Fuzzy's Romp Room
Comments
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leahlee - no worries, I got this!
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SpecialK i think the rubber room counts as 'take cover' :-) for real tho be safe!
Veggy i'll be there on wed, scheduling might be tight tho lol i got my first pamidronate infusion at 215. We'll make it work tho :-) -
Lauren - I'm coming. I'll bring the smelling salts for your husband.
Grannydukes - I wish I could come. Maybe one of these years.
Leahlee - I just had a BMX 2 months ago. It was scary but the right thing to do. This is my second round dealing with BC. I don't want a third round.
Today I spent time shopping with my youngest son. While I drove, he held my hand. Sometimes he would put his head on my shoulder. I could just eat him up. He's 19. I'm all pooped out. Its almost time to put dinner together and call it a night.
Hugs to all.
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By the way...
I just got a survey to fill out about my oncologist. Hmmmm....
She's the one who sent me for a MRI when I have metal rings in my tissue expanders. She's the one who won't work with my breast surgeon and the oncologist in NJ. NO!!! she want to give me the "Red Devil" again because its protocol.
I think I'll respond with a lot of circles for "very poor" filled in.
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Sounds like a good day overall Veggy, and if they don't want the truth they shouldn't send out those surveys, give it too her! How long before you were "self-sufficient" Veggy, after your BMX?
Trying to figure out how to tell my sons. They are in GA, I'm in MI, youngest almost 18, Sr. in Highschool, lives with his dad. Oldest just 20, in the Navy. Both very hard to get on the phone, lives are far too busy to be bothering with Mom. But I know if I tell one and can't get ahold of the other, he'll be texting him right away, won't matter if I ask him not too....at least I'm pretty sure on this. And I want to be as upbeat as I can, and I don't feel upbeat a lot of the time right now, ok most of the time. argggggg Now's why I came to this room, *bannnggggging my head against the wall***....
Wish I could head to NYC and join you ladies, would love to leave all this mess behind...
Gotta finish making supper...
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gracie1 so nice to see you here. I always love your posts when our travels have intersected. We have just had a period for a month or so , that the shit hit the fan for so many. So, it was hunker down time and hold on.
Anyone see PTdreamers??
Nancy Lovey you got my Pm. In that one regard there are more than you thought.
Fuzzy, I so agree with Essa. Give it time and DD will straighten out. Some children have a more starined time of reaching adult thought and action then others. Don't want to add to worries , but of course it will. Have a chat with your Mom's doc about PKD. I believe but haven't researched that there is a genetic test for it now. The importance to the family is if there is, have them explain about testing for the girls.
About genetic testing--if your are of celtic origin , scandanavian, afro american consider testing for Hemochromatosis gene. It is the most common genetic defect 1/200 carriers and 1/8 will manifest problems. Those problems include cancer(BC and prostate), alzhiemers-dementia, cardiac disease, liver cirrohosis, arthritis. It's also known as Iron storage disease. Even today most physicians associate it with alcohol use. Alcohol may exacerbate (make worse), but the origin is the genetic defect. it is a genetic problem related to how the body manages iron. A beginning point can be asking for an iron panel/ferritin/ tbic/and % of iron stauration. What's included in an iron panel has not been standarized throughout the country. If you have concerns about genetic testing and not having it entered into your medical record, there are labs that it isn't going to break the bank to have it done. Genelex is one. I'm sure there are others. This is a Public Health issue that our government has NOT done proper teaching to physicians/nurses/public. It's treatment is realtively simple. Won't go into details now, but strongly suggest this is something to pursue with your PCP's / MO's /or Gi doc's/or do own your own. The genes identified to date are the H and C How they are inherited can determine risk. The outcomes of this undiagnosed are system wide for the body and can be devastating. Early knowledge of genetic predisposition, ongoing care and monitoring, can prevent the devestation. Said I wouldn't say what the preventative treatment is even if you don't know genetic status. Give blood at least minimum 4 x's per year. Women don't show up with the problems until usually after menopause b/c of menstruation. Men show up earlier b/c they don't menstruate. Treatment for high iron levels is Phelbotomy--taking of a unit at a time and then disposed of if genetic status is known. It's totally stupid b/c the gene CANNOT affect a person receiving the blood, if it were to be used. Think off how many units of blood are donated since transfusions were developed . DUH--and science has proved it is not INCORPORATED into the receiving person. But down the drain it goes. Stupidity. Iron rich blood down the drain, when others are in dire need b/c of iron defieciency anemia.
All is not known about the genes involved, the theory is that more than the C&H genes are involved , but are yet not identified. I've told DS to give blood minimum 4x's a year. I call them C&H b/c they have letters after them, it's just easier to say C&H. I haven't checked wikipedia to see where they are on accuracy of my evidence based research that started in the late 90's and has continued since then.
Well I'm so happy for the feeling of love here b/c you tolerate my forays into "stuff" Love ya'll
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Hi All-
Special K- we are still twins in this crazy bc world. I went in for my annual skin exam. One hour and 4 site biopsies later I left the office (three on the front- one on my back). I sorta didn't expect that. The PA who saw me was thorough and looked to be the age of one of my kids. Now in two weeks I'll get to find out the results. I can remember a time in my life where that would have freaked me out. I don't know if it's denial or just so used to being a patient that I know it is what it is.
If it's anything, they'll take out more or I'll deal with it. I cannot spend two weeks worrying. I HATE CANCER!!! Hoping it's nothing, but plan to go back into denial land unless I hear something definite.
So wanted to come to the Romp Room for a visit. Some fun folks here..
Stay away from Isaac everyone!!!
Then again- I don't think I'd be nearly as afraid of something like that either- we have all been through alot. What's a little cat 2 hurricane to be scared of??
Thanks for letting me ramble.
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LisaGH - Yay - hi!!! Sorry you had to be carved by the derm - I had 3 taken off just before chemo started and they left nasty scars because they healed so slow. This one on my chest healed really nicely, but I thinkit is because I micro-managed the treatment. I made him go shallow on the biopsy, a hard double feeeze, then Aldara cream for 6 weeks. You can't even tell it was there - it is right at the hollow of my throat so visible all the time. Actually it is right next to my port, which when I finally have it removed, will also leave a scar. I look like a roadmap!!! Keep that treatment in mind for your spots - hard freeze and Aldara if they are positive biopsies. My derm has all the last year residents - yes, I am old enough to be their mom - hard to believe they know what they are doing, right? Are you worried about the beach house? I have a friend in Niceville - hope they do OK with Issac. They have an adult child who is severely mentally and physically handicapped that lives at home with them - evacuation or damage to their house would be a nightmare for them. We have had bands of rain and two tornado warnings - neighbor just texted me to be on the lookout for her golf umbrella - it blew away!
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SpecialK and lisa---we had the brount of bands for several hours on the spacecoast. But if I didn't know it was a hurricane, I would have said a typical day in Akron Ohio. Also, had the head to toe by derm----clear. Even all the stuff I forgot hanging out the door half naked sayig "Is she gone intio another room.
Special K recent thing didn't work out--not closed , but to much baggage, she's not ready and ex works in same building as she. Notify of opening
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sas - "notify of opening" - you are cracking me up! Sorry it didn't work out, things are the same as usual on this end.
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Oh no Special K! Good luck with that skin cancer on your chest. Is it definitely cancer? Ugh. Well I hope they take it off immediately.
Essa, I only had the brace when I tried to clip Peaches' nails. He's too strong, though, and I think that is what really went wrong. He moved, and I cut too short. Anyway, I think he might finally be back to normal today. Yesterday he was still pretty pissed at me. Oh! and I have great news. I don't have to wear the brace anymore. Now I just have to slowly work on bending the finger.
Fuzzy, I'm still sorry your Princess is being snooty. I know she will come around. You are a great mom! You've been both a mom and a friend to her. I only pray she doesn't take her good ole time about it. ya know?
Nancy, it sounded like a great vigil. Now love and hugs to get you through your dad's burial. ((( Nancy )))
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Thanks ladies who were with me today sure was nice to have the company :-)
found out now for sure am her2 - so no herceptin for me. No chemo either at the moment MO says we'll save that for later same as rads. She really wants me to have the ooph, which i am currently against. Will go to see the gyn tomorrow anyway see what he has to say. Thats about it for for today.
Hugggs to all you lovely ladies -
Thanks for checking in ridergirl. It's great, IMO, that your MO is not recommending chemo or rads right now.
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dune - yes, definitely skin cancer, but it is like my 20th one - very routine for me. Had the first one exactly 20 years ago! Don't worry - it is more of a nuisance than anything, does not upset me. When I said I looked like a roadmap I was really not kidding!
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Teenage girls and just daughters in general are wonderful and also the most complicated of all relationships. IMHO.
Glad Florida sisters are fine w/ Isaac all around. Sas & Special K &others in the path.
Special K- for your skin cancers- what type are they? Cancer or just dysplastic moles? I had one of those prior to breast cancer. However, last year didn't have to have any biopsies. This year 4?! What? I did see a different provider in the office.
The waiting game is no fun. Did you really have 20 of these Special K?
Glad to see all of ya on here- I know I am too slow to chime in w/ all. Good support here- when's the NYC meet up? Probably can't make it- but let us know when it's planned.
Time for sleep! Night night to the romp room.
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Veggy - I about pisssed mysellf at the "smeeling salts" comment! LOL I sure love your sense of humor!!!HAHAHAHAA Still laughing. Tear that "doc" a new one. Leave little comments all over that survey! What a twit. can you put "twit" on there? LOL
Special - If worse comes to worse with Mr. Hurricaine, tuck and roll baby!! 20??? I'm not even sure I can count that high!! No, wait, I can...I have all my fingers and toes yet.
Nancy...we are all with you today. I wish I could be there physically, I do. You and I are just bound to get together, I know it. And, if I could be there with you to help in any way, I would. ((((hugs))))
Essa, Dunes and Sassy - no call, no text. She knows she's beating the shit out of me right now. But, after I found out that she shared information with her jackass father about me...well, that just makes it a whole new level of pissed off for me. Yeah...someday she'll see past that ego. I just hope it's not after I'm pushing up daisies. She was such a sweet girl. Highschool was very defining and more than I could mother her through. I guess they just need to learn it. I can't say I haven't made the same mistakes.
PKD is hereditary and I was tested after my children were born. Women usually get signs after child bearing. I was clean and was cleared to be a donor for Mama. Even recent tests have shown only one cyst...but that is normal for adults. Man oh man you are so good at all this medical stuff!
Rider - that sounds like great news! Am I right? I requested the ooph, then changed my mind when my age and the long term effects came into play. I really just didn't want to have to deal with these frigging hot flashes again. It's crazy how bad they are. Oh well...one step at a time I guess! I'll just keep eating ice cubes and burning up the motors in fans!
LeahLee - tough conversation to have for sure. It's like biting a bullet. I'll be thinking about you!
Lisa - Cancer sucks ass....Ass sucking cancer....you have prayers and all my love...with Special too...you two are like twins! How awesome that you found each other on BCO though. Just another reason I love this place so much. Kinda like when I found coconut oil...it's just soothing and helpful in so many ways...now, if you smell like coconut oil, that's just a bonus.
Granny - thank you for the invite to NYC! I would also love to go. It's a little to far for me right now. But I have a dream...Lauren, you'll get a kick out of this...but I'd like to rent one of those little RV's and just travel around to meet all of you. How fun would that be!! Me and my puppy traveling the states!! LOL I get so distracted I could easily stretch that into an entire year.
I feel like posting goofy stuff...I hope that's ok...I'm so sorry if I missed responding to anything...I even got on the PC so I could read back and all...
If you're up late...my padded room is just past the business center and the vodka lounge...follow the scent of coconut and look for the women in a well fitted helmet, comfy pj's, and a puppy between her ankles!
XOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOX
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LisaGH - yes, all basal cell carcinomas, differing types - some more superficial than others. My first one was when I was 35, right below the right butt cheek! I have had them electrodessicated, MOHS surgery, frozen, scooped, used just Aldara - you name it. They have been treated by many different derms since we moved so frequently with the military, each has their own preferred method. The derm at Bethesda (the Cadillac of military health care - the President and Congress are treated there) was the department chair and he was helping the Nat'l. Inst. of Health across the street gather some info on Aldara and its off-label use for skin cancer. This is how I found out about it - I like it because the scar is far less noticeable so it is good for parts of the body that show like shoulders, neck, face.
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I'm feeling like the face that's third on the bottom....
I love these little finger people...
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Fuzzy you r amazing i dont know where u get tgis stuff but u crack me up!! Good thing tjeres somethin to laugh at :-) And ya i guess that was meant to be good news today i feel like i should be grateful but i also feel like not enough is being done to fight this. Just hard to imagine how one little pill a day can fight cancer. AnywY tomorrows another day, another appt. I'll leave the bag open in case anyone wants to climb in.
Huggggs and sweet dreams to all -
Rider...I'm glad you laughed!! My humor is sometimes a little twisted...muhaha....
I agree 100%. I don't get how one pill is the trick. So, I take a handful of supplements too...oh, I still eat like crap, can't force myself to exercise, and my "positive" got stolen from me....but if I'm going to take drugs, they may as well have cancer fighters in em! When I ate great, exercised and was the most positive person I knew...I got BC! LOL This is the part where more middle fingers would come in handy....cancer sucks... -
And yes...I'm in the bag!
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Awesome. We leave around 1230
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Veggy I think some of the surveys are so they can point to them and say "All was good" Many tend to grade far too nicely on surveys.
Ginger
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Fuzzy - your RV idea sounds great. You better stop by and say hi! Maybe I can ride with you for a while. I've always wanted to go somewhere in a RV. Not for too long though! We could paint it pink and I can wear my bus driver hat.
What a crappy day. Last year this time Hurricaine Irene was coming through. I only remember because it's my daughters birthday today. I'm sure those with kids can relate when I ask - have you ever been so proud that it brings you to tears? She is my pride and joy. She's smart, independent, friendly, beautiful... I can go on,but I won't because I would go forever.
I hope everyone has a great day. I'm around for anyone who needs the bus. I hope it's a quiet day and no one needs it. -
HELLO EVERYONE! Gosh, how in the world did so many pages go by since I last posted? My brain is in neutral, don't have to go nowheres until sometime after Labor Day, fixed it up that way, so I really have NO IDEA what anyone said, tho! I did laugh at some, and felt sorry for others, and was happy to see some newer people here.
SPECIALK, I do recall the mole conversation, as I have plenty. I was supposed to go to a dermatologist last summer, waited an hour in the little white doc room, legs got sore so had to stand up, then back got sore so had to sit down, read the one magazine supplied, finally came out and asked the nurse if there had been a mistake, some social person came in and said the good doc liked to take all the time each patient needed, I told her to tell that to the scheduling people and that I simply could not wait another moment. Thing is, that derm doc is same as my Dad's, she would have been a good one. So, as is my custom, I have put it off all this time. SIGH. It's on a list, tho, of to-do stuff.
FUZZ, I know about the non-exercise thing. I've been thinking about my laziness a lot lately, so that means soon I'll do SOMEthing about it soon. I used to be so active, full-time job, plus weekend cleaning dog kennels at vet, couple nights a week studying JuJitsu, biking & exercise routine regularly... a tiny but strong little critter was I, but when I become disabled in the mid-2000s, why, I gave up. I know if I got rid of this big gut I have (husband too), I'd feel better. Husband has agreed to follow my lead, whenever I pull together a good programme of movement and food styles.
Ya'll, there just ain't been nothing to report. Oh, I suppose I could explain that recently I realized (again) that I am so fortunate to have my life, how dare I ignore it and pout. Now, I had good reason to unplug and hold onto my couch while the TV droned with HGTV on, but honestly, SIX YEARS? Oh, I have excuses, I have lists, I have dreams, "Dreams to remember" (John Mayer). See, that's just it. We must not let go of the dreams and the promise of our lives. Now, I've fallen a long ways down, and came down a long ways more before I quit, but like anything any of us have accomplished in life, it takes time to reach a goal. It takes planning. It takes effort. Now, the Good Lord gave us all our particular talents, each one just comes shining thru in this forum, and if a man with no arms can paint, surely I can paint with two arms, I can play guitar, I can sing, I can do so many things. Besides, I simply MUST finish cleaning up my house if FUZZ is even thinking of RVing around the U.S. of A. to visit. I won't let anyone in here, too much plague lurking in the corners! SMILE. Love to you all, GG
P.S. Just to quickly illustrate how laziness is not just a people thing, some folks were watching this line of elephants pushing a huge log thru the jungle, on command by the jungaleers, and one man noticed the next-to-last elephant held his trunk just inches away from the log, he wasn't pushing at all!
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Hey Ladies.............especially Fuzzster.............right now I have a daughter (but my kids are normally fantastic), with a "wild hair up her ass", and if she doesn't soon find a way to pull it out I am going to pull it out for her, and I won't be gentle...................She has been acting "strange"....you know......attitude and all........short answers, not answering texts, went to our favorite stores, and didn't tell me (she always does).........went to see my great-grandaughters (twins), and never said anything............I found out from her daughter (my 11 year old grandaughter) what they had done....................as I said have not idea what I friggin did, and said to her 2 days ago................OK, SKIP THE FRIGGIN ATTITUDE.................WHAT'S UP YOUR ASS SIDEWARDS...........she acted like I was invisible... this is not her, she is my biggest supporter, so not sure what is going on..........just wish she would spit it out.......I gave her the chance, but isn't saying which for her is odd.......she always tells me when she is not happy with me, but not this time........
One nice thing......my older son called last night (we all live close), and said "hey I'll be over in 5 minutes, we're going to Chickie and Pete's for dinner"..........................had a great time with he and my daughter-in-law (watching her eat a huge "Dungeness Crab"..............The mother of all crabs...............when we came back I said as he was dropping me off (to my daugher-in-law)..............want a cup of coffee......................she said "yes", they came inside, and sat from probably 7:30 till 10:30.......................really enjoyable................no one ever comes, and I am so close to all of them................you know what I mean..................just stop for no reason, and sit and talk, or have a bite to eat..................what is wrong with kids, that they don't see its the smallest things that make us happy.........and not the "big things in life"..................for me "Time spent together...is time remembered".......................oh well, and life goes on.......................hugs ladies.................
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For all with teens. There's a reason for this bumper sticker.
Grandchildren are your reward for not murdering your children.
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Not that teens have a right, but how about kids that are no longer "kids"..................married with children.................my saying to them when they start their shit, and treat me like I'm a child that has to be watched, repremanded, sat in the corner, etc..........................I say..............................WHEN THE HELL DID I BECOME THE CHILD, AND YOU BECAME THE MOTHER..............................shuts them up everytime..............
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Wren- that's hysterical! I just laughed out loud on the train!!!
I left work early to spend the afternoon with the birthday girl. I'm expecting my afternoon to be better than the morning. It's not a good feeling when the boss hangs up on me..
I'm feeling like the face that's third on the bottom....
I love these little finger people...
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