Boston area

Sue-61

Deb, let us know how the MRI turns out. Hope the darn thing is gone for good! Sue

deborye

I will know the results May 14th when I see my oncologist, she is the one that is extra cautious.  That is what I like about her.

Morgan513

Good luck Deb!  Waiting is the hardest part...

Take care,

Lorrie 

deborye

It is just a cyst in the head of the pancreas that showed up when I had a CT scan 3 years ago when I was dx'd.  My onc wanted to do a MRI every 6 months until a year ago.  She wants to make sure is IS gone for sure, if it is I will not have to have anymore.  If I was not dx'd with BC I probably would never have known that I had the cyst.

Thank you everyone for thinking of me♥

deborye

Lorrie how R U doing hon.

Morgan513

Oh I'm okay!  I've been busy busy busy.  I've just started back posting again.  My computer went nuts and I could not load bco at all.  It still gives me trouble now and then.  Oh well...

How about you?  

Lorrie 

etk02038

Deborye-Thanks for asking. Believe it or not I had called my oncologists office twice and left messages for her to call back. Did not get any response. The day after I left the 2nd message I felt it was time to find a new oncologist...I got a bad vibe the first time we met so I'm glad to move on. I have an appt. with a new oncologist May 17th at Faulkner. She is part of Daner Farber. My ex-oncologist treated me like I had a cold not cancer. Still not sure whether I will be able to take tamoxifen or will need the ovaries out due to the cysts.

Good luck with your MRI.

Sue-61

etk02038

I just changed oncologists at Dana Farber. Happy that I did so as my only treatment is arimidex and I don't feel it is that difficult to manage.  Former ONC preferred to be in the Lab and working with patients, which is part of his duties I assume, and seemed to reflect that he was having a bad day at work in the clinics.  Poor bedside manner. I was upset w my new found midriff bulge and asked if my liver was being affected by the arimidex and he told me it was fat. It was the way he said FAT that sent me. And then I asked him how I would know if the Arimidex was working. (there are tests for the tamox) He told me if I got mets, then we would know it was not working. Pleasant thought.  So I changed oncs and the new guy assured me he was 99.9% sure that I would not get mets. Cripe, I had bilateral mastectomies with clean nodes. Good luck to you.

MORGAN, great to see your post, hope you are doing well! 

Sue

nancy2721

Hi everyone, Just found this thread, I live on Cape Cod , being treated at Dana-Farber but receiving my radiation at Cape Cod Hospital. Any one else close by? So glad I have found this place.

etk02038

Sue...my gosh, your former onc. sounds worse than mine. Mine wasn't rude just incompetent. Isn't it nice to have the power to "fire" these bad apples. At least I feel I have some control over cancer in choosing a good doctor. I hope I like my new one.

Hi Nancy..my parents have a home in Hyannis a couple of miles from the hospital and we to to Truro a lot.  It's nice to "meet" you.

deborye

I have been to the Cape once and loved it.

Welcome Nancy♥

glostagirl

Hi all,

Just wondering if there's a summer get together in the works.  I'm on the North Shore, but live out of state in the winter and haven't been able to make the last two meets.  Would love to catch up.

deborye

How is everyone doing??  Another get together sounds good to me, anyone want to plan anything??

glostagirl~what's happening in your neck of the woods?  I think I'm craving for Lobster.  Woodman's sounds good or something similar to that.

June2268

Glosta Girl have you been to Long beach?  It has been years since I have gone I miss the beaches there, oh so beautiful!

 Count me in for the summer get together!!!

deborye

A GET TOGETHER!!

glostagirl

Hi, glad to get such a  response.  Cape Ann is having it's best Spring in years!  I took a break from these boards for a while but am back.  I'm doing well, starting to think about trying for reconstruction again, perhaps in the late Fall (my first time failed).  I'm so looking forward to my first summer in two years of not being in treatment, woo-hoo! 

If people are driving all the way up here, I'd suggest lunch somewhere on the water, there are several places that come to mind.  The Lobster Pool on Folly Cove in Gloucester, right on Ipswich Bay, picnic tables outside, BYOB, a fun spot.  Before or after we could do an easy hike in the Halibut Point State Park (spectacular ocean & quarry setting), which is just up the street from Folly Cove, or shopping on Bearskin Neck in Rockport.  I'd even be up for a picnic somewhere on the ocean, I know lot's of great spots!  Whatever the consensus is, or the weather that day!  

Also, there are several restaurants on Rocky Neck (Gloucester) the Studio has a great deck overlooking Smith's Cove or downtown there's Latitude 43 or Captain Carlos, both have outdoor seating overlooking the harbor.   

I have two friends who are currently in bc  treatment, I'll invite them to join us if they're up to it. Another gal from Maine, I met here, might come down as well.  I'll invite her, we've been talking about meeting. 

deborye, Long Beach is beautiful, we usually go to Good Harbor as we get a resident parking pass there. Wingaersheek Beach is spectacular as well but very hard to get into these days if you're not a resident.  On weekends out of towners have to be there by 9:00 to park, after that they typically close it off for just residents, it's worth it though!

June2268

Glostagirl I love Wingersheek but I hate the fly season.......How can you find out when they are biting?  I know it is bad for 3 weeks but is that in the beginning of the season or late season.  I always wish I knew someone who lived there as that is the beach we frequent often as the kids love the rocks.....long drive from Shrewsbury, but sooooo worth it!

chasinghope

Hi everyone,

I would love to be part of the get together. Has anyone heard of Facing cancer together, it's in Newton. I've been hinking about checking it out, they have a lot of things to offer there and I believe either it's free or on a sliding scale. Does anyone know of any other services offered in Mass that are beneficial? I would be very interested in the next meet up, hope that's ok? I don't burp in public, I have good table manners and I don't talk with my mouth full   I'm just looking to meet up with women that are going through the same thing, the breast cancer world can be very isolating. Thanks for any info in advance! Hope eveyone is feeling well!

CH

glostagirl

Looks like soccer will be cancelled because of the t-storms so I have a few minutes to post.  

Chasinghope, do hope you'll join us.  I've been out of state since December so I haven't made any of the previous meets either.  Re: cancer services, a lot of the hospitals in Boston have cancer wellness services; yoga, nutrition, sexuality/fertility issues, etc...  Check them out online. MGH, where I was treated had a lot of services.  I never went because the times/dates were not convenient.  

There are weekend retreats that are available as well.  I went to one in Park City, UT in January. It was free, they even reimbursed travel fare.  It was held in a fabulous house, overlooking three ski resorts, we had a private chef, the wine, conversation, tears; all flowed.  It's offered thru a non-profit called Image Reborn, they have a website and are also on facebook.  I'm in the process of checking out others in New England, will keep you posted.

June2268...July is greenhead season, although this year everything seems ahead of schedule a few weeks because of the early warmth.  So perhaps it will be over early as well.  Wingaersheek isn't as bad as Castlehill/Crane's Beach in Ipswich, I don't go near that place in July!  Plum Island is bad as well, they (greenheads) eat people alive up there!  

glostagirl

chasinghope,

I used this list to find a group in my area:

http://www.a-zbreastcancer.com/rsg/support-groups-ma.htm 

 Good luck! 

chasinghope

Thank you Glostagirl! I will check it out right now! I just sent you a quick PM as well Night!

deborye

I have been to Wingersheek, I loved it.  I remember those Greenheads at Hampton Beach, OUCH!  Let's plan something.

deborye

Who's on Facebook?  I am.

chasinghope

Hi Deb,

Facebook is getting a little scary these days, with all the loss of privacy. I wouldn't mind but there are so many scammers and spammers. Plus, I don't even know enough people to join. My friends would consist of doctors, oncologist and nurses. I'm a rookie to all this, my goal is just getting out more and not being such a workaholic!  I do want to give a friendly wave to all my fellow New Englander's on the board!

Hmm.....to join facebook or stay off facebook, that is the question?

glostagirl

Hey deborye,

I'm on facebook but am a little hesitant to post it on these boards.  I kinda like the anonymity I have here, it's liberating.   On facebook, I keep things pretty general and mainly use it to stay in touch with far flung family.  I'll think about it though, maybe after we all meet and you know who I am anyway!  

                                                              {{{{{{}}}}}}

yellow78

Hi,

I too live in Gloucester, small world.  I just got diagnosed and the process has been very emotional because I am only 31 years old with two young kids.  I am still trying to figure everything out but I find that the boards have been helping alot.  Jenn

glostagirl

Hi Yellow78,

I pm'd you. 

deborye

Welcome Jenn♥

The chat room and the boards have been my therapy.  I was dx 3 yrs and 3 months ago.  My tumors were under 1cm so I only had lumpectomy 2x to get clearer magins because of DCIS.  I had rads and now I am on Arimidex until July 2012.  I am 58 now and have a 34 yr old DD.  She will start getting yearly mammos next year. 

Keep in touch.

chasinghope

Welcome Jenn,

and sorry that you have joined the club that noone wants to be a part of. Actually, I wish I met all these wonderful women and none of us had cancer, this site has been an absolute Godsend. I've been through the ringer but I'm on the other side (taking one day at a time) Feel free to PM me if you have any questions. Things get better when a plan is set into motion, Chasinghope

deborye

I go to the Breast Care Center @ Baldwin Park II in Woburn, next Friday, the 11th is my next mammo after one year.  I was going every 6 months.  Getting butterflies in my stomach.