GRRRRRRRRR I HATE LE..........

Options
1…157158160162163…332

Comments

  • Marple
    Marple Member Posts: 19,143
    edited August 2012

    Liz, keeping well hydrated helps 'dilute' (there might be a better word) the lymphatic fluid.

    Gma, sorry the solution isn't easy.  It's difficult to know if you are having a reaction to the antibiotics or the cellulitis.  I suspect they will want to try a different antibiotic. 

    · Share on FacebookShare on Twitter
  • Binney4
    Binney4 Member Posts: 8,609
    edited August 2012

    Sandcastle, the way I've heard it is that staying well hydrated helps dilute the lymph fluid and keep it moving. That has always seemed far-fetched to me and I'm convinced there's more to it than that, but then I remember that drinking a whole lot of water before a blood test helps the blood flow better too, so I'm inclined to believe it. Whatever, it works!Wink

    Hugs,
    Binney

    · Share on FacebookShare on Twitter
  • FireKracker
    FireKracker Member Posts: 8,046
    edited August 2012

    The water helps a lot.I feel the difference when i do not drink enuf water....

    I have been cutting up fresh fruit and put it in my water bottle.Today was apple.You do get tired of that same old same old H2O....coconut water is very good too.really hydrates.

    Any other suggestions??????????

    · Share on FacebookShare on Twitter
  • sandcastle
    sandcastle Member Posts: 587
    edited August 2012

    GIRLS!!!  Thank You so much for your answer to my water question....Good suggestions, I do appreciate....Liz

    · Share on FacebookShare on Twitter
  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited August 2012

    Back from urgent care again - she took one look at me and my bite - it looks like it is going down, stop the antibiotic being you have a PROBLEM with them... but your symptoms can't be allergy to the antibiotic - you are probably coming down with a virus... 

    I'm Confused - no more antibiotic at all you are fine because the swelling has started to go down...????

    Symptoms - flushing of the chest and neck and painful nodes in the neck that make it hard to swallow... 

    · Share on FacebookShare on Twitter
  • nibbana
    nibbana Member Posts: 464
    edited August 2012

    Well, I am seeing some slight swelling in my right hand. Great, wonderful, I have bilateral lymphedema. 

    I could not be more despondant right now. Cry  Forget the water, I want some whiskey.  

    · Share on FacebookShare on Twitter
  • carol57
    carol57 Member Posts: 3,567
    edited August 2012

    nibbana, you have every right to be despondant; LE is horrid.  I notice swelling on my hand when it's stinkin' hot out.  I'm not convinced it's actually LE; it happens when I'm wearing sleeve and gauntlet, and when it's nasty hot out.  I douse the sleeve/gauntlet with water and let evaporative cooling do its magic.  The swelling goes away within 30 minutes or so, which is why I think it's heat related.  Is this possibly the case for you, too?  Can you get to an LE therapist while the hand is swollen, for an expert opinion? 

    Keep us posted. 

    Carol

    · Share on FacebookShare on Twitter
  • nibbana
    nibbana Member Posts: 464
    edited August 2012

    Well, it's only 70 degrees here. Not really that hot. I"m normally was never a sweller due to heat either. 

    I see my LET next week, and boy do I have a bombshell to drop on her. She better come up with another plan, because what I'm doing is obviously not working. 

    · Share on FacebookShare on Twitter
  • carol57
    carol57 Member Posts: 3,567
    edited August 2012

    Oh, rats. A simple answer is not working.  Arghhhhh!  I just hate this stupid LE.  I am so sorry to hear that you're doing the whack-a-mole LE thing--it just pops up in different places. 

    · Share on FacebookShare on Twitter
  • Estel
    Estel Member Posts: 3,353
    edited August 2012

    No one has answered my question re wrapping ... is it OK to wrap the fingers/hand and not the arm?

    · Share on FacebookShare on Twitter
  • KittyDog
    KittyDog Member Posts: 1,079
    edited August 2012

    GMA I think I would look for another opinion.  

    Dawne you take a risk just wrapping the fingers and hands.  You could cause the swelling to move to the arm.  It's called trial and error.  My PT in January didn't wrap my toes but the one this time did.

     Well  I don't have cellulitis like GMA but I am on a antibiotic. Never taken it so fingers crossed I don't react to it.  I got put on clindamycin.  I just can't seem to get a break.  Break ironically is what I did. I broke my back molar.  Jaw is hurting so I guess he is not going to give it a chance to abscess before Tuesday when he pulls it.  Just don't have the money to have a root canal and crown.  Did I mention how much I hate AETNA.  I am having to pay out of pocket-out of network.  The one practice that is close to me said the earliest they could get me in was Sept. 18.  I don't think I am waiting 4 weeks with a tooth broken and hurting.

    Passing some fresh milkway brownies.  They looks so yummy.  lol  I could kill my FB friend who made and posted that picture. 

    · Share on FacebookShare on Twitter
  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited August 2012

    Kitty dog I wish you lived near me! My dentist would come in on the weekend and at least do something for you.

    Btw I'm watching the arm. She seemed to think I just have a virus. I looked after I got home on the Mayo clinic med SEs the neck & chest burning sensation was on there. I think they are pacifying me because the welt wasn't that big.

    I think I'm done here.. I have been taking up the last 4 pages.. I'm sorry ladies I will not post any more..

    · Share on FacebookShare on Twitter
  • Estel
    Estel Member Posts: 3,353
    edited August 2012

    GmaFoley - Please don't feel that way. Grrrrrrrr's don't often go away quickly. That is why we are here. ((hugs))

    · Share on FacebookShare on Twitter
  • ohio4me
    ohio4me Member Posts: 491
    edited August 2012

    dawnehope  - I sometimes wrap my hand and fingers only and it works for me. I don't wear arm compression without hand compression but I will wrap my hand without wrapping my arm.

    My theory is it pushes the fluid up - can't go down further. It's usually night when I wrap my arm and I sleep with my arm elevated - well, at least I start out that way.

    Try it once and see.

    The most frustrating phrase is 'find what works for you' but it's true. Wrapping my hand only works for me.

    · Share on FacebookShare on Twitter
  • Marple
    Marple Member Posts: 19,143
    edited August 2012

    GmaFoley~hey, there are no limits on the number of posts one chooses to make.  You are in trouble right now and any time you need to post, you go girl.  If someone can help you out here with decision making that's the whole idea.  Cellulitis sometimes can present with flu like symptoms.  But then so can a drug reaction.  Perhaps you don't have cellulitis but if you do, a couple of antibiotics aren't likely to have fixed the problem.  You need to see a Dr. who can address your concerns and find an antibiotic that you won't react to.  I can't believe how cavalier your Dr. seems to be treating your problem.  It does get disheartening at times for sure.  Is there another urgent care you have access too?  If so, I think I'd try there if you feel you need to head out again.  Gentle hugs.

    · Share on FacebookShare on Twitter
  • sandcastle
    sandcastle Member Posts: 587
    edited August 2012

    I....ONLY use a gauntlet.....and that works for ME......tried arm compression and my arm blew up ....went without anything for about 9 months all was well until this little ShihTzu puppy of ours got bigger and I was picking him up a LOT......went back to MLD and a gauntlet and it is working.....Of course all the busy bodies have to ASK questions.....Liz

    · Share on FacebookShare on Twitter
  • Galsal
    Galsal Member Posts: 1,886
    edited August 2012

    Have to save that I wore the wrapping for only 12 hours.  It just drove me NUTS and since it had loosened up as was hoped for, I couldn't get it all back together well.

    So I slept without any thing.  First thing in the morning I looked in the mirror.  Lo and behold - that upper breast area had greatly reduced and the lower outside is working on it.  Since I couldn't wrap myself and couldn't reach my friend to do it, I wore the breast binder I'd been wearing when sent home from the BMX surgery months ago.  Friend was over last evening and we checked.  She was amazed at how reduced it is.  

    I guess I'm mostly concerned with wearing something while sleeping that exerts any pressure.

    · Share on FacebookShare on Twitter
  • carol57
    carol57 Member Posts: 3,567
    edited August 2012

    My gosh, sandcastle's and galsal's posts are such an illustration of how differently our LE responds to treatment.  No wonder we're always in a state of 'what do I do next' -- there is no universal formula for success here.  Given the trial and error approach we're stuck with, it's both a wonder and wonderful that you two have found pathways that are working.  My subclinical LE arm hurts all day, every day, and I've yet to find a strategy that alleviates that. No swelling at all since an initial few months when I was diagnosed, so I'm glad for that, but wish I could find the right approach to make the ache disappear.

    · Share on FacebookShare on Twitter
  • ro-berta
    ro-berta Member Posts: 134
    edited August 2012

    gmaFoley, post away that is why it is here, sorry to here about the tough time you are having. I can relate as I am allergic to all antibiotics myself.(not that it helps you) just wanted you to know you are not alone and somehow we manage to get through everything without them . Do you have one particular Dr. you go to? just asking i am from Canada and i have one primary DR, which has helped alot when needed. I hope you get things resolved quickly I know the frustration can be just as taxing as the problem take care.

       roberta

    · Share on FacebookShare on Twitter
  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited August 2012

    Ok I won't keep you in the dark... didn't mean to just feel that I am taking up your time... Someone has been praying hard for me though. So far this morning the redness seems to be down and the neck nodes and swallowing issue has disappeared... Virus - I think not - It was the antibiotic..but that is my opinion.. 

    Unfortunately, my PCP is booked until October and no space to fit me anywhere - so they send me down to urgent care...I have seen all the docs that work down there but they won't step on each other's toes - you know what I mean?

    · Share on FacebookShare on Twitter
  • Teka
    Teka Member Posts: 10,052
    edited August 2012

    GmaFoley,

    Why do you need to see PCP?Undecided

    · Share on FacebookShare on Twitter
  • Binney4
    Binney4 Member Posts: 8,609
    edited August 2012
    Gma, good grief, yes--do stay in touch here!Surprised I'm so glad things are improving. Don't get frisky just yet, y'hear?! Gentle hugs,
    Binney
    · Share on FacebookShare on Twitter
  • Teka
    Teka Member Posts: 10,052
    edited August 2012

    GmaFoley,

    Reread your posts.   Don't at this time need to see PCP.   Correct?   On the mend!

    · Share on FacebookShare on Twitter
  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited August 2012

    Teka - that was when the bug bite swelled... I was trying to get into see him and they sent me down stairs to urgent care - And yes now I am on the mend. Without a antibiotic...

    Went out with someone today and was in the heat a little much but stayed in the shade.... Breast is swollen - I have been without compression because of the bug bite... forgot about that Surprised.. I'm ok though.. I see my LE therapist weds.

    Binney do you think I can do a breast binder now???

    · Share on FacebookShare on Twitter
  • Cindyl
    Cindyl Member Posts: 1,194
    edited August 2012

    So... I got booted out of LE therapy. Sigh.  We knew it was coming, we've reached the end of what insurance will pay for so my therapist is closing out my file and going on a two week vacation (the nerve) at the same time my pcp has referred me to a different PT for back pain (which I blame on the LE, but the PCP thinks is unrelated)  Anyway.  Next week I'll start PT for my back, and the LE therapist says she has talked to the new PT about what she does not want me doing, because it will aggravate the LE. grrrrrrrr

    · Share on FacebookShare on Twitter
  • Binney4
    Binney4 Member Posts: 8,609
    edited August 2012

    Gma, did the surgeon think the breast binder is okay now? If the redness is retreating you can think about compression again.

    Cindyl, grrrrrr is right! It's great, though, that the two therapists are communicating. If you have any questions, refer the new one to the LE one. Yikes!

    Be well!
    Binney

    · Share on FacebookShare on Twitter
  • FireKracker
    FireKracker Member Posts: 8,046
    edited August 2012

    Well I finally went to MY&Co and got the cami...OMG...i tried it on and it felt like heaven.35DD so i tried first the med.it did nothing sooo i said to this wonderful sista who was kind enuf to take me please get me a small.35DD a small was perfect...had a sale buy 1 get 1 1/2 off.the 2 came to 30 bucks.....Ill let you know how it works.Well the price was right after spending big bucks on all the wrong thing....and they come in all different colors,solids and prints...fells like a girdle but not a killing tight one...

    ILL KEEP YOU POSTED!!!!

    · Share on FacebookShare on Twitter
  • sandcastle
    sandcastle Member Posts: 587
    edited August 2012

    Gran......I do not remember if I told you....but I bought from QVC a spanx cami.....I think it was around $40.....light compression....very nice.....kind of like a sleeveless T with lace on the top.......Liz

    · Share on FacebookShare on Twitter
  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited August 2012

    Granny What are they called so I can look them up...

    Edit: GRRRRRRR - I lost my gauntlet!!! 

    · Share on FacebookShare on Twitter
  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited August 2012

    Just found out My vitamin D level is up to 63!!! It was 26 a year ago... Love those D drops the Chiropractor gave meLaughing

    · Share on FacebookShare on Twitter

Categories