Calling all TNs

riley702

Oh Suze, I'm so sorry! (((Suze)))

FrancesC

Christina, Kymm, Suze - I wish I could be there to give you all a big hug, I am so so sorry for what you guys are going through. i pray that all the pain and sorrow will go away soon. take care and love yourself deeply.

Sugar77

Suze - I'm so sorry. Sending you lots of healing hugs.

Lynn18

Suze, Sorry to hear that news, but glad to hear you may be going to MD Anderson. (((hugs)))

Anonymous

Suze- I have no words. I would love to meet in NY; let's do it.

Teka

Suze35,

NYC meet up in the Spring.   OK!

Suze35

Thank you guys. This sucks. No other words for it. NYC, here we come!!

Lynn18

I would love to meet you all in NYC.  Let me know when!

bak94

I have never been to NYC, would love to go!

Angelice

Christina, Kymm, Suze - Hugs to you ,

mitymuffin

Suze,  I am so very sorry.  How is your support at home? M.D. Anderson's is a wonderful place with cutting edge research. 

mccrimmon324

((((Suze))))

christina1961

Suze,-

I am so very, very sorry.  I was hoping so much for good news for you yesterday and kept checking to see if you had posted.  So angry at this FC.

Luah

Suze - Ah crap, I am so very sorry. You seem to have a wonderful onc... I have fingers and toes crossed that you'll get on a trial with a drug that halts or slow the progression. You are whip-smart and a fighter... BC can be so unfair.     

Fighter_34

(((SUZE)))) I am all teared up. I love you girlie and you take care of yourself.

Head hung very low today. Seems like just when you get use to your new normal the rug is snatched from under you. 

gillyone

Suze - this is such crappy news. So sorry to hear it.

Suze35

The hardest part of this is telling everyone . I have always tried to be a realist, but many of my friends and family clung hard to the idea of me beating this. I hate breaking their hearts. I won't tell my kids until we see what the next step is and how well it works. I don't want to upset them if I still can get good quality time, but I also want them prepared. It will be a fine line, I'm going to bring in a grief counselor at some point.



I'll still hang out here, if that's okay. I don't want to scare anyone, but it is a great group. Thank you guys.



And Kymn & Christina - I'm so sorry for what you are going through. Cancer DOES change us, but if your spouse can't handle the change, that is THEIR issue, not yours. Hugs to you both.

MBJ

((((Suze))):  I am so sorry to hear your news.  I just hate F*&%$G cancer.  Don't you dare go anywhere!  You bring so much of yourself here to the boards and you would be sorely missed if you were to go away.  This could be happening to any one of us!  A big cyber hug to you!  New York will be so much closer come November so I am planning a Spring trip for us all to meet!!! 

K-Lo

Suze, everyone is different and i know this is a shocking and trying time.  I got the stage 4 talk September last year.  Since then I have met these women who have been stage 4 for 14+ years.  

 At the moment, my theory is this: it depends on what you're willing to put up with to live longer.  I refused a chemo that might have turned my cancer way back  but i could not stand the SE's.   I think other women have put up with bad SE's.  So, there is hope for a lot of time, you get to pick which way you want to live.~~~~Kathy

MBJ

Kathy:  Thank you for coming here and sharing.  There are many women living with stage IV!  Hugs!!!

sylviaexmouthuk

Hello Suze35

I just wanted to say how very sorry I was to read that you have been told that you are Stage IV and I am sending you all my love and best wishes from the UK. I do hope that you will be able to get some excellent treatment in your country. Please keep looking on the bright side as there are many cases now of patients with Stage IV living for a very long time. I know you will leave no stone unturned to get the very best treatment or to get into trials.

Live every day to the full and treasure all your time with your family. Laugh as much as you can, as laughter is great medicine. Thank you for all your postings to the UK thread.

I am thinking of you and wishing you all the best.

Love
Sylvia.

minxie

Suze, I am so sorry to hear this  

Here's hoping your doctors find your personal magic bullet and knock that beast back - best wishes headed your way.

Teka

Suze35,

Please continue to post on this thread.

Lynn18

Suze, I hope you still hang out with us.  You are right, this is a great thread, and I think you are one of the favorites on here.  

Luah

Oh Suze, we would miss you terribly if you dropped this thread. You have a lot of knowledge, wisdom and spiritedness to share. I know the stage 4 gals will give you great support, but by all means, hang out here too!

Babs37

Suze- You read my PM. You know how I feel . I am sure that you can feel the love and support here today. We will all be there for you through this battle. Take good care. (((Hugs)))

TifJ

Suze- my heart truly hurts for you. All I can do is send a hug and my support.

Suze35

You all are such wonderful women, thank you .

I have an appointment tomorrow at Dana Farber, and I'll be bringing along my clinical trial collection to see if any would be a good fit.  (I've been surfing trials for awhile, trying to be ready.)  I know Dr. Winer works out of DF, and it is a great facility, so I will start there and see what they say. 

I'm not giving up - I promise!  I will fight until the bitter end.  I refuse to give timeframes to any of my family because it is my goal to be that outlier . 

I'll let you all know how it goes.

mitymuffin

Suze, please let us know what you learn at Dana Farber. Its such a great hospital.  Sending you love..

RJ70

Suze, Praying for you and you family. Remenber to take one day at time, and try to enjoy everyone of them.