INSOMNIACS place to talk in the wee hours

sensitivehrt

Hello ladies,

So meeting with BS went good. No definite decisions yet. She is sending me for a consult with the radiologist first and then wants me to meet with geneticist as well. Radiation could cause complications with my Neurofibromatosis. Radiation can cause the benign tumors I have, to turn cancerous (this is what I'm trying to get away from.....right?). So as of now it's

1. Lumpectomy with radiation

2. Mastectomy of the left breast with sentinel node removal

Probably no medications needed as even though I'm ER+, I was only at 8%. Was told normally given after 9%. Referral for consult already went thru....and will have that appointment on April 5.

I'm leaning towards the single mastectomy as that is what my gut has been telling me. Any thoughts on reconstruction? I don't have very big boobs to begin with, and because of my already short hair, often get called "sir". I don't plan on changing my hair style anytime soon, and I don't think getting called sir or mam will change with 1 boob or 2. Anyone have reconstruction and regret it.....or vise versa, anyone not get it and wish they had now?

Thank you for any input. Off to do more running around. Have a great evening all.

Oh, and chemo would depend on the sentinel node removal. Though from what they can see now, no node involvement, though I know this can change.

JunieB

Hello All,

Loverly, sorry you haven't been feeling well. That is never fun. Have you had to be off work? I have been having a rough time too. Hence, I haven't been posting. Vertigo is in full swing again and it SUCKS!. Doctor had me try Meclazine for the vertigo, but after a 1/2 pill I was nauseated and agitated, so that was a waste of money. I've also developed muscle spasms in my legs and torso. I've been in so much pain because my muscles hurt so much from the spasms, especially around my rib cage. Did two bottles of Gatorade for the cramps, but no relief, so dehydration isn't the cause. Also today was my day for treatment at the MO's office, I let out an involuntary yelp when the nurses stuck me with the needles in my caboose and scared one of them. I also saw palliative care, and they are referring me to their vestibular clinic to see if that will help with the dizziness.

I also spoke with the breeder in Idaho and she will be mating 2 of her dogs in May, so pups will hopefully be coming. I was extremely disappointed when I read the email from the first breeder that her dog had only had 2 female pups. The new breeder is a friend of the first and the 2 dogs she'll be breeding are Black (female) & Creamy Silver (male). Should make for some cute little ones. We'll see.

My friend in California has 2 dogs and the time I spent with her family & dogs was very enjoyable. Best Good Friday & Easter I can remember having in a long time.

Sensitiveheart - I had a right modified radical mastectomy at 31, with an immediate reconstruction with a tissue expander. After 2 years my body rejected the expander and I had a TRAM Flap reconstruction done, which went very well since I already had a good pocket created by the expander and didn't need a skin graft. Now 20 some years later it's still doing well.

Hello Shepkitty, Glad you have joined us. Sorry it couldn't be under different circumstances. I hope your surgery goes well and no node involvement. I love the pics of the furry nurses. See if you're gone from here for even a few days, new people pop up and you find yourself completely out of the loop.

Jazzy - Glad you're feeling better.

Sas - How have you been?

Until next time!

Wren44

Sensi, You can always reconstruct later. I didn't and am happy with my decision. It might have been different if I was younger. There are threads discussing options. Can't remember the name of any, but I remember 3-4.

Mominator

Hello Owlettes,

I'm just dropping by to see if anyone's heard from PattyPeppermint? Last I knew she was enjoying her boys' break from school and was a bit tired. I was worried because I haven't seen her since she last posted here on March 26, and it's been 5 days now.

I PM'ed her here on BCO and posted to her Patty thread, and messaged her on Facebook.

Has anyone heard anything about Patty?

Madelyn

Loveroflife

Hi Madelyn! Ms. Sas has her contact info ( I believe) I have been checking to see if she has signed in nearly daily. We start to get worry after a few days too. I was hoping home health would improve her QOL.

Jazzygirl

Loverly- that is an interesting remedy and worth trying. I live alone so the funky odor would be mine to deal with alone! Going to try it! My colds usually last a couple weeks. I get colds worse due to compounding with allergies and asthma. This one has been a doosey, but coming through it now.

Thank you for caring everyone! Love you ladies

Loveroflife

JunieB, there you are. I'm much better today, except I feel a bit bloated where I guess my liver is and where my gall bladder used to be. I'm grateful though for the returned energy and no unnecessary expulsions. I'm sorry to hear that the dizziness has not resolved. Dizziness is another yuck. Good that they are doing something about it. Have you considered acupressure? And you have to deal with a new onset of spasm? Aye. Make sure your vitamins Bs, calcium, and Magnesium level are good. Some drugs can cause depletion of these vitamins and minerals.

Sensi, I had a mastectomy (to avoid radiation) and delayed reconstruction. I think if I were much older and not married I would not not bother with recon. I do have spasm on my deltoid muscle and shoulder on my reconstructive side. I didn't have this problem before reconstruction post mastectomy. Best wishes on whichever path you choose.

feelingfeline

Thinking of Patty too.

sas-schatzi

Hi can't catch up, but I saw Mominators post about Patty, I left a message on her cell. If she doesn't post tonight I'll call her sweetie tomorrow. I'll put this on her thread too

Off to ortho appointment in a few

Loveroflife

Thanks, Ms. Sas.

Good morning and afternoon dear ladies.

Jazzygirl

Sending loving thoughts to Peppermint Patty today and hoping all is well. That she is just busy enjoying family this week on spring break!

sas-schatzi

This is from Patty. Going to her thread to post this too. She may have already checked in there and I don't know it. This could be old news. Love you all, I will catch up later, on a mission. Going to be oh so serious about pontificating......... LOL. That's redundant. ........

Sorry, only the Catholics will get the joke.

From Patty: good morning. I got your voicemail. How sweet of you to check on me. I am at the hodpitsl outpatient waiting on pet scan. My phone service is horrible so i thought a pm might reach you instead of a call. Also my phone is nearly dead. I've been miserable in back pain. Hoping pet shows nothing new. My neatrophil is under 500 and I am anemic. So very tired. Just sleeping from the pain meds and just exhaustion. My neck from where they put the port in has an infection. Going to mo office after pet is done to discuss what to do. I've been on an oral antibiotic but it's not better and with my neutrophil counts being under 500 for more then 5 days they would like to put me in hospital for iv antibiotic. Ugh. I don't feel THAT bad. Hoping home health can just do something at home. It is the reason I started using them. I am hopeful mo will agree to that when I see him face to face. I am NOT going to be admitted to hospital today...period !!!!

Will try to get in snd update everyone later today or maybe tomorrow depending on how I feel.

Hugs and love

Patty

sas-schatzi

Left a message for Patty, not to worry about update. They're was all the update info in her PM. This gives her and us the need to know stuff for now. Hugs everyone, sassy

Mominator

Sassy, I appreciate you checking on Patty.

Loveroflife

Thank you, Ms. Sas.

sas-schatzi

All, Patty is very special to us, thanks for concern about her.

Phone numbers are POWER, If you have a friend on BCO ask for their phone number. The absolute sucky thing is a friend go MIA and we have no contact number. I have lot's b/c I said please, give it to me.

Okay sharing the worst, I got a call from Cleveland Clinic ID on the phone.....waited for a voice.........heard breathing .... The breathing went on for a short time.......then a hang up. No way to trace the call. This is awhile ago. Couple months. Didn't understand the effort of the call and the breathing, then the hang up.

You know what, I should have shared it when It occurred., Sorry, ---------sorry to whomever called

Let's, please, put into our prayers this unknown person.

Loveroflife

What are you doing up so late again? Brain going 100mph?

sas-schatzi

I thought it might be Ziggy, she was so sharing about Hudson Ohio, Cleveland Clinic was a stones throw from Hudson. Akron was closer, but CC world renown for so much was a hard act to follow. We had many contacts in common. But Ziggy was very tight about disclosure about her self. When she disappeared, We all felt so sad b/c she was just a great funny insightful person. She had her BC to deal with and her Mom that was Alhziemers. She gave no number.

I wish I knew who was on the other end of the line.

JunieB

Thank you Sassy for forwarding PattyP's post. I, like others have been concerned about her too. How did your ortho appt. go?

Hello Loverly, feeling better today?

I'm very tired and am going to bed. Hope you all have a restful, sleep filled night.

JunieB

Kitty is ready for school!

feelingfeline

Patty

Jazzygirl

Taken here down by our river in NM.

Loveroflife

Ms. Sas, it's always sad to see the people we bond with leave, but even sadder when they leave without saying goodbye. You will always wonder how they are doing and can only hope the best for them.

JunieB, you sound like you have much less energy these last few days. How is the genealogy search coming along? I'm much better. Thank you! Just have this funny taste in my mouth along with indigestion and sometimes bloating. It worked so hard the other days and now it's just slows down and being lazy. It has a mind of its own. Can't complain though.

Jazzy, those eyes look like they could belong to a person. Very interesting. Did you take that? How is your lung?

Zill, thinking about you and hoping you tolerate the treatment ok.

Dropped my younger daughter off for a piano rehearsal for next week recital. I stayed in the car to nap (long day). She came out after she was done and the first thing that came out of her mouth was "Mom, I messed up because my hands were supper sweaty, my armpit was itchy, and I slipped and missed the flat key!" I bursted out laughing and she joined me shortly after. Oh the simple pleasure of life.

Loveroflife

Feline, since you will be up shortly before us Americans....

JunieB

Loverly - I'm glad you're feeling better. I enjoyed your story about your daughter. Precious moments that creat good memories. I haven't felt well over the last week, because of pain in my legs and torso from muscle cramps. Plus the dizziness. I can't even seem to get myself to my sewing machine. But yet here I am at 1:15 a.m. unable to sleep. Urrgh!

In regards to the genealogy journey, the lady helping me has been tied up with her own stuff and once she's done with that she'll get back with me. I did hear from the funeral home that handled my father's cremation and they emailed some family info. that listed 1 Uncle and 3 Aunts. Don't know if any of them are still alive, but time will tell. Also on the Obituary only my half-sister was listed as his surviving child. Don't know if they even know about me. I have her possible phone number, but am too chicken to call her out of the blue like that. It might be too much of a shock to have some stranger call and say "Hi, I'm your half-sister."

Ok Sas, I've posted questions to you twice in the last couple of days and you haven't reponded. I'm used to that occurring with a couple others, but not with you. What's up?

Well guess that's all for now. I'm going to try and go back to bed and hopefully get some sleep. Hate to cancel on my ride to church AGAIN.

Have a Great Sunday everyone!

Smaarty

my turn to be up in the middle of the night. We booked a trip to Australia through Hawaii so we'll get 4 days in Hawaii and 3 weeks in AU. DD, SIL and DGS going too for the first week. DD promised him a trip after the amputation. I just looked and daylight savings stop the morning we leave. Hope that doesn't cause a problem leaving. If anything, it will make us an hour early!

Hey FF, how's the kids doing with school? DS loving university? Did he get his driving license yet? Can't remember if you said he did or not.

Well, back to bed and see if that does any good

feelingfeline

Hi Smaarty I hope you are feeling much better after rest. All well here thank you. DS hopes to take driving test this summer. It is a big deal here - long waiting lists due to how hard it is to pass. You have to demonstrate perfect driving for about 40 mins. DH and I both took 3 goes to pass. DH had been driving for 27 years in the US when sitting his 1st Irish test. Having said that the only people I ever knew to pass first time were all young - more confidence? Less cluttered and distracted brains? It is the toughest exam you will ever sit in this country.

Jazzy that is a great capture of the owl, you must be delighted.

susan3

jazzy, cutei picture !!

Junebug, sorry to hear things haven't resolved. Do you have any improvement ?? Wishing healing your way

Smaarty, sound like a great trip!!! And family too...that's how I love doing trips !

Morning all.

We are off to church, then Milwaukee. Kids found 2 house they want our eyes on. One they want to bid on.wish us luck .

Jazzygirl

Good morning friends- it is a chilly morning here in the high desert, but expected to warm up to the 70s today. The convertible is coming out of the garage today, and the top is coming down!

Loverly- my congestion is clearing and doing a lot better this weekend, thanks for asking! I had some out and about time yesterday, but then came home to rest and also did a bit of yard work last night. I think I am going to live!

Smarty- what a wonderful trip you have planned. I had a friend traveling back from NM during DLS time here. We just make sure we were in bed super early and set multiple alarms so I could get to the airport on time.

What a wonderful gift to give to your GS after the tough time he has been through. It will be a very good trip for you all I think.

Smaarty

well I did get back to sleep. Yeah.

Susan, what fun, love house shopping. Have fun.

Jazzy, love the birdie! Will you be able to get another shot as it grows?

Sorry for those not feeling well. Hope things improve for you.

Got my last quilt back, it's almost all done. I'll post a pic later.

BBL