Calling all TNs

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Comments

  • Titan
    Titan Member Posts: 2,956
    edited February 2012

    Well dang..MBJ...thinking of you...dang...I hate cancer

  • Titan
    Titan Member Posts: 2,956
    edited February 2012

    Mtnbiker..feel free to say what you want...Heidi swears all the time..it's ok to swear as long as you don't swear at anyone...saying FUCK YOU to cancer (there I said it)..is certainly allowed.

  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited February 2012

    Lovelyface.  Please try to relax, I know it's nearly impossible now but the added stress is not helping you.  Please just breathe in and out slowly.  You can do this. 

    I hope I don't sound too weird but I really wish we could all just get together for one really big group hug right about now.  I think we could all use it. 

    Thinking of us all  ((((TNS))))

    FUCK YOU CANCER!!!!!!!!! 

  • laurajane
    laurajane Member Posts: 321
    edited February 2012

    Messages forwarded to MBJ. I was wondering if anyone else would consider pitching in on a laptop for MBJ. I would be willing to throw in a buck ($100) anyone else. A PC couldn't cost much. I could find a ride and take it down to Kentucky for her. I just think it would be nice if she had a way to connect with all of us other than me just forwarding the text messages to her while she is going through all of this. I hope that no one is offended by this. I thought I'd just throw it out there. I don't really have the finances to just run out and buy one. But, please know that I don't mind forwarding the messages either. Hope you all have had a great night.

  • Titan
    Titan Member Posts: 2,956
    edited February 2012

    LJ...I could meet you in Cincy

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited February 2012

    LJ - count me in.  I heard of something called a Kindle Fire. It's not available in Canada but it sounded like a tablet of some sort. Maybe that could be an idea as these are very portable. I have no clue what a laptop or one of these tablet thingys cost.

  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited February 2012

    I could send a little something

  • annie3310
    annie3310 Member Posts: 111
    edited February 2012

    I just got a kindle fire. It's great for reading posts on this site, but I don't think you can type in a reply. It's mainly a reading and media consumption device. iPad would be ideal, but much more expensive. Maybe an old, refurbished one? Also, pc based net books are cheap.



    Annie

  • pcollins
    pcollins Member Posts: 26
    edited February 2012

    Hello All,  Thanks so much for this TNS posting.  I am unsure of what my next step is and so will approach my MO and ask.  I am one of the unusual ones, in that I am 72.  WAs diagnosed with DCIS and am Grade 3 high nuclear with 4.9CM.  Lumpectomy and nodes (surgery performed 11/28/11)  came back all clear - thanks be to God.  Am in the end of 16 days of Rad Th with one treatment left but we are having a blizzard here in Colorado so will have to postpone the last one.  This is a great way to do RT as the 16 days (chose not to have the boost as I have other diseases which will be hindered by the boost concentration) is clearly much better than 6 to 7 weeks.  My question is this:  Neither my BS nor my RAd Onc nor the Med Onc said anything about future treatment for Triple Negative.  I live near Denver and have very good access of great doctors.  Am I missing something?  Are they failing to offer treatment?  I am not worried, but want to make certain that I am doing all that I can to manage this disease.  YOu all are TERRIFIC support gals and I am really amazed by all the knowledge and information that is shared on this web site.  Thanks again to each and every one of you for baring your souls so that those of us who need input, will get it. 

  • christina1961
    christina1961 Member Posts: 736
    edited February 2012

    I could send a little something, too - notebooks aren't too much anymore.  Do you have paypal account, LJ? 

    Hello, pcollins!  I'm sorry you have to join us here, but it sounds like this was discovered early in the DCIS stage before it had become invasive?  I don't know much about DCIS -although my IDC was mixed in with DCIS -  you may find something on the DCIS threads on here, too. 

  • christina1961
    christina1961 Member Posts: 736
    edited February 2012

    McCrimmon, a virtual big group hug sounds great!  I'm so weary of the fear this stuff brings.

  • Lynn18
    Lynn18 Member Posts: 416
    edited February 2012

    Laurajane, I would like to help with a laptop for MBJ. The Kindle Fires are nice and so are the little netbooks. Great idea.


    Yes, a big group hug would be nice right now.



  • Lovelyface
    Lovelyface Member Posts: 674
    edited February 2012

    Laurajane, Suze and each and everyone of you - thanks so much for giving me your loving and positive thoughts,  I am doing the breathing exercise right now and yes, it is helping.  I have taken a lorazapam tonight, need it really badly.  Tomorrow is a really big day.

    Laurajane - please count me in, I can add at least $40 towards a laptop for MBJ, just let me know the paypal account or where to send maybe a money order.  She needs to be connected with us, as this is the time she needs the most help.

    pcollins - we Triple Negatives don't really have any other treatment after chemo and rads is finished.  They have anti-hormone therapies for hormone positive patients, but nothing for Triple Negatives.  Chemo is the best thing for us as it is systematic therapy, since our cancer is supposedly not triggered by hormones - I hope I said this correctly.

    Christina - my IDC was also mixed in with DCIS.

    Two beautiful poems written by my daughter in law when I first had the diagnosis in 2010.

    The Six Letter Word

    Could you stop visiting because here you are not welcome?

    And please shut the door on your way out.

    Never think twice of coming back again to invade my kingdom.

    Considering I have pushed you out of my life for good, you cannot ever be let in.

    Every time I think of you, I will laugh at your weakness.

    Remember, I own my body and you were just an uninvited guest.

    A Plan to Win

    You are nothing but a sneaky little cell.

    In less than four months, time will tell.

    I will Not let you conquer.

    I will Not let you strive.

    I will Not let you multiply.

    I certainly will Not let you divide.

    I fight to preserve my joy, and I fight to keep my pride.

    Oh, you sneaky cell, my prerogative is to fight the hardest fight.

  • Lovelyface
    Lovelyface Member Posts: 674
    edited February 2012

    Oh I forgot to add:

    FUCK YOU CANCER,GO TO HELL AND NEVER SHOW YOUR FACE AGAIN.  I HATE YOU SO MUCH.

  • tisthyme
    tisthyme Member Posts: 49
    edited February 2012

    I can contribute at least $50 towards something for MBJ (and copious amounts of love). Although I never directly communicated with her, I have read this entire thread and the information she shared has helped me out with so many things while preparing for and going through treatment. It is the very least I could do to show her my thanks and love.  Let us know how to send.

  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited February 2012

    LauraJane,

    I believe a laptop or pad of some sort would be the best bet.  If I'm not mistaken Best Buy and Staples are running pretty good deals right now on laptops.  My hubby is in the market for one, he's indecisive, cheap and researches the crap out of everything.  I have complete faith that those two he was looking at are the one of the best bargins right now and very decent PC's

    Lovelyface,

    Glad to hear your feeling a bit better.  Keep up your breathing and Xanax.  We're all here for you.   

  • TifJ
    TifJ Member Posts: 1,568
    edited February 2012

    Laurajane- My best friend has a couple laptops she is selling for $200. She offered one to me for my son for Christmas- we declined only because he is 9 and not responsible enough for one! Anyway, they are in perfect working order. She is selling them only because they won't read a particular music disc she uses for her DJ/Karaoke business.She would never sell me a piece of crap. I'm sure she would sell me one for MBJ. I believe they are HPs. Oh, her husband also upgraded the memory on it. Let me know what you think.

  • Fighter_34
    Fighter_34 Member Posts: 834
    edited February 2012

    This news really saddens me. Yes, I am willing to donate.

    Where do we go from here ladies. I am very scared and nervous.

  • TifJ
    TifJ Member Posts: 1,568
    edited February 2012

    I'm with you Fighter-scared.

  • RaiderDee
    RaiderDee Member Posts: 150
    edited February 2012

    I'm the ultimate lurker. I've been around here since May 2009, Just because I don't post much doesn't mean I don't care for all of my TN sisters,  Let me know where to send some money for a laptop for MBJ, 

  • Hope60
    Hope60 Member Posts: 223
    edited February 2012

    The news about MBJ saddens and scares me.  Count me in on the laptop. 

    Mccrimmon - a group hug sounds great right now.

  • Babs37
    Babs37 Member Posts: 455
    edited February 2012

    Hey LJ-Just saw your doctor on the Today Show.......

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited February 2012

    Sounds like we're moving closer to getting the laptop.  LJ - can we pay you via PayPal?  SInce I'm from Canada, that's probably the fastest and easiest solution but let us know.

  • Suze35
    Suze35 Member Posts: 1,045
    edited February 2012

    Count me in on some money - I can give $100, no problem. Just let me know the PayPal account!



    An entry level iPad is $500, but I know you can get nice non- Mac tablets for under 400. DH has one. If you need advice let me know, DH is in the business and very savvy.



    Cancer can take a flying leap off a fucking bridge. I don't really believe in the devil, but if it exists, it would be cancer. Some how, some way, I have to believe we are going through this for a reason, and will know the answers in our next life. We are forever joined together. I have to believe that.

  • Luah
    Luah Member Posts: 1,541
    edited February 2012
    Hey ladies, hope I didn't miss something, but do we know MBJ's lesion's aren't benign? I think benign liver lesions are not all that uncommon, although of course as BC patients we think the worst. I'm sure hoping that's all it is. I miss her posts too, and am happy to pitch in for a laptop - just sucks to be offline, especially with such scares.
  • ksmatthews
    ksmatthews Member Posts: 812
    edited February 2012

    I know you can get a laptop for under $300 at WalMart.  I can give a little too.  She really needs to be able to connect with all of us.

  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited February 2012

    Luah, I believe Laurajane said she would be doing chemo and rads in one of her latest posts. 

  • LRM216
    LRM216 Member Posts: 2,115
    edited February 2012

    LJ:  Yes, count me in.  Thre are tons of great deals out there - decent prices for good laptops.  Just tell me where to send my donation.  MBJ NEEDS to have access this forum, and we to her.  Ummm, one question though, with all you have on YOUR plate right now - perhaps some of us could do the purchasing and shipping, etc - you certainly don't need more on your hands than you already have right now.  Just say the word, dear sister, and we shall get it all done.

    Love,

    Linda

    and I ditto the Fuck Cancer too!

    And welcome pcollins - please excuse my french - it's kind of an "inside" sentiment between us - read a few posts up and you'll understand!  Wishing all the best to you - I too am one of the "oldies but goodies -"  Sorry you had occasion to jump on board, but glad you're here with us.

  • laurajane
    laurajane Member Posts: 321
    edited February 2012

    I just spoke with MBJ and she has been so happy to get all of your messages. I told her we were wanting to pitch in and get her a laptop but she said she thinks her husband is going to try and get her one. We will talk again Monday after she gets the results. She has lesions on her liver, shoulder and all down her spine. They are going to do a liver biopsy because it's the easiest to get to. She will also be getting a brain MRI. Again she will know more on Monday. She is still in the hospital in a lot of pain and anemic. Thanks to all of you.



  • Lovelyface
    Lovelyface Member Posts: 674
    edited February 2012

    Oh my dear beautiful MBJ.  I just love her from her messages, she is an extremely giving person as she always takes her time to find answers to everyone's problems.  I pray so hard that all her lesions are benign.  No wonder she had that frozen shoulder. Doctors say there are no symptoms of cancer, I say there are.  I had a sort of paralysis feeling in my body way before I had the lump, for which there was no diagnosis.  I don't get that anymore ever since diagnosis and treatment.

    I hate to put my good news here with MBJ's not so good news, but mine isn't 100% good yet either.  This morning's mammo and ultrasound revealed that there are no abnormalities in the enhanced area in quesion.  According to the mammo it is just normal breast tissues.  The Rad said he thinks that MRI's are very sensitive and show a lot of false positives and he is pretty sure the biopsy will reveal that it is nothing.  He still wants me to go for the biopsy since the first Rad has recommended.  I plan to see my surgeon next Tues and follow up with her.  I want her to do an excisional biopsy in two areas on the right side, rather than doing a core needle biopsy.  I want her to excise the stuff out.  I hope that she can give me clear margins from these bad cells (epithelial cells).  By the way, the technologist made a mistake, she thought she had to take images of this other scarred area, and took 4 slides of the wrong area.  Then she took another 2 slides of the correct area, a total of 6 mammo slides.  I am scared of so much radiation to one area.  They recommend 2 images of each breast, a total of 4 in one visit.  They did 6 of only one breast. I truly hope this itself doesn't show cancer in 6 months, like it did before.  Since I have those bad epithelial cells, I feel that a mammo or a biopsy needle can disturb the cells and cause them to grow into cancer.  I don't think my thinking is that far fetched.  It is logical thinking and I did tell the doc what I thought, however, could not complain at the technologist's mistake.  Damage was already done by the time I realized her mistake.

    The Rad acknoweldged that there is scientific evidence that young women in their 20's with BRCA positive tend to get harmed by mammograms, that their cells get mutated by it, but that is not the case with older women.  I think they need to come up with some regulation as to the exact number of images which can be taken.  Maybe, just maybe radiation is causing some damage to the cells.

    Anyway, I am a little happier right now.  I still have to go through biopsy and the waiting of the results.

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