Calling all TNs

lwarstler

Belleeast...I am so glad you are doing better. You really seemed to have a rough day yesterday. I got the Neulasta shot a little bit ago and it was easy enough. Hope you have a great time at the class, it sounds like a lot of fun.

Fighter_34

Sending well thoughts to all!! Love you guys!

Had some well needed lipo done earlier this week. Now I am off to sip some green tea. Still recovering procedure wasn't bad at all.

Kymn

Hi girls, sorry havent been around much still trying to pick up the pieces of my life. DH still refuses to sit down and talk with me, he still hasnt even said good bye to the kids, it just breaks my heart. I dont understand how someone can just shut off like that but I suppose its not mine to understand. I have been trying to get all my ducks in a row these last couple of weeks to protect myself and my kids, have been to a lawyer and looks good for me not so much him. I cant beleive he just threw away our life just like that. anyhow wanted to let you all know why I am not around much, very hard to focus right now on much of anything other than getting all my papers together for this next big fight..I didnt read up on much but did see that Suze has had some bad news, I am very sorry Suze, I really dont know what to say you sound so calm I am trying to be that too. Life its a good thing they dont tell us what we are going to have to endure not sure that we would all sign up for it hey. Ok well one foot in front of the other, back to work

Hugs Kymn

Lovelyface

Suze, I just PM'd you.  Sorry ladies, I was busy for at least a month so was away from the boards.  Suze, my friend, you know how I feel, but I am certain you can even fight this.  Like I said, you are the smartest and brightest of all of us so I have full faith that you will apply all that knoweldge and strength to fight this.  There is no timeframe, so don't ever even go there.  I was shocked and very hurt to read your post just today, and was just blown away by the ugliness of this crap FC. This can be happening to any one of us TN's.  Hugs and lots of love, I know you are strong and can face anything!

Lovelyface

Laurajane - I have no words to say, except that I never knew that life is really like this.  Honestly, until one gets BC, one is so naive and innocent about life.  We all grew up so much after our diagnosis and you and Suze are now growing up even more, the innocence about life, left way behind. My hugs and best wishes!

OBXK

Swiftbird - I agree, it is so difficult to limit your self! I think for me, it's waiting around for someone to help. Grocery shopping is the worst.

Lwarstler - well done you! For standing up for yourself. My beloved onco told me the same thing. I thought, dude are you kidding me, I am having a freaking recurrence NOW!

Belleeast - I think willing allowing myself to be subjected to chemo, is the bravest thing I have ever done. Kudos to you for being brave. I hope you can cope well with the SE. Drink plenty of fluids and stay ahead of the pain - I also took stool softeners, as all the meds caused me constipation. After your shot, if you feel really bad, ask to have the dose lowered. Be gentle with yourself and remember the premed steroids, can make you feel a little emotionally fragile. The good news is, one day all of this will be a faint memory. Holding your hand ...

ksmatthews

Suze and Lj praying for both of you!  Kick cancers butt!

Kymn so glad you came and checked in.  I hope you are doing good too, still cant believe what a jerk he is!

RJ70

I got question for you ladies. I had a mastectomy on my left breast on the 12th Was doing great no pain everything was looking great. but Monday a started hurting a running a fewer , been in the hospital every since. My doctor that I love. Just leaved my room and told I have to stay a few more days to they know what is going. I feel lost. I had mastectomy did on the right side in April. That the side the cancer was on. With no problems. Has this happen to anyone else?

bak94

Does anyone have doctor recommendations for towny, from the parp thread, in the long island new york area? Please look at the parp thread if you do and help her with some advice, thank you!

bak94

RJ70, sorry you are going through that, they don't have any answers for you yet? Sounds like an infection but you would think they would be able to tell. Have they put you on antibiotics? Hope you fing answers soon.

bak94

I had a great day today! Went shopping and actually wound up getting my ears re pierced, as one had closed up. I am so excited to be able to wear earrings again, and more excited when I can take these posts out and wear some of my other ones! OK, it's the small things that make me happy. At least it has kept my mind off of my surgeons appointment tomorrow, when I find out about my breast and chest mri. I just a a ct scan last week and the results were good, but started worrying about the mri as I know things show up differently. I have another chemo tomorrow also, man, these weekly chemo appointments come up fast and I don't feel ready, still draggin and I got another cold. I also finally purchased a blender so I can make smoothies.

I hope everyone is hanging in there. Suze-I hope you don't have to wait much longer and LJ I hope your chemo is destroying the fc.

Hi lovelyface, good to see you here!

RJ70

Been on Iv since monday. But it is not helping. . I was great sunday. Walk a 5k. Thought when i got monday i just over did it, but as the day went on i knew something was going on, My arm really did not even hurt right after surgery, and monday it was making me sick to my stomach.from the pain Me drain was almost clear and now it so nasty. Every time i ask what is going on they just tell me we need to wait, until by blood work get back. they did it monday how does it take.

ksmatthews

RJ I hope you get some news soon and that you start feeling better!

riley702

Hoo-boy! I noticed little fur-less patches on Lovey's nose and Lucy's ear, so took them in to the vet. Lucy also still had a big scab from where she got her rabies shot last month - she's a long-haired kitty, so I thought it was just stuck. Long story short - the injection site was infected and they both have ringworm! Eek! I asked if this could have been something they'd been carrying dormant since I got them from the shelter, and was told yes.

And it's a 6-8 week course of treatment with oral and topical antifungals and a once-weekly antifungal shampoo. And Lucy is on antibiotics. I'm going to leave the shampoo until tomorrow when I can buy some elbow-length dish-washing gloves that will hopefully limit the shredding of me.

Best of all? I get to take anti-fungals for the next 4 weeks, too, as they could give it to me. And I will need to do daily checks for a rash on myself. And of course, launder all of their and my bedding frequently and spray everything I can't launder with a 1:20 bleach solution frequently. It's going to be a long 6-8 weeks!

MBJ

Riley:  Ugh, I have been through that and it's no picnic.  Good luck!

Bak:  In answer to your questions re: chickens, my MIL is going to give us some of theres so as soon as we get a chicken coop/run we will be ready to go.  My DH plans to heat it during the winter so they don't die of frostbite.

Laurjane:  I truly hope this new coctail is your magic bullet.  This must be such a scary time to be going through so much yet you still come on here all sunshine and beauty.  I hope you have an amazing time in New York and I can't wait to see the results!

Suze:  Hoping they find something for you that works, too.  You are both an inspiration to us all.

riley702

MBJ - is the 6-8 weeks of treatment an accurate estimate, or does it take even longer?

Teka

bak94,

Easy to get infection from pierced ears.

Survivor2Be

Had my chest wall mass excised yesterday.  CT showed an enlarged (6mm) lymph node, but nothing in lungs, abdomen or pelvis.  US didn't even find a lymph node, so the surgeon didn't go looking.  I think that enlarged lymph might have just been overworked as being the only lymph node to deal with radiation!  Not feeling any pain - good thing about a BMX is that it cuts all the nerve endings!  I'll continue on radiation next week and add an axillary field, so that'll get that remaining lymph node.  

Teka

Survivor2Be,

Excellent news )

MBJ

Survivire:  Great News!!!!

Teka:  You have to be vigilant or it won't go away. 

Suze35

Survivor2Be - great news on the clear CT!  I hope you heal quickly from the surgery.  I can tell you that the areas that I had radiated are still completely clear, it worked really well on my supraclavicular nodes.

riley - I hope it goes smoothly with the kittens!  6-8 weeks, ugh!!

Lovelyface - thank you so much for your words, they mean more than I can say.  This disease is awful, and I plan to fight it with every ounce of strength I have.  I still have hope - there are some who go into remission for a long time.  But I do try and be realistic so that I don't lose sight of the important things I still want to accomplish.  And the longer I stick around, the more things that can become available!

LJ - thinking of you.

MBJ - you'll love the chickens.  My oldest adores helping my neighbor with hers .

For those just starting chemo, I'm glad to hear everything is going okay. It sucks, but it will be over sooner than you think!

~~~

Still waiting on the trial. The oncologists at DF are putting pressure on the drug company to get started, because there are now multiple women waiting, off treatment.  I was told it would almost definitely start before the 15th, to hang in there. Hard to do when I'm hacking up a lung!! I just have to remind myself my lungs are clear...this is just nodes causing the cough.

Busy day today, always helps.  Have a good day everyone! 

belleeast

hi all, got my shot so far only bone pain is my toes and i have a huge headache,i thought they said big bones lol.

also i can feel a sore coming on in my mouth,i've been using biotene any other suggestions?

my dr is prescribing steroids for 3 days after chemo take 3x a day ,there was a mixup in communication with pharmacy. what are these for and the most important question will they cause me to gain weight?

lwarstler

Feeling crappy so probably taking a few days break...Feels kinda like I have the flu, aches, shakes, etc. I have a pain pill they said I can take so I think I will just take the pills and sleep a few days. The 4th HER2 test the NP wanted me to wait for (which we knew would come back neg) came back negative today, so I think I made a good call. 

Survivor: Awesome news.

Kymn: I can't even imagine anyone being so cruel and heartless, hugs and prayers your way. 

riley702

belle, I gargled with salt water several times a day when I had mouth sores. Don't swallow it! One of the chemo nurses also recommended something called Gly-oxide. I had to hunt around a little bit, but found it at CVS. You put a few drops on the sore and then try to hold it in your mouth for a minute or two, then swish and spit. I did that a couple times a day as well and I think it helped clear them up faster.

The steroids are to reduce the SEs of chemo, but I hated taking them. I would be wired and unable to sleep, my handwriting looked like a 5 year-old's due to 'micro-tremors', and yes, I gained weight. I managed to get some of it off, but when I started taking Tamoxifen (my tumor was 8% ER+), the weight all came back and brought a few more pounds with it.

Hang in there!

bak94

Waiting for my bs appoint to find out mri results. Feel like I am gonna puke! Teka-i am kinda worried about infection from ear piercing but my counts are good and I will keep them super clean! I know it could still happen but I just went for it

Teka

bak94,

christina1961

Laurajane,

I hope you have a great time in New York and hope you get to do some sculpting.  If you ever want to share your work with us, I would love to see it - or some of your landscape design.  I used to love to garden, too.

Suze, I'm so sorry you are still having to wait. If you think a huge barrage of letters from all of us to the drug companies would help, well, I'm sure a bunch of us would oblige.  What are they waiting on!!! Grrr....

Swanny, thanks for checking in!  Good to hear you are doing well.

Riley, I'm glad your kitties are in your hands - sounds like they have a good "momma" to take care of them and hopefully for your sake and theirs, the RW will be gone quickly. 

Bak, hang in there - I hate waiting for scan results. I have CTs /bone scan next week and I'm already getting squirrelly.

Kymn, I'm so sorry you are dealing with this during this already incredibly difficult time.  I will never understand how some people can seemingly turn a switch off in terms of their emotions, but I've been on the receiving end of some of this kind of behavior during this time, too.  You will get through this, and so will your children, no matter how hard it is right now.

Survivor, glad for the good news on your scan! 

Bak, just this morning I tried to put on earrings for the first time in over 9 months and found that righty had grown together!  I was thinking of getting mine repierced, too.

MissMollyB

Hello all TNS - I just found out today I will be joining you (if you will have me)

I am a 37 year old mother of two young children and a proud Canadian, eh? 

I was diagnosed on Sept 2 with IDC and had a lumpectomy and SNB done on Sept 16th.   I had my follow up appointment with my surgeon and found out my triple negative status.  It really threw me for a loop as my mom had BC 13 years ago and was ER positive and responded well to just radiation and Tamoxifan, so I naively thought this would be my future as well.   So now I am beginning my research into the Triple negative world and frankly I'm very scared.   I'm meeting my medical oncologist next week for the first time and hope to find out a game plan then.

Thanks for having me

TifJ

Welcome MissMollyB! You'll find a wonderful group of ladies here to guide you on this crappy journey!

Who can tell me about bone scans? I saw my onc today for a follow-up and he scheduled me for a bone scan and x-ray due to intense tenderness in my lower spine (L4). He thinks it is probably strain from physical therapy for my frozen shoulder (I tend to twist my back when my shoulder is stretched), but wants to check it out to be safe. I am a bit scared!

Sugar77

Welcome MissMolly.  Sorry you are here but you'll get a lot of support from the wonderful ladies on this thread.  Where in Canada are you located? I'm in Mississauga just outside of Toronto.