INSOMNIACS place to talk in the wee hours

JunieB

Sas - Whoa! Those are beautiful.

Also, I just passed a young man at the bus stop and he had a T-shirt that said "This is not the life I ordered" I thought it was priceless. I want one!

Anonymous

Hey Y'all,

Yesterday's visit did nothing but reinforce my total distrust and disdain for all in the neurological field. In all my multiple experiences, I have only encountered 2 that weren't totally bat-poop crazy. Ugh. Dicktor can't do anything for me and can't make any recommendations except for Lyrica and PT. I can't take Neurontin, ask isn't Lyrica considered the same thing? The guy tells me he doesn't know, he doesn't even know how Lyrica works, no one knows how it works, but it helps for some people with fibro and nerve pain. Maybe the numbness too. Asked him if PT would help strengthen my muscles to properly support my spine and help push my herniated and bulging discs into place and ease some of the nerve compression. Dicktor says; Oh no! No one's discs are ever helped by PT, that won't affect the discs at all and your will still have the compression. He came out with some real doozies.... Those weren't even the best. We walked out of the exam room and DS looks at me and says "what the heck is wrong with that guy?"

Will share later what the guy said about MRI's and the tool in my back..........crazy stuff.

My bones and brain are racked....thhhhp.

Did have a lovely time with DS. Had a nice lunch, visited one of our fave thrift stores and had a great time visiting on the ride there and back.

I celebrate my birthday every year but stopped adding years after I was 28. I've been 28 for 22 years now. That is how DS and I will be the same age in 7 years

susan3

sorry appt didn't go well.

sas-schatzi

chit

Lookforward

Shep sorry to hear about your appointment

JunieB

Shep - So sorry your appt. went so badly. And yes, Lyrica is the same as Neurontin. Approx. when did this neurosurgeon graduate medical school? And what planet is he from?

At least you had a great time with your DS!

Smaarty

Evie at 3 mos. soon, Susan will be posting pics too!

Mominator

I performed in my concert today. I am a professional flutist. This is the first concert in which I sang as a soloist (not part of a choir)

A surprise treat: my vocal coach came to hear me. All smiles after the concert.

Here's the program:

Now I'm so wound up I can't sleep.

PattyPeppermint

smarty. Evie is getting so big. Seems like you were just posting pics from hospital

Holeinone. Let your family stay at the motel. I know we still want to do the same things we used to but don't wipe yourself out and be too miserable to enjoy their company.

Hugs

Hootie hoo

JunieB

Mominator - How exciting!

PattyP - Great to see you posting again.

Blessings2011

I don't always have time to write a reply, but I sure would use a "LIKE" button (or a "BOOOO" button) on posts!

Anonymous

JunieB this is for you! Thank you for making me laugh out loud twice today

Anonymous

Holeinone, yay for company! Double yay for hotel! You will be able to enjoy everyone so much more with "down time" when you need it. Hostessing is a fulltime job! All that "stuff" they give us that hurts more the better it works....who planned it that way? Geez!

Susan, hope your treatment is being gentle on you

Lookie, I still keep thinking you're having troubles at a casino or something....darn Reno! Riding with the windows down and singing to the radio ~ best way to travel!

Loverly, You have froggies! What a happy garden Has your DH been able to email or call? He'll be so proud of Mitzy when he gets home. You've both been on a mission :-)

Patty, So exciting to see you posting - you are one of The "Rockstars" of the BCO boards. Wow! I hope those hospital people are treating you like the royalty you are

Sas, I've been taking notes from your advice and doing research. Thank you! I read your postings on CYP2D6 and went on to look up more info from my YouScript report. I am normal 1/1 on CYP2D6 and was able to stay on Tamoxifen for 2 years. Now I'm on Letrozole/Femara. My CYP2C19 is 17/17 Ultra Rapid Metabolizer. Probably the reason I've been on Nexium for years without any problems. Your candy dish top is gorgeous. I can picture it as a centerpiece on top of a glass platter surrounded by fruits or pastries. Or maybe part of a floral arrangement? So many pretty uses......

Still fuming about yesterday's Dr. appointment. Will share more later. Good thing about my anger is it motivates me.

This is one of my fave pics of when my baby really was still a baby. My little "Rhett Butler" is about 3 here

Good Night!

feelingfeline

Rhett Butler best thing that ever came out of Charleston ever (Scarlett was a fool)

PS Your Rhett Butler looks pretty nice too.

feelingfeline

Mominator - CONGRATULATIONS!

sas-schatzi

Mominator, what fun... a star

Junie , I'll let you know when the post on how to find money to assist with stuff

Shep( & Junie) as bad as he did at communication, I think it may need a bit of sorting out. On Lyrica. I couldn't find anything that supported his statement. BUT that doesn't make his statement false. If you look at wiki there is a description of all the chemical things that happen. Very unreadable to us lay people. Sounds like it is known how it works. But there can be 'things' that only the most schooled know that the rest of the mere mortals don't know. The neurologist is at the top of the heap for understanding neuro brain chemistry. it may be known at that level that it is simply unknown exactly how it works.

Let me give you a different example: Anesthesia. The drugs that are used to produce deep anesthesia are well known to practitioners. BUT the WHY & HOW of deep anesthesia is accomplished is unknown. Does that prevent people from being put under. No. Does it make you feel more comfortable knowing that? Likely not, we generally think every step and ramification of anesthesia is known.

Lyrica and Neurontin may be in the same drug family i.e class, but doesn't mean they work exactly the same way. Drugs fall into a class, then each has a special characteristic that makes them different from the other drugs in that class. Otherwise, it will be described as having the same exact action of another drug in that class. That's how generics are developed. When new drugs are developed and there is no class in which it fits, the term used to describe this is "Novel Drug Class"--i.e new class. Over time once a Novell drug is found, other pharmas, also, seek to develop drugs in that class.

With the discs, PT affects soft tissues that surround bony structures. Muscles react to pain by going into spasm or tightening around the painful area. Those spasms are protective in the sense they are trying to stabilize an area. But the spasming can in it self create more of a problem. Bony structures that are unstable apply pressure on the nerves and soft tissue. Like a collapsing house putting structural pressure on the plumbing & electrical lines that the frame/concrete structure has moved. out of position.

What this doc may have done is be the first to talk to you truthfully, BUT he did it very poorly. Since what he communicated seems so different, a reasonable reaction is you don't believe him. Had he taken a couple of minutes to explain each statement you would have been better served.

I do agree that in general neurologists and neurosurgeons overall don't communicate well. I remember one time saying couldn't we put Dr. Smith in the closet, and bring him out when we needed him. He was a major teacher of patients, and staff. His communication skills were so different. He became a benchmark doc for me as to judge others.

Too bad he sucked.

sas-schatzi

Smarrty, I just love following Evie. Is she nursing?

HOOTIEHOOOOOOOOoooooPatty

Shep putting that shirt on W&F's Any chance you can report your experience with Genelex and YouScript on the 2D6 thread? It would be so much fun to talk about the stuff. I love strange things. When you get to the posts where I talk to BAKERBAKER. It was very strange b/c BB's post disappeared entirely. Had I not incorporated his question in the response, you would think me crazy. I was pretty proud of the response, LOL. At the time nothing was in print about how to handle this NEW info related to metabolism. Fairly soon after that I was able to locate info that said as I did about not knowing b/c the studies didn't identify CYP abnormalities. I thought myself quite clever. It's still an ongoing discussion in clinical trials.

BTW practicing doc's are not good atapplying CYP abnormalities. I stumped my RO and YouScript pharmacists when I asked exactly what paths the radioactive iodine 131 was metabolized through. They all had to go to the books. Took awhile. You will see in the posts how I changed my PCP and counselors practice. Neat.

I thought about using the glass dome as a tactile thingy. The knob on top has three loops. Barely could be seen on the pic. The whole thing is neat to feel

Great pic of DS

Lookforward

Good morning everyone it is a beautiful sunny day, but a little chilly. Loverly I am not stressed out about the reno , just disappointed the countertop guy didn't put the countertop order in when he should of, and we will have to wait another two weeks. Your garden is beautiful and very restful. How much longer will your husband be away?

Junnie how true in this is not the life I ordered. I admire you ladies for your fortitude and zest for life.

Holeinone sit back and enjoy your company. Good news on the liver enzymes tumor markers dropping.

Mominator you are one talented lady.

Shep glad to see your sense of humor back. As for anger motivating you, you go girl. Your son's picture is adorable, what a cutie.

Sas that glass is beautiful, do you have any room left in your house.

Lookforward

susan3

Eve is so cute. And boy do they grow fast....wowwy

sas-schatzi

Hey Lookie, no

feelingfeline

Love it LookForward

Anonymous

Lookie ~

queenmomcat

(waves hello) alive and well, though my laptop isn't. tripped over my own fat feet and sat on it. another's on order....but I've been spending the last couple of days out happily gardening.

sas-schatzi

Mominator YAY< HotieHoo

Lookforward

Sas I forgot you fell, no smiling for you. We need mattress floors.

Smarty your great granddaughter is a sweet baby

Anonymous

feelingfeline, Scarlett was a fool - Ashley Wilkes was such a wanker, so wishy-washy and weak. Funny how time changes your perception of things. When I was young I thought Melanie was so annoying and helpless; as I got older I realized that she was the strongest character of them all.

My mother started a family tradition years ago, after ordering some curtains that did not arrive looking like she expected. During the scene where Scarlett is in the turnip field and raises her fist to the sky, each one of us viewing must also raise a fist, jump up on the furniture and make our own declaration. That first year Mother declared "If I have to lie, steal, cheat or kill. As God is my witness, I'll never have ugly curtains again!"*

*learned the hard way that when viewing at the cinema the folks seated behind you get a little po'd.

Anonymous

Lookie, we'll need to set up a security device to keep Sas and Queenie safe from falls.

I did some research and think this is "do-able"

Loveroflife

Now, I can handle that. The no pants ones....ewww.

Anonymous

Loverly, I am soooo tempted to say something naughty about that pretty thing not being fully "do-able" with pants on. I am lady of genteel sensibilities so I shall refrain.