INSOMNIACS place to talk in the wee hours

Anonymous

Dear Sassy ~

susan3

sheps, I don't like any tests anymore. With refractory stage IV, I get about 4 months from each chemo. That's protocol. Cancer has mutated to much. Right now I should be done with chemo and waiting till the end. Buttttttt with this chemo I am on 16 months!!!!! They have no idea why. This should be my last year, technically. So I just want to live in la la land for a few extra weeks before any test. It has been such a blessing to have more time...I used to just be sooooooo great full, now I am getting greedy. Want more time with Elena.

And yes, mischievous eyes. I need to get a pic of when we change her diaper at 5 am.......ohhhhh the smirk she has on her face. Kinda happy to see you and kinda ha ha, I got you up. Pretty cute. She is getting a darling personality now. Just a bit over 3 months. Can't wait till tomorrow :

Jazzygirl

Ta da!

susan3

yaaaaa. Love it !!!

JunieB

How is it that you all knew today is Sassy's birthday. If not for your posts, I wouldn't have known. How do I keep up in the future?

Wenchie - Now that some kinda moving guy! How are you feeling?

Jazzygirl - The patio set is so beautiful. So worth the wait. Hope you get to have that party soon.

Loverly - Yea the methylparaben is a concern, but for the relief of the itching from the mosquito's I'm willing to use it. For soreness in general Arnica is a good choice. Smaarty is privileged to have met Ms. Mitzy.

Mags - Hope you enjoy your Anniversary Dinner & company tonight. Yes, life is too short to let others who don't have a clue to put unreasonable expectations on you. Especially considering we are already doing our best each day depending on how our health is doing.

Shep - Playing with Marti & Pris sounds like fun. I'm envious. And yes it was crazy to walk in that heat, but I do need to work on strengthening my leg muscles. I've pretty much stayed inside today doing little chores like cleaning, dusting and repotting a plant. I even posted something for sale on Facebook for the first time. Lets see how that goes.

Susan - Help me to understand your post. Is your cancer aggressive? Progressed significantly? I hope I'm not being too forward. If you don't care to expound, I'll understand. Enjoy your time with Elena tomorrow. (((((HUGS))))) Hope your scans go well. Hopefully show stability.

Queenie - How's it going? We don't get to hear from you too much.

Sensi - I have not had to experience chemo infusion yet, so I don't know how to encourage you, but I will definitely keep you in prayer.

BBL

Teka

Jazzy, perfect patio set and love the colors!

Jazzygirl

I also wanted to say how much I enjoy the cute baby pictures here! Keep em coming and enjoy your little people my people.

Anonymous

Jazzy ~ Ohhhhh.....is that a rocker I see? Sooo prettty! Love the blue. Is the table top stone?

Susan ~ Tests stress me, but I really like naps! My bone scans are always scheduled at the end of a long day, after all my CTs and bloodwork, so it is a nice break before going on to meet with the MO after. It's a tough schedule, but I get all my results in one day. I do get soo anxious the days before and worry what the scans and tests might show. You've been through so many chemos......maybe it was so you would be led to this one that works? Prayers for your continued success and well being. You've been blessed with your darlin' grandbaby and maybe a puppy too....The Lord has plans for you - here!

Hey Queenie!

MammaRay ~ Thinking of you and sending prayers for comfort and healing to you ✝

JunieB

Dear Ms. Sassypants!

Spookiesmom

WHEN HELL FREEZES OVER

Teka

susan3

Jazz, never to forward...no worriers . My cancer biologically changed and mutated. Many mutations. " selvage" chemo is what they call that I can go on. I am ER+ but can't take those drugs, they act like food for my cancer, found that out the hard way. Chemo keeps things stable for about 4 months , than we move to another one. Got 2 more left on table. So because I got 16 months on this one, it's been golden. But always in the back of our minds our time table. If test results come back active again, I could just have 8 months left with treatment. We all got our own personal journey with cancer. I can't complain, been a 16 year journey. Unfortunately my cancer got smarter than the treatments, it will be 6 years this September for stage IV, They gave me 2years.So I am beating their guidelines and I have see no ya aught era arrived Ndola ya rands hild Birmin. Ok. I had to leave that. What is my spell check doing!!,!lol. Suppose to say, saw my daughter get married, and Elena born. I have been blessed.

Night night

Computer needs rest too lol.

Anonymous

I was first drawn to this thread by the beautiful spirit of camaraderie and friendship. This was a group of people who truly cared about one another. I lurked for so long, gaining my courage to hopefully become one of the Owlettes. Joining this group has been a tremendously wonderful experience. We are all from different parts of the world, with different life experiences and sometimes different opinions. We are all bound together by this damned disease. We have laughed and cried together. We have learned from each other, shared hopes, dreams and fears. We prayed and fretted over the births of "our" grandbabies and now ooh and awe at every glimpse we get of them. We are ready to support one another in any way possible, whether in person, phone calls, emails or messages here. This is a true sisterhood. What a blessing it is to have this family of the heart.

One of the most special things here was watching the growing friendship between Spookie and Sas. They were the meet and greet team for any of our sisters passing through Florida. Spookie and Sas visited each other, checked up on each other and delighted us all with their humor and wit. They were the cool big sisters we all wished we had growing up.

Spookie, I don't know if your post was a silly response or a pissy one. I am hoping you were joking about something. We lose too many of our sisters for real, forever. None of us knows how long we have on this earth. Life is a precious gift. Friendship is a special gift. Friends we love, who love us...... that is a rare gift to treasure always.

We can disagree about things. That is okay. We are each individuals - how boring life would be if we were all the same. Let us cherish this sisterhood, tolerate our differences and just be good to each other.

Meadow

ladies, just popped in to say hello, and sending you all my best. Hoping everyone is doing OK, I have not read the thread to get caught up, thinking of you all.

susan3

you are special sheps:)

Eeyore07

ShepKi : Thank you!

BTW, I like Huskies but won't subject them to the Texas heat. My heart really melts for Corgi, Cardigan Corgi

queenmomcat

Yes, still very much following this thread, among others, but tranquilly receding into non-cancerness. With occasional forays into 'smoke coming out of my ears' frustration resulting from visiting family. (Never make the mistake of confusing correlation with causation. AKA the 'post hoc, ergo propter hoc' fallacy. NOT wearing a seat belt doesn't cause head injury any more than being overweight or alcohol consumption does breast cancer. There's an intermediate step in there. Fume.)

kathindc

Oops, I'm late with my

Happy Anniversary Mags. Hope you had a great time at dinner. So sorry to hear about you being stage IV.

Happy Birthday Sas. Hope you did something fun today. You've been very quite. Not like you at all.

Keep the pics of Evie and Elena coming. They have changed sooo much. Two cuties.

JuneBug, my husband has chronic kidney disease. His last round of medicine was lasix 40mg. His legs started swelling really bad, right more than the left. So much fluid built up on the right leg that he developed blisters. Long story short a second diuretic was added. His legs are just about back to normal. Something to talk to your doc about adding a second med.

Amazon has Biofreeze.

Jazzy, love your patio furniture.

Lover, is your hubby back home yet? How is/was his trip? I apologize if you have mentioned this. I have a nine year old MacBook Pro and one that is a year old. Big difference in reading the screen. If I have to work on my old computer for any length of time, I start getting a headache.

Chevy, so glad you're back. I really missed your wisdom and humor. I try not to talk or do things around my hubby that irritate him but it's hard when we would share so much. We will be married 44 years this month. His health isn't the greatest any more and I think he has trouble accepting that. He was under a lot of pressure at work (retired once from the government) and finally retired from this job. Hopefully, that will help his moodiness.

Patty, I'm glad you've been popping in. I worry when we don't hear from you.

Hi to everyone else.

Lookforward

Shep that was a eloquent post written from the heart.

THe wedding is in Regina . it was a beautiful sunny day with a temp of 30C.

JunieB

Susan - Thank you for the explanation and you're right, we each have our own journey with this crappy disease. But like Shep said there is such a spirit of camaraderie here that it is hard to accept that we will have to face the loss of anyone, ever. I am glad to know you are going against the odds so far. You seem so strong, so busy, and most times so upbeat that it is hard to imagine you any other way.

Kathindc - I don't know how long the Biofreeze will be available through Amazon because the manufacturer is making retailer's like CVS stop selling it and remove it from their shelves by mid-August. Apparently the manufacturer wants it only available through Physical Therapy, Chiropractic & Massage Clinics, plus some Day Spas. I get it from my P.T.'s office.

Good Night to All!

Loveroflife

Jazzy, I love the patio furniture. You have good taste.

Thank you, ShepK. I just want to hug you. I was and am still hoping for restoration between friends.

Ok, my simple thoughts on the movie. (It is so hard to transform my thoughts to writing.)The one symbolism I find interesting is water:

• water in Mamaji's lungs when he was born
• Mamaji told Pi during swimming lesson that a mouthful of water won't kill you, but panic will
• Pi drinking holy water in the church
• The tiger's name was supposed to be Thirsty and not Richard Parker
• Pi trying to survive on the open sea

Water represents both life and death. Living things can not survive without water. But, water can kill also. You can drown in water or die from drinking too much water or drinking sea water. I think human naturally thirst for truth. Aren't we always searching or researching? When we found truth, our thirst for it is quenched. You are going to think I am crazy, but I think water also represents a person's faith. Putting our faith in the right thing will preserve/spare us and in the wrong thing, it will destroy/harm us.

Did you notice that of all the instructions from the survival manual, 'Don't lose hope' was mentioned more than once? it is so important when we face challenges. I think when we lose hope, we give up fighting. My DH thought that Pi was foolish for sparing the tiger's life. Even though RP was a danger to Pi, it's companionship was more important to him. He admitted that tending to RP helped him to stay focus and gave him his life purpose. Hope, companionship, and purpose helped him to stay alive.

I interpret the ending of the movie differently not because I don't believe in miracles. The human heart is deceiving. When put in a desperate situation, the evil deeds will easily surface. We all have the potential to kill. There are so many things I would love to discuss, but it is way pass my bedtime.

Loveroflife

Gosh, it took me forever to write three posts were above mine by the time I was done.

Kathi, thank you for asking about DH. I will pick him up this afternoon from the airport after church. He got a lot of insect/mosquito bites. More than half of the team has/had diarrhea. I am sure I will hear more about the trip from him. I love it when he goes on mission trip. He comes back a better person each time plus I don't have to worry too much about meal prep. I am actually typing on the MacBook Pro with Retina display. It is nice! Too bad it will leave with my daughter to college in two weeks

feelingfeline

Ha Shep I actually live right in Wicklow Town!

susan3

lover, at the end of that movie I just went WHAT!! I love deep thinking movies, but not ones I have to figure out. Like moby dick.....if you want to wrote about good and evil....I am all in..love it....but when you represent it as a whale and person, that's all I see.. Haha...I'm a bit blavk and white I guess ??

Elena should be here by 9. Going to church with us. They will be so excited. Claire used to be on the pray team. Fun day

Jazzygirl

susan3

I can play that on the piano!!!!

feelingfeline

JazzyJune, KathinDC that is so interesating about Biofreeze being withdrawn to specialist only retailers, I hope that doesn't happen here, my Mum and I find it great! Here and in the UK it is sold over the counter in any pharmacy and is not expensive. So if you happen to know anyone coming over to either here or the UK you could ask them to bring you back some.......

Loveroflife

I can sing that song like Louis Armstrong and Israel Kamakawiwoʻole. Ok,hopefully this doesn't sound dark, but I told my family that I would like to have this song played at my Celebration of Life. DH woke me up. He called from Houston to say he missedmy voice. He told me he wanted to call me earlier, but he waited so that he wouldn't wake me up too early. It was 6:00 am. Isn't that sweet? He is in the airport waiting for the transfer flight to California. Going back to bed. It's only 6:30 am. Still too early to be awake. It's Sunday. I still have a few hours of shut eyes left before church. Not like Ms Chevy who wakes up before the roosters. She is probably have an early lunch right now. Have fun with Elena.

Good afternoon, Feline

Oh, I almost forgot:

Happy Birthday to Mama Chevy!

feelingfeline

Aah I love to hear about great DH's

JunieB

It's Chevy's Birthday now? Ok, you guys need to find a way to communicate these things to me ahead of time. Again I ask, how do I get in the loop for the significant/special dates?

This one's for you Ms. Chevy!

I went to a new Church with a neighbor today. It was awesome. Pastor gave an amazing sermon and the worship time was very uplifting too. This neighbor & I live in the same building and have for the past 6 years. However, last Friday on my way home from volunteering, because it was soooo HOT, I wasn't gonna cook, so I stopped at Burger King. Haven't been there in like 3 years. Anyway, I meet these two older ladies and as we conversed it turns out that they are close friends of my neighbor and they all go to this Church. Small world.