The Hermit Club

Teka

grannydukes, ;o)

Teka

kathec, Kiss! Kiss!

camillegal

Nite Granny (insert a pic. of a firecracker here)
Oh Kath we love u---u'r so sweet/

Teka

What am I? Chopped liver?

Kiss! Kiss!

Tomboy

omuhgod, Gdukes, that sounds painfull! and scary! ouch. ok i will, thanks

Tomboy

oh, i love all of you right back! and like cami does, {insert picture of the longest arms, for the biggest hug, here}!!!!! Gonna go watch a movie. night, all

Jazzygirl

Teka

I think every woman wanting 2 kids wishes for identical or fraternal twins then only suffer through 1 labor.

Well, I did, with no luck!

bgirl

Hi all, hope everyone is well. Life has been crazy busy and I just want to slow down and take some me time. Everyone doesn't seem to realize that I just don't have the energy stores I used to. Ok, thanks for letting me whine.

I too am feeling the urge to hermit right now. Pinktober can be a little much these days. I think it brings back memories for me ... was diagnosed at the end of October 2 years ago, almost. I usually let people make up there own minds about what to support, but try to educate .... not just with BC .... but anything people are asking you to buy in "support" of something. Ask questions.... not all fundraising is equal ... some of these pink items and trinkets just raise awareness .... nothing goes to support anything meaningful ... know what your money is doing. I know some women find comfort in groups ... online like this and others by participating in group activities ... more power to them, but not for all. I do help with a local fundraiser that has bought many things for the local hospital's breast assessment centre ... currently working on a software program to help dr.s make the best treatment decision. I benefited from this and so I don't mind giving back. Have friend who is stage IV who does not like pink junk, but does wear a pink ribbon necklace. She feels she has earned the right to wear that ribbon ... and knowing her strength and beauty, she has!

Teka

bgirl, hi!

The fear of a recurrence or a metastasis is heightened during pinktober (

camillegal

Oh Jane u r doing more than u know--It sounds like it. I hermit on and off mostly on sometimes--I'm just getting tired of questions cuz they are still coming-to many SE's even when I just lost a nail, it was a sily conversation cuz who knows why a lot of things happen. I come here to moan and whine not have this as a point of conversation when I'm out.
Teka u are so funny--NO u'r not chopped liver---which by the way I love on crackers==Years ago I spent New Years every year with my cousins and my one cousin always insisted we have chopped liver and herring at midnight for good luck--well then we couldn't stay up that late and all hell broke loose.

Teka

I like raspberry jam on salty crackers ;o)

camillegal

Teka so do I. LOL

Skittle

Whoa... From cracker menus to kiss kiss. You ladies are all over the place! :-)

No, Cami, I didn't have the day off (boo hoo!) Our conferences are after working all day. We have a day of school, then conferences 'til 7:30... Then we do it again on Thursday. (Do Joey's teachers get a day off? Lucky ladies!) But... one night down, one to go. Things went pretty well, so I can't complain.

Jazzy... hilarious photo. I think we've all felt like the crying one lately!

bgirl... good to hear from you!

kathe and granny... hi.

teka...

Jazzygirl

Hi bgirl- good to hear from you. I know how hard it is to make people understand the lack of energy. My sister and I went through treatment together and she seems like she is much more back to normal than I am, but she is also not doing any AIs either. I think we are all different with what we go through and how we recover. I am not as social as I used to be as it takes everything I have got to take care of myself, my home and my business. Sometimes I wonder if I am missing things, but then sometimes people remind me solitude is a really lovely thing!

I do software project management and would be very interested to hear more about the software product you are working on (assuming that is not proprietary info)?

Spookiesmom

bgirl

Sometimes being a hermit means saying I don't wanna, and you can't make me. Phfffiitt(sounds of razz berries)

camillegal

Spookie that's exactly to me what it means.

camillegal

I'm up way to early cuz I've been up all night--so u proably won't see me much today cuz I'll be sleeping. But I wanted to say good Morning and hoping u ALL have a nice day==I took a shower and I smell luscious as usual so I can sleep in a nice fragrance. I like that.
Skittle the teachers had Monday off here and Les went to Joey's school last nite for his PACE thing and the teacher said he was doing excellent and thinks he should stay in til 8th grad cuz she sees so much potential with him--he gets that from me Skittle I think LOL OK now remember and never forget Do what u like and like what u'r doing.

Lily55

I too find no one gets how much effort everything is, day to day stuff takes a huge effort of will and resources....and now here I am in October with another chest virus, exactly same as last year......its all ergy to pinktober i think............I hurt every day every single day physically and feel different to others around me all the time today i just want to curl up, instead I have to drive to work and teach two classes and drive home. I also have sick dogs to look after............

just nothing in my tank today, even had a bit of an email rant at my PS as I have tpo pay for everything - system here can mutilate me but not have any responsibility to make me right or even remove adhesions.................of course in writing they have to in practice it does not exist....................they create a waiting list of ten years............I seriously kid you not

Jazzygirl

Cami- get some rest today.

Lily- you have to wait so long to get adhesions removed? I think if we were men, it would all happen a lot faster.

Cold wintery weather has moved in. I am in a very hermit-ish mood myself!

I fear our government is about to default and another credit downgrade may be coming. What is happening to our country?

Teka

Lilly55, I've lymphedema & scar tissue which feels better with daily message & stretching exercises. Scar tissue at times will smart & burn but feels softer. I know you're in misery. Sorry!

Jazzygirl, remember in the next elections!

Tomboy

lily55, i am so sorry. that sucks. i hurt everyday,too and am getting really tired of pain meds, and am sure my docs think i lik em. Not. but they also help with this insane itching in my surgurized breast. Does anyone else get that? it really makes me crazy. only thing that helps otherwise is a swell spot, and exercise, which is hard to do, cause tamox has taken away all energy and will from my life. Sweet dreams Cami. i am so far behind on everything, my to-do list just keeps growing and growing. i got an instant headache yesterday from herceptin. and i had to do an echo yesterday before, and my ef fell 12 points. 62 now. so, for just those two things, an hour and a half total, i was there from 9:30, till almost 3:30. yikes, and had 2 errands to run, and dinner to make. thats enuff! lily, it made me laff , tho, cause you said "all ergy"! thats exactly how i feel! All ergy!

blondiex46

question.... does medicare pay for the flu shot at like CVS?  anybody know

lurking

 

 

lizlori

Hi Hermits,

Boy few days away from here and lots of news...new names, so cool. I was so sad about Julie, not that I was close to her, but it just hit me cuz I found out she had mets on my last day of chemo, and it was sad but yet she was so gun hoe that she was up for another battle. I got her families address and plan on sending a note to her sweet daughters....

I started my first vaccination today, along with that I also get an immune booster. Feeling a bit sluggish, but doing better this evening. Sure wished I knew if I am getting the real deal or a placebo..Oh well like everything else, just have to let go of the "what ifs."...and hope this beast doesn't return.

So does anyone know what k167 means?? Apparently this is an aggressive type of triple negative cancer?? I am going to google it, never heard of it. (Someone posted it on another site)

I hope everyone is doing well....Cami...glad to hear you are resting your body.

So another question.....Who are the moderaters on here?

Rainy and cold here....had to bundle up on the sofa, my body is adjusting to this shot.....

Will check in later....tootles Hermits.....

FireKracker

blonde--yes medicare does pay for the flu shot at CVS...at least in NJ it does...call the pharmacy to make sure.

Tomboy

ki67 is a protein associated with cell proliferation, but i am not sure they use it anymore? and arent the mods the same for all threads?

Teka

Yes!

Jazzygirl

Lurking blondie- most of the pharmacies will give you a shot and if it's covered by insurance, they will just submit it to your covering entity (for me it is BSBC) and will also fax a copy of the info to your PCP office (or any other doc you may want). Sometimes I am in the doctors office at the right time to get it there and sometimes not.

Lori- I hope you feel better from the vaccine. Hopefully you got the real thing.

I think the Ki67 is a way to measure how fast the cells are dividing. That will indicate if it is a more aggressive type or not. I think that is one of many ways they determine whether it is an aggressive cancer or not. I remember my rad on in AZ telling me that I had a very low number which indicated mine was a slower one.

Cami- did you get some rest today?

Kathyec- you had a long and tiring day. Hope you can get some rest (I need to take my own advice!)

Went to the hair salon tonight to get a cut and highlights (which came out well), the slogan there was Think Pink. Ugh. Fifteen more days of Pinktober.

I did read an enlightening article there by Valerie Harper who has the right attitude about this stuff. She made a comment that cancer can hide for awhile, which is the fear we all live with (or for some here, it already has returned). But she said I just need to live for now. I came away feeling less like a victim and even more determined to try to live my life fully.

lizlori

scar tissue can soften up nicely...I apply eucerin to mine...

they will go in the same areas for implants,

Kath you asked about itching, i have had itching once and it was s weird, deep in my left breast, felt like I wanted to manipulate my expander to get it.....

Regarding the pain issues with some of you guys....does anyone take tramadol (ultram)? I take it, its more for moderate pain, but it is easy on my stomach and safe for kidneys/liver. I take 100mg in the morning and late afternoon. It helps my bone pain.

Lack of energy really sucks.....just have to stay in the moment and get through each hour....Lilly, is there a way you can make things easier at work? Like sit down during lectures?

Another raining day....gonna make banana bread again. Last loaf ended up being about two inches high!!! Took it out of the oven and then it deflated....kind of like a Lucy moment...ha haa Time for housework as well....boo. Good thing is, I have a good book, and have something to look forward to...

take care.....Lori

camillegal

Hi everyone,

Lori we have almost the same weather for me it's a good scary movie day. I feel bad about u'r energy level, I was never one to have loads of energy, but I have even less now--I take a shower and it's work--so it a weird feeling and my itching I'm sure is different cuz u have actual things there so it must be worse, but when I itch I can feel the itch, but can't feel the scratch, which goes on and on and I still itch where rads were. Sometimes I'm ripping my skin and still don't feel it. All it is is itchy. Silly stuff.

Well I hope u all have a good day.