The Hermit Club

Lily55

oh and i am bemused by this thread seeming more aggressive? I just see ups and downs but i dont see any aggression.........am i mussing something in my little bubble?

Teka

MontereyRobin has only been a member of the threads for less then 24 hours not allowing much time for lurking or posting.

But continues to come on-line.

Teka

MontereyRobin, ok to share mood swingy issues on this thread.

Welcome!

jo1955

Bgirl - Hi from the Tami Thread.

I am one that tends to post off and on and can get way behind in reading all the posts. I am finding this thread a bit confusing and trying hard to figure it out. Haven't quite figured out the purpose. Some know me from other threads and know that I can be not only very supportive but also very fun. I try to stay positive and go with the flow.

Jazzygirl

Lily- your bubble may be the protection you need right now from the world. We all need a little buffer from the harshness of daily life as we go through this, and afterwards too. Just go with what feels right for you, and hopefully the folks that visit you will tread lightly. I am sorry things feel so hard. Sending you a bit southwestern hug tonight.

Went for a walk by the river and took photos of the cottonwoods until my battery died! Then to the gym for weight and a short swim. Triple work out. I wonder how I will feel tomorrow?

Jazzygirl

Teka

jo1955,

The prior 2 posts are the purpose of the "The Hermit Club" thread ;o)

duckyb1

Some days are diamonds.....some days are stone.......it happens.......not every day is perfect......pity parties are ok.......just do long as we remember to snap back.......we're here, we understand, we have been there......hugs to everyone.......

People come, people go, go where your happy.....no one forces anyone to stay......life and laughs are what you make it......

Teka

I'll be taking a time out from the threads ;o)

Tomboy

hey good women hermits unite! How i have missed you all! First time i have found cellphone bars since i have been in utah! So many lovely pics i wish i could show you. I am grateful to sissyd for starting this thread. I am roud of cami for being such a smart hacker, and i love firekrackers fiestyness, and wonder if she knows i found a casino in los vegas that had a "pink table"? And soldpink cupcakes? I am glad tema is feeling better. And i understand lori55 s fear. Stage 3 is a very scary place. And that pummkin giving birth? Eewwwwwwww! Love it! I am loving all the beauty of utah, and can hardly believe i have been able to do so many of the trails. But the natural beauty of the place distracts from pains. And i do take percocets everyday for pains, i dont think i could have done thiswithout them . Lori55 i thought i pmd you on your birthday, but my memory these days... Hope you had an excellent one. Hermits are valuable to my heart and spirit and healing powers are evident through all the postings her. You are my favorite gals anywhere. Peace to you brave n "hearty" souls.

Teka

kathec,

Hi, share photos whenever you can ;o)

Skittle

Good grief, so much going on. Can't keep up. But hugs and prayers for surgery, gentle strokes not to pop fragile bubble, smiles to all the silliness/craziness/coping, and hopes for all to be where they best fit. Lots of grading, scrutiny, evaluations, testing, blah, blah at school, so I'll most likely be scarce as Camille says... (Joey reading anything good?) I know we all move in and out and among as we are comfortable, but I do hope Markat, LaurieParr, Slick, and other quiet voices are ok. DD2 came home from church saying her pastor was out... his mom just diagnosed with pancreatic cancer... given six weeks. What is it about this disease? It's everywhere... ick. Hugs to all. May you have a peaceful week ahead. Gotta go grade and do laundry. and maybe pet a cat or two. :-)

FireKracker

nice to see you Kath...all that pink stufffff..u no what u can do with it right?

And please post pics.

I'm sick...don't no if it's allergy,sinuses or a plain old cold...eating chicken soup yesterday and today

Hope everyone is doin well today.

I am the FireKracker....

duckyb1

Skittle...new to this thread, but some know...my husband died in 1991 at 57 from Pancreatic cancer......brutal disease....

Skittle

ducky... I am so sorry. Far too young... Can you think of any way to support the family at this early shock state? I don't know a thing about pancreatic... (Lost my father when he was 58 to liver mets. Weakened liver from malaria from a tour of duty in the Philippines. It, too, was brutal... hell on earth. Some chemo/treatment options have not seemed to progress in over 30 years...) sad, sad.

duckyb1

it is deadly Skittle.....my husband lasted 2 years 9 months......at that time it was unheard of surviving that long.....there is nothing they can do...it is usually stage 4 when it is diagnosed.....the only reason my husband got longer was....his was inside the bile duct...inside the pancreas, so when it blocked the duct he was jaundiced........first clue.....Whipple surgery whic removed and reconnected everything after removal.....gave him more time....most die within the year or less.....or some go through loads of chemo and rads...then they die anyway......my husband got worse when the cancer came back and they did chemo and rads.......huge mistake.....just made him weak, and lost close to 100lbs.."enough said"

Pancreatic cancer is a death sentence no matter ehat they do.....and I believe. Chemo and rads takes them faster........

jo1955

Teka - Thanks.

Ducky - I may have told you on another thread but I lost my mom in 1995 to pancreatic cancer also. What a brutal disease.

lizlori

Good evening all Hermits,

Just checking in. Welcome back Kath....my birthday was quiet, got some phone calls,DH made in special for me,

Granny, I hope you are feeling better...chicken soup really helps.....

CC- what a cool idea, write down all the good and interesting things from the past

Jazzy-LOVED the pumkin giving birth, so so funny

Lilly- My thoughts with you.....I am glad you vent and stay connected to us.

Blondie- always in my thoughts my friend...

Today started good, but I ended up in tears again....my feelings get hurt so easily, which is why I just stay in my little cocoon....had an incident with my sister, who I offerred my help cuz she is having marital problems, and she politely said thanks but no thanks.....it just hurt, and reaffirms that I need to retreat back into my safe haven....blah...wished I didn't give people so much power over my feelings....

I love this thread....I take away something from just about everything that is posted. When someone is struggling, I feel less alone....I feel loved when someone thinks of me.....and of course the pictures, make me smile. You are all gems, tonight I started out being sad, but now I feel less alone.oh and one more thing.....I cried in front of my husband and he didn't ignore me, in fact he listened to me and tryed to help.....woo hoo.....we are making progress!!! Remember all the times I complained about him?? Take Care......

Jazzygirl

Lori- I am sorry your sister was not open to your support around her marital problems. It is okay to feel whatever you need to around people. I think our feelings are the barometer that either says to us "move closer or STEP AWAY!" I can think of many times people have said things to me in person, on the phone or via e-mail that felt so hurtful. It is why I won't talk about my health issues with some in the small community I shared it with. Some people are not very sensitive with us.

On the other hand, I am glad things with your DH have improved! Sometimes people in our support system just need time to understand this whole messy process we go through. And I am glad you find this place one of comfort and support. It is a great thread, a great place for us all!

Skittle- good to hear from you and you sound busy with school. I am sorry to hear about the pastor's mom's diagnosis. I will offer up what I have always done for folks in time of need, a card is a non intrusive way to just let the know you are thinking about them. They may not want to talk to anyone, but offering some things based on your experience, like maybe suggesting they ask the oncologist about cancer support groups would be helpful to them. When my sister met with her doctors, her oncologists suggested support groups right up front, but I started with the breast surgeon and it was never mentioned to me to seek those out. When my sister asked me about whether I was considering one, I said "I think I am going to try to find one on line" and here I am almost a year later. Those kinds of things may not be on their radar, but from someone who has been through cancer, it may be a great suggestion at some point. We all have found out how important it is to find others who have or are going through the same thing. People who have been through the whole diagnosis, drag you through all the tests, insurance issues, etc. are in the know with others who have no idea where to begin.

Kathyec- I love Utah and hope you are having a wonderful time up there. Good for the mind, body and spirit.

Went to a great therapeutic yoga workshop today and learned some new things for my feet that may help with the chronic pain from plantars and the AI se's. My feet felt immediately better, so I have some new tools for my toolbox. We also talked about how yoga can really turn things around with osteoporsis, and I am working up to do more yoga with time. I need to do more weight bearing exercise to help with the potential bone loss.

Going to see my MO on tuesday for my six month check in with him and will discuss a few things, including anastrazole and SEs. More to follow and wishing everyone a good week. Blessings to those who are under the weather, facing more treatment and just holding it together every day.

Jazzygirl

camillegal

Jazzy u r always so positive and I enjoy u'r posts so much, I always have. And now u;r Pics. good stuff

Lori I am really sorry that u'r sister pushed u away but I love hearing u'r husbands reasction to you--u've come a long way with him And that's great.

Have I missed something or has anyone heard from Blondie?

Skittle u are one busy lady now LOL and Joey's reading 2 books--he's getting book crazy. But he's happy.

Ducky I think most of us agree when it's time , it's time geez u can have an accident and go. I mean like my dad didn't really do anything right his whole life smoked, drank, ate what he wanted did preety much enjoy his life and died of a heart attack at 96.But he wasn't sick with smething and suffer in anyway, my mom did for 2 yrs and it was horrible and she did every thing right her whole life. So we don't know anything.

We're here now so that's what counts.

duckyb1

Cami......agree

Teka

Lori, maybe sister thought enough on your plate with upcoming surgery without having to deal with her mess. )

Jazzygirl

Teka

Creepy!

lizlori

Still doing housework...yuck and double yuck....

Better day today, ....no tears...woo hoo, a bit anxious over surgery. Part of it is worrying about getting there and all....DH is so good about being on time...

Cami, I have not heard from Blondie...I just like to say hi to her, in case she is lurking (as she describes it) still gonna try get fritz to wear his costume.....

Jazzygirl

Lori- I know you are preparing for your surgery tomorrow and are nervous. Have I shared this one before? I am not a particularly religious person, but believe prayer makes a difference. My prayers both times were to bless the surgeon, OR staff, recovery room nurse, etc. that they would take very good care of me during my procedure. I am not a surgery oriented person and faced two very major things in a short period of time, and was very afraid both times. It gave me comfort. I will be saying a prayer for you as well today for a successful surgery and quick recovery. We will be here for you when you are ready to touch base with us.

Cami- I remember a post from Blondie a couple weeks ago, but nothing since. Hi to Blondie and everyone else out their lurking and needing a bit of hermit love!

Off to the med onc this morning. Got my list of questions for the visit too. Will let you know how it goes.

Tomboy

jazzygirl, part of me wishes I could stay in Utah idefinately, the stars at night are spectacular, and seem to twinkly more brightly, and the air is so fresh. It has been very good for me in all the ways that you mentioned. I feel washed clean, and more capable, than I have in a long time. Lori, I promise you that I will be holding you in my thoughts tomorrow, as much as I possibly can but certainly a dedicated prayer for you, as soon as my knees hit the floor in the a.m. I am in the lobby of the red cliffs lodge,using their guest computer, and you know I check here first, even before email, cause I love us all so. little rainy, but I am in love with the clouds too! hope everyone has at least one special moment in the day they walk through. Nevada again for two days, and then sweet home! n pillows! cooking, of which I have done none! neighbors, and whole afternoons of bco. and Herceptin on the fifth. ok, all. love you and miss you, and see you soon.... : )

lizlori

Hi Hermits....

Well got the news this morning that my surgery has been canceled....my platelets are 98 which isn't horrible, but not not safe for surgery. The wbc is 2.2....lower than last week. The Doc wants me to come in Monday for more blood work....I am very dissapointed, but it is what it is...

I don't know what to make of the continuing decrease in platelets and wbc, especially because I had an immune booster shot with my vaccination two weeks ago. I know it can take months for the body to recover from chemo, but these levels are worse than when I had chemo......

Thanks Kath for the words of comfort.....u r sweet as usual......

One good thing, I can stop with the damn housework.....

Teka

Hurry up and wait!

Rebound may take a little more time )