2012 sisters

patriciahurtado

Jennie93 ... Thank you so much because I thought I was going to get CA again ....I need to get this going !!!

momto7

vballmom1 I did not have clean margins even after the second lumpectomy on the right side I went for a breast MRI and they had found something suspicious on the left side I then decided to do a double mastectomy when they got the patholgy back they found out I did have a tumor on the left side too .  i was also bracca negative  and so was 1 of my younger sisters  but my other sister that has had radiation twice and  lumpectomies  on both breasts is bracca positive  who knows why she is positive and 2 of us are negative  I hope your doing better  peace of mind is always a treasure

lisa2012

Wow, Momto7, that is quite a story of cancer and genes and family experiences. Are you doing OK now?

momto7

Yes  i am doing really good I had my port removed and am feeling great  I go for reconstruction on Aug 7th I just want to get this all done and hope to be able to go see my daughter and grandsons . It is a journey I never wanted to take but i think it has taught me how to look at life a lot closer  and learn how to be more compassionate  towards others.

Sorry it took so long to answer  work has kept me busy and  it has been to nice to be indoors

mlinthicum

I am coming up on a year since surgery and actually quite down in the dumps. Something that has bothered me is that for awhile before I was diagnosed I was having tingling in my left arm pit. I had made an appointment with my family doctor to ask him about it, however my yearly mammo appointment happened prior and found out I had breast cancer. My lymph nodes were clear. The tingling went away after my surgery. Immediately went away. However in my reading about breast cancer, I've read that cells can just get in the bloodstream and not show up in the nodes. The other thing is in the stage four forum several have said that they were originally stage one no lymph node involvement and now have mets and are stage 4. I met a lady when I did rads who told me that six months after finishing her five-year regimen of Arimedex she was diagnosed again and she was taking radiation the same time as me. That's the same medication that I'm on. So, now I'm worried all the time. In my breast cancer support group two ladies had breast cancer 16 years ago. One lady had a mx and the other one had lx and rads. In Dec 2012 the lady who had the mx was told she now had it in the other breast and did a mx on that side. The other lady, her breast cancer came back in the same breast that she had had radiation on 16 years before. Everyone thought she would have to have a mx this time but she was a large breasted lady and the location was away from the first time and she was able to have a lumpectomy and rads again. It just seems this comes back and that makes me sad...

lisa2012

That's a good sign- I had my reconstruction last year on Aug7!

Tazzy

Best of luck with the recon momof7.    It is my 1 year cancerversary this Friday August 2 of being cancer free.   Cannot believe it was a year ago... how far we have come.

Hugs and love to you all xxxxxxxxxxx

Happy to see this thread still going - albeit slow.

patriciahurtado

Tazzy congrats ... Yes one year woohoo Ill toast to. That!!!.., I'm still with rads 14/28 and I'm gonna wait for exchange since my right TE was removed... So praying skin heals for reconstruction!!!!

Tazzy

Thanks patricia.... yes one year out - I will celebrate with DH tonight with a glass (or 2) of bubbly.  We are camping and so looking forward to it.  What a difference a year makes.

momto7

Congrats on your anniversary Tazzy! That is always something to celebrate!  Your right a year makes a big difference, I am getting excited August 7th is one day closer  and I need to clean my house  before I go in hope every one has a great weekend!

kjiberty

Congrats, Tazzy!!!!

lisa2012

I just had my one year. My MO counts from start of AI. Final exchange surgery was Aug 7.

Looked at my log from last summer...happy that is behind me.

Plus wig free since April 1 2013!

momto7

Yayy lisa wig free means a lot! My hair is growing back too  I am so happy for you.

My surgery was pushed back till the 16Th next friday due to a death in my PS's family always sad to lose a family member   I told his nurse that i was so sorry to hear that , but it is ok  i can catch up on things I need  to do this week .

Tazzy

momto7:  in your pockets.

Hugs to all xxx

kjiberty

Yay Lisa!!!

lisa2012

Thanks, ladies! Have a bonescan coming up, start Femara on Monday, and other than that it is fading. Except I hurt so much in the night and when i get up... if I could figure out a way to sleep standing up, i would try it! Grrrrrr..... but overall positive and loving my new bike.

Tazzy

Just thought I'd jump in and say Happy Belated Thanksgiving to the US ladies.   Hope you had a good one, with great family and friends with too much turkey and laughter.

Momto7 - did you have your surgery - hows that going?

lisa:  how did the bone scan turn out?   Hope all is well.

Love and hugs to you all xxxxxx

lisa2012

Hey Taz, bones have lost some density but not disastrous. Not osteopenic. Now being more religious about taking the calcium.

Also have switched from Aromasin to Tamoxifen and that is supposedly less hard on bones. I changed because 13 mos of SEs on the AIs (could barely walk down stairs, no bending over, hands hurting most of the day) were too much. Tamoxifen somewhat better but still have back and hip pain every day.  Almost 2 yrs since diagnosis. 

Work is great, family is good, weather too dry but pretty... hugs to you Miss Tazzy and everyone else.

Tazzy

Lisa:  I am on tamox and really its not been too bad for me.   I do suffer with very achy hips though.  But that's better than the alternative.

Just want to wish you all and wonderful, best Christmas ever and a safe happy and healthy 2014.    We have all come so far.

Off to Vegas with DH on Christmas morning - back on the Sunday.   Love you all xxxxxxxxxxxxxxxx

GmaNiki

It has been a really long time since I have posted here, but I am feeling so healed and better lately, I wanted to update.

I am a frustrated writer, just too lazy really. It has been almost 2 years since I began this journey, it is the end of the year and my birthday was yesterday. Made my thinking very reflect, so anyway, I thought I would put together a sound track for my journey with BC.

Opening with being asked to come back for a 2nd mamo and then scheduling a biopsy. - Why by Annie Lennox

On to after the biopsy waiting for results - I Need You Now by Lady Antebellum - (I did not sleep much during that time and husband and friends were woken on may occasions)

After the diagnosis and waiting to see the surgeon - Walking on Broken Glass  by Annie Lennox

During the discussions with the surgeons - mastectomy - The Winner Takes it All - AbbA

The healing process following the 3 surgeries - Stronger  by Kelly Clarkson

Now after 1 full year of healing and getting used to the new normal - Roar by Katy Perry

I have put these songs on a playlist and play them when I am feeling a bit overwhelmed and it helps me. Makes me remember how I felt and then and how I feel now (both physically and mentally.)

Coping with the new normal is probably harder than anything I have ever done and often need to be reminded of what I have been through and the new normal starts to feel better.

It looks like I will be dealing with Lymphedema and I will see if I need to update the soundtrack but this is it for now.

Joanne_53

wonderful post ... Love the songs.. Try and find us at Survivors 2013.

Tazzy

Gma - good to see you and so happy you feel more healed to write.   As Joanne said, try and find us over at the Survivors 2013.

Ladies:  Here's to us, to another year, and to 2014..........wow 2 years later and here we are.

jazlaumir

It's has also been a long time that I have posted. I'm sorry for that, been a rough year.  I would like to thank all of you for all of your support early on in this cancer fighting journey. Wishing each of you the best health, healing and recovery in 2014, Happy New Year! 

Tazzy

Jazlaumir:  Sorry you had a rough 2013 - may 2014 bring you much more happiness and health.

jazlaumir

Thanks Tazzy, things are much better, looking forward to 2014! Having reconstruction and another mastectomy in February and then this should be over! My best to you and yours!

marianelizabeth

Nice to see you all on this thread that is little used. I remember it as being a lifeline back in summer, 2012.

Tazzy

Hi marian..... I agree, was a lifeline in 2012... how far we have come.  

Joanne_53

you are so right ... Today is my 2 year anniversary of my surgery ... So much has happened .. so many emotions ... So many new friends.

Tazzy

tomorrow (Jan 12) is my 2 year anniversary of dx.   And yes Joanne... how right you are about new friends.   I mean to say, we met in the crappiest way possible, but if not for this site we wouldn't have each other.

Believe777

Hello Ladies!  Awfully quiet which must mean we are all busy!  We are still away but checking dates for our departure now - ah.  I did get a hair trim, not sure if I look like Marilyn Monroe or Harpo Marx. My new do is a bob. Trying to get my former pixie to get to the same length all over. Not great but my new style at least has a name other than mess. 

Hugs to all!