Calling all TNs

1…779780782784785…1198

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited January 2014

    I don't post often these days but read lots.

    Fighter:   Keep fighting honey - so sorry.   Sending you positive vibes.

    Hugs to you all xxxxxxxxxxxxxx

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  • KSteve
    KSteve Member Posts: 486
    edited January 2014

    Fighter - You are living the nightmare that we all fear.  I pray it is a local reoccurrence and your treatment plan kicks its ass!  Your in such a tough place right now, learning that its back but needing results of more tests before figuring out next steps. How tough it must be for you.  I wish we could all take some of the stress and anxiety of your shoulders, but instead we will just be with you every step of the way.  Please keep us posted. I'll be anxiously looking for your updates.  I hope you can feel our arms around you.

    Kathy

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  • belleeast
    belleeast Member Posts: 653
    edited January 2014

    Fighter,(((hugs))) KSteve,you said it perfectly,how we all feel and care!

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  • ksmatthews
    ksmatthews Member Posts: 812
    edited January 2014

    Fighter so sorry!

    And yes I am done with surgery, had a lumpectomy 2 1/2 years ago and nothing else since.

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  • 5andcounting
    5andcounting Member Posts: 232
    edited January 2014

    Fighter-I am sorry this happened to you. 

    I had local recurrence last April and did bmx and chemo. All clear now and feel great. You can get through it again. You already know its not fun but you can do it. 

    Once I got over the shock of recurrence, I was just plain old bored with having cancer. I did what I had to and tried to ignore it. After I cried for about a week first. 

    Locoregional recurrence has a 67 percent disease free survival at 5 years. The CALOR study says its "highly treatable"

    Stay strong and ask for Xanax if you need it. Facing this beast twice sure qualifies as PTSD to me. Hugs and prayers. 

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  • simplelife4real
    simplelife4real Member Posts: 563
    edited January 2014

    Fighter, we are all here for you.  I was so hoping it was just the cat.  I hope all your other tests come back negative.

    CRS319, thank you for sharing your own recurrance history.   It's important to know that it's possible to get past a recurrence and get own with life.

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  • tekwriter
    tekwriter Member Posts: 216
    edited January 2014

    Having mouse p roblems and don't know who I am responding to.  I am a stage II.  The other was a type.  Thank y ou for asking, because it pointed out the mistake.  I am a stage II because of the size of the tumor.

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  • Fighter_34
    Fighter_34 Member Posts: 834
    edited January 2014

    CRS319, you made my day!!!.  What I need is seeing people like you that made it to the other side safe.  Please keep in touch.

    I am here at work and I am going to press forward!!

     


     

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  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited January 2014

    CRS - thanks for posting the survival rates for local regional.  And in the event that this is considered a local recurrence, the survival rate goes up from there, right? And if this is a survival rate of with treatment only, and Fighter_34 continues her amazing complementary lifestyle afterwards, those stats could even be higher.  I also think KSteve posted so wonderfully.

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  • Worrywart9390
    Worrywart9390 Member Posts: 101
    edited January 2014


    fighter, so sorry for your news, but i wanted to add that i read somewhere, not sure where,  that when they tell us triple negatives we have a disease free survival say of 75% in five years for early stage...some doctors say its more skewed than other cancers because us triple negatives have more "noise".  The way I understood it was that we may have more recurrences, but then they are treated and the ultimate survival rates are greater than the statistics say.  We are all here for you and praying right along.

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  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited January 2014

    Fighter - I agree with Worrywart, and I have an article, discussing the "noise" in TNBC statistics, as Worrywart referenced.  This article is a conversation with Lisa Carey, MD (leader in TNBC research) and she discusses the noise in estimating the outcome of very small tumors and proposes that a better metric in decision-making is looking at a 10-year survival rate.  Here is the quote and a link to the article:

    "We don’t do as well in estimating the outcome of very small tumors (T1a, N0 triple-negative breast cancer). The decision-making models come up with a 19% risk of relapse at 5 years, but you cannot rely on this. The truth is, relapse in these models includes outcomes that from a prognostic standpoint are “noise,” such as in-breast and local recurrences, as well as new primaries and true relapse. Since these tumors relapse early, the better metric for decision-making in triple-negative breast cancer is the 10-year mortality risk, which is about 8%. It is a more useful number for you and your patient in decision-making."

    http://www.ascopost.com/issues/december-15-2012/current-perspectives-on-triple-negative-breast-cancers.aspx - A Conversation with Dr. Lisa Carey, MD

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  • 5andcounting
    5andcounting Member Posts: 232
    edited January 2014

    The CALOR study says 67 percent disease free at 5 years. My oncologist says three hours of exercise per week will reduce this by 1/3rd. So sweet sister, AFTER chemo, eat low fat and exercise. 

    During chemo, it's best to eat what you can. I had taxotere and carboplatin second time around. Made food taste bad.I ate what I could. Now I'm paleo diet, walking and low weights for exercise. I'm sick of worrying about dying. Going to live out loud for the next 2 or 50. So far, so good:)

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  • jenjenl
    jenjenl Member Posts: 948
    edited January 2014

    thats the one area I am sucking at - exercise.  After my upcoming DIEP i am changing my ways. 

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  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited April 2014

    It took me a while to hit my stride with exercise.  I had the bmx 1/2012 and chemo ended in 4/12 and then implants 5/12.  I didn't start exercising until June.  I started slowly with only 1 mile a day and kept a chart on the fridge.  I had read somewhere that 45 minutes a day reduces risk of developing bc 40% and 75 minutes a day approx / 8 hours a week reduces risk 60%.  Those stats may be related to before any bc develops - see link with info below.  I have read lots of information that exercise may help reduce recurrence, and a TNBC nutrition guide from a nutrition expert who specializes in TNBC diets had exercise info on her sheet.

    My challenge is the kitchen.  I make it through with good choices, but it's not as easy for me to stay on my goal there as the exercise.  I did have two servings of brussel sprouts for breakfast though.  :o)  Followed up with a piece of dark chocolate. <sigh>

    Here is a link to the reduction risk I mentioned, and the article is called: 

    Practical Principles of Some Lifestyle-Oriented Breast Cancer Risk Reduction  http://nosurrenderbreastcancerhelp.org/page93/page100/page100.html.  I found it on the No Surrender Breast Cancer Foundation Website.

    TNBC and Exercise

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  • LRM216
    LRM216 Member Posts: 2,115
    edited January 2014

    Fighter_34:

    I am so very sorry that it wasn't just "nothing."  Please know that you are in my thoughts and that I wish you peace as you put those boxing gloves back on.  Please know that you will not  "press forward" alone, we will all be right there with you.

    Hugs,

    Linda

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  • mags20487
    mags20487 Member Posts: 1,591
    edited January 2014

    thank you ladies for posting the encouraging statistics.  We are with you Fighter---fighting!

    Inspired...I have missed you here....try not to beat yourself too much over the piece of dark chocolate...it is practically health food LOL!  At least it is good for the soul.

    Maggie

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  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited January 2014

    Maggie, thank you - and I love it ... "practically health food".  HeHe :)

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  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited January 2014

    Just opened new food snack that I got at Trader Joe's.  It's called: Whole Grain Rye Mini Toasts. They are little square shapes, larger than wheat thins but smaller than a cracker.

    Nutrition info as follows:

    Serving size is 24 crisps.  Total Fat for 1 serving is 1.5 gram  / 1 gram of sugar / 4 grams of protein / 3 g fiber

    They are large enough where you could top it with something if you wanted.  I'm eating them plain while I drink my kale smoothie. I have not Fooducated it yet for the grade.  The party might be over with these once I do that.


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  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited January 2014

    Fooducate:  B+   I also think if they were crushed up it would make a great topping for the brussel sprouts. They have a very unique flavor, and they're crunchy.

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  • BanR
    BanR Member Posts: 289
    edited January 2014

    Fighter: We are with you. The silver lining is that it is a local recurrence and not a metastasis. I have a friend whose uncle got a lump right there on the neck below the ear ( around the area you mentioned your lump happened) Those days there was no chemo or radiation. He got it removed, doctors said it was cancer. Thats it. He was around 50 then and he lived till 92. please keep us updated. And did you get yourself tested for brca.

    Inspired: so good to see you back after long. Had dropped in a message for you long ago in your inbox.

    as for me, yesterday was my 5th chemo and my first paclitaxel. 3 more taxols to go and then 4dd Ac and 4 DD taxol will be over. 

    today i feel ok.. i guess from tomorrow side effects will start kicking in. as long as its not nausea again like Ac.

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  • Lookingforward66
    Lookingforward66 Member Posts: 147
    edited January 2014

    Fighter, you can kick this!  Get your attack mindset in place. Your facing what we all dread. Remember we are here for you - through thick & thin.  

    Inspired so glad your back. You give us good insight & great information. We missed you. I was doing yoga two days a week in the mornings. Have now added three additional days but evenings. Beginning to feel that I live in my yoga clothes. But good exercise & great for stress relief. 

    Just saw my dermatologist & her best doctor friend has TN. Survivor for 5+ years so far. They went on a doctors group vacation & my dermatologist found a lump while on vacation. Her doctor friend took her straight from plane to her doctor to get checked out. Thankfully negative, but she was told we ladies need to stay viligent on BC. My doctor & I had the same surgeon. We both agreed he is a GEM! 

    Hang tough ladies. We can beat the crap out of this!!

    Marsha

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  • candycandy
    candycandy Member Posts: 18
    edited January 2014

    Fighter! Big hugs and kisses!!! You can do it! I am 33 yrs old and I have possibility too! Have you changed diet after you diagnosed first place? When I studied myself about cancer and food, and I attended cancer seminar, I was referred to see naturopathy doctor who is also attending at my Cancer Clinic. I just met him a few days ago and did lots of questions, then he gave me my personal fit diet with each treatment. He also took my blood samples and check more detail through chemical level in my body and give me back with more specific result. I am highly recommended if you never done this before. This is recommended regardless of your diagnoses. My case, I have to cut all junk food and fast food first, and high carbohydrate items like white rice, bread, pasta, and potatoes. And Take more green and colorful vegetables and fruits.Nuts and seeds, plenty of water. I have to cut my coffee, tho. Then, be active like go for walk 15-20 min during my Chemo and gentle yoga is good. Also he recommended to get acupuncture and oncology massage that is provided at my Cancer Center. (it cost unless your insurance covered but they have grant program). 

    Those naturopathey 

    I just done with my ddAC chemo yesterday. I am doing great after the treatment. Not much side effect so far. Worried about this wkend when IV anti nausea run out from my body... But I have two other anti nausea be ready, so I hope those helps me! I just can't stand being nauseous. I am totally ok with losing hair! LOL! 

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  • candycandy
    candycandy Member Posts: 18
    edited January 2014

    Fighter! Big hugs and kisses!!! You can do it! I am 33 yrs old and I have possibility too! Have you changed diet after you diagnosed first place? When I studied myself about cancer and food, and I attended cancer seminar, I was referred to see naturopathy doctor who is also attending at my Cancer Clinic. I just met him a few days ago and did lots of questions, then he gave me my personal fit diet with each treatment. He also took my blood samples and check more detail through chemical level in my body and give me back with more specific result. I am highly recommended if you never done this before. This is recommended regardless of your diagnoses. My case, I have to cut all junk food and fast food first, and high carbohydrate items like white rice, bread, pasta, and potatoes. And Take more green and colorful vegetables and fruits.Nuts and seeds, plenty of water. I have to cut my coffee, tho. Then, be active like go for walk 15-20 min during my Chemo and gentle yoga is good. Also he recommended to get acupuncture and oncology massage that is provided at my Cancer Center. (it cost unless your insurance covered but they have grant program). 

    If anyone never went to the naturopathy, I recommend it at least to get consultation and see what you think about it. This is also able to prevent cancer or any other diseases too. Be healthy is simple but very important. I have to try hard because I love sweets and fast food (not everyday) and I have to cut of all of them. 

    I just done with my ddAC chemo yesterday. I am doing great after the treatment. Not much side effect so far. Worried about this wkend when IV anti nausea run out from my body... But I have two other anti nausea be ready, so I hope those helps me! I just can't stand being nauseous. I am totally ok with losing hair! LOL! 

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  • Fighter_34
    Fighter_34 Member Posts: 834
    edited January 2014

    SCREAMING!!!!!!!!!!!!!!!

    All scans came back clear PET and Bone!!!

    Spot is an isolated primary.  My fight is not over, but the out come looks clearer. Doctor feels like this something we can take care of.

    I will be gone for awhile to fight ladies, but please keep me in your thoughts.  I want to start chemo right away like this coming Thursday.

    I changed my diet, but I can admit that I need to do better. Thanks ladies. My gloves are on!

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  • slv58
    slv58 Member Posts: 1,216
    edited January 2014

    oh Fighter_34 GREAT NEWS-doing the "touchdown" happy dance! I will keep you in my thoughts and prayers. I'm sure you'll do great! Please let us know how your doing when you can, there are lots of us here behind you! Now go do something nice for yourself and have a much better weekend!

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  • LanaM
    LanaM Member Posts: 142
    edited January 2014

    Yes, big happy dance for you fighter!!  That's wonderful news. You've got this one! Lana

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  • Curlylocks
    Curlylocks Member Posts: 1,060
    edited January 2014

    Hi Ladies,

    Thought I would introduce myself.....I am 49 so to be 50 in May of this year.  I was diagnosed with breast cancer in 2005, large 4 cm tumour in left breast, 3 positive lymph nodes, er/pr+,her2-.

    I went through treatment in 2005/2006 with 6 months of chemo - 4 a/c and 4 taxol, 5.5 weeks of radiation, ovary suppression Zoladex for 1.5 years post radiation, started on Armidex for 5 years.  I had my ovaries removed in 2008 at age 44.

    by safesaver" in_rurl="http://i.txtsrving.info/click?v=Q0E6NTQzMjU6MzMxODpmYXN0OjQwZDUwYjA0NjNhY2UzYTRmOWE5OTIxYWI5MjhlNGQ4OnotMTQ5OS0yODc2MDk6Y29tbXVuaXR5LmJyZWFzdGNhbmNlci5vcmc6MTEwOTUxOmEwOWM1ODg3NjJkMzY0ZWY2MjdkMjY2YTdjY2FkNDU1OjNlYjI2YWRiOWZkYTRjMTNiZTAzZDhiZjdmYmNkZjFh" id="_GPLITA_25" href="#">Fastimage foward to 2010, younger sister was diagnosed with bc at age 42 and died in April 2012 of breast cancer.  My older sister was diagnosed in July 2013 at age 50...she is doing well.

    Due to my by safesaver" in_rurl="http://i.txtsrving.info/click?v=Q0E6NTQzMjU6MzMxODpoaWdoIHJpc2s6NTNiNTc2YzI1OGE5MzI2YTE3YTZhZWViMGJmZTdiYjc6ei0xNDk5LTI4NzYwOTpjb21tdW5pdHkuYnJlYXN0Y2FuY2VyLm9yZzoxMTA5NTE6YTA5YzU4ODc2MmQzNjRlZjYyN2QyNjZhN2NjYWQ0NTU6OTYyODAxYzg2MTJiNDY5MWI5MTkzNTk4ZjM3MzE2YjM" id="_GPLITA_24" href="#">high riskimage family history which not only includes myself, two sisters and an aunt....I had a prophyalatic masectomy with immediate reconstruction (DIEP) on Dec 16/13.  My pathlogy report relieved a new primary in my left breast again.  This time my receptors are Triple Negative.  It is invasive and thankfully 1 cm.  I truly believe the surgery I had saved my life.  I wouldnt have done my regular screening again until April and god knows what size the nasty little bugger would have been then.

    The surgical oncologist who did my surgery in another hospital than where I had treatment said that I would need chemo.

    I know that normally you cant use the same chemo regime again, I had a/c in 2005...definitely know the red devil is a "one shot deal".  I am waiting for the surgical oncologist to refer me back to my old oncologist who released me from his care to my regular GP after I hit 5 years to see when everything gets rolling again.

    I so hate the fact that the beast is back and THAT IS BEING KIND WITH WORDS, HATE THE FACT THAT I HAVE TO LOOSE MY HAIR AGAIN AND REALLY HATE THE THOUGHTS OF DOING CHEMO AGAIN!

    Michele

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  • Lookingforward66
    Lookingforward66 Member Posts: 147
    edited January 2014

    Fighter. So glad about additional tests clear. 

    Glad your lacing up again. You can do this. We are here for you. When ever you need to vent log on & let it out. You are one strong lady. Give it your best fight. 

    Marsha

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  • TifJ
    TifJ Member Posts: 1,568
    edited January 2014

    Fighter I am so happy to hear your scans are clear! I understand your wanting to focus on your treatment right now, but please check in once in a while and let us know how you are! Big hug to you!

    Hi Curlylocks. So sorry you are going through this again. We are here for you! With such an extensive family history are you BRCA positive?

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  • jenjenl
    jenjenl Member Posts: 948
    edited January 2014

    Fighter - I am soooo excited to hear this new.....jumping up and down :)

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