Calling all TNs

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  • bak94
    bak94 Member Posts: 1,846
    edited September 2011

    I had a bit of an anxiety attack while waiting in the doc office but it turned out all good. All cancer seems to be resolved by mri and ct standards. I know path can tell a different story. My bmx is now scheduled for november 30th. Now waiting for Chemo # 8. 4 more to go after today.

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  • MissMollyB
    MissMollyB Member Posts: 6
    edited September 2011

    Hi Sugar77 - thanks for the Welcome.

     What a coincidence - I'm from Mississauga as well.   I had surgery and will be getting all my treatments at Credit Valley, I'm hoping their new-ish Cancer Centre makes this as easy as possible.    So far I'm impressed at how quickly the process has moved from suspicion to diagnosis, to surgery.

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  • mags20487
    mags20487 Member Posts: 1,591
    edited September 2011

    Welcome MissMollyB...this is a great group of supportive women with tremendous knowledge of Trip Neg.  Gather all you can so you can start getting your plan of attack in place.  There is also another site just for triple negs...its' tnbcfoundation.org.  Another site full of smart women who have been there!

    Maggie

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  • Sugar77
    Sugar77 Member Posts: 2,138
    edited September 2011

    Molly - come out to the Run for the Cure on Sunday at UofT Mississauga.  I'm this year's speaker and I make mention to triple negative and the need for research in my speech. I'll send you a PM (private message).

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  • Luah
    Luah Member Posts: 1,541
    edited September 2011

    Sugar77 - PM missmolly about our little TN group too - we could add her to the mailing list, if she wants.

    missmolly: Feel free to introduce yourself over on the Canadian board too. Lots of local knowledge there. I know this is a scary time for you... but when you have a treatment plan in place, you'll feel much better. While TN is aggressive, most of us get through treatment and come out the other side, healthy again. Lots of wonderful women here to help you along the way.

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  • Luah
    Luah Member Posts: 1,541
    edited September 2011

    sugar77:  And congrats on speaking at the Run for the Cure. You go girl!

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  • Babs37
    Babs37 Member Posts: 455
    edited September 2011

    Tifj- I had a bone scan at initial dx. It's like a PET scan, same position in the machine with your arms above your head the whole time. It scans you from head to toes. They give you an injection before and I think you have to wait an hour or so before going in.

     MissMollyB- Welcome to the TNS group. Happy you found us. Don't go to much on the internet for information on TN because it will only scare you (even if we all know you will because we all did it too Tongue out). Stick with what your doctors tell you and you will also get great info on this TN board. Good luck. 

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  • Fighter_34
    Fighter_34 Member Posts: 834
    edited September 2011

    Sugar77-  congrats from me also. I just know you will do us proud.

    MissMollyB- I know you scared and overloaded w/ info right now breathe in and out and follow your heart.You are in the right place surrounded by survivors and survivors to be. No question is to crazy to ask.

    ((HUGS))

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  • riley702
    riley702 Member Posts: 1,600
    edited September 2011

    That's great, Sugar! And welcome, Molly. The uncertainty right after diagnosis is so bad. If you are having problems with anxiety and/or sleeping (because your brain is going 90 MPH), don't hesitate to ask your docs for something to help with that. I was given a sleeping pill and an anti-depressant and they really helped. Keep us posted on your treatment!

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  • kyroheal
    kyroheal Member Posts: 48
    edited September 2011

    Miss Molly B,

    I'm also triple negative and also from mississauga. I'm 27 years old (bet you thought you were the youngest person you know with breast cancer) and was also at credit valley! I reached out to sugar at the beginning of my diagnosis and she has helped me so much throughout this process. Let me know if you have any questions about cvh or triple negative. I'm at the end of chemo, the beginning and the anticipation is the worst. It will get better I promise. You'll get through it :)

    Sandy

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  • TifJ
    TifJ Member Posts: 1,568
    edited September 2011

    Thanks Babs! I have never had a PET either. I have a frozen shoulder-I hope I can get and keep my arms above my head!

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  • gillyone
    gillyone Member Posts: 1,727
    edited September 2011

    TifJ - I had a frozen shoulder earlier this year. I didn't pay any attention for a while - just thought this was what it was going to be like, with limited ROM etc. Then I mentioned it at an oncology visit and he wrote me a prescription for physical therapy. I happened to see my PCP around the same time and he checked it out and said yes, frozen shoulder. Well, after just 2 PT visits and doing the exercises, there was a huge improvement. I don't know if you are having tx, but it was certainly worthwhile for me.

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  • mitymuffin
    mitymuffin Member Posts: 337
    edited September 2011

    Fighter, Lipo? I'm envious.

    LauraJane, I'm thinking of you and hope you have a sweet time in NY.

    Bak, Wow, the waiting is so difficult. Glad for the good news.

    MissMollyB, have you talked with your doctor about genetic testing?

    Kymm, Bless your heart. I'm sorry you have this added trouble.

    Survivor, Good news!

    Suze, Oh I hope they hurry up with the clinical trial for you! Your attitude helps all of us, and I'm sending you loving thoughts.

     And all of you, I hope you have a good weekend. I'm off this weekend for a 10 hour drive to the Mississippi Delta, where my husband will meet up with some old college friends who haven't seen each other in decades. Hmmm...not too sure about this, but really, I'm thankful for the fall weather, my husband, my animals and children and just being alive. 

    Susan

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  • TifJ
    TifJ Member Posts: 1,568
    edited September 2011

    Gilly- I have been dealing with the shoulder since March. It is getting better-slowly. I have been doing therapy since May. My orthopedic Dr. says it can take a year or more to resolve!

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  • Sugar77
    Sugar77 Member Posts: 2,138
    edited September 2011

    Luah - hi, I let Molly know about our TN group.  Thanks for the encouragement about the speech on Sunday! It's scary for me to think of speaking in front of 3500+ people but cancer is scarier and I say that in my speech.  

    The group Luah and I are referring to is an informal support group comprising about 16 or so triple negative women in the Mississauga/Toronto area.  We get together every couple of months in person and also keep in touch via email. Most of the members are not on BCO...but a few of us post here.  If there are any TNs in our area who are interested, please send me a PM.

    Suze and LauraJane - I've been thinking about you both a lot these days and am hoping for the best for both of you.

    Kymn - you're such a strong beautiful woman...always keep that in mind.  You WILL get through this hurdle....promise!

    MBJ - your new move sounds like a big change and a very good one at that.  It's a fresh new start and that's good for the soul. Will you be baking lots more of those great pies that you had in one of your Avatar photos?

    Gilly and Tifj - sorry to hear about the sore shoulders.  I bought a TENS/EMS machine thing a few years ago from my physiotherapist when I had some shoulder and neck problems.  This was before BC and I found it really helped a lot.

    kyroheal (Sandy) - nice to see your post on here today. See you on Sunday!

    BTW - Sandy's in the run, too, and her team has raised a ton of money -- thousands.  Good for you!!!! You and your team are making a difference.

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  • Lovelyface
    Lovelyface Member Posts: 674
    edited September 2011

    Was anyone else there at the Justin Herman Plaza, San Francisco BC walk on Sunday, the 25th?  Just wondering, because I was there, walking in the rain.  My eyes just kept on searching for women with dark pink shirts with the words "Survivor" on the side, although I must say I felt there weren't as many as I thought would be there.  Others wore white with pink writing.  Overall, an uplifting experiene to see that so many people are fighting for a cure for this disease, the disease which I have had!!!!

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  • Luah
    Luah Member Posts: 1,541
    edited September 2011

    sugar: Good luck with the speech - you'll do great, I know. Love the new avatar too.

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  • gillyone
    gillyone Member Posts: 1,727
    edited September 2011

    Sugar - you look great!!

    Tif - yeah - I was told a frozen shoulder can take a long time to resolve. Good luck with it. Mine is not back to normal but pretty good. Don't know if "normal" will ever happen after surgery etc. But I'm happy with it.

    I am off to Vegas tomorrow - first time with the ta-ta group. Should be interesting - about 60 of us from these discussion boards!

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  • TifJ
    TifJ Member Posts: 1,568
    edited September 2011

    Gilly- I am hoping for full range of motion eventually- it is my opposite mx shoulder!

    Sugar- I'm impressed. I think I would wet my pants speaking in front of that many people! Wish I lived even remotely close- I would come!!

    Kymm- thinking of you. No fair having to deal with a jerk and have cancer. hang in there!

    Hope everyone has a great Friday!!

    LJ and Suze- how about some New York pics??!!

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  • MBJ
    MBJ Member Posts: 4,352
    edited September 2011

    Sugar:  I am sure you will do fine with your speach!  If it were me, I think I would be so emotional I would just be crying my eyes out and no one would understand me. 

    Yes, my move should be very good for the soul and yes, I will be baking some pies!  It's the only way my inlaws would let me move to Kentucky, lol! 

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  • Paintingmywaythru
    Paintingmywaythru Member Posts: 317
    edited September 2011

    MissMollyB...welcome..although hard to come here, you will find a world of support and friendship on this board plus great advice and wisdom.

    sugar77: Congrats on speaking at the Run for the Cure

    LJ and Suze...always thinking of you and wishing you well. Cyber hugs!!!!(((( LJ and Suze 35))))))

    TIFJ...so sorry you have to do PT on top of all this.

    Kymn...Thinking of you. This is one hurdle you will get through and be better off for. I am sorry it is such a difficult time for you. I think it is very cruel to leave someone when they are in crisis. Shame on him.

    Sandy congrats on your team run.

    Gillyone...have a great time in VEGAS!

    MBJ..Hope the move goes well. Worked on the house today to get it ready for the open house October 15th...so tired though. I am looking forward to a semi quieter life near the ocean in Rhode Island.

    Had my trial run rad at 7:45AM..I am NOT GOOD in the AM and think I need to switch the time.

    All went well. Also got my bilateral breast MRI results today  and it was fine. Phew! Canyou hear the sigh of relief?

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  • Teka
    Teka Member Posts: 10,052
    edited February 2012

    Titan,

    May tomorrow be a lovely Wedding Day :o)

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  • Teka
    Teka Member Posts: 10,052
    edited February 2012

    Paintingmywaythru,

    Cool

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  • psp2pdx
    psp2pdx Member Posts: 38
    edited September 2011

    Hi there....thought I'd post 5 years out and managing life quite nicely.  There are indeed survivors of TNBC!  Good luck and blessings to all! 

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  • christina1961
    christina1961 Member Posts: 736
    edited October 2011

    Thank you, psp!!!  Good to hear good news!  I've been riding the fear train the last couple of weeks pretty hard. 

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  • TifJ
    TifJ Member Posts: 1,568
    edited October 2011

    Yes, thank you PSP! I too am riding the fear train right now. Have a bone scan on Monday for extreme tender areas in lower spine and ribs.

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  • christina1961
    christina1961 Member Posts: 736
    edited October 2011

    TifJ, I hope everything goes very well for you!  I have CT and bone scan Tuesday!

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  • Titan
    Titan Member Posts: 2,956
    edited October 2011

    Just checking in with everyone..welcome MissMollyB!

    Gilly..I want to hear all about your LV trip...I would love to go with this group sometime..I really like Las Vegas..and I like to gamble too...hope you strike it rich!

    Thanks Teka and everyone else on the wedding tomorrow...I had a little accident 2-day..was carrying in some beer to the reception and I fell!  The beer went flying..!  It was ok..but I wasn't..my left hand is hurting pretty badly and the worse of it all..my nose is all puffy!  OMG!  The beer hit my face and knocked off my glases and now it hurts...how stupid of me...

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  • ksmatthews
    ksmatthews Member Posts: 812
    edited October 2011

    psp thank you so much for the encouragement!!!

    Titan I hope you feel better tomorrow!

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  • Teka
    Teka Member Posts: 10,052
    edited February 2012

    Titan,

    You need a restful night's sleep, then waking to a lovely Wedding Day :o)

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