GRRRRRRRRR I HATE LE..........

FireKracker

Binney----i did the ice and i swear to you i feel betta.really i do.its still swollen but not like it was and the pain is not as bad either.Do you still think i need to run to the dr?

nibbana

Anybody got an answer to this question?

Quick question.

The fist pumping trick doesn't seem to work for me in moving any fluid out of my hand. Am I the only one?

My glove makes a nice fuild collector. I take it off an look at my swollen hand.

Binney4

Grannydukes, the risk you run with this is huge, but you're the only one who can make the judgement call. Maybe it's not cellulitis at all, but the question is, just in case it is, would you rather deal with it now or in the middle of the night? While it's just swelling and pain, or when it's fever and rapidly-spreading redness? When it can be treated with oral antibiotics, or when you have to spend a few days in the hospital on an IV? It's really hard to take in the way LE has changed our infection risk. And we sure don't want to be accused of being wimps and alarmists. But with LE, any sign of possible infection is worthy of our prompt attention.

Your therapist suggested brief ice, and calling your doctor. AT LEAST call your doctor right away and talk to the after-hours person. Say words like "lymphedema" and "cellulitis" so they get the picture and then see what they suggest.

Binney, who is not a doctor!

proudtospin

Karol, your old bridge personal taxi is at your service so yell if you need a ride to docs  or your choice of ER!

listen to the non doc/binney!

FireKracker

I called the obgyn and she said it doesnt sound like cellulitis but that is not her field.She told me to call my BS.well i just left a message with her service and im waiting for my dr.to call me back.I read her your message.

every word of it.....

I DONT WANT TO GO TO THE HOSPITAL DURING THE NITE AND IF I CALL 911 THEY WILL TAKE ME TO THE CLOSEST HOSPITAL WHICH IS A SLAUTER HOUSE!!!

Ill keep you posted....and yes Binney is the closest to a dr i know!!!

im scared but my gut tells me it is not cellulitis....

Grannydukes knows nothing about all this crap.....my gut doesnt want it to be bad.

just praying that BS calls me back soon.

proudtospin

if you call me dear you will go to which ever hospital you want!

try not for the middle of the night, now is better

FireKracker

Chapter 2---my BS called me and she said as long as it is not red and i dont have any fever and the pain is less and less i should be safe tonite.she wants to see me tomorrow.Im all set with my transportation.they will pick me up at 7am.

If for some reason it gets worst i will call the person in charge of my transportation and somehow she will get me to my hospital not the local one......so yes im takin a chance for tonite but i iced it again and i really do feel so much betta.Even the swelling went down...I do have the craziest body in the world.I wanna donate it to science.boy would they have a ball with me.

Thanks once again Binney.....I appreciate it very much.gotta go to bed early.7am is not my fav.time.

Ill keep you posted..hugggggggggs K

Binney4

Grannydukes, sleep well! Thank you for checking it out so thoroughly--now we can all sleep well!

Big bedtime hug!
Binney

FireKracker

thank you Binney for all your concern.I just got a pm from a sista who lives near me offering me a ride anytime during the nite if i need it....

sistas helping sistas....

love all of you

grannydukes

duckyb1

Granny.........hope your ok............God help us all..........I don't know how much more of this I can handle......wasn't cancer enough......................I handled the cancer well..........the LE has got me so down, and its not like I'm not trying.............

djls

Ducky,

Thank you for posting how you're feeling......it is so good to know that I'm not the only one that thinks these things and feels these things.  I have found the le to be far more depressing than the cancer ever was.

djls

Binney4

Yes, Ducky, thank you for trusting us with your really rough times. You're important to us!

Hugs, prayers,
Binney

kira66715

Nibbana,

  Your post got overlooked:6 hours ago nibbana wrote:

Quick question.

The fist pumping trick doesn't seem to work for me in moving any fluid out of my hand. Am I the only one?

My glove makes a nice fuild collector. I take it off an look at my swollen hand.

Early on, my hand was much more stubborn than it is now: gloves just trapped fluid and fist pumping was only helpful for a while. I used a lot of gauze hand/finger wraps when I was at home to bring it down.

I would vote for "plan B": time to go back to your LE therapist and say "this isn't working"--maybe a new glove, maybe more wrapping, maybe seeing how you do without compression for a bit/or lighter compression--but this isn't okay, and a new approach is needed her, IMO.

Kira

nibbana

Thank you very much for the answer kira. 

I agree, I need to do something different, this isn't working. I may be stuck with wrapping  

Estel

Kira - when you wrap your fingers do you also wrap your arm? My swelling is primarily in my fingers.

dunesleeper

Granny K I will pray that you do not have an infection. I'm so glad you have an appt tomorrow.

Marple

(((((Ducky)))))

Granny, I hope things continue to improve for you.

Gentle hugs to all.

FireKracker

yeah its me again.went to the BS 8am.grrrrrrr.not my best time of the day but she was wonderful as usual...she did a full examination and said its the LE.no infection cause everything went back to semi-normal.no trunk swelling at all just the breast and it went down a lot.She wants me to do nothing for 3 days.no exercising,stretching,wear a old comfortable bra and see the PT tomorrow.

now im off to see the obgyn.

thanks binney and everyone else that held my hand during this nightmare...and the prayers.

It looks like im gonna live.....so far!!!!!

GmaFoley

Great to hear Granny!!! Thanks for going in and checking.. I know that makes me feel better.

Binney4

Granny, I love good news!

But it does sound like your social calendar for the next couple days is not a whole lot of fun! Hang in there!
Hugs,
Binney

GmaFoley

Need prayers and hugs today - I'm going back to my ONC today, after 6 months... He is going to give me the big talk on antiestrogen meds again - I tried all the AI's and had severe SE's - he took me off each one and told me I will see you in 6 months... mentioned tamoxifen but said just heal... that was before I found this was LE and another surgery... My husband doesn't want me to take them, but won't come with me to explain his reasoning... I really don't know what is going to happen today - no one is available to go with me ... I think whatever he says is best, I will tell him I will think about it and talk more with my DH about it...This sucks.

BeckySharp

Gma--I am on tamoxifen and it has not been so bad.  I have not been on any other.  When I read up about all of them I was so glad my onc prescribed it.  You might just want to try it.

 Granny--Happy things turned out okay. 

Estel

Granny - I too am relieved you're ok.

Estel

In light of what everybody else is going through this is nothing but it does bug me and it's my grrrrr for the day:



It's been way too long since I bought a pair of gloves and I'm still looking for a viable alternative to the sleeves with silicone dots....when I put it all in my cart from brightlife direct...it totals over $400. Ugh. Just makes me so angry! Grrrrrrrrrrr

GmaFoley

I was just getting ready for my ONC appt I looked down at my breast and I now know what orange peel skin is ...

sandcastle

GMA.....Remember this is your show and you run it.....you know your own body.....for myself I decided before I went to the onc not to do Chemo or Rads.....was up in the air about tomax.....but then after that appointment I did not have to do anything....EXCEPT....have a total hys...........I met a lady when I had my mamo 6 months ago and she did rads and NO tamox....she said her daughter who was a nurse was mad she would not take it and that was 15years ago.....one never knows....Liz

duckyb1

Well ladies, decided to wrap the arm today..........going back to square one on my own.................seems I did better that way...........will let everyone know how I do..............hugs

FireKracker

yeah my social calendar is full with the white coats.

tomorrow i get evaluated.should be interesting.

Dun--you found a quarter...keep lookin!!!!!

Gma-you know i only did surgery and rads...no meds.still here, this shit started at the end of 09.

Ducky---my heart hurts for you doin that damn wrapping all by yourself.Come on over ILL DO IT FOR YOU.

Square 1 is always best...hugggs everyone.K

Teka

No call back from Nurse.   So I called and left a recorded message "Why no call back?".    I am slow to anger!  

duckyb1

Thanks Gran..........your a good friend.........It is tough, I think I drop the damn bandages, and chase them across the room, more then I keep hold of them.

Just watching TV, and thinking to myself...................why do you put on that PBS station, when they have all the Doo Wop.......artists on............they sing all the 50's songs, and it takes me back to when my husband and I were dating, and we danced to all those great songs............we had themin the 50's didn't we..............one of my favorites was "Could This Be Magic", so of course I have depressed myself now......lol.......so guess its time to put on something gory.............................love ya Gran