Calling all TNs

lwarstler

Wow Bak, you have to be really tired to do that. Is there a way you can take a day or two off to rest in case you are coming down with something? I can't tell by your post if you are thinking you just don't care because you are tired and frustrated or if you are coming to a reallization that you are ok with the idea of not having breasts. However, I think your last statemtne about not needing to think about it right now since you have to wait a year is a good way to look at it if it is the former. No matter what, it sounds like you need to take care of yourself

((((BIG Hugs)))),

Teka

MissMollyB,

My surgical pathology report listed the 6 tumor margins in cm.  (0.3 cm  =  3 mm)

bak94

lwarstler=I was extremely tired today, I would normally never lay on a floor at work.I was also trying to get away from people, just frustrated. I am getting over a cold I have had for about a month. I just don't know how much longer I can work.

lwarstler

Hi Bak, I could hear how tired you were...especially after you talked about sleeping on the floor. I think it is amazing when I hear anyone works while going through all of this as my SE's have been rough after just one treatments. I can't imagine how hard it would be after severaland a cold you can't shake because of the treatments that are the only option for making you well. Didn't you say once that you were waiting on SSD? (So many posts, I could be wrong.) Is there any way you could cut back on your hours? You have been amazing, with a great attitude for as long as I have been on here. You are certainly justified in being worn out and frustrated! You will get through this and we will be here and there, in your pocket as you go to work each day. Know that you are being sent strong cyber hugs and healing, warm thoughts throughout the day today.

Hugs,

Lee Ann 

Luah

Bak, yes, agree with the others... a bit of time off and self-pampering would probably do a world of good.... if you can manage it. As for the reconstruction decision, I had a Lx so haven't had to face that choice. But I do know how relieved I was once my 2 surgeries were done, and how my prevailing concern was and still is physical health. Take some time, you'll know in your heart what's right.

missmollyb: Good to hear you have a plan in place. I did 5 boosts too and, fingers crossed, so far so good.

Best thing that happened to me today... a very early morning drive to the airport to meet my son, 19, home for the weekend (Canadian Thanksgiving). My older son has the weekend off from work and we will be spending it together up north with my husband's family. I am now 2 years out... and truly thankful for my health and the wonderful men in my life!  

bak94

Thank you Le Ann. Yes I am waiting to hear from ssdi. Should have an answer by the end of October, at least that is what they said when I called. I am just so worn out. I only work a couple of days a week, have chemo weekly and have other appoinments in between. We aslo have many animals and when my husband is at work I take care of them, but that is something I enjoy most of the time. Hubby does the heavy duty cleaning thank goodness! This cold has really gotten me down, just talked to the nurse and she thinks some of it is allergies to the chemo and just general allergies, which I ussually do suffer from.

Thanks Luah, I have time to decide and I think I will come to a decsion that I am comfortable with.

I asked my mo what I was going to do after surgery and radiation, if I was doing more chemo and he said he was going to keep me on avastin for a full year, which I started in August, so I will be on it except for time off for surgery until next August! I don't know how I feel about this, maybe good, as I will continue to be on something. Anybody else on avastin for a full year?

Teka

bak94,

I was on Avastin from April 2010 until end of March 2011 as part of Clinical Trial E5103.   I had low blood pressure before Avastin and in January 2011 was put on medication for high blood pressure.   Sound familiar?   I also had several EKG's, Echocardiogram's, and Laboratory Tests to check for abnormal levels of protein in the urine ( which may indicate kidney damage). 

MBJ

Laurajane: I posted this huge, long and convoluted reply to your latest post and then my computer lost it.  Know this:  We are all hoping you come through the other side with this latest treatment.  Of all of the people I know I somehow want only the best for you and your beautiful family.  If you daughter needs any help with that new home, you know my number.  Sending you much light and love in hopes that you can kick the beast to the curb. Hugs!!!!

ksmatthews

LJ all I can say is I admire you for your strength and you are an amazing woman.  Big hugs to you and lots of prayers going up for you!

You are an inspiration to me!

bak94

Wow, teka, you were on it a long time! Yep, all sounds familiar, propponal is contoling my blood pressure and fast heart rate. I am having a full cardiac workup before my bmx. I always have an UA before each avastin. How are your kidneys now? Do you still have high protein levels? How often did you do avastin? I am doinf every 3 weeks and that is probably what I will continue with.

LJ-I am thinking of you also, I think we all are. Please let that chemo be kicking some fc a$$. You are a wonderful person, your family sounds like they are a direct reflection of you.

Suze-How are you feeling? Has your pain subsided? When do you know which arm of the trial you are in?

BernieEllen

Hi everyone, i'm moving from this forum. Have been posting on the triple negative in england by sylvieexmouth.  I just find it difficult to keep up with everything.

Thanks to all, you have been the greatest with support and i wish all of you the very very best.

Lots of love, Bernie 

laurajane

Good morning all of you wonderful ladies. Thank you for all of the wonderful well wishes and right back atcha'!



My onc said she thought avastin worked better along with something. Interesting.



I have such admiration for those working during chemotherapy. Im like a baby when it comes to my naps. I just love them.



I went out to dinner with my daughter last night and it was so much fun getting dressed up together and going out. It was so enjoyable having that One on one time with her. We talked for almost 4 hours straight without any interruptions. It's the first time we've done that since my grandson was born and he turned two in august. He had a great time having alone time with his papa.



I hope all of you have a wonderful weekend.

Teka

BernieEllen,

I hope you're SE free for the Holidays.   Good-Bye!

Teka

laurajane,

We're having lovely fall weather in the North Country!

Teka

bak94,

I was also on 3 week schedule, and had no heart or kidney side effects.   However, I continue to take (HCTZ and Lisinopril) for high blood pressure.

MBJ

Laurajane:  Sounds like a lovely evening-what a great way to spend your time!  Hugs!!!

BernieEllen:  Please chacke back in from time to time to let us know how you are doing.

FYI:  If I seem a bit rushed or short lately I am in the midst of a big move and it is taking all of my time and energy.  Wishing everyone well.  It's so gorgeous out after a couple days of rain here. 

Best thing that happened to me today:  My shoulder finally gave in and went back into place and it isn't hurting so deeply as it has been.  Must have slept right or something.  Hugs to al!!

belleeast

laurajane, daughters are pretty special,i have 4 and 2 sons. i enjoy the girl time with them. hope you have a wonderful weekend,too.

Teka

MBJ

Yes, but the hassle of moving ends with less clutter in new home.

MBJ

Teka:  Gosh, I sure hope so!

Anonymous

Best thing that happened to me today?

I'm cracking up...seriously. I've been seeing a chiro for my neck of late, and I'm actually starting to think it may be getting a bit looser. Time will tell. Last night in bed I turned my head and heard a big "POP" and then felt instantly better.

So, proof positive that I am a crack-up, I guess.

bak94

Heidi-You are a crack-up! Ha ha. Glad you fixed yourself.

LJ-you could just nap on a bathroom floor at work like I did:) It actually helped me, it's a big bathroom and I cleaned it before my nap! Working is hard on chemo, and don't you do landscaping design? Physical work is near impossible on chemo, I get out of breath getting ready for work, thank goodness i get a break in my car commuting!

bak94

Oh, I got shot down at work again the other day. I asked for help (just wanted her to shampoo a client for me) , was denied so she could go paint her nails. WTF? This is someone I helped train, took time out of my days to work with her, helped her formulate colors and so forth. Could you imagine telling someone  "no" and then go paint your nails to make sure you couldn't help?! She is really very nice, I was shocked, I couldn't look at her the rest of the day. I used to bend over backwards to help everyone, and they are not sick! What am I doing wrong? Am I too whiney? My husband thinks I do not complain enough, that maybe they think I am faking it because I put on such a smiley face with my clients. I go in full makeup, wig styled and dressed as nice as I can, maybe I need to go in and show the real me, dark circles under my eyes, super pale skin, and no hair. I was thinking of writing a note that the owners could share with everyone at the next meeting which I will not go to. It would say thank you to those that have helped me but then somehow mention that I have not felt support by the majority and ask them if that is the way they think I would behave if the situation was reversed. I probably won't write a note, it would just open a whole can of worms.

Teka

bak94,

They'll never understand how beaten down you feel with BC treatments.   

BernieEllen

Thanks for all the kind thoughts.

bak94, you are so right about the way people are - you are supposed to look sick.  My ex boss only ever helped me out when the the big boss was around to make himself look good.  She'll need you one day and then you will just have to be too tired to help.

Best wishes to all of you 

Swanny

Wow - just lost a whole long post..... So frustrating.  Here goes a shorter version.

Laurjane.  Just read the posts for the last week.  So sorry to hear your news.  Your son and daughter sound amazing.  I am so glad that you have them to help you thru all of this.  I pray that the new drugs give you more time (all the time in the world) and allow you quality time with your family. 

Swanny

Speaking of sleeping at work.  One day I was so tired that I went in search of a couch in any of our offices.  I didn't find any so at lunch I went out to my car, set my phone alarm for 1 hour and went to sleep in the back seat of my car.  Why I didn't go home is beyond me - I should have!  You know while you are going thru it you don't realize how utterly exhausted you are.  It was about 6 months after chemo that one day I really felt my old energy had returned and then I looked back at the previous 6 months and realized how tired I had been.  I didn't recognize it while I was in it.  Besides my appointments, I only took two days off during my chemo and worked full time, I am pretty proud of that fact but I don't know if I would suggest it to others.  I think I was stubborn and afraid.  Being single and all there was no way I could jeopardize my job. 

belleeast

bak94,i am so sorry about your work situation. i think you are right you don't look ill so they don't know how bad you feel. i think you should go to work showing the real you,give them a wake-up call. just my opinion.

mccrimmon324

Bak - I don't know what to say. That girls behavior is inexcusable. When I worked in a salon we always shampoo'd each others clients when it was busy and if we said no to go paint our nails our boss would have been infuriated with us. Secondly, apparently she's selfish and rude and her parents did a poor job of raising her. Sorry but purposely being rude to someone in a workplace is a huge pet peeve of mine, especially with everything your going thru now.

Teka

bak94,

Maybe you're out of the loop due to working 2 days a week.   

MBJ

Heidi:  We must both be a crack up because my shoulder spontaneously popped bck into place, too.  Snap, crackle and pop are the sounds I now make on a daily basis!

Bak:  I agree, no excuse for that kind of selfish rudeness.  I also would refuse in the future to ever lend her a hand and would probably even say to her, you know, I think I am going to go paint my nails right now.  People can be so awful.  Hugs!