Calling all TNs

jenjenl

Fighter are you there?  thinking of you!

Cocker_Spaniel

Inspired - a happy New Year to you too.  I hope your Christmas was filled with lots of things from Santa.  Great news on the 2 years. Good to see you back on here.   Yep I hope 2014 is kind to all of us.

slowloris

Hi all...

I took a little break from the computer over the holidays. I was so saddened to learn of Karen's passing. She always had an inspiring word for me.  She will be greatly missed.

Welcome to all the newbies. May your treatments be kind to you and your spirits remain high. We are all here to help with your journey.

Since my surgery Dec 2, I am getting along a bit better. I have some cording issues, so I'm working on my range of motion. I also have, for the first time, some lymphedema in my right hand and wrist. I'm hoping it goes away, and I know to get a sleeve, but this annoys the heck out of me. Do any of you have this problem.... It's like a constant ache.

Next week I'm scheduled for another PET scan, then onto chemo again the week after. Type will depend on whether there is spread or not. The tumor board will decide after the scan, but I think they may be leaning towards a platinum drug. Fingers crossed for good results.

I have to say, the transflap recon looks and feels wonderful. Other than stiffening of the skin on the radiated side, they look and feel so natural. It was a very hard recovery, but I'm pleased with the results. Let's hope this surgery did the trick!!

BanR

Thanks for sharing your thoughts ladies. Tomorrow Paclitaxel begins, 2 weekly.

LRM216: Even I was hospitalises after the first AC and after the third AC my blood counts dropped to 1400, inspite of me getting the neulasta shots 24 hours after ac. I was put in isolation and shots were given again back to back for 2 days and then the wbc started to recover somewhat. My fourth ac got postponed by one more week and dose reduced by 10 percent since my onco said that giving double dose shots again would put me in medical emergency. So you see my white blood cells are having a real tough time. I read that AC also puts your bone marrow at risk for acute myloid leukemia, i hope i dont fall in that category.

Zenful: i guess for the same reason even i am being put under 2 weekly taxol instead of weekly. lets see!

simplelife: even i hope after reading all the replies that taxol shouldnt be hard on the white and red blood cells. And so good that you have put up a snap of yours with makeup and wig. I have seen the one which you put up a few days ago without the make up and wig! you look lovely in both!!

adagio: good to hear that your counts didnt drop post taxol. I hope its the same for me too. I checked my neutrophils ..its within range, 57.9. paclitaxel begins tomorrow. 

i wish i can do taxol on schedule, as 2 weekly with correct dose.. and not like AC.

much love to all of you who post here!

Nuan

I'm not here often. Just stop by to say hello. I'm so sad to hear about Karen. She was a nice lady. She was the first one to welcome me here the first time I came in.  RIP Karen. I'll miss you.

For the newbies, sorry to see you here but this HOME is the best place for us not only during treatment but we could come here anytime we want to share thought, good or bad time. Hang in there. Chemo treatment is doable.I finished my treatment, almost 17 months pass. I took ativan during treatments for almost 3 months. Now I'm about back to normal. Sleep well again and ready to go BKK shut down.

Nuan

Stupidboob

Fighter sounds like it might be Cat Scratch Fever according to what I had one time............two doctors, two different opinions but not cancer.   I hope that is what you get too.......no cancer.

Bak94. I know it did not help me either............got my x-ray back and my degenerative disc disease is worse and even though I was diagnosed with advanced arthritis in my right hip, they now say there is nothing there.........HUH?  I will be talking to the radiologist as you just don't go from A-arthritis to NOTHING.........now I am even more worried.  I take Flexeril (muscle relaxer) and then I was just taking over the counter meds for pain but she wanted me to try tramadol with the flexeril.....we shall see.   My old oncologist told me that the chemo does not cause things, but it will speed an underlining process up..........:(   Pain sucks!!!   I hope you find some relief soon.

simplelife4real

I used to be a hairdresser (retired now).  We learned that normal hair grows about 1/2 inch per month.  It seems like it takes a while for hair to get growing again at a "normal" pace after chemo.  I've pretty much always worn my hair short, but even so...it appears it's going to be a while before my hair is anything more than peach fuzz.

Inspired....congratulations in making it to the two year mark NED.  That is awesome!

Slowloris...I'm sorry to hear about your lymphedema.    It's one of my biggest concerns in terms of long-term complications.  I've read good things about platinum therapies and triple neg.  I agree with you that it would seem to be a likely choice.  Hopefully, whatever they chose works like crazy on your recurrence.  I'm glad you like your reconstruction results.  That is great to hear.

ksmatthews

Last night I had to get up in the middle of the night and take some Aleve because I was having a throbbing pain under my left arm which is bc side.  Also I noticed before bed the right side of my neck by my ears was hurting.  Maybe lymphnodes fighting infection or maybe I over did it when I had to sweep water out of basement due to a broken water line?  Not sure?  After the aleve the pain went away and I seem fine now.  Anyone know what it could be?

BanR

are you done with surgery, ksmatthews?

i do have this pain on and off, but its close to the stitch line post lumpectomy. 

Worrywart9390

Happy New Year Debra, glad to hear of you anniversary.. and that all is well with you, we missed your positive thoughts and info to us.  xoxo

slv58

Debra, I second what everyone else has said! Happy Happy 2 year anniversary! 

Fighter, thinking of you and hoping everything is alright.

JAN69

Hi all,  If we are celebrating anniversaries, I'm thrilled to be healthy 3 years from diagnosis this week.  I'm getting a new MO next week; hope he agrees with NED.

Greetings to each of you:  oldies and newbies.

Miss Michele and Karen!  Such a great loss for their families and for us.  Why can't someone cure this disease!

Jan

slv58

Jan69 congrats! Yippee, gives us all something positive to embrace! 

Fighter_34

Ladies my test came back positive for cancer!  I am such a wreck!

slv58

Fighter, I'm so sorry-a big hug. I'm so pissed off that you have to go through this, it's so unfair-none of us should have to face this. We are here for you. Do your Dr.s have a plan in place? You did this once and although I know you don't want to, you CAN do this again. Dig deep inside and find the fighter. I'm sorry if I'm not writing the right things, just know I care (as well as a lot of women here) and am saying prayers-as well as swearing a bit. 

JAN69

Oh Fighter!  I'm so so sorry for your bad news!!!!!  Try to remember why you named yourself "fighter" and that this is something you know how to fight.  We will all hold your hand, and be in your heart while you go through treatments.  Hugs, love, and companionship from all of us.  Take time to grieve and be angry, then pull out all you strength.  Jan

jenjenl

Fuck Fighter....I'm sorry, I've been praying that it would be a cold.  You know this but we are here for you anytime of day.  I didn't see anything about your prior surgeries or treatments....we can be your sounding board.  We love you Fighter! xoxo

InspiredbyDolce

Fighter -- crap! Your news is the farthest thing I expected to read from you. You are a fighter and I have high expectations that you will set the bar high, get through treatment with flying colors and be able to put this recurrence behind you.  Is this considered a local regional recurrence, and when do you meet with your medical team to plan your treatment?  We are here for you, and thinking of you so much right now.  We love you Fighter!

xoxo

Babs37

Oh fighter... I'm so sorry for the bad news...(((BIG HUG)))

Nettie1964

tekwriter, what about your cancer made it stage IIIA?

 I'm curious because my tumor was larger than yours and I  was told I was stage II.

Cocker_Spaniel

Oh crap Fighter.  Was so sure it was the kitten.  What is the plan now, more chemo.  When will this stop.  All those frecken trials and still no cure.  Thinking of you and sending huge big hugs and holding your hand.  I know you can do this. xx

Jan 69 congrats on being 3 years out.  You go girl. xx

TifJ

Oh Fighter, No!! I am so, so sorry this is happening to you. I too was so sure it had to be something else. I hope it is considered a local or regional recurrence and they can get it under control. Will you be having any further testing? My heart is so heavy for you and I pray this is just a setback. Sending a huge hug to my diagnosis buddy.

Tiffany

DorMac

Fighter - so very, very sorry to hear your news! You know what this site is about - feel free to vent, swear, rage, whatever you need to do to get through this. We are all beside you with positive thoughts, prayers and {{HUGS}}.

Doreen

ALHusband

Fighter as a man, and someone who has never battled this first hand, I often feel like I have no right to speak, and maybe I don't. But, I want you to know that while I don't claim to know what it is to have this dread disease, my wife does. I DO, however, know what the fear associated with it is like.  I've been there right alongside my wife, and never been so scared before in all my life. And I DO know that fear, as unavoidable as it is, has never, ever helped any situation. Please know that you have INCREDIBLE support here and many, many people praying for you and pulling for you. Further, know that YOU CAN defeat this!

Fighter_34

They are thinking local, but I have more test set up for Friday Bone and Cat Scan. I had no warning ladies my tumor markers were normal 18.  TNBC is sneaky and comes w/o a warning.  Stay on top of things ladies!!!!!!

Fighter_34

I had a BMX with six cycles of TC.  ONC followed up with tumor markers and I had no issues until just now.  I am hopeful, because it doesn't seem real.

Cocker_Spaniel

Craig, Karen's husband posted this,  this morning ladies.  

Karen Estey

Sorry for the delay:
I am sorry to inform you that Karen passed away on 12/29/2013 at 2:00AM.
Your love, friendship and support meant the world to her. Remember her humor and let your heart smile.
Craig Colombo -
Husband

mags20487

fighter...no words except I am so sorry.  

Mags

MaryFox

Fighter, you're in my prayers.  This triple neg is truly a nasty beast.

LanaM

Fighter - sometimes there are just no words....... I hope you can tell from all of the postings that everyone on this board is here for you, and will be praying for you, sending hugs and supporting you in this battle. Those CANCER SUCKS buttons and t-shirts really do say it all. I wish we would find a cure so none of us would have to deal with this ever again.  You've fought the battle once, and we know you can do it again! Try to stay positive - I really believe it helps to fight this beast! Stay strong, fight like a girl - and kick some cancer A__'!