I say yes, you say no, OR People are Strange

Anonymous

Athena - I was thinking the "here they come" had a familiar ring to it.....think it's their loss.  Lots of wisdom to be shared by what some of us have experienced - nice to have this as a place to share it.

Also glad there's a Complimentary thread now too.

Special thanks, winks, HUGS, to Scoot for COCOA BUTTER -swooning with the comfort of it...and never would have thought to use it, ah, that way

1Athena1

Yes, two names are heating up the alt. forums very quickly and the flames have a familiar ring to them. Especially the parts where people keep getting asked to post elsewhere.

Bren-2007

Hi Everybody!

I thought that 'here they come' comment was very rude.

Well .. I'm totally spinning.  The steroid shot I got for my allergies has me so hyper.  I feel like I could run a marathon!  Ha!  That's not going to happen.

Sunflowers  ... I will give the cocoa butter a try.  I love the way it feels on my face and skin.

Hope everyone had a great day,

Bren

Enjoyful

Well, Bren, we've been known to post "INCOMING!" a time or two.  ;-)

 I just hope they like the change in my tag line and aren't TOO worried about big toe cheese.  

1Athena1

Scoot, you have enough on your plate. Don't let the crisis manufacturers get to you. I LOVE your tagline. It's extra-witty - your humor!

("displease me and I will go Midwestern cheesy on your northmost-facing angle on a day when you are bending over, south-faced.")

Enjoyful

Yes, but won't the cheese melt?  And melty cheese can burn, so wouldn't that be threatening?

1Athena1

Rrrrrrrrealllly threatening.....

Enjoyful

I think there was a horror movie about that back in the '70s.  CHEEZ.  No wait, that was JAWS.

Sorry. 

YramAL

An update on my sister-in-law, who as you may remember, has a recurrence of DCIS in her post-mastectomy reconstructed breast. She saw the surgeon today and she said he was an ass. The DCIS has come back in the exact same location it was before(or at least in the small bit of breast tissue she has left there) and he made her feel like it was her fault it came back. He also told her he wanted his full fee upfront before doing surgery, because there were some payment issues last time. He also seemed to be upset with her oncologist for having him see her so quickly since it was "just" DCIS. She left the office in tears. 

Fortunately, her plastic surgeon was able to give her a recommendation for another surgeon. It looks like radiation may be in the picture this time,(she didn't have it last time) though I'm not sure how that works when she has implants.

Mary 

Enjoyful

Wow, the God complex some doctors have is beyond belief.  I'm so sorry she had a bad experience.  There are some really really bad and insensitive doctors out there.

Wabbit

Mary ... What a jerk!  He should have been apologizing all over the place for leaving that breast tissue there in the first place IMO.  Sorry she has to deal with more aggravation because of him ... but glad she is firing him and finding another surgeon!   

otter

Hi, all. I've been out of internet range for a few days. It was kinda nice, actually.

I see some things never change. I was checking out a certain thread about foods that prevent cancer (or not), and suddenly I had this strange sense of deja vu.... 

In my previous life, I spent a good bit of time trying to untangle and understand, and even teach, the intricacies of cell biology. In the process, I came across all those nifty terms being tossed around in that thread -- E-selectin, PARP, NF-kB, RAS, 5-LOX. There are hundreds, even thousands, more.  Fun stuff. 

When you throw all those high-tech terms together into a cartoon (in the British/Canadian sense of the word) and toss in a bunch of arrows, some people get really impressed.  (Apparently.)  OTOH, some of my (former) colleagues do that stuff for a living, and publish real peer-reviewed research papers about it (rather than talk about it on Oprah).  My real cell biologist colleagues find the zen diagrams, and vectors and balloons and bubble diagrams and such, amusing.  Way too simplistic to be meaningful, even though they sure seem impressive to the uninitiated. 

Anyway, I didn't drop in to talk about nonsense.  I just wanted to say "hi", and offer support to those of you who are dealing with prima donna docs and in-laws with DCIS and allergy treatments and... cheese?

otter

CherrylH

Good to see  you, Otter!!

Momine

Someone, not saying who but the invite was a bit cheezy , told me to check out this thread, so here I am. 

As for alternative treatments, I find a lot of really interesting and definitely worth checking out, but I am a sceptic, and not just with cancer treatment. One of my jobs is to check academic texts before publication, so I am used to asking a lot of questions and it is my job to demand the back-up for whatever people say. My husband is a historian, and he needs bleeping evidence for a simple request to do the dishes.

Yram, I hope your SIL finds a new surgeon ASAP. 

suzieq60

Momine - welcome - nice to have you here.

Momine

Susie, thanks for the welcome! You wrote further up: "I hope she listens to her doctor not someone who is at probably a lot less risk and can afford to follow the snake oil salesmen."

Yep, this thought occurred to me too when one of the gung-ho alternative people had a DCIS stage 0 DX. I hope this does not offend, but as someone with stage III cancer, I feel like saying "Take your baking soda in peace, sister, and talk to me when you have a giant tumor and node involvement." 

Several things came up in the comp/alt threads that I do wonder about and I wonder if anyone here has discussed these with a doc.

One was the idea that chemo does not work on ILC, which sounds really odd to me, given that it certainly worked on me. The evidence given was a study which concluded that survival was the same, in ILC, with AIs as with AIs plus adjuvant chemo. 

Another was the assertion that the taxanes do not work on ER+ cancers, yet taxanes seem to be standard treatment and I had 4 rounds of taxotere.

Finally, that there is no reason to think and no evidence, from the alt POV, that chemo kills circulating cancer cells after surgery, since people have recurrences in spite of chemo (this seems to be the argument).

Is there any actual medical evidence that body PH matters? 

Susie, just to bug you, this is where I buy fish:

suzieq60

Wow - I want some fish - luckily my fish guy will have his van at a service station on Friday, so I can stock up.



I had chemo even with an 11mm tumour no nodes, but I was HER2+ve Lobular which is very rare. Not many of the alt people have HER2 either, so it's easy for them to advise against chemo. I know it's no guarrantee but you have to do what you can and I'll never regret it.



Sue

1Athena1

Mary, what an awful doctor your poor SIL had to deal with - some people should not be in the healing profession. Fancy being told "you have cancer - pay up or shut up." I hope she finds a real human who cares.

Waving at otter, who I wish would keep within Internet range more often....and at our Bartender.

Missing BLUE, wondering about Barbara. And welcome to momine.

Haven't slept properly in three nights despite a variety of efforts (no advice needed - it's being tended to). Can't stay awake properly today. Grrrr. I hate the lost productivity.

Momine

Yes, I hear you Susie, and HER+ lobular does seem to be very rare.

208sandy

Momine Welcome - I think you'll like hanging out here - must run - drs. appt. this morning - hope everyone has a great day.

suzieq60

I'm special - my other cancer was also rare - trust me to be weird

Hi Athena - I miss Blue too - hope she's OK

suzieq60

I'm still up - I'd better go to bed. We have a 4 day weekend this weekend for Easter. I don't think you girls get so much time off if I remember right.

rosemary-b

I wonder too about some of the alt treatments but don't ask questions over there anymore. It's a shame because I know we don't know everything there is to know about cancer, but I do not have time to waste trying things that are, well, a waste of time. Questioning is how I learn but that does not seem welcome so I try not to post there.

lassie11

I don't get a holiday at all. Retired people don't get days off.  And life is just as it should be!

leggo

Susie, don't take this the wrong way but you gave me a good laugh this a.m. Your fish guy at the service station.....kind of like a dude in a trenchcoat asking if you want to buy a watch. HA!

Wabbit

Welcome Momine ... good to see you here! 

Mary ... I have been wondering about your psycho robin.  Is he still trying to crash in to visit with you ... or something more dire perhaps?    (insert creepy music)

Anybody here ever had a weeping willow tree?  We are going to be planting a new tree and DH has a bit of a fascination with them.  They do look cool but I have heard that they make a mess of your yard ... true? 

We really don't know what kind of tree we want.  We thought we would really miss the big one but having it gone has opened up the view in a kind of good way.  So ... what to do? what to do?  Anybody have a pretty medium size tree that they just love ... looking for ideas here. 

Waving 'hi' to everybody!

leggo

I have a couple of weeping willows (I have a fascination with them too!). They don't seem to make much more of a mess than any others. One of them accidentally got lawn-mowered towards the bottom and it sent out a bunch of suckers, that was a mess, but I don't think it's anything that wouldn't have happened with any other tree. The ones I dislike the most (for maintanence, not appearance) are tower poplars. Those things send out suckers like crazy and generate mountains of leaves. Their roots have lifted our concrete as well,  and they're not even planted close to it.

YramAL

Welcome, Momine and Joy. Good to see you here!

WR-my psycho robin seems to have finally given up and moved on. He was attacking my windows for 4 days, though. Now I'm hoping to see some hummingbirds. I just put out my new feeder.

My SIL has an appointment with a new surgeon. Let's hope this one is a human being.

Mary 

Anonymous

Welome Momine - so are we all going to Momine's for the most fabuous fish dinner!  I'm drooling just looking at the picture of where she buys her fish...

Mary - I think we all should get on our FancySchmancy Scooters and get that surgeon!  Wisconsin his toe, or nose, or whatever Scoot suggests.  DAMN - haven't we got enough to deal with with bc - without the EGO of the (thinking worse than jerk?) who might have left that little bit of DCIS in place to begin the process?  Bet he's ( kinda thinking it must be a he) afraid of getting sued?

NEW DOCTOR.  Yeah...Mary, hope all goes well for her.  Tell her we're all in her pocket.

1Athena1

I love willow trees....and sunflowers's posts. :-)