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  • christina1961
    christina1961 Member Posts: 736
    edited October 2011

    This was posted over in the clinical trials section - very interesting:

    http://www.medicalnewstoday.com/releases/236704.php

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2011

    Gotta love them Marines...

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  • Titan
    Titan Member Posts: 2,956
    edited October 2011

    Does anyone have problems sleeping?  Last night I woke up several times thinking that I was dying and unable to breathe...I hate hate that...all I could think of was crap...I'm done...

    I dunno maybe it is anxiety..I see both the onc and the bs this week..plus I committed to having Thanksgiving at my house...already I'm freaking out about having enough silverware and whether my oven is big enough for a turkey and a ham...oh yeah..and dust...it seems to be everywhere.

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  • Titan
    Titan Member Posts: 2,956
    edited October 2011

    Rachelvk...very cool that you lived in Russia plus did reporting on Cherynobyl...who could turn that down?  There are risks everywhere...guess you can't worry about it now anyway...

    and about the Vit D..my onc is huge on that also...I have had several tests done and he is happy with my levels...I'm not..but he is...I think that there is at least something to do with it...since alot of bc patients have low levels...

    I still take 4000 IU's per day...I don't get as much natural sun since my parents sold their house w/pool and we didn't do a beach vacation this year...plus I live in Ohio and work inside...

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  • cc4npg
    cc4npg Member Posts: 764
    edited October 2011

    I sleep like crap now. I get real relaxed watching a movie and doze off, only to go to bed and have a horrible night.  Between bad dreams, killing off my kids and myself, hot flashes, and waking up wide awake (what's that all about anyway?!), I rarely get much sleep.  Maybe it has something to do with Ohio.. lol   Maybe it is anxiety, not that we have anything to be anxious about.  :o)

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  • Titan
    Titan Member Posts: 2,956
    edited October 2011

    Ok..let's just blame it on Ohio..lol....

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  • TifJ
    TifJ Member Posts: 1,568
    edited October 2011

    It's a Missouri thing too!

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  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited October 2011

    It's a florida thing too!  I sleep horribly, even if I take my prescribed sleeping pills. 

    Titan, I bet with your upcoming dr appointments and Thanksgiving at your house your anxiety really high.  Does your doctor give you anything for it?  I suffer terribly from anxiety, I have a script for xanax, which I take rarely but it does seem to calm me down. 

    Good luck on your appointments this week and your Thanksgiving planning.

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  • TifJ
    TifJ Member Posts: 1,568
    edited October 2011

    I have successfully weaned myself off Ativan, but don't sleep as well as I used to. What is good for just needing something 2 or 3 times a week?

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  • MBJ
    MBJ Member Posts: 4,352
    edited October 2011

    OMG:  Just spent the last hour reading through and now I am more exhausted then I was just arriving in Kentucky, lol!

    Heidi:  Love the costumes, thanks for the laughs.  Keep 'em coming!

    Sugar:  My Vit D levels didn't go up until I started not only taking them with food but with magnesium and Vit K which help it absorb.  Took me from low 30's to high 60's-haven't checked since, but this happened in less then a month so I know that it works.

    Suze:  Great to hear you are doing so well.

    Kymn:  Hang in there-you are beautiful and deserve only the best that life has to offer.

    Laurajane:  Can you here me cheering you on as the cancer disappears from your body????  WAHOOOOOO!!!!!!  I am completely in pain, exhausted, sleeping on an air mattress and waiting for furniture.  As soon as I start feeling like myself again we will plan a meet up!!!  Right now my but is kicked! 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2011

    We're--- where I teach--- (almost) famous!

    http://youtu.be/0-cKUuBpR7c

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  • Titan
    Titan Member Posts: 2,956
    edited November 2011

    Welcome back MBJ...I hope you guys are very happy in Kentucky...ok..when are we all going to get together...Angelisa is in Ohio ..Cincinnati is about a 4 hour drive for me.

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  • MonikaV
    MonikaV Member Posts: 201
    edited November 2011
    Hi girl, it's been so long since I post here. Hope everyone is doing well. I went back to work and school and sometimes it feels as if  there are not enough hours in a day to accomplish all I want. Having trouble managing my time after being home for so long..... I have a question: Did you experience being forgetful more often after your chemo? Boy , i am struggling with that. Anyhow, I went in for my 4 months check up and she said that I am still on remission. I am so happy! My implants look good and my open heart scar is barely visible. I am feeling blessed. So , I Smilewant to wish you all a good night. XOXO, Monika
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  • MonikaV
    MonikaV Member Posts: 201
    edited November 2011

    MBJ: Did you move to Kentucky?

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  • Suze35
    Suze35 Member Posts: 1,045
    edited November 2011

    Happy Halloween everyone! We lost power in the storm Saturday night, but thankfully got it back around noon today. Our house stays nice and warm with our fireplace as it has really thick walls, so the only annoyance was no hot shower. Oh, and cranky kids! But when it is dark at 6:00, I can send them to bed lol.



    MBJ - glad to hear from you! Now comes the fun part, unpacking! We are still opening boxes 3 years later, hah.



    Monika - so glad to hear of your good doctor visit! Wishing you a lifetime of remission :).



    Lovelyface - focus on foods that are high in Omega 3s, such as flax, walnuts, fish, etc. Cheerios, oatmeal, whole grains, all are good for you. Also, my DH takes fish oils tablets and Niacin. That with losing 10 pounds dropped his cholesterol about 20 points. But, he walks a LOT (works in Manhatten), and he was only borderline high.



    ~~~~



    Spoke with my doctor's PA today and she is going to set up a scan. She was worried about me getting kicked off the study before it had a chance to work if I showed progression, but once she realized I was in the chemo-only arm and could switch, it was no problem. I like that she is looking out for me. I'll keep you all posted!



    Have a great night! I'm gorging on chocolate, arghkjkllkhf (best Homer Simpson drool)..

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  • cc4npg
    cc4npg Member Posts: 764
    edited November 2011

    Cinci is about an hr from me... but that area can be extremely bad in places..worse than LA believe it or not. Perhaps just north of cinci would be better. I would love to meet some of you guys!!

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  • lynniea
    lynniea Member Posts: 611
    edited November 2011

    I am all done with TX It is now the waiting game which is the worst.  I ask you all to pray I need a winter job. 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2011
    http://accidentalamazon.com/blog/2011/11/01/surviving-pinktober/
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  • Luah
    Luah Member Posts: 1,541
    edited November 2011

    MBJ: Congrats on the move... how does it feel to be in a new place?

    Suze: Good to hear you made it through the storm. You gotta love a warm fire.

    Monika: Congrats on being back to school and work. That's quite a load, and I'm sure it's an adjustment to make - go easy on yourself. Oh and yes, I'm 1 1/2 years out from chemo, and I still have memory loss... sometimes I feel that what I want to say or remember is just slightly beyond my reach, weird feeling. I've adjusted by setting reminders for myself, but still it can be frustrating for me... and DH, lol.

    lynniea: Congrats on being done treatment - you made it to the other side! Of course as all us TNs know, it's a bit of a double-edged sword as we don't have pills to take. Hope you get that winter job, it will be a nice new beginning.

    I'm heading to the doc tomorrow to check out a persistent backache... and so it goes.... sigh.....

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  • lynniea
    lynniea Member Posts: 611
    edited November 2011

    Thanks all it sure is all we have is procedure and wait and see

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  • bak94
    bak94 Member Posts: 1,846
    edited November 2011

    Really, can I be this tired from my last chemo? I am 5 days out from my last abraxane and I am exhausted! I am now having aches and pains that I did not have before, my fingers and toes are more numb than ever before and I could barely make it through my shower. I am suppose to go in for just one client tonight, I must make it, it is only just over an hour of work. Was anybody else extremely pooped after their last chemo? When do I start to feel better? I know I would start to feel ok just before my next treatment so maybe by friday I will feel ok. Sorry for whining.

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  • Titan
    Titan Member Posts: 2,956
    edited November 2011

    Bak...I'm sure you will start feeling better soon...you are just like everyone else you want to feel like your old self NOW...give it some time girl...and whine all you want...

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  • laurajane
    laurajane Member Posts: 321
    edited November 2011

    Good evening all of you wonderful ladies,

    I haven't even begun to catch up but I did want all of you to know that I am feeling fabulous! I finished my 2nd round of Halavan today. I saw my onc and she had tears in her eyes and thinks my miraculous recovery is a miracle. She could not find any evidence of disease from her exam and actually ran my counts today two weeks early I get the results tomorrow but feel in my heart this cancer is gone. She told me to thank my healer for the miracles he has preformed. She said she has never seen anything like this before. For the newbies, I have done every chemo out there and this was the last one. My platelet and WBC counts that were so low last week when I did day one, she anticipated giving me nueprogen shots this week my WBC was3.0 today. As good as someone not doing chemo. I will see my healer again on Saturday. I also started the whole foods diet I should add. I feel great! I want to thank everyone for their prayers and positive thoughts. I am a new person. I think the reason I had this reoccurrence was because I didn't learn the lesson I was supposed to learn the first go around. Loving life, living life and appreciating life. Truly enjoying today. Loving all of you and sending smiles and happiness your way.

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  • belleeast
    belleeast Member Posts: 653
    edited November 2011

    laurajane, i am so happy for you,truly amazing. you are an inspiration!

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  • michelleo13
    michelleo13 Member Posts: 342
    edited November 2011

    Laurajane, your post brought tears to my eyes. I am so happy to hear this!!!!!!

    I had my 3rd Taxol tx today and, despite the extra pre-meds, I reacted again to Taxol. I knew what to expect this time so I called the nurse over as soon as the chest pains and shortness of breath started. They gave me even more meds (I won't be sleeping tonight) and were able to get the Taxol in. I only have 1 more tx and just want to get it done!

    Monika, congrats on being back to school and work. I'm currently debating what to do about going back to work. My short-term disability benefits run out on December 28 when I expect I'll be about half way through my 6 weeks of rads. Not sure if I should just apply for long-term or suggest that I go back to work part-time during rads. Other than a couple of crappy days with each cycle, I've been feeing good throughout chemo so I think I could be working. My job is not physically demanding but it is very mentally demanding....lots of deadlines, quick decisions, etc.

    Suze, a major snowstorm in October!  That's just crazy!  I can't remember that even happening to us in Canada ever!

    MBJ, glad you made it to Kentucky. Hope this is a good move for you!

    Lynniea, congrats on finishing tx.

    Sleep.....oh I long for a good night sleep. I know it won't be happening tonight with all the steroids they pumped into me today! Got about 5 hours last night which is really good for me. Haven't slept more than that since before my surgery. I've been resisting taking any meds to help me sleep.

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  • Paintingmywaythru
    Paintingmywaythru Member Posts: 317
    edited November 2011

    Hi All....have been waning from rads and working full time plus I have a burning breast so I haven't been posting much.

    I hope all are well and I have those same nighttime worries....wake up with some terrible thoughts...lots of anxiety I guess and it takes awhile to call myself down.

    MBJ...glad you are moved..our house has been on the market 19 days and I pray it sells  in the next few months.

    lynniea...here are prayers that a job comes your way...

    Suze....hope the scan goes well. You are an amazing advocate.

    MonikaV ...what great news to share with us.

    So sleep...what is with that!!!!

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  • riley702
    riley702 Member Posts: 1,600
    edited November 2011

    laurajane, if you don't mind answering, how did you find your healer? What does a healer do? Is it advice on diet and supplements? Meditation? All of the above?

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  • Sugar77
    Sugar77 Member Posts: 2,138
    edited November 2011

    LauraJane - wow...I'm so happy.  The best thing to happen to me today is reading your wonderful news.

    Michelleo - I did go on LTD for a few months.  My six months of STD ended about four weeks after rads and I had thought I'd be ready to go back part time.  My doctor wanted me to stay off for a few more months since I was already disengaged from work.  She didn't recommend part time.  Her thinking was I was either in or I was out and she wanted the latter.  I found rads very tiring and am so glad I took the bit of time on LTD.  I went back to work on a gradual return over a six-week period. Good luck!

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  • Lizardbeth68
    Lizardbeth68 Member Posts: 29
    edited November 2011

    I'm on my second of four (every three weeks) taxol. (Already finished A/C.)  Anyone else getting taxol like this?

    Angelisa, I'm sleeping horribly too, just as you described. I have been taking a Lunesta AND a Xanex and still toss and turn all night. What's up with that? : (

     I've just started getting mild hot flashes.  Feels hot on top and cool behind the neck.

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  • gillyone
    gillyone Member Posts: 1,727
    edited November 2011

    LauraJane - incredible news. So glad you are feeling well.

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