Calling all TNs

BanR

dear lori..

god will give you a few more years and within that time i hope they find a better solution, this is the hottest area of research anyway .. some 80 to 90 clinical trials going on, it seems one vaccine is also on its way. Who knows we might hear better news soon

belleeast

Slowloris,I am so sorry you are dealing with this again. (((Hugs)))

In my thoughts and prayers,your chemo puts you Ned for lots and lots of years!!!

I pray the researchers/trials come up treatment options besides chemo for you and all the TNS who are going thru this nightmare!!! (((Hugs to all)))

slv58

Lori, thinking of you and sending lots of positive thoughts and prayers. This is so unfair, I hate this disease.

TifJ

Dang it Lori! So unfair. I am here with you as well.

Good to hear from you Kymn! So happy you are doing well!

Cocker- were you given any idea when your results will be in? I'm in your pocket!

Babs37

Lory48, Fighter and Slowloris, wishing you guys the best results with your treatments, NED!!! and low SE. Take good care. (((Hugs))) XX

InspiredbyDolce

Lori - A mountain of prayers are being sent your way. Big hug too.

LRM216

Lori:  Healing light and prayers going out to you.  I am so very sorry that you have to go through this again.  I hate this disease and its unfairness.

Cocker:  Hoping beyond hope that you receive good news.  Let it be anything but cancer related.

bak94

Certainly Slowloris, I am praying for good results. Thinking of you and feeling so sorry that you have to do this again, it is not an easy road. We are here for you and remember to put each of us in your pocket when you need us to hold your hand through a scan or while waiting for test results.

Fighter-I am sure you were devastated to find it was fc, I know I was pretty darn shocked when you told us. You were supposed to be past all this crap and moving on! I am so sorry you have to go through this again, but it sounds about as good as it can for a recurrence, or did you say it was a new primary? Just glad it was very local. This should be a sort time off track to get rid of it and you will be on your way again. Hope you are feeling ok, we are hear for you, rants and everything!

Yesterday I had an angry at cancer moment. Hubby dropped me off so he could go get gas while I ran to the bank. With my bad back nothing is easy and run is not in my vocabulary; I could barely walk back to the gas station, limping along and in severe pain almost in tears. Finally I saw hubby and got in the car. My first words to him were I hate cancer, look what it has done to me! I can't even walk across the parking lot! It has taken so much from me, my freedom, my work. my ability to keep a clean house! I was so mad at the moment. Hubby has had it too. Tired of doc appointments, he has been sick and he is being laid off in a few months.  I just don't want to be in pain 24/7. So I finally got in for my back cortisone shot. Hurt like H*LL! Now it feels great, no pain! But they told me the numbness will wear off on it will start hurting again and take 2-4 days for relief from the cortisone, so it sounds like another fun few days!

Another rant by me!!!!  Well, at least I am alive. I often wonder what after life is. Is it nothing? Is nothing better than all this pain and struggle? Is it joyous? I tend to think that it is nothing, and I do not want to go there, so I do my best to stay here, with the pain and all.

bak94

Oh yeah, Cocker! I used to have red spots and rashes pop up all the time, by the time I would call the doc they would disappear. They were never worried because by the time I got there they were gone. Hope it is just a simple rash;

Romi and bk photo is still on my phone. I will transfer it one of these days!

simplelife4real

Slowloris, I'm wishing you the best. 

Today is a big day for me.  It's my last chemo....I hope forever!   After this, I go onto surgery and radiation.

ALHusband

My bride has her exchange surgery on Friday. Anything she should be prepared for? How bad is this one? Pain? Incapacitated? Recovery time? Advice?

placid44

Exchange surgery easier, quicker, less painful.  I had no drains instead of 4 and was generally recovered in a week (had been with drains for 3 weeks with BMX) although I still had to wait 4 weeks to exercise.

TifJ

ALH- was not bad for me at all. I waited a week before driving and any lifting. Was sooo much easier than mx! Give her a hug for me!

bak94

Congrats Simplelife!!!!!! Hope it goes well! It is a big day for you, a great day! The rest of it will be a piece of cake after all that!

Unbelievable! Trying to get help for my pain from the shot wearing off. Hubby called the doc, no he won't prescribe anything, hubby says how his dentist had just prescribed pain meds for a procedure, so should I get something for my pain,  and doc said his dentist should be reported!!! Really? Keeping a patient comfortable is now a crime? I am so irritated. ANYBODY ELSE IN PAIN FROM PAST TREATMENT????? What do your docs do for you? I am feeling alone, like I am the only one facing this 3 years after my diagnoses. Everyone seems to think that I should be fine even though my mri showed severe spinal stenosis and arthritis. Is my future one that consists of me sitting on the sofa 24/7? But I guess that is better than the alternative, or is it?

Jianchi

I had my first taxol on Monday.  Neulasta shot on Tuesday.  I felt fine so we went out to eat.  I went to the restaurant restroom.  After bowl movement,  I was sweaty and short of breath.  I fell in the restroom and was taken to ER by ambulance.  Fractured my tailbone, lot of blood work, and was just released to home.  what a night!

JAN69

Jianchi,  Wow!  So very sorry for your fall and injury.  What an awful start to treatment!  And a broken tailbone?!  That alone must be miserable.  Take it easy, rest, rest, rest.  Hugs and warm wishes for speedy recovery.  Jan

Ka-cey

Cocker, I had a biopsy yesterday on the good boob for a tiny red mark with a small bump underneath, so you and I are in that wait and see mode.  The Dr. didn't seem too concerned, he should be a poker play because of his great game face, so  I'll just keep busy and hope for the best for all of us.

Fighter, stay strong and remember we are here for you any time of the day or night.

Jianchi,  How horrible for you, that must be so painful.  Take good care and get lots of rest.  

Inspired, I am so happy to see you back, I was telling my husband how much I missed you and when I got home, you were back.  Sometimes  I think the universe works in mysterious ways!

Best wishes to all newcomers and it is nice to see ladies that have been here since the beginning of this thread continuing to give ongoing support. 

Hugs to all.

Kim

TifJ

Goodness gracious Jianchi!! I'm so sorry that happened to you! I hope you heal quickly and the Taxol treats you nicely.

Jianchi

Jan, Kim and Tif: thank you very much!  I never expected this kind of thing will happen to me ... I felt much better than did AC.  My MO said that I must had a very low blood pressure after eating some food and the bowl movement.  The ER found my white count was very high (from Neulasta), and they were very alarmed.  I had a head CT as I bumped my head, tailbone X-ray and a chest X-ray...  Luckily my head was not bleeding (some witness said that I bumped my head three times), I don't remember that many times but at least twice...  Low blood pressure is so scary.  You ladies take care!

simplelife4real

Jianchi,  I'm glad you are okay.  What an unexpected thing to happen.  I had really low BP for a week after my first AC so that had to bump the fluids up a liter for all the rest of them and that did the trick.    The bowel movement may have produced the vasovagal response too.   I'm really sorry to hear about that happening.  It's hard enough going through chemo.

I had my last chemo on Tuesday.   Hooray!!!  It was AC, so I know I have at least a week of feeling like crap, before I start to feel better, but at least I'm done.

The next day, Wednesday, was filled with appointments.  I had a mammo, ultrasound, breast surgeon and plastic surgeon appointments.  I live a 2 hour's drive from where I get treatment, so we spent the night in Nashville Tuesday night for Wednesday's appointments.

The ultrasound showed that I still have a bit of cancer left.  It was 14 mm at the widest point down from 2.3 cm at the time of diagnosis.  I was initially really upset and crying because I was hoping I would be able get a pCR with chemo.  It's still possible.  The last AC infusion hasn't had time to do it's work yet.  With triple negative, chemo is our best hope.

My appointments with the surgeons went okay.  I'm getting a lumpectomy and lymph node dissection.  Wednesday was just a long day to be sitting in the waiting room after AC yesterday and finding out I still have some cancer left.  We finally got home around 7 pm.  I had to give myself my last neulasta shot after I got home.  After that, I just crawled in bed and was asleep in a matter of seconds.  

Having cancer has taught me a lot about learning how to accept and get over "bad" news.  I know the ultrasound results weren't exactly what I wanted to hear, but I refuse to waste a lot of time moping about this.  Life is too short.  I used to really dwell on the negative, but I just refuse to do that anymore.  It doesn't do me any good.  Now, I cry, get my tears out, let myself feel what I need to feel and try to move on.    I want to spend whatever time I have (long or short) enjoying life as much as possible!

adagio

simple life- great post - love your attitude! I agree with you about having to accept things and move on.  Will you also be getting taxol or just AC? What a long day for you with all those appointments - hope you are feeling less tired now. Take care of yourself.

tekwriter

Jianchi so sorry for your ruined time out. I know I already time my outings carefully and it sucks to mess them up. Hope the pain from the tailbone is not too bad.

Jianchi

simplelife4real and tekwriter:  thank you both for the good wishes.  I will be more careful now when going out.  My husband felt so bad that he took me out the second day of chemo.  Poor guy!

simplelife4real

Jianchi, I usually have some "steroid steam" left over from the pre-infusion meds on day 2 post chemo....It sounds like you did too when you went out to eat.  I could really plumment in a matter of minutes when the steam wore off.  It's just hard to judge those things.

Ka-cey, I hope your biopsy turns out to be nothing.   Waiting for results is HARD.

Adigio, we have pretty much the same diagnosis, but our treatment is in the reverse order.  I did Taxol first, then AC.  Next will be surgery (lumpectomy, ALND, implant replacements and port removal), and then rads.

Jianchi

simplelife4real: I don't know what it is but it was a really scary experience.  Chemo is really tough, and I can't wait to be over it.

tekwriter

Woo hoo 2nd chemo down.  on steroid high. lol

jenjenl

cross post but here it is: 

At my 3 month check in October I brought to my drs attention a swollen
lymph node or gland  under my jaw. You know when you get a cold and sore throat
those nodes on the side of your throat, it's there. Of course he says
it nothing and I gladly take that response, right? I also brought it up
at my December appointment he says he doesn't feel it.

I can
still feel that it is bigger on the right side. I don't have a cold or a
sore throat. I have surgery on Monday and am so conflicted about what
to do about this. I don't want to know but I know I can't bury my head
in the sand either.

slowloris

Simple... I'm sorry you did not get pCR.  Try to keep your spirits up. Many people go onto surgery or radiation and then never have a relapse. Praying this is what will be in your future. It's hard to remain optimistic when our expectations aren't met, but we should still try.

Jenjen... I too had a lymph node high on my neck under my jaw bone. It showed up on my PET scan and xray. I had an ultrasound guided biopsy on it, and it was negative for cancer but was "reactive". that means there was some inflammation  going on in it. My MO didn't think it was anything to begin with bc cancer tends to travel up the chain of nodes in your upper chest and neck. they don't skip, they go in succession.  The only reason I had the biopsy is bc in my situation, nothing was following "the rules". I even went to the dentist for a cleaning and had him check....again, no infection or abscess showed on xray or exam. So it's a mystery.. I hope this gives you some peace of mind. It could just be a cold brewing.

Well, tomorrow I start my new chemo and find out if I have progression. Wish me luck. I guess I'm in for a sleepless night.

Cocker_Spaniel

BAK I just don't understand why you can't get pain relief when you need it.  For the Doc to say the dentist needs reporting is bazaar.  Could you go to ED and get some relief. 

Ka-cey I'm just playing a waiting game as you are.  Mine was like yours with a small bump underneath.  My Doc said at the worst it could be a basal cell carcinoma which doesn't kill you. Hopefully will get the results on Monday when I have my stitches out or Tuesday at the latest.  Keeping my fingers crossed for you.

Jianchi so sorry you had the fall.  Fracturing your tail bone is so painful.  I sat down heavy once on mine and it was painful for ages. Couldn't sit down properly.

Simple  yes lets enjoy today and worry about tomorrow, tomorrow. 

Have a good day ladies and hopefully all our problems are kept to a minimum. Big hugs to you all.  

Jianchi

cocker, thank you for your sympathy.  I am dealing with the fractured tailbone fine.    I saw my genetic counselor today, and drew blood for the test.  Hopefully, I am not positive for the test.