Calling all TNs

laurajane

I want to thank Karbarn,painting my way,phgraham and gillone for donating to the MBJ fund also.

Thanks again to all of you.



Laura

bak94

laurajane-send my best to mbj. I think it is great that you organized this for her!

Suze-have a great time!

Yes, all this must have a meaning. I do think we are here to learn something and then move on to better things.

I had a much better day, no more moping! I went for a walk and did alot of studying for my classes. No excuses, every day is a great day!

Titan

I have a funny..but not really funny story to tell you..remember I told you about the 25 year old that has stage 4 tn?  she is kinda of a friend of my family..in a round a bout way.....anyway..I was talking to my niece (she works with me)..and we were talking about her and she was saying that this girl had a very rare cancer that only 1 in 7 survive...I was like..really?  I have a co-worker that also had tn...she is 8 years out (!)...and I said..well...hmm..Linda and I are still here and we are tn's...My niece kinda looked at me very strangely..like she couldn't understand why Linda and I were still around...it was sad and freaky..but a little humorous in a way.

I told her that Linda and I were OLD and that we had had mammos and SBE's for years while even though this 25 year old had had breast pains since she was 18 that no one looked into her because "they" probably thought she was too young. and that mammos aren't that great for young girls and women with dense breasts...

Oh well I thought I would share that with you.

laurajane

Babs- I just loved your post.



Titan- thanks for sharing. So happy you're here! We love you.



Painiting- sounds like you had a good day too.



Have sweet dreams everyone. I'll look forward to talking with you tomorrow.

OBXK

I am having shoulder pain, so of course I spent the day researching bone mets. I don't have insurance, so It makes me really nervous. I think I am more worried about debt, than death. I see my BS on the 21st. I feel like I am robbing my boys. I've spent so many thousands of dollars. My eldest is a Jr. in HS. I don't know where I'll come up with college funds.

Just having a blue day, worrying about it all. Thanks for listening.

christina1961

OB, I'm sorry you are feeling down.  I understand worries about money. I had debt before I got breast cancer and it is certainly worse now.  No one expects this to happen to them and it on top of everything else that is awful about it, it is expensive. 

I just saw that you just had your MX in December - you could be having shoulder pain from the surgery and different way you are carrying yourself or you could even have it from chemo.  I haven't reallly been off chemo yet, but I have a lot of arthritis feeling pain all over that is from the chemo. I've read others postings about it and sometimes it takes a long time to go away if it ever does. I've also read others post that the pain from taxane drugs sometimes peaks some time after completion of treatment.

bak94

obxk-I know what you mean. I feel guilty as I have not been working and my hubby has been working very hard and he helps take care of me and the animals. We are broke because of MY cancer that he had nothing to do with yet he is taking the financial hit-still working hard with no extra money. I don't have kids, so I can only imagine that added stress, trying to figure out how to plan for their future. I do help out with the ssdi, but with all the extra cancer bills, no extra money! And we have cut way back on everything. Maybe the kids can work on getting scholarships? School is so expensive,I am in my 40's and taking small loans for school:( Oh well, I have always wanted to further my education.

Titan, is that true? 1 in 7? Maybe 1 in 7 survives 50 years! And the 6 0f 7 survive 30 years! Ok, my mind can't go there...never heard that before though.

bak94

oh, I think I have been stressing this week because of my rads set up tomorrow. Not worried about any part of it except for the scans and xray. They do have to do that don't they? Always scared they will find something...I have been having out of the blue crying spells and that is what happens when I know I have a scan.

OBXK

Christina - Thanks for the kind words. I had my bimx a year ago. I'm also having shortness of breath and fatigue. If I had insurance, I'd get a bone scan and chest CT. I only had them pre-surgery. When you don't have insurance, it can make you feel as you don't count. I didn't cry when I was told I had cancer again, I cried in the office of the business manager, trying to arrange payments. I had so hoped health care reform would help, but without a public option, I fear it will be too costly and I'll have to come up with the monthly fine. Pre-existing conditions have kept me from being able to get insurance.

I know tomorrow will dawn a brighter day.

OBXK

Bak - Oh, the guilt is awful isn't it! My husband is the greatest, and always tells me he just wants me better, but I know he worries too. Good luck with your scans tomorrow, wear some warm socks! It's cold in there. Holding your hand, hankie in the other.

Paintingmywaythru

OBXK.....crazy no insurance....any free care at your hospitals? MAssachusetts has mandatory health insurance and offers it cheaply....wish every state did that.

Bak...things will be better than you imagine when you go but it is terrifying and no one can take away your worry...hang in there....breathe and hold on...it is hell but you will do it.

Have a lovely day all you beautiful women.

laurajane

Thank you KSMathews, minxie, babe and kk Clark, Gillone,raider Dee, Lynn 18,Suze 35, mitymuffins, Swanny, Christina 19, sugar, tis thyme, Phgraham,painting my way, Karbarn,Mccrimmon,LRM, for help with MBJ's laptop. I hope I've thanked everyone over the last couple of days. If you haven't seen your name please let me know so I can put your name on the thank you card.

mitymuffin

OBXK, Have you checked into how much the pre-existing condition insurance coverage would be? https://www.pcip.gov/   

I know the details vary from state to state, and some states are more expensive than others, but check it out.

Titan

No Bak...not true...basically I was trying to explain when my niece heard that 1 of 7 survived TN and that my co-worker and I were still around that she just couldn't understand why we were STILL HERE...like I said..kinda funny, kinda not... I didn't tell her about how many of us are on this board and still hanging in there...

I did got to Wikipedia and print her out some info. on triple negative...

mccrimmon324

Titan, for the most part I really do need to keep my head in the sand to keep from completely freaking out.  It may not be the best thing to do but it it's helps to manage my anxiety which left unchecked is unhealthy too.  Just try to exercise, eat right and take my vitamins.  I'm just really hoping your niece was grossly misinformed. 

mccrimmon324

OBXK - I started a thread a while ago reguarding getting insurance if we move out of state.  I got so many replies and other people we're asking questions.  Why don't you read thru it and see if there is some info you can use.  Alot of people posted links to hippa, state run programs.  I'll try and post the link although I'm not sure how. 

mccrimmon324

I hope this works.

http://community.breastcancer.org/forum/113/topic/780391?page=3#idx_65 

laurajane

I would like to thank the following for donating money for MBJ:

Luah, Swanny, Titan,Huskerkkc, Minxie, Babs, Paintingmyway, Gillyone, Phgraham, Tisthyme, Sugar77, Mitymuffin, Lynn18, KSMathews, Karbarn, Lrm216, Christine1961, Suze35, Raiderdee, Mccrimmon, Tracie23 and Tifj.



I hope I haven't forgotten anyone. I will be purchasing her laptop today. I hope this will cheer her up. I know I am anxious to have her join us again. I've missed her.

LRM216

LJ:

Thank you so much for all you are doing to help MBJ, it is so appreciated by all of us, and I know it surely will be by MBJ too!  I too miss her posts and want so much for all of us to be able to stay in touch, especially during her treatments.

Hugs,

Linda

Sugar77

I echo what Linda says.  I was really feeling down when I heard about MBJ.  I miss her posts. Thanks for giving us an opportunity to keep in touch with her and her to us!

christina1961

Laurajane,

Thanks again for doing this for MBJ - I was thinking about this last night and not only will this be a way for her to connect with us for support but also such a valuable link to internet resources right now.  The internet has helped me so much in finding good treatment and getting second and third opinions. I don't know what I would have done without it.

Titan, that 1 in 7 is suspiciously close to the number of women who get triple negative - 14.3%. Wonder if that's how that got started.

TifJ

Yes, thank you Laurajane! I think MBJ needs us all right now.

karbarn

Laurajane, thank you so much for doing this. Although I don't post often, the support and encouragement that I've found through this group has been invaluable. I am sure that it will mean a lot to her to know how much we care, and to have the ability to stay connected during this difficult time. Best wishes to you and MBJ...and to all of my TN sisters!

Lovelyface

Ladies, I have missed reading everyone's posts over the weekend.  I was at a NACA Save the Dream event all weekend long.  NACA tries to help homeowners save their homes by holding events, where they have lenders present, so owners can talk to them directly, they play the middleman.  I was there from 8 am to 8 pm both days, but in the end, did not get any resolution to my home situation.  I can still afford my mortgage, however, it has lost over $100K value, therefore, it is under water.

I just pm'd LJ, please send me payment info so I can also add some money, sign MBJ's card and join in.  Sorry for the late response.  LJ, dear, I am so very happy to hear that Halavan is working, has reduced your symptoms. Suze - I can't wait to hear all about your dream vacation when you get back.  Hope the weather is beautiful every single day during your vacation.

Painting - Congrats on having your painting at the museum, I am sure it is making lots of people very happy.  Minxie - the place where you sit with your granmma sounds absolutely beautiful.

mccrimmon - if you have a link to the new vaccine, please send that to me. I want to feel hope for something, it is just so damn hopeless, this disease.

I am going to see my surgeon tomorrow and see what she says about the biopsy. I hate hate hate having the biopsy, don't like it, don't believe in it, feel it will be damaging to me. I would rather just take the whole crap out.

Everyone - have a great Monday, which is a very tough day for me. I had forgotten about my case this weekend, now I am back to worrying and nervousness about what I will be facing the next couple days.

Fighter_34

I just donated as well. Not on much during the weekends.

Praying for healing for us all. HUGS!

OBXK

Thanks for the support and advice. I'll do some more investigating. I called my BS office today, he works for a Catholic hospital. The office manager is going to see if I can pay, at a lower rate. I make my income, through rental properties, so while I don't have a big income, I have property assets, which keeps me from getting help.

I'm feeling better about it all today. I had a nice walk with the dog, and did a few chores. Which is great, since I awoke at one in the afternoon!

Thanks again for the support! Karen

Titan

Here for you OBX...thinking of you kiddo.

laurajane

Lovelyface- so sorry you are having to deal with all of this. I wish I could snap my fingers and have everything be ok.



Obxk- great that you got to sleep in. The little things like walking your dog can be so satisfying. I went on a walk today too with my daughter, grandson and Charlie my dog. It was nice. If my daughter hadn't of come over I probably would have spent the day on my recliner watching tv. I've developed some bad habits lately.mim so glad you are feeling better.



Thanks for the thanks but I feel great that we are doing this as a whole. I've left a couple of messages for MBJ but I haven't heard back yet. Maybe I'll hearnfrom her tomorrow. Sending positive vibes to all of you. Hope everyone had at least one thing happen today that put a smile on your face. Last year about this time there was a bunch of us that started writing about the best thing that happened in each of our days from as small as having a piping hot cup of latte to something bigger. It sure put a lot of things in prospective for me and it was fun to share also. Here goes the best thing that happened to me today was having my son, daughter and grandson over for dinner. I splurged on steaks, potatos and a nice bottle of wine. The extra good part was that the wine actually tasted good to me. Hallelulja! That's right! The wine tasted good! First time in a couple of months and I LOVE fine wine.

bak94

Had my rads simulation today, finally! About 5 pm tonight I get a phone call, of course I miss it and it is from my cancer center but is a general number, don't know which doc called me! I am having anxiety that they found something with the ct they did for rads! Why do I have so much anxiety? Had to take an ativan as I am freaking out. They didn't leave a message!

Sugar77

Obxk and Laurajane  - I think dogs are the best medicine.  Just walking my little buddy Brandie helps me relax. My little furry friend helped me immensely when i went through chemo...except when he would steal my wig...lol

Bak - I know it's easy to have your mind wonder about the phone call but try to think of other things it could be. Not too long ago, I saw our family doctor's office had called and since my DH had recently had a check up, I drilled him as to why they called to the point where I had him call the office the next day and they had no record of calling us. There was no message left on the answering machine either, it was call display that simply showed the office had called our number. I hope all goes well with your upcoming rads.

The best thing that happened to me today was teaching my daughter a few crochet stitches. I'm a real beginner and am in the midst of signing up for lessons but she wanted to learn the little bit I know. I cherish these moments!