Here's what cheezed me off today

Anonymous

I LOVE YOU ALL! Rocky, thanks for all the laughter and keeping me insane, my twisted sister!

mac, please keep us updated and we'll go through this with you. It's scary at fist, but there is light at the end of the tunnel and we'll support you. Sending you prayers and hugs.

Screw the figgy pudding, where's the egg nog?

Nips up......carry on!

Kaara

maca:  My doctor called me with the dx, but then I had an app't to go into his office and he explained the path report in detail and gave me a copy.  We also discussed surgery and treatment options.  I then met with the other members of the medical team...rads onco, chemo onco, nurse navigator and even the psychologist.  It was quite impressive.  After my surgery and SNB, I got a call from the BS with the results and I am seeing him again on the 29th for follow up.  I also have an app't with the onco to talk about my oncotype test results when they come in.

Your biopsy path should tell you the stage and grade and HR/PR/HER2 status.  The surgery path will confirm stage and grade and also whether you have clear margins and nodes. 

Have you already had the surgery and SNB?  If so,  I think you should consider calling your doctors office and asking for an appointment to discuss your pathology report so you can better understand what your dx is and what your treatment options will be.  Also, do your own research so that you are comfortable with what kind of treatment you will be getting.  Don't hesitate to get a second opinion if you are at all uncomfortable with the communication between you and your BS. 

bedo

Yaya that's hysterical.  I guess she was worried about tuberculosis?  I think UVL helps

Kaara, yay for the good news!

And everyone who I missed I'm sorry you're having a hard time I am so sorry, that stinks.  I'm a little too upset right now.

Here's what cheezed me off.  I was having a good day a powerful day and getting a lot done but noticed that my state check was not in my checking account.  Seems they forgot to tell me which they are required to do by law and cut me off, so now I do not have enough for the mortgage for my house that I rent, only the rent for my appt and I am terrified.  I know I will not get help from the third only adult relative we have, as my brother will probably be back in his car soon. ( They live n the same state and she lives in a 4 bedroom house alone but kicked hiim out as "she really needed her privacy" I guess it's her right. He said he can't stay with me because its too far from his very low paying job.

Anyway there are still 2 jobs pending, but one friggin job turned me down because of prior "issues" ie Hitchikeing in 1971 (disorderly conduct) and trespassing and using an alias the same year. (I went to a party in a college town  in a hotel where I didn't know the parents had already checked out of the hotel and the "host" didnt tell us).  The police came and being the dumba$# I was I gave them a fake name when they asked because I thought "my Mom is going to kill me" So now "tresspassing and using an alias"

I also failed to pay dues on time and got a private reprimand 10 years ago by my profession.  

Oh, I'm bad, baaaaaaaaaaaaad, bad to the core.  You ladies better stay away from me.  I might hitch hike or something.

Also my profession has a stick up somewhere.  I have never had a problelm with this before. Ever. Most people just laugh at my other jobs.  Oh, well, 2 more offers, unless they get freaked out about "America's most wanted criminal and oldest living crimiinal"  ( I get fingerprinted for my jobs) and they even said I could do the work, and my references were good, but it would take them too long to credential me at all the sites with these "issues"

So now it's my birthday tomorrow and I'm broke and I'm mad at that dumba@@.

Whew.  There, now I feel a little better. Maybe I am not broke.  Maybe I just have a 'cash flow problem' I am trying to improve my life.

So now I have "issues"

At least it's not the whole subscription.

Kaara

bedo:  Sorry about your bad day...I hope things turn around for you soon.  My son who has a college degree has been out of work for two years.  He stays home and takes care of my GD and my DIL still has her job.  I have to help them out because it is hard to manage to one salary.  It is really rough out there right now.  I tell my kids all the time...watch what you do, because it follows you around for the rest of your life...thanks to technology.  Sad but true.

mskassie

I think for some reason having cancer I have been much more "free" in expressing my opinion on things/people that irratate me.  Normally I just let things slide, but today some idoit pushed that button on me and out of my mouth comes "yes, I'm getting treatment for my cancer, are you getting treatment for your stupidity?"  I kind of shocked myself when I said it, but I was giggling at the same time under my breath..lol

coraleliz

mskassie-I've also been more "free" in my expressing of thoughts/opinions & just shooting off. I blame it & just about everything else on Tamoxifen.

I'm trying really hard not to get cheezed & maybe if I vent here this one will go away & quit haunting me. I recieve my treatment at the "cancer" clinic one town over. I pay my copay each time I go & my insurance covers the rest. But they are soliciting donations from me. I just got a email requesting & giving me directions on how I can donate before this year ends. I know they are a non-profit...... but I feel I'm paying my way(at least)! I don't have any more money to give to cancer, Thank you!

YaYa5

bedo, i'm glad you felt free to vent here.  your situation stinks, and i'm hoping it gets better very soon.  we just don't need any more stress in our cancer lives.

mskassie, GOOD FOR YOU!  i'm going to remember your wonderful come-back.  i'm so tired of hearing how hard it is on my relatives.  my son told me yesterday (he's visiting from out of state) that it might even be harder on the relatives than it is on me.  REALLY???  would you like to trade places and check that out?  my family has done nothing but let me down and act like i'm supposed to be supporting them during all this.  i'm sick of it. 

scuttlers

Coraleliz - every time I get one of those donation requests, I write on it in BIG RED words to please let me know how I can apply for some of those donated funds to help us through. For some reason, I don't get anymore "requests" from them ...

Wren44

My BIL went to Mayo for a liver transplant. They turned him down and he died about 6 weeks later. He has received numerous requests for donations. Finally, I just wrote in red HE'S DEAD. He's not going to give you anything.

9911

Why am I cheezed when my doctors tell me I'm in excellent health?

Today, shopping for a new MO ... real nice Dr ... better then the current one I had the past 7 months.  The current MO doesn't know the name of surgery I had and don't know how to do a breast examination on me. I had a free flap and those breast are from my tummy. Anyway, that's why I'm looking for a new MO. Again, the new Dr started with ... you are in excellent health! (I get that from all my Docs). In my head ... WHF! ... why am I here again 12 years later. I'm in excellent health to grow cancer? OK ... I'll start drinking, smoking & all the good things that goes with poor health. Why am I here if I'm in excellent health? 

Wishing everyone excellent health ... maybe ... I know I have it!

Nipless ... carry on!

coraleliz

9911-I'm also looking for a new MO. Like you, they tell me I'm in excellent health. Maybe I just don't understand the rating system.

FLwarrior

I am going to have to find a new MO.  Mine moved out of town.    I really liked him!

Rockym

Our thread must be contagious for switching MOs :-).  Mine retired last week.  When we had our last visit, he says to me "Well, since all the hard work is over, it won't be that big of a deal to switch."  Hard work over... my ass.

HAPPY NEW YEAR MY CHEEZY FRIENDS! 

May 2012 bring us all happiness and nothing but positive things in our lives!

sas-schatzi

HAPPY NEW YEAR MY CHEEZY FRIENDS!   Rocky borrowed your greeting. May it all get better.

 Bedo contact local legal aide society. There are lawyers that do work Pro- Bono. See about getting your record expunged. If you have nothing on your record since that time. You should have a good chance. Legal aide charges by ability ro pay. Worth a try.  Good luck!

corgi09

coraleliz and 9911, When my BS told me that too I asked him what the hell he meant.  He seemed shocked but explained that it meant my recovery should be easier, either from the surgery or any SEs I might have from my other treatments.  He didn't understand the irony at all of his 'health' statement.  Dude!  You just removed my breast!

NancyD

This actually happened two years ago, about a year after I finished active treatment. I was attending a cocktail party, part of my high school reunion. While I am pretty open about my cancer, there are certain situations where I think it's better not to bring it up. Cocktail parties are in that category. 

Things were going along nicely, met people I hadn't seen in years. Then a friend brought some unknown man up to me and said, "Meet XXX. He's just been treated for cancer, too. XXX, Nancy just had a double mastectomy for breast cancer." Then she flitted away.

I was dumbfounded. I mean literally, my mouth was open with nothing to say to this guy. Finally, I blurted out, "Sorry for your health problem," and left the party. I went home and was too upset to attend the remaining reunion activities.

Needless to say, my "friendship" with that woman has cooled off. She really didn't get it when I told her it upset me that she was so cavalier with my diagnosis and treatment. That *I* get to decide who and when they are told about it.

macatacmv

I cheezed myself off! I just couldn't get out of a low place last night. I was angry at everyone wishing everyone a happy new year. I know I am still coming out of the anesthesia and pain killer funk, but still!

I am tired of people asking me how I am. I am great except for this pesky BC diagnosis!

 I knew my pastor at church was going to explain my "situation" to the congregation this morning since I am on the board and the people could see that I was going through something. I had only shared with my close friends and other board members. I didn't want to be there. But I forced myself to go and now of course my attitude is completely changed. I am ok today! Today the sun is shining and I can take the dog on a walk with the beach.

Sometimes I just have to laugh at myself.

Rockym

NancyD, I had the same thing happen to me.  I volunteer twice a week (or at least did before the BC dx) and the workers knew my situation. One day when I came in, one of the workers introduced me to some patron I had never met.  She said, "Rocky has cancer too, maybe you two should talk."  I was like... WTF!  I had only told a few people and the last thing I needed was to make friends with a stranger based on a cancer dx.  Some people!

YaYa5

nancy and rocky, that's awful.  why can't people respect our boundaries?

 just left my son and his girlfriend at the airport.  they've been here a week.  we saw a lot of christmas lights but the most beautiful lights i've seen were the airport lights in my rear-view mirror as i left!  you'd thinkn i'd had a house-full of teenagers or something.  nope.  my twin boys will be 40 in march and my daughter is 32.  i've never seen so much drama and it was all made worse because i didn't go everywhere they went.  just too tired.  my daughter just rolls her eyes when i say i don't feel like going.  it was awful.  i'm so sick of my kids. 

Rockym

Hi YaYa, your comment about your rear-view mirror made me smile and also a little sad.  I too hate drama and it seems like so many people thrive on he said, she said and then we and then she, etc.  Nobody seems to have anything productive to talk about.  It's crappy when we have family and they make life tougher.

We're here for you!

ShelbyG

I haven't been on this board for a long time, but I'm a little ticked recently and thought it might be good to hear a little bitching, and it was , so thanks to you all. YaYa5 I especially liked your response to it being harder on the relatives! One of my daughters  has been more standoffish since my surgery and also a recent skin cancer surgery, and so it's like I brought these new health issues into her world for her to worry about for herself. Well, I wouldn't wish this on anyone but I feel that it opens up that it is possible to happen to anyone, and they would do well to gather all the knowledge they can to understand and prevent as possible. Back when I was waiting for the surgery what I needed was to talk about it but I soon got the impression it bothered them so I shut up, and I hardly ever say anything anymore either and nobody seems to ask how I am either. One of my sister-in-laws, instead of giving me a hug goodbye now takes hold of each of my arms and gives a little squeeze, does she think I'm contagious! It's been 8 months, I'm healed! Okay I've vented.  Thanks everybody. 

YaYa5

shelbyG, you said it right on ... i need to talk about it.  my daughter doesn't want to hear a word about cancer or how i'm doing.  she wants me to do everything she wants me to do, all the things i did before dx.  i started rads on december 7th and she still hasn't asked me how i'm doing!  she hates it when i'm tired, too.  what IS it with these kids?  the little squeeze on your arms is crazy, too.  you keep venting.  we all need to do it!

ShelbyG

Thanks, and isn't it funny how if THEY have something wrong, a cold, the flu etc you have to hear every detail! It's lucky to have these boards to have contact with others that understand. Have a good night!

Anonymous

Hi, my cheezy sisters. I decided to forego the New Year's parties this year and stayed home with my family instead. Just couldn't face the "How 'ya doing's?" At midnight, my daughter and I wrote down all the things we hated about 2011 and burned them in the chiminea. She had written one page. I had 10! Of course most of it was about BC. Then we had a glass of sprarkling grape juice and blew up a bunch of fireworks. With each bottle rocket, we made a wish. You know, I think this will be our NY tradition from now on! Why is it explosives make me feel better?

Instead of making resolutions, I made wishes and my biggest one was for everyone going through this nightmare to have a healthier year and for a CURE dammit! I'm so grateful to face 2012 with such understanding and funny women. Do you all know how wonderful you are? 

Nips or Nipless......CHEEZ ON!!!!!

Rockym

2011 sucked big time... here's to a funny and fabulous 2012!

To start the new year, I have to pass on this story from today.  So, today I had my first radiation treatment.  The techs asked me if I wanted any special music and since what they had on was kinda peppy I said they could just leave it.  They told me it was some XM disco station. So there I was in the machine with this green light beam shooting across me when all of a sudden the music from the bar scene of Star Wars comes on.  I don't know who may remember this tune, but it is very peppy and space like.  It was the scene with all the strange alien characters at the bar and I was laying there about the crack up.  I knew I had to stay still, but ALIEN MUSIC while they were beaming me... too much!

sas-schatzi

Rocky that's a classic.  You only needed Scotty to appear, and it would of been complete.

scuttlers

What an experience Rocky. Love Star Wars.



I spent 10 minutes on hold with the Tykerb drug people while their canned music played "Can't take this feeling anymore".

mumito

LOL you ladies made me smile today.I have been going through my own personal hell over the holidays.I needed that.Thanks

macatacmv

We gotta take the laughs when we can get them! Even tho alot of other people don't "get" our humor.

Anonymous

Yesterday the new PA in my onc's office cheezed me off.  I had asked about the Metformin trials and the relevance to TN tumors and also about a trial for a TN vaccine.  She said that they didn't apply and that there was even evidence to the opposite effect on the Metformin.  I said that I hoped she could understand why I was asking...since TNs don't have any followup treatment - chemo is our only hope.  She said, quite condescendingly, "That's why we're aggressive and why we really hope it works."  I wanted to say "Hope?  You'd better hope I don't stab  you in the eye with my ballpoint pen!".  However, I didn't because my son was in the room and it makes him nervous when I get agitated.

I'm feeling better today and instead of a personal vendetta, I will send an e-mail to my patient advocate regarding the PA's insensitive comment along with others she made.  I may or may not ask that she be fired.  That's not a vendetta is it?

Cheezy Phyl