Calling all TNs

ksmatthews

Suze praying for you!  Stay strong and positive, like others said alot of woman have lived a long time with stage 4.  ((HUGS))

swiftbird

Suze, I agree with our fellow travelers here.  Please stay connected with us TN ladies.  I am sorry for this news for you.  (((Suze)))))  Stay strong.  I'm in for NYC!!!!

gillyone

We've hit page 300 doing what we do best - supporting each other. What a great bunch.

Titan

Oh man Suze...don't even think of not staying on your home thread...we would just follow you anyway..so you may as well just stick with us...sounds like you  are in good hands with the best doctors in the country...

Cancer really sucks.

NYC in the spring sounds good.I've never been there so I will be anxious to go with all of you that know the city well...

Sugar77

Suze - been thinking about you a lot today. It sounds like you're getting top notch medical care and I hope you can get into a trial to kick the cancer's butt.  (((((((hugs))))))))

I'm in for the spring in NYC! 

hec2

Hi all - this is my first post although I've been lurking for a while. I'm 49, finished ADC (4x2) and now going through weekly Taxol x 12. Had my 3rd taxol treatment on Monday and was told my red blood cell count is low - possibly might need a transfusion. WBC is good at 4.64. I also have started to put on 2 to 3 lbs a week since starting the taxol - my oncologist thinks it might be the weekly steroids. Me I'm paranoid it might be a symptom of something else happening.

Had a double mastectomy with tissue expanders 6/3/2011. Discovered I was BRCA 2 positive 6/2/2011 and so lickety-split squeezed in a hysterectomy Davinci Robotics style on 7/1/2011 and 10 days later started chemo.  Tissue expanders are filled and ready to be popped out in December if all goes well. Can anyone think of any reason to keep my port? If not I want it out too!

Looking for any help or suggestions out there on the weight gain and the low red blood cell count, or anything else you can think of.

Sending warm, positive thoughts out to everyone on this forum!!  

rachelvk

Suze - I'm pretty new and haven't gotten to know too many people on the boards, but my thoughts and prayers go out to you. Good luck with Dana Farber.

LRM216

Suze:

This is just beyond words - just so sick to my stomach at reading your post.  This is each of our worst nightmare and to know it's come true for you is just heartbreaking.  You have been so strong, and I know that you will continue to be, and with the winning team you have leading you, I want so much for this to turn out well for you - every step of the way.  Please know that you are in my heart, my thoughts and my prayers.  So easy for any of us to type the words - keep fighting, Suze, keep fighting, while realizing how hard all of this has been and how fruitless it may seem at times, but I type them anyway, Suze - keep fighting, dear sister, and never, never stop.  We are all here for you and rooting you on - every day - even though you may not be aware of it.  There is great strength in numbers, and you certainly have all of us offering up all that we have to give. 

To Kymn and Christina:  Never, never think that this is your fault or due to your cancer.  Each of you have become, through necessity alone, much, much stronger women.  It is they that are weak and pathetic characters, and to choose such a time as this to put you through even more than life has already hit you with says all there is to say about what type of human beings they are.  Be strong, and know that as dark as it may seem right now, there is sunshine ahead for both of you.  Try to hang on to that fact - no pain lasts forever, you will get past this, and there will be better things ahead.

My love to all -

Linda

P.S. Titan:  If your mom doesn't feel you have enough time for her with working full time, sending a child off to college and getting another one married, just pull the time out of your "arse" sweetie, that's just what my mom expects me to do too! 

On a positive side - running on empty for about 15 hrs. each day, between working full time and raising a teenager that does not yet drive, and do all that I can for my mom on top of this, I figure I have to live a long time, as I can't possibly fit dying into my schedule at all.  

Kelley41

Laurajane & Suze - thinking of you both today as I start my day....

hec2 - wieght gain would be consistent with the chemo, steroids, and everything your body is going thru.  I was less active during my treatments and put on some weight.  It will come off... 

lwarstler

Suze: Just sorrier than words can say for your new dx. Your attitude is amazing and a real inspiration inspite of it all. Good luck at DF, my thoughts and prayers will be with you.

Kymn and Christina: The problem isn't your cancer, its their characters. I wish there was a way to just shake them and get them to see how insane they are.

hec2: I don't start my chemo until next week, so I'm not sure, but welcome to the thread. There are a number of really knowledable ladies that I'm sure will be able to speak more to your questions. 

NYC!! That sounds great, I have been wanting to get up there to see my grandmother and aunt, so I would love to join in the fun. 

Paintingmywaythru

Suze: Don't stop doing what you are doing. You have an amazing strength and Dana Farber is tops. We all know that. I am jsut so sorry to hear the news and so wished it would have been different. Please stay with us. You are such a strong part of this group and we are all hare loving and caring for you.

I know you will have many tough decisions to make but you go drive that car and drive your treatment too. I know you are assertive and will read up on everything you can to get the best possible care and treatment there is.

This whole thing truly sucks and I am just so sad to hear this. Having met you I think you have the strength and wisdom of 100 women and  want you to use it and our collective energy to take the best of care there is.

Love and hugs to you.

Luah

hec2: Low blood counts and weight gain is very typical while going through chemo and your onc is staying on top of all that, I would expect. 

Suze: Thinking of you today at DF.... 

Fighter_34

Suze: thought about you all night girlie. Sending good vibes your way....

Flautalee

Hec2--Just ask your doc about taking out your port. In 2000 they took mine right out, but I suspect the docs are recommending keeping them in longer. Let us know what he or she says. Ultimately it's your own body!

Fighter_34

Hec2--just a suggestion wait until exchange surgery to limit multiple surgeries. December is not to far away.

MBJ

Suze:  I am hoping that DF will be able to find the best possible treatment and game plan for you.  Stay strong in the fight-you have all of us here fighting with you!  Hugs!!!

Linda:  Thank you for putting into words how we all feel-Hugs to you!!!

MBJ

Hec2:  Welcome to the group-you will find much help and support here by an amazing group of women!  Weight gain is very common during chemo, so hang in there and when you are done  come join us on the TN Ten Pounds Take Off thread.  Personally, I would keep the port in until December-I didn't have one and it's pure hell finding veins to even take a little blood now.  We have to go through enough surgeries and this just eliminates an extra one.  Hugs!

Paintingmywaythru

A quick queston to all...what are you going to do about getting a flu shot?

Thanks.

MBJ

Painting:  Never had one, don't plan to start.  I am the supplement queen so I don't think it's necessary.  Can't do it while undergoing chemo either.  I would ask your dr.

Titan

My onc said it was a good idea to get the flu shot...so I have had one for the past two years..it doesn't hurt and I've never had any after effects either...not have I gotten any kind of flu!

Check with your doctor.

lwarstler

I just got the flu shot. My onc and family doctor told me "of all people, you really need it." I got it for the first time last year with no side effects, so I just got mine again. FYI, my kids and I got the shot last year...no flu...my big strong scared of a needle husband didn't get it and got the flu, so I do believe it works.

Babs37

Last year, while on Taxol, my onc recommended that I get the flu shot and it was recommended that everyone close to me (DS,DH and family) get it as well to reduce chances I get thr flu since my immune system was low. I didn't have any SE from it.

OBXK

Suzy35 - Damn and Blast! I am so sorry to hear your news, but it doesn't seem like you are letting any moss grow. Wishing you the strength you need. A NYC trip in the spring, sounds fun. I use to go all the time when I was younger, and could fly People's Express, for $29 each way.



TifJ - thanks for sharing.



Healing thoughts to you who are in treatment or broken hearted.

Karen

ksmatthews

After having the flu 4 years ago, I will never not get a flu shot, especially now when immune system is weak. I plan on my whole family getting ours in Oct.

Suze still thinking of you!  ((((hugs))))

Fighter_34

I missed mine last year due surgery, chemo and recovery. My job usually offers it so when the annoucement comes out I will go and get mine.

OBXK

Suzy35 - Damn and Blast! I am so sorry to hear your news, but it doesn't seem like you are letting any moss grow. Wishing you the strength you need. A NYC trip in the spring, sounds fun. I use to go all the time when I was younger, and could fly People's Express, for $29 each way.



TifJ - thanks for sharing.



Healing thoughts to you who are in treatment or broken hearted.

Karen

OBXK

They just called with my BRCA results - Negative!

Teka

OBXK,

riley702

OBXK -

MBJ

OBXK:  Great news!!!

I haven't had the flu since my diagnosis.  I guess I have been lucky, but again, my husband gets sick all of the time and doesn't take supplements and I take tons so I have to say it helps.  Beats getting a shot-I have had enough needles to last me a lifetime, lol.