January Mastectomy

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  • pbebow
    pbebow Member Posts: 575
    edited April 2010

    Whoohoooo Lyn!  You're the first for an exchange from our group!!!  How exciting!  Praying for no pain and good results!!!  Please fill us in when you're able!!  Yippee Squishy!

    Whoohoooo Laura!!!  A date!!!  I was sooooo excited when I got my date and last fill!!  So exciting!  Yippee Squishy!!!!

  • binga
    binga Member Posts: 140
    edited April 2010

    Congrats to all the gals getting ready for exchanges!  I had my pretesting today although my surgery isn't until the 19th.  I can't wait.  I am going to take advantage of next week which will by my last week before surgery and go to Destin.  Found a cute little beach house that lets you bring your pets so I reserved it about ten minutes ago and I am super excited!  I will be all relaxed up and ready to get it done.

    Dreaming of the white sandy beaches.

    Becky 

  • pbebow
    pbebow Member Posts: 575
    edited April 2010

    Wow, white sandy beaches!  I am sooo jealous!  Mine is the 16th but I just get to run kids around all week and clean house to get ready!  oh well, you deserve it!  I'll get my white sandy beaches next winter, we're planning a tropical get away for then (can't before then, heavy farming time now!)...  have a good one!

    Paula

  • KatRNagain92
    KatRNagain92 Member Posts: 522
    edited April 2010

    Yay to everyone's exchange dates!  WoW Lyn, that really snuck up.  But some of you gals are farther along than me....I eventually catch up though and here we are at week 10 and I'm finding myself depressed. :( I don't want to burden the board so I've staying away a little and trying to just figure it all out.  I've also got that damn canceritis.  I'm afraid to eat anything or drink anything and I'm suspicious of any new or different symptom...Oh my goodness, I'm constipated! I'm sure it must be cancer!  E-gads...I'm wearing myself out! 

    Work has been very hard on me...it's hard for them because they think I'm perfectly fine!  Here I am, dealing with this huge life altering event during my 'free' time and no one gives you any credit for that....or I find myself walking around silently gritting my teeth because one of those damn internal sutures is stabbing you!  Ouch! 

    Oh and Paula...I've been in such a mood lately, when I read your post about your SIL I wanted you to just whip up your shirt and say "what part of breast cancer don't you understand?" 

    Ok...I'm to find a happy place now...Sorry to be a big angry bummer. (I'm blaming Tamoxifen...grrrr)  I do sleep well though so there's your silver lining. 

    I think of all of you often and I hope you're all doing well...
    Go Team January!:)
    Kat

  • TNgolfer
    TNgolfer Member Posts: 253
    edited April 2010

    Kat,

    BC and depression go together like ham and eggs.  I will tell you (and all my other sisters) that this clinical study I am in is really enlightening.  My first homework assignment was to take 4 days (Sat Sun Tue and Thur) and keep a diary of activities.  It was spread out in 1/2 hour increments and you just have to list the activity (generally, not too detailed) and then grade the activity from 1-4 (4 being the most pleasurable or rewarding and 1 being the least).  Try it -- you will probably all find it rather revealing.  Now the trick is to get more "4's" in your day.  Now we are working on what's important to me now -- family, work, spousal relationship, friends.  I realized that I suddenly feel like my life no longer has a purpose....I suppose I felt that way before the breast cancer and actually, oddly enough, the breast cancer actually gave me something to do -- research, research, research.   I'm going to look into volunteering (that used to be a big part of my life before) and do the things that I find rewarding. 

    We have all been through (and are still going through) sooooo much.  We need to find those things and/or moments that give us peace, tranquility, or feel rewarding.  Besides the physical and mental anguish and fighting with insurance companies, dealing with insensitive in-laws, trying to go back to "normal" and trying to still be the hero's and caregivers for everyone else, God knows we deserve to find some "4's"!!!!

    Go to the PS Thurs for what may be the last or second to last fill and then hopefully an exchange date. 

    Peace to all my sisters!

  • robinlbe
    robinlbe Member Posts: 585
    edited April 2010

    Oh, Frosty....your hair....bless your heart (well, your head, actually...)  I just can't imagine.  I saw my daddy lose his hair, but I would think it would be so much worse for a gal....he would laugh and make jokes and say how he was saving money on shampoo, and how it would take him less time to get ready in the morning!  I think he said all that to try to stay positive, but also to help us feel better about him going through the chemo and seeing him lose the hair.  Are you going to try the fun scarves and hats?? 

    Lyn, your exchange surgery already?!?  WAY cool!! I'm so happy for you!!  Although I wouldn't be thrilled about another surgery just now, but to be on THAT end of the tunnel does sound pretty wonderful ;)  You'll be in my thoughts and prayers.

    Paula, I thought it was just ME who was noticing boobs all the time!!  I used to never pay attention to breasts EVER.   Now, I can't help but notice them.  I mentioned that to my husband.  He said, "that's just because you're more aware of them now.  Like when we bought our silver van, all of a sudden we started noticing all of the silver vans out there," 

    Oh, and I DID finally make an appt. for a fitting.  I have an appt with the genetics counselor on Monday to get my results, which is in the same office as my oncologist survivor program appoinment which is also the same afternoon....which just HAPPENS to be across the street from one of the boutiques where the do fittings.  SO, I took the plunge and made the call to have the fitting on the same day......The ladies in that shop are a little older (definintely older than I am!!), but they've all had mastectomies.  There's another shop I'd like to check out, where the gals haven't had mastectomies, but they are very understanding and very loving (and they're sisters, and their mom had a BMX and was/is a BC survivor).  I don't know if they carry the same brands of prosthetics or not.....

    But, at least this is a step.

    blessings to all....robin

  • robinlbe
    robinlbe Member Posts: 585
    edited April 2010

    p.s.  Yes, I'm going to ask about the tightness, the changes in the looks, AND the armpit tightness that continues to get worse when I see this oncologist next week.   I think I may ask for a referral to their LE person, too.....just to be on the safe side...

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2010

    Congratulations Kim!  What a way to start the year.

    Brenda this must be a very difficult time for you.  I am thinking about you.  Every time I feel like complaining, I think of you gals who are undergoing chemo and dealing with all that goes with that. Losing you hair must be very difficult.

    Lyn you will be in my thoughts tomorrow.  Tomorrow will likely not come soon enough for you. Perhaps I have missed someone, but I think you are the first to have your exchange done. I feel the relief for you gals as you approach your exchange surgeries.  It sounds like the TE are very uncomfortable.

    Take Care

    Cathy

  • frosty1
    frosty1 Member Posts: 420
    edited April 2010

    I'm noticing a general trend in comments the last few days on this thread and my chemo thread ... everyone seems very down.  Must be a full-breasted moon or something.

    My hair.  After shaving what was left off the sides, I felt like a mangy dog.  It looks just awful.  If it would just all fall out it would be better.  I couldn't even bear to look at myself.  I put a cap on my head as soon as I take my wig off.  And I don't take my wig off in the car anymore.  I think once it all goes, it will be better.  Yup.  Lots of sunscreen in my future.

    Congrats to all of you with your exchange dates!  How exciting.  It seems like so long ago you went through the surgery and waited and endured more pain and discomfort.  Yippiee. 

  • pbebow
    pbebow Member Posts: 575
    edited April 2010

    Kat, hope that you find your happy place... I think that we could be good friends, where are you from?  You crack me up even when your down.

    Lyn, Yippee Squishy in the morning!  Whoohooo!  So happy for you!

    N'Night Ladies!!!

    Paula

  • bookart
    bookart Member Posts: 564
    edited April 2010

    Robin - are you using any lotion or cream on your incisions? My lymphedema therapist has me using some every day when she saw mine were too dry, which can make it feel tight.  Also, are you massaging the incisions?  Two or three fingers, gently move up and down and left and right all along the scar to help decrease adhesions.  On drain scars, too.  Keep doing your exercises - if you don't have at least 75 - 80% of ROM by now you should check with a PT or back with your doctor.  I know you are moving your arms a lot conducting and playing the piano and flute, so you may actually be overdoing - tightness could be from reaction to pain, which is to tighten up muscles to "protect" the pain spot.  So massage might help that - just make sure they are lymphedema trained so they know what not to do.  So that's my two cents; hope it helps.

    Congrats to all moving on to exchange!  Good luck.

    And blessings on all going through chemo, rads and drug treatments - you are stalwart women, good and strong!

    Elaine

  • KatRNagain92
    KatRNagain92 Member Posts: 522
    edited April 2010

    Good luck today Lynbob!:)  I'm really excited for you.  Now that I understand what Yippee Squishy means, I'm all about it!   Laura congrats on your date too!  It's all coming up so fast.  I'm just very curious about the down time...I'm anxious for the full report!  xoxo

    Yes Paula, I think we should be friends!  We are only a hop skip and a jump away from each other. I'm in Central Illinois!  We can hook up at a Hooters half way!:)

    Thanks Marianne for your input on this depression.  I like the idea of having more 4's in my life!  I took your advice right away (it was Tuesday after all) and I feel better already this morning.  Sometimes it just feels like I'm living in a parallel universe and If I can turn some of these things around and look at them from a different angle it's amazing what you can see!

    Again, good luck today Lyn with your exchange...I'm praying for you!

    Have a wonderful day girls!
    Kat

  • jizogarden
    jizogarden Member Posts: 375
    edited April 2010

    Morning all, 

    Kat so sorry your being hit hard by sadness. I hope you see you new PS soon and he lifts your spirits....it is so important to feel your doctor is on your side, is listening to you and want and wants nothing more than to give you what your hoping for.  I hope you new PS is wonderful and lets you know that there is an end to all of this :)

    TNGolfer thanks for sharing the 4 good things a day. It is so easy to fall into days that turn into gray blurs....going through the motions and never do something for ourselves.  I have certain things that are my feel better tricks and I always feel better afterwards: walk Smudge, putter in the garden, vacuum (weird but it makes me feel better to look at the clean floor instead of being tortured by dust bunnies), go for a ride on a back road with the windows opened...Smudge loves this too :)  I admit somedays I can't get out of the gray blur but on days that I do something for myself I do always feel better :)  

    I am so happy to have an exchange date...but also feel guilty about my date because I know so many of you are still waiting and have to struggle with so many other treatments and difficult healings.  

    Strength to all,

    Laura 

  • pbebow
    pbebow Member Posts: 575
    edited April 2010

    Good Morning Ladies!

    I am so excited for Lyn, she's getting her yippee squishies today!  I hope everyone is having a good day today.  It is rainy and dreary looking here in Michigan today, but I'm feeling pretty good.  Actually got out of bed and did some laundry and dishes and stripped the kids' beds.  More then I usually accomplish by this time of the morning.  Sunshine would be better, but hey I guess rain is good (my husband is a farmer so I can't hate the rain, although they didn't really want it this week).

    Kat, last night I posted really quick before I went to bed so I didn't elaborate on what I was thinking...  I sure hope that you come out of your funk soon, it makes me sad to hear that some of you are depressed...  I know what you mean about being a little paranoid about things.  I have a rash on my left TE (2 days now) and of course first thing I think is "OMG!  I have an infection, I'm going to lose my TE and not be able to have exchange!"  I guess since it's still here, there is no guarantee, but I called PS office and they said not to panic, this is normal, just to keep hydro-cortisone cream on it and maybe Benedryl (which I took before bed last night and had a wonderful night sleep!), and if it changes or gets worse to call again.  Let's hope it clears up soon!  My exchange is next Friday!  What you were saying about being afraid of everything you eat and drink...  I have noticed other ladies talking about giving up all sugar and all this and that.  I guess I just haven't jumped on that band wagon yet.  I know that a healthy diet is good no matter what, it's just plain good for you, health-wise, heart-wise, cancer-wise, weight-wise....  and I and my family are trying to eat a healthier diet, but I know me and I just don't think that I would be a happy person if I had to give up everything good and eat only veggies (or whatever they're saying is going to help prevent cancer these days.)  I guess if they were at all um, looking for a word, consistant (yep, that's the word) with anything, but they change their mind every year about what does and doesn't.  I don't know, I am certainly not judging those of you that are going for it, I am in awe of your wilpower and determination, I just can't do it.  I fought this with everything that I could, I was told a lumpectomy and rads and I went for BMX and I would've done anything else my dr. told me, so I feel that I have done what I need to do and of course I am trying to eat healthy and exercise (well, one of these days I'm gonna exercise!), but I want to live and be happy too, so I am living.  I agree there are times when I feel a pain and I hurt and I just keep it to myself, because honestly, no one wants to hear it anymore.  they all think, like you have all said, that we're fine now, the cancer is gone, we look good, normal, and we are fine, who do we think we are still complaining.  So, I try to save it all for you ladies and let everyone else think I'm fine, but sometimes it is annoying.  Sometimes you just want someone to look at you give you an "Attagirl, you're doing great!"  because, yes, this is hard, and even though I am getting close to yippee squishy, I don't believe that I am close to being done with the pain and the other stuff.

    Anyway, this was supposed to make you feel better, I lost my way somewhere in there...  I guess just know that you're not alone and that you don't have to stay away from us when you're feeling down, this is where you need to come when you're feeling down, depressed, hurting or angry!

    So, there, I think I have rambled enough....  Have a wonderful, happy, productive, pain-free day!!!

    Bless & Release,

    Paula

    Faithy-Debbie, we miss you!!!!

  • pbebow
    pbebow Member Posts: 575
    edited April 2010
    Oh, and Kat, Hooter's in middle sounds great! Smile  I'll wear my new Hooters tank top!!!
  • pbebow
    pbebow Member Posts: 575
    edited April 2010

    The Hormone Guide

    Women will understand this and the men should memorize it!

    Every woman knows that there are days in the month when all a man has to do is open his mouth and he takes his life into his own hands! This is a handy guide that should be as common as a driver's license in the wallet of every husband, boyfriend, co-worker or significant other!

    About dinner:

    DANGEROUS: What's for dinner?
    SAFER: Can I help you with dinner?
    SAFEST: Where would you like to go for dinner?
    ULTRA SAFE: Here, have some wine.

    About clothes:

    DANGEROUS: Are you wearing that?
    SAFER: Wow, you sure look good in brown!
    SAFEST: WOW! Look at you!
    ULTRA SAFE: Here, have some wine

    About money:

    DANGEROUS: What are you so worked up about?
    SAFER: Could we be overreacting?
    SAFEST: Here's my paycheck.
    ULTRA SAFE: Here, have some wine.

    About food - dieting:

    DANGEROUS: Should you be eating that?

    SAFER: You know, there are a lot of apples left.
    SAFEST: Can I get you a piece of chocolate with that?
    ULTRA SAFE: Here, have some wine.

    About her day:

    DANGEROUS: What did you DO all day?
    SAFER: I hope you didn't over-do it today.
    SAFEST: I've always loved you in that robe!
    ULTRA SAFE: Here, have some wine.

    13 things PMS (Premenstrual Syndrom) really stands for:

    1. Pass My Shotgun
    2. Psychotic Mood Shift
    3. Perpetual Munching Spree
    4. Puffy Mid-Section
    5. People Make me Sick
    6. Provide Me with Sweets
    7. Pardon My Sobbing
    8. Pimples May Surface
    9. Pass My Sweat pants
    10. Pissy Mood Syndrome
    11. Plainly; Men Suck
    12. Pack My Stuff

    and my favorite one,

    13. Potential Murder Suspect

    Pass this on to all of your hormonal friends and those who might need a good laugh! ...Or men who need a warning.

    And remember: Money talks .... but Chocolate SINGS!!!

  • faithandfifty
    faithandfifty Member Posts: 10,007
    edited April 2010

    Oh Team January, where do I begin?

    Thank you for your encouragement in my absence. I've read along (from a distance) and held you each up in prayer at the time of my reading.

    This is the place to come when we are down, when we are depressed, when we are saddened, when we are hurting. I know that.........

    BUT you are each so very 'new' to the world of BC and I decided that my sorrow was just too much to share at the time. I didn't want to risk overwhelminging you with my pain.

    As some of you may remember, my very real friend and very real mentor, Saint, died last week. She had bravely and valiantly lived with BC for over nine years and had mets for over five years.

    We had known each other for almost three years...... meeting here in BCO's chatroom and then spending large wonderful, amazing chunks of time together since then. Last summer she & her family made her 'bucket-list' RV trip to us for a week in the summer. A realized dream on so many levels.

    I have been encouraged to write a book about our friendship & I feel 'called' to do so.

    Thank you to all who were able to get a card out for her birthday.

    Since my surgery in Jan she had been on her downhill slope toward heaven and we were spending anywhere from an hour a day to several hours in phone support to one another. What on earth could I say that would be relevant to her situation?

    I have been quite a muddle -- to say the least.

    She made me promise NOT to come to her funeral. Which was Mon of this week. I wrote a blog post about how I spent the time instead, but basically took an 'old' and weather beaten angel and refurbished her with restorative (heavenly) love. Therapeutic to say the least.

    Yesterday we spent at the ocean. More restorative/therapeutic/#4 time.

    This disease does indeed rob us of much more than the person-on-the-street will ever grasp.

    You are each just now making the choices & decisions of how to create 'quality of life' in the face of so much that is still unknown.

    I woke up this morning with a new sense of calm and "acceptance" (Saint's favorite word.)

    I'm sorry if my abrupt absence caused worry, as that was not my intention. I just was toooo concerned about you (collectively) to allow myself to ask you for support during Pat's final days. There are others here, who have known me longer, who have been my anchors.

    It does take a villiage.

    Reach out when you are in need. Our worlds have indeed changed forever. It is up to us to find the blessings amidst the carnage. Saint was a blessing. She has forever enriched my life. For that I can always be grateful.

    My heart is full, but I feel sturdier starting today.

    Thank you from the bottom of my heart for your concern.

    I know she is proud of me for finding a therapeutic use for my sorrow.

    xx00xx00xx00xx00xx

    Strength and courage.

    Strength and courage.

    Strength and courage.

  • pbebow
    pbebow Member Posts: 575
    edited April 2010

    Faithy, so glad to have you back and I'm glad that you had anchors and friends that were there for you in your time of need.  Your angel is beautiful, as are you!  There are no words that I can say for your friend Saint that will help you other than to say that she is in a better place now, but I know that never helps me in times like these.  Just know that you were missed, we are happy to have you back and we are here for you as you are always here for us!  Have a #4 day!

    Bless & Release!

    Paula

  • neversurrender
    neversurrender Member Posts: 508
    edited April 2010

    Good Morning Ladies ! 

    I am back, and I have finally caught up on all the Team January news from the past week. 

    {{{{Brenda}}}} I can not imagine what you are feeling with the loss of your hair. 

    Lyn - Good Luck with your exchange today !   You are the first Team January to make it to exchange, so be sure to let us know how things go and how you are doing !  Yippee Squishy !

    Laura and Maura - Congrats on excahnge dates :)  Maura, it appears you will be next Team January, on the 12th.....so exciting.

    Gina - Congrats on the Oaks Day Walk - what an honor!   You're back to work - awesome, you have been through so much, it must feel wonderful to have that small piece of normal back.

    Kim - What a wonderful gift you have recieved from your uncle.

    Paula, Becky, Robin - I think we all have a family member like your SILs.  It's the family cross to bear :)  Fortunately for me, mine was not in attendance this Easter. 

    Becky - enjoy the white sandy beaches.....sounds wonderful !

    I have found that I notice breasts everywhere also.  I never realized the differences in shape and size as I do now.  I think Robin's DH was right on with the van analogy. 

  • neversurrender
    neversurrender Member Posts: 508
    edited April 2010

    {{{Debbie}}} I am glad you are back.  I have been thinking of you and Pat all week.  {{{{hugs}}}}

    Robin - I am so glad you are going for your fitting.  I know this is a huge step for you.  One step at a time..... :)

    Kat - How is your DH's eye doing?  Please don't stay away from us when you are feeling down !  That is what we are here for.  The ups, the downs and everything in between. 

    Kat and Paula - I think Indianapolis would be a good place for you to meet...then those of us in Columbus could be there too :)

    Kat mentioned the parallel universe....sometimes I feel as if I am living there also.  I look fine, I feel good, my prognosis is excellent...so I am fine, right ?  When people ask how i am doing, I always say 'I'm fine" or something similar.  They talk to me for a minute about how amazing I did and yadda yadda, sneak (they think) a quick peek at my breasts and then go about their day.   I wonder what reaction I would get if I gave a full response to that question...I am in no way "normal or fine" mentally.  I feel I am getting better each day, but I will never be the way I was before.  My sense of safety has been stripped away.  I now feel vulnerable in ways I did not before.  I don't think that will ever go away.    

    I wish you all a #4 day ! (Marianne, you may have added another mantra Smile )

    Strength and Courage !

    Never Surrender !

    Sally

  • neversurrender
    neversurrender Member Posts: 508
    edited April 2010

    Paula, I keep forgetting to ask .... I will be in Canton MI in May.  Is that anywhere near you?

  • neversurrender
    neversurrender Member Posts: 508
    edited April 2010

    Anyone heard from Lola lately ????

  • pbebow
    pbebow Member Posts: 575
    edited April 2010

    Canton is about 2 hours SE of me... I'll be honest, when you asked, I had no idea, had to mapquest it!  Sad huh?  Anyway, what are you going to be there for?  May, should be pretty nice then, maybe rainy, ya just never know in Michigan!

  • pbebow
    pbebow Member Posts: 575
    edited April 2010

    Oh, as far as meeting in Indianapolis, it's doable, it's about 5 hours for me so would take some planning and probably an overnight for me anyway...

  • neversurrender
    neversurrender Member Posts: 508
    edited April 2010

    One of my daughters will be in a soccer tournament that weekend in Canton.

    I think Indianapolis is about 3 1/2 from Columbus.  If I remember correctly, I think Kat is in Peoria, so about 3 1/2 for her also.   Anyone else close to Indianapolis ?

  • binga
    binga Member Posts: 140
    edited April 2010

    Debbie- Good to hear from you.  I have thought of you often and am so sorry that you have lost such a dear friend.  I don't post a lot but read a lot and you are always so encouraging.  Your angel is beautiful.  I pray each day you will feel a little better.  Surround yourself with love.  I know us Jan gals love you!

    Becky 

  • robinlbe
    robinlbe Member Posts: 585
    edited April 2010

    Debbie...I LOVE your angel...it reminds me of you and all of the pictures I've seen of you.  I had been folloiwng all of the posts on Pat (Saint), and knew how close the two of you were.  I have loved seeing the pictures of you both, and had a sense of how much you were hurting.  You and her entire family have been in my prayers.  My daughter was hurting for Pat's daughter, as they are nearly the same age. 

    As for Indianapolis, I am TWO hours away from Indy....so if there is an Indy get together, COUNT ME IN!!!!

    Elaine, Yes, I am massaging my scars, rubbing lotion and oils on them, and doing my exercises.  sigh. Thanks for taking the time for the suggestions, though.  Maybe I"m expecting too much, you think?  My BMX was three months yesterday!!  I know my BS said it would take six months, but it just seems as if I'm at a stand-still, but yet the armpits are more swollen, or fatter, or something.....and I haven't gained weight..ha!

    Time to go see my little kindergarteners for music class...they are so tired at this time of day (music at 2:20!!!!).  All they want to do is take a nap (NO, I am not a proponent of all day kindergarten...sorry if I stepped on any toes!)....I'm trying to talk my 12 y.o. son into coming with me and playing his double bass for them today (we've been talking about all the instruments of the orchestra lately and having fun with the old song, "I am a Fine Musician"...remember that one???  And remember the old Dick Van Dyke show where they did that?? You can find it on YouTube...I downloaded it for the kids, and they just loved it!!!).    But it seems I can't even BRIBE my stubborn son to come with me.....sigh.

    Have a great afternoon, everyone...blessings...robin

  • CinD
    CinD Member Posts: 163
    edited April 2010

    Hello January sisters! I haven't posted here lately because I've been going through chemo, so I've been hanging out at those threads for help and support. I've been keeping up with all of you, though, always sending out good thoughts and prayers to everyone.

    Debbie, I was so sorry to read about your great friend Saint. I am sure you were such a comfort to her, and you were so lucky to have each other. I am glad you have had the support you need, and I hope that each day gets better. {{{Debbie}}}

    I understand about being afraid of eating, drinking or anything new. I've recently found help for this in the book "Anti-cancer: A New Way of Life" by David Servan-Schreiber, recommended by posters on this site. I may not be able to do everything outlined, but I can incorporate most of the suggestions into my life. I like many of the foods he says are good for us, so I'm having no problems eating the ones I like but I'm not forcing myself to eat the ones I dislike. I think there is a need for balance, and if we have to give up everything we love or if we force ourselves to do things we don't like, most of us will fail. I can never give up sugar, but I can reduce it, and that's the best I can do, but I feel good doing something that may help. Many of his recommendations just require a little more thinking on my part, and nothing is way-out. He also talks about the importance of Vitamin D for cancer, and I was surprised to find I was low especially since I live in Florida and get outside a lot. I especially like his "Action" page called "Little Changes That Make A Big Difference", where he summarizes things we can do to help ourselves. The book is interesting reading with a lot of good information.  

    Frosty, I am sorry about your hair. Although we expect the big hair dropout, it is still shocking when it happens. The majority of mine came out about three weeks after my first chemo, but I still have a light sprinkling mostly on my sides and in the back. Hubby likes to tease me that he finally has more hair than me, so I tell him to be careful with what he says, or I might just keep it this way. I've gotta say, in this hot Florida weather, having the hair of a 75-year-old man feels really good! It's especially helpful with the hot flashes. My last chemo, scheduled for this Friday, may claim the rest of my hair, but I'm hoping at the end of this to say I had at least one strand left standing! Physically, I've been pretty lucky with tolerable side effects, and the only time I have been emotionally down during chemo was right after #3; I think that was mostly because the hot flashes were a big pain in the butt and kept me up at night. I even signed up for a "Look Good, Feel Better" class then, and it was cancelled. I whiningly told my husband they probably thought there was no way I was going to look good or feel better, so why bother. So I went shopping that day instead and bought a new purse, my little treat to myself for use only after chemo is finished. I think we have to give ourselves little treats along to lift our spirits. When I began chemo, I bought a cheerful yellow rug for the spare room I use to get away from it all, and it still makes me happy when I sit in there reading or watching TV. Frosty, I hope the rest of your chemo goes quickly and smoothly.

    Congratulations to those getting dates for your exchange surgeries! Please let us know how your surgeries go. If all goes well, I'm probably looking at June for mine.

    Friday I'll be done with chemo (yippee!!!) then it's on to Tamoxifen. For those already on Tamoxifen, any words of wisdom? Is there anything special I need to ask my onco about it? 

    January seems like almost a lifetime ago, but readjusting to life is going to take some time. Please take care and allow yourselves to feel everything, good and bad. The good feelings we've earned and the bad we need to feel so we can move forward. I wish you well.

    Cindy

  • burley
    burley Member Posts: 631
    edited April 2010

    Debbie-so sorry to hear about Saint.  I hope all the birthday cards brightened her final days.

    Brenda-take the plunge, girl...shave it all off and I bet you'll feel better!  Gradually losing it drove me crazy-the anticipation hung over me every minute of the day.  I only wear my wig to work-bald at home, and bandanas to the grocery store.

    Had another fill on Monday, and I am not liking what these coconuts look like.  As I get bigger, they get farther apart.  PS said she could bring them in a little bit, but I'm not sure that's going to be enough to make them look natural.  I measured it-there's a 2 inch space in between my "boobs" because of my sternum.  That's a lot.  I showed a girlfriend yesterday and she was surprised how far apart they were and said, "they look hard."  Ugh.  I may have to stop sooner than I was anticipating.

    Oh, and the money I'm inheriting?  I literally can't touch it (can't even deposit it) until we reach some sort of agreement with the IRS, or they could take the whole thing.  All the bills we were talking about paying off-aaaaaaah!  I have a stack of medical bills I can only send $10-25 each month.  Guess they'll have to wait!

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited April 2010

    Debbie:  I'm so sorry to hear (read) about your dear friend Saint.  My thoughts and prayers are with all who knew and loved her.

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