfect part time job in the meantime. I have so much less tolerance nowadays for arseholes, and the dude is one. Small minded and petty. Not a kind person and so, I know it will not last anyway.

Drinkin thread is fun.

Have a nice trip to CO

M0mmyof3

Didn't finish the book I'm reading yet. Princess needed my undivided attention yesterday as she went to the vet's yesterday and got a couple of shots and her exam in prep for when she gets spayed. Vet pronounced her as being very healthy!

 

blondiex46

Bippy, u were missed

Lily55

Copied from another thread as most of you won´t see it....

I am seething - was told today by Oncologist that Aromasin causes joint problems and stiffness in 70% of women but that there is nothing that helps, just keep moving as it will get worse if not.............ok so I will do John Wayne stagger every morning for an hour..............my exhaustion is because i am "seriously depressed" , Epstein Barr does not cause tiredness or fatigue and that I cannot stop this drug probably not for ever..................!!!!!!!

Yet exhaustion is one of the top and most frequent side effects................. I argued about quality of life and then came the killer statement "if you stop taking this and your symptoms go then you won´t want to take it again"...............

Much better to try and shame me than admit its the treatment that makes me feel so lousy

I started a conversation with him about quality of life versus existence, he voted existence............!

M0mmyof3

Went strawberry picking yesterday, gotta clean, slice and freeze them today.

 

Lily55

Today went in to a supermarket thinking of food to buy, next thing a woman in a lovely summer dress with a beautifiul partial cleavage on display walks past and I am in tears............i struggled to keep myself together, she was so carefree and looked so lovely, not brazen, just natural and lovely, I just don´t think I will ever feel like that again...........

Its clear that autologous recon has fairly high infection risk especially as fat is the best food for bugs.......but now I am reading more and more of failed implant surgeries due to infections especially in radiated tissue........I feel increasingly desparate about it yet know I am not actually well enough to actively pursue anything right now, but to get hit llike this with such strong emotions after 3 YEARS shocked me

Jazzygirl

Lilly- I think seeing other people happy and carefree with intact breasts can be very shocking. Summer is a time when women's bodies are so much more exposed with sundresses, bathing suits, etc. It reminds you how unfair all this stuff is in the end. My hope is with more time, this becomes easier for you.

Hugs sister.

Teka

*Hermits*

Lily, I listen to music on the computer when feeling beat down by BC crap!

Jazzy, soggy weather is forcing many outdoor shows to become indoor shows this year!

Teka

*Sweet Dreams*

footprintsangel

Faith cant fit there

Freygea

*waves* I have always been one to spend most of my time alone and now really feel alone. I am so glad I found these forums. I can honestly say I am so hermit- y that sometimes I just read these forums and not actually post. I will start a reply and then not post it cause I read the reply and think.."oh that just sounds silly and not very hellpful..lol"

camillegal

Hi Ladies--I know, I know it's me--I bet u think I'm going out all over the place and having a great time NOT--I read a little but there is no way I can catch up.

Bippy I was reading u'r blog--u'r really good.

And whoever is new welcome to a great thread. And never feel like u have nothing to add, I never add a thing but I just go on and on about whatever I feel--these are wonderful ladies and all understand this whole blasted effect it has.

Oh Lily I do know what u mean, I'm overweight and for the summer I do pefer dresses, (long) they're cooler too but some of the tops are crazy and thank God ffor shrugs, with LE I hate my upper arms more than ever so I might get the dress but wear something over it. And I know about Aromasin, still choking the tiniest pill in the world down and it does the most damage, it amazes me. Lily I try to wear the pretend bra, but damn it hurts my flabs pulled underneath my armpits. I think they are left here in case I was going to do more surgery. Yea right-I'm now in my 70's my used to be breasts weren't any use anymore, so why in the hell would I want new ones for all the reasons u mentioned.

Oh Jazzy u'r still the go getter and I always love that, BTW I don't drink, but I enjoy talking about it I have put some brandy in my coffee from time to time and it's not bad (blackberry) LOL

Blondie I'm sorry about u'r dog--I know how important our little ones are.

Oh Joey is still playing the clarinet, alot of kids dropped out so we'll see how it goes.

And as u all notice I still can't type or spell and for some stange reason I still have the telephone job, and some days I'm really busy with this weather and now peoples A/C so it keepa me a little busy and Joey's home from school and I love it--we have coffee in the morning together now cuz there is time.

But just to let u know it is a struggle for me to go out unless it's my close family or my close friends, otherwise I could care less and since I work from my home that gives me  a better reason sometimes. And I have started to use a cane, for some reason hat bohers me but at least I don't fall as much, dem ole' bones.

Jazzygirl

Hi ladies- I am back from my CO trip for biz and pleasure. Five days including 1100 miles of driving. I love a good road trip and had a great jazzy adventure. Something I needed to do for some many reasons, and came home the better for it. I will have some great photos to share with you soon!

Cami- good to hear from you and glad to hear Joey is still playing the clarinet!

Frey- you can post anything you want here, silly, ranting, etc. is all welcome. We are a judgement free zone. These threads are a lifeline for many. They have been for me many times when no one else really understood. We are here for you!

Will be back again soon, got laundry, and some calls to do today upon my return!

Lily55

i am spitting mad, just responded to a post by a woman in the benign breast conditionsxsection asking for people to donate to her gofundme account for surgery for BENIGN breast condition, I am disgusted and said as much.......can you believe the brass front of some people?

AmyQ

Lily55, Me too. I cannot believe the lack of common sense and sense of entitlement some people have.

Amy

Jazzygirl

No one on these threads is supposed to ask anyone for money. It may be a scam. Report it to the mods.

blondiex46

Cammie i missed u

Lily55

THanks to the generosity of a local Association I had a private consultation with an Oncologist this week.......to talk through how I feel on Exemestane and in general.......this doctor went through my pathology report with me and was the first (yes the first in 3 years) to highlight the discrepancy of my mega high KI67 with the rest of my surgery path report, which was precisely why i paid for a second one to be done..........when I told him what the second path report said (some 70 lower) he said yes that fits better with the rest of your results................AND the cancer you had was not an aggressive one.........but the bad part is you had 7 affected nodes out of 15.............so for the very first time since diagnosis I actually saw a doctor who did not act like I was im immediate danger!!!

I almost danced home.......especially as he also said that he recommends that if people have the effects I am having on AIs then he suggests at least 2 or 3 months off to see if it is the drug causing the issues and then to review once info is known......he said after 3 years on AIs taking a break like this is very low risk.............and that he suspects I may feel better on Tamoxifen, despite my blood vessel disease, he said its a case of balancing out risk and life quality................FINALLY a human....................

I still have problems in one lung (the radiated side) but tests indicate its not cancer......I suspect this will go once I stop the AIs too but i am haivng other treatment too............the prospect of a couple of months feeling normal and not staggering around for ages every morning due to extreme stiffness make me really happy.............

Jazzygirl

Lilly- that is some kind of good news. It is really important to be heard by the MO's and having the appropriate care and diagnosis. You got some real help for a change Lily, and that is good to hear. Will this doctor be available for you for the longer term? I hope so. My MO always said with the AIs, etc. that you have to balance quality of life against the risk. I don't think giving women drugs that makes them disabled, depressed, etc. is a "good outcome" in cancer treatment.

I think there are so many variables around what makes cancer more high risk than others. One thing I know for sure is node involvement is a much more serious business, despite the pathology of the tumor. My sister had an aggressive cancer and they did neoadjuvant chemo out of the shoot to blast her with that vs. doing the surgery first. For me, I had no node involvement and only had rads and surgery. I am glad he is taking your dx seriously.

I will tell you that I took a vacation on anastrazole after the first six months, as it was just horrible for me when I started. Especially my feet, I could hardly walk they hurt so bad. All the moisture went out of my joints and tendons. When I saw my MO that fall, I told him I am not sure I could continue but told him about BCO and that women here had taken a month or so break and were doing better going back on it. He said that it does work sometimes, but that he would be prepared to try something else including Tamox. I was fortunate I did better going back on it and am now 2 plus years down the line on it. I look forward to March 2018 when I can get off this drug.

Thanks for sharing your good news Lily. I am glad you found someone to help you!

Lily55

THank you, yes it makes such a difference BUT no he is not available as a regular doctor sadly, even though he is at the same hospital!

Bippy625

hi Hermettes,

Just catching up, been super busy and productive. ha! That is a switch.

Lily, oh, yeah, it is tough at times to see the healthy, lovely bosoms. Here there is always skin on display. I find myself being happy for them, remembering that I too was once the similar, and at the same time the carefree thing bothers me most of all, and that makes me jealous. Working on it....it is all natural to feel. Good news from your new onco!!!!

I quit the horrible job after a week -- that guy was an ahole of exponential proportions. No worries, temping alot and side work. I joined Crunch gym to get in shape, and love it there. Waiting to hear about San Francisco, but think Genentech will accept me on their patient panel. Free trip to CA! Bucket list item, check!

Mommy, did Princess get her hysterectomy? I love my kittehs and they are both gals, fixed of course. They get me through rough days.

Camile, you are incredible and I love your feisty 'tude. Agree about recon. Not sure if I wanna do it..

Blondie, xxxxxxoooo!

Jazzy, you were so right about recovery taking time. I feel quasi normal, and working out feels good now. Taking it slow, and may buy some sessions with trainer.

In a few weeks Bipster gets her LAST Herceptin and port removed. Cannot believe it.

Jazzygirl

Bippy- I will tell you that it has taken me years to come to a better place. Not to discourage you, but I think it is hard to know what to expect after treatment. I think some people bounce back faster than others, it all depends on your treatment and your body's reaction to everything. My situation was more complicated because I had two major things happen at the same time, resulting it two surgeries, then all the rest that followed. I still very grateful to be alive. It could have gone down a very different road.

The gym and personal training is one of the things that helped me more than anything. Exercise is really important for us to feel good, get our strength back, keep our bones healthy (especially for anyone taking the AIs).

I find I cannot work for awful people anymore either. And gosh, they are everywhere. So take care of yourself, and other and perhaps different work may come. Put yourself and your health first.

What is in San Francisco? Are you doing a clinical trial of some sort?