Calling all TNs

Melissa86

I am sorry I haven't found this site sooner! I wonder if its the same accuracy to have drawn through blood or saliva?

Zenful

I am always reading, but seldom posting.  Sending my love, prayers and positive energy to those dealing with this again. 

Gramof2boys

Lucy, I so sorry you are dealing with this again. I read too but seldom post. Did they try AC with you? Hope your onc gets you on a good protocol. I did AC x 4 then 12 weeks of Taxol. I did fine throughout with little to no side effects. So far so good:-)

Keke713

hi everyone. I'm not sure exactly where to post this, but if anyone has been through a similar situation, id love some input. I was diagnosed with triple negative breast cancer in Jan of 2013. I underwent a bilateral mastectomy in March of the same year. I've had ultrasounds of my left breast (cancer was in the right) every six months since due to some scar tissue that they wanted to keep an eye on. Up until now, everything has looked fine. I went in last week for my ultrasound and they found a lump with irregular borders that they want to do surgery and biopsy. They are thinking its just scar tissue that took a different shape, but I'm TERRIFIED to go through this again. To add to the stress of this, I'm 14 weeks pregnant and the thought of going under general anesthesia scares me so much. Has anyone ever had a biopsy on something like this and it ended up being scar tissue? This is the report from my visit last week. Thank you.

Meadow

Keke, first, congrats on the baby! Of course you are concerned. Your thoughts are with the baby and that is natural. I know there are lots of ladies who post here who have been through the scar tissue scare. I think Allydp had some scar tissue biopsied that was negative? She will check in here and chime in I am sure, and others too. They will monitor your baby closely as you have your surgery and biopsy, and this should be a fast surgery, in and out. But I know you are afraid and I am so sorry you are going thru this. Please keep us posted and hugs to you

anotherNYCGirl

Hi Keke, - I, too, have had scar tissue that needed to be biopsied. It must be pretty common. Can you opt for local anesthesia if that gives you more peace of mind? A friend of mine had an appendectomy while pregnant and had local anesthesia without a problem!

Keep us updated!

Tobycc

Keke, so sorry to hear this, but so so glad you found us. I am prayerful it will be benign: I will gladly lift you up if you like.

You keep talking, singing to that sweet one growing in you---- Do you like your BS? What does your OB?GYN say?

Please keep us posted. When is biopsy? As Another NYC girl asked, is local a possibility?

Gentle hugs

Kath

Keke713

thank you everyone! I don't have a biopsy date scheduled yet. I should be getting the call tomorrow to set that up and my pre op appointment. I also have an appointment tomorrow with my ob. At this point I don't have a single datail as to whether they want to go with local or general anesthesia. I'll know more tomorrow though. If I can get away with just local, I'll def go with that. No matter what procedure they decide on, my only request is that the baby be monitored afterwards for a piece of mind. I'll keep all of you updates. Thanks again.

sylviaexmouthuk

Hello Keira,

I was glad to see that you followed my suggestion and posted on this thread, rather than hoping someone would see what you had posted on a newly created thread.

I am sure you will get lots of help and support here and I wish you all the very best.

Fond thoughts.

Sylvia

Allydp

Melissa - I didn't have the option to use saliva. I know this isn't what you want to hear, but I have heard that it can be a little less reliable. However, I've heard there is a higher likelihood of getting a false positive than false negative. If it were me, I would probably look into retesting with blood just to be 100% and have the peace of mind. You might have a hard time getting it covered since you've already done the saliva, but the lab Ambry Genetics has a program in place for those without coverage or denial. You shouldn't have to pay more than $100 in either of those situations. There's a group on Fb called the BRCA Sisterhood. I'm sure you could post this question there as well and get some great feedback!

Keke - many congrats to you on your baby! Just last month I found two lumps in my breast that originally had cancer. One was in my mastectomy scar and the other was deeper down and felt like it was in between my implant and sternum. They did ultrasound guided needle biopsies on both at first. One came back benign (scar tissue), the other inconclusive. My BS ended up surgically removing and biopsying the one that came back inconclusive and it too came back as scar tissue. So my heart goes out to you, especially being pregnant as well. My BS offered for me to do the surgical removal (excisional biopsy) in her office with a local. I chose sedation cause I'm a big wimp, but if I was pregnant I would have gone with the local as I'm sure it would have been painless. I have no feeling in my breasts post mastectomy anyway and didn't have ANY pain after the procedure whatsoever. Keep us posted. I'll be thinking of you and sending you prayers.

SA8PG

hello my sisters

Well my weekend with my children was short lived. I have developed another infection in my left Breast. This will be the 3rd time I am going in to have a wound cleaned out. I'm sad thinking about another surgery. This is 4 in 4 months. They do not know what it is. Nothing grows in the lab. I've been checked for mrsa and its negative. Would appreciate your prayers for Wednesday. Digging my roots down deeper and drinking from the one who provides Living Water.

Thank you all.

Blessings

G

Luvmydobies

SA8PG, I'm so sorry you're having such a rough time! I'll be praying for you for Wednesday. Please keep us posted! HUGS!!!

slv58

SA8PG, giving you all the positive thoughts I can for a great and final surgery. I'm so sorry you keep developing infections and know it must be draining- we are all here for you, so I hope feel the comfort and strength in our numbers. Hugs and love,

Shari

Trisha-Anne

Hello girls - I'm not triple negative (in fact the opposite), but wanted to give you all a heads up on some very promising research out of Australia. I'll be praying that it develops further and helps my TN sisters.

You can find the article in this link.
Trish

Tobycc

SA8--- sent you a private message: Trisha Anne, that is so sweet you took the time to share!

Blessings

Kath

Melissa86

Thanks for the info Ally I will be looking into that and bring it up with my surgeon, I have an appointment with her next Monday! So glad I found this group, I love reading all the uplifting and encouraging posts!

Meadow

We are so glad you are here with us Melissa

Thank you Trisha-Anne

SA8 I am saddened by your set back! Enough for you already.

Honeytagh

Hi Keira

You and your baby are in my thoughts and prayers. I hope to hear some good news from you. Be positive and take care.

SA8PG

I hope everything goes well with you soon.

bak94

Hi, just wanted to stop by and say hi! Haven't been here for a bit. Today 4 years ago I was diagnosed with stage 3c/4 (depending on the doc) and am currently NED. I will stop by when I have more time to catch up on all the posts.

Sending love to all of you,

Bak

eileenpg

bak94=Thanks for stopping by. Yeah you on your 4th year anniversary.

Teka

SA8PG,

Teka

Bak, 4 years NED is excellent news.

Good Morning!!

simplelife4real

Bak...good to hear from you. Congratulations on your cancerversary!

Allydp

SA8 - no, no no! I'm so sorry you're going through this again! Have they tested for staph and strep too? When my port removal got infected it turned out to be strep. I had no idea strep could infect anywhere else but the throat. I'm sure your doctors have covered everything, but thought I'd throw it out there. I'll be thinking of you and sending prayers for a smooth procedure, quick recovery and getting back on track soon.

Bak - such amazing news! Congratulations!

Melissa - no problem. Keep us posted on what your surgeon says and good luck at the appointment!

Meadow

Congrats Bak!

Cocker_Spaniel

Wishing all of you wonderful ladies a fun filled Easter with little or no side effects, no worries and no pain  and plenty of chocolate to go with it.   

Annie

Honeytagh

bak94

congratulations on your 4th years cancer free.

I wish you have many years cancerfree ahead. Thanks alot for posting.

SA8PG

Hi everyone,

Thank you all for the prayers & words of encouragement. I am home and resting. Praise report is that I didn't need the wound vac after all. When the Dr got in there he was able to close up the wound without it. That saved me from having home health come out m,w, & fri for a few weeks thank the Lord. Believing this is the end of this infection and it will never return again. I have a drain that should be out by next week. They cultured me again during surgery so will see if something grows this time. They are all scratching their heads. They think it may be an autoimmune response from having alloderm & expanders (both are gone but maybe the Alloderm that incorporated to my skin, the body is still rejecting?)

As soon as I hear back I will keep you posted

Hugs, prayers & love to all of you

Blessings

G

slv58

SA8PG, so glad your home and wishes for quick comfortable healing! I hope they get to the bottom of this!

Bak, congrats on 4 years! Thanks for sharing such encouraging news!

Wishing everyone a peaceful Easter/Passover week end!

ALHusband

A couple, having gone shopping in town the eve of Easter Sunday, are driving back home, at dusk, down a country road. Suddenly they feel and hear a THUMP. They realize that they must have hit something. They gingerly get out of the car and walk to the front. They find, to their utter distress, that they have hit a large bunny who had been carrying a basket of eggs and now the eggs were all over the place. It takes them a second and then it dawns on them … they have hit the Easter Bunny!

The bunny looks in bad shape. They think they might have killed him. They start having visions of the 'Grinch that Stole Christmas' except this is Easter. Suddenly the wife has an idea. She hurries to the back of the car and starts rummaging through her shopping. She finds a large aerosol can and comes back with it. She starts spraying the motionless bunny, lying on the road, eggs scattered all over the place, with her can.

Suddenly the bunny starts to twitch and move around. Its right arm begins to jerk. It wakes up. Looks around. The right arm now starts waving. The couple stand, agape, speechless. The bunny is looking at them, a slow smile spreading across his face. He is waving. He slowly gets up. The couple get nervous. This is the Easter Bunny, and they had nearly killed it. They scurry back to their seats, start the car and take off before the bunny starts asking them any questions.

They nervously glance back to see if the bunny is OK. He appears to be fine. He is waving like crazy. He doesn't stop waving. The husband says: "That was amazing. What did you do and why is he waving, non-stop?" She replies: "I don't know. Let me look".

She starts reading what it says on the aerosol can that she had used to revive the bunny. Finally she says, "Ah. This must be it! It says: Restores life to hair and gives it permanent wave".