Calling all TNs

Anonymous

 gilly- I listen to Podcasts through iTunes. Is that what you mean? What application a person would use to access your program?

gillyone

I think I mean, do you listen on your PC, on an MP3 player, your ipod etc. BUT if it is intended to be heard by more than one person (ie the parent and child) how would you listen together. Obviously headphones from an ipod or other MP3 player are not ideal. Does that make sense?

NotSoBusty

Just checking in. I have round 4 of a/c on Thursday. I can't wait to be done with that. Then it's on to the taxol. I've decided that chemo is just gross. Everything about it is gross. From the way it makes you feel to what it does to your body. My main complaint these day is watery eyes. They are so light sensitive! I guess I finally look like that sick person I didn't want to become. I lost my hair and 15 pounds, my skin is yuck and pale. Do you have any idea how big I am gonna party after all this is over?!

Hope you all are having a relaxing Sunday!

Anonymous

Gilly- I hook up my laptop to the big screen and/or to external speakers whenever I want to share something in a group situation, like video or slideshows. My PC has 5 speaker surround, my laptop has external speaker jack, and my iPod can connect to this nifty (and powerful) handheld speaker that I use for birdcalls in the field. All are easy to accomplish. Does that help?

Flautalee

Yes, Titan, I have played the flute since I was 8 years old. I recently retired from teaching instrumental music for more than 20 years. I teach private lessons now and am working to complete my MA in Music (Concentration in Music Education) this coming May. I have played flute in the Livingston Symphony (NJ) since 1987. The orchestra has a terrific conductor, Istvan Jaray. I also play in the Maplewood Community Band which is a lot of fun, too. The chemo is making me tired but playing has always made me feel happy and the graduate work keeps me busy thinking so I worry less about my treatment. Best to all and no SE's!

gillyone

Thanks Heidi - that is the kind of info we are looking for. Any more responses ladies?

rachelvk

Lee - I wonder if anyone has put together a thread for musicians. Nice to hear you devoted your life to teaching music, and that you still find a way to keep playing. I play violin and am in the Westminster Community Orchestra and the occasional musical; just started piano to pick up where I left off teaching myself when I was a kid and loving it. It's really been wonderful to focus on during this time. Good luck with any upcoming concerts. I may have to miss my next one because of surgery but I'm looking forward to getting back.

bak94

Heidi, I am impressed! You techie!

Kymn

sorry I havent been here in a bit, DH left me said cancer changed me, my heart is broken and i can barely focus right now but still thinking of you all

Teka

Kymn,

I was hoping after reading your morning post that you would feel up to posting this evening.  You're having such a rough time.

christina1961

Kymn,

I'm so sorry you are going through this.  I'm going through a similar time. I hope you have family support; it has helped me so much.  I am  also going to call the hospital social worker this week and try to get started with her - the counseling is free at our local hospital. She has some people who come to see her once a week.

BernieEllen

Hi everyone, going for my rad markers today.  Then BC tomorrow for a check up.  Still can't shift this flu type thing i've had since i finished chemo.  

A soup day would be good but i'm thinking more along the lines of a Wine & Whine evening.

Love to you all 

Babs37

((((((KYMN))))) So sorry for what you are going through. Stay strong.

Sugar77

Kymn - I'm so sorry about your situation.  You're a strong beautiful women and you'll get through this and be even better than before!! ((((((hugs))))))))

Maria_Malta

Kymn, find a shoulder to cry on, and get counselling help if you can... take care of yourself!

Maria_Malta

gillyone, I would definitely use my laptop with external speakers.

Flautalee

Kymn - I cannot express how disappointed (teacher-talk-something students children listen to with dread) I am with your husband. He couldn't handle the fear and unknown that we have no choice but to accept and deal with in order to move on in our lives. I think I read some posts on this site suggesting that boyfriends and DH's who run for the hills be run over by a bus. You will get through this and thanks for letting us know. We are with you!

Flautalee

Christina - So sorry that you are having DH issues, too. What I find so hard to comprehend is that if the situation were reversed, we wouldn't even think of leaving. Thank you for sharing - glad that you are connecting with a social worker. We will get through this together.

Maria_Malta

No doubt in my mind that the majority of women would stay!

Luah

Ive been away for a few days and am just catching up.

Kymn, I am so very sorry for what you're going through. Hope you can find some help and support from a counsellor or trusted friend, family member etc. Of course, cancer changes all of us in some way. You're strong (even if you don't feel like it right at this moment) and  will get through this, it's just crappy that you have to go through this sh%t.

Flautalee: How tough to be facing this again! I'm sure your case is rare, but it is still a cautionary tale for anyone who thinks that double Mx erases all risk. There is always risk. Wishing you a fairly smooth course of treatment...

Sugar: How nice to have a clean mammo. I'm hoping for the same next month.   

Fighter_34

Kymn- (((HUGS)))  Maybe this is just a rough patch. Men express their feelings differently then  women and most do shutdown. Maybe try showing him you are a fighter and a winner. Do your part and if it ends you can move on peacefully knowing you have done your part.

Notsobusty: Yes your eyes are going to water quite a bit. Keep tissue and a little vaseline near.

Suga: Wonderful it's always good to hear good news.

minxie

Kymn, I am so angry for you. Of course cancer has changed you. It changes everyone. But so do things like motherhood, a death in the family, all the trials and joys of life as we make our way through and age, mature, and grow. In sickness and in health. For better or for worse. No one ever promised marriage would be non-stop bliss. I hope he reconsiders his responsibilities and commitments - best to you.

MBJ

(((((Kymn)))):  I am so sorry that you are haivng to go through this.  I haven't any advice to offer-I think it's a selfish and mean thing to do to someone going through cancer but I also think cancer not only changes us but it changes how other people relate to us and not everyone makes it through to the other side with us.  Big hugs to you and know that we will be here for you as much as we can.

MBJ

Suze:  I am officially jealous-not only of your 3 day holiday in NYC but that you met Laurajane in person.  I just love her!!!

Lynn18

Suze and Laurajane in NYC?  Wow, I wish I could have been there too.

Kymn and Christina:  I am also sad to hear about what you are going through.  I hope you both get lots of support, I know everyone here wants the best for you. 

TifJ

OBXK- The tear thing is a good idea, but my husband is pretty good at seeing through the bulls**t! He would probably just laugh at me.My BRCA came back as BRCA 1 negative and BRCA 2 as variant of unknown significance. My onc is treating me as though the BRCA 2 was neg. He says most (there are exceptions) of TNs that test positive are BRCA 1 positive. If my particiular variant ever proves to be positive for BC, they would notify my doctor. My onc says that has never happened in his office yet.

Hope all of those fighting colds get better soon!!

Kymm- I have no words of wisdom, just want to send a hug.

Anonymous

Kymm- "husband = rat bastard coward". Repeat. Think karma. Somehow, you will fiind your way through this...

mitymuffin

Kymm and Christina, Heidi is right about this, Karma will get them! In time they will know what they have done.  And I agree with Sugar, that you will emerge stronger. Take as loving care of yourselves as you would your dearest child. Be kind and nurturing to yourselves.

Titan

Kymn and Christina,..no **&&** cancer has changed you....seriously..could you give us their e-mail to we can tell them what an ass they are? 

Suze and LJ in NYC..I wonder if there are any shoes left...

I'm having issues with my Mom..I love her dearly..but she complains I don't see her enough..ok..I'm working full time, just got one kid back to college and have a wedding for the DD in less than 2 weeks....I guess I need to find the time..but dang..where is the time?

Suze35

I'm sorry to have to post this in so many ways...



I am now Stage IV. The cancer has spread to further nodes (medistatinum sp., etc.) and several bones (pelvis, ribs, and lower back). No organ involvement yet. I will be trying to get in to MD Anderson ASAP, and my doctor will be calling Dana Farber to explore clinical trials. Right now, our goal is to keep it out of my organs for as long as possible.



I did not ask for a timeframe, because who knows? I am hoping for 2 years, but I know my cancer is chemo-resistant, so that is optimistic. I've been prepared for this for awhile, but it is still sinking in.



I plan on having some incredible times with my family while I can, and live every moment. I have every intention of driving my car all next summer.



I am so thankful for this board. I say we all have a NYC meet up in the Spring!