Chemo Starting Sep 09
Comments
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Extreme sadness in our family...daughter is having miscarriage @ 8 weeks. I've been with her and her DH off and on for a couple of days. Yesterday was the ultrasound that showed no heartbeat, so devastating, after she'd had cramping and bleeding the evening before. I know many thousands go through this, we've just never experienced it before. They saw an extremely strong heartbeat on 10/31 which led the reproductive doctor to say he was confident there'd be a successful pregnancy. We also didn't realize it was such a process. She's rethinking her idea of a home birth. She's not a youngster either, Jane...she's 36, and had always wanted a June baby (like herself, sister & dad..we're broke in June!). So....chants for a healthy body, mind and spirit. Sending love to you & yours...always.
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Ronnie Kay - so so sorry to hear about the baby. There are no words that will make it better so just know that my thoughts and prayers are with you and your family!
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So sorry for the sadness Ronnie, my prayers are with you and your family
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Thanks for all the nice posts about the "poem" I thought it was pretty terrific too.
Jane thinking good thoughts for your holiday madness.
Vicki congrats on the apartment AND Internet how awesome is that??
Patty hope you are well does DS have a huge xmas list?
Hugs to all my siters.
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Ronnie - prayers for you and your family.
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To all my wonderful SOSisters....wanted to tell you Happy Thanksgiving while I had a chance. I am so thankful for all of you and you wouldn't believe how often I think of you and wonder how all of you are doing!
Holiday craziness is in full swing, I have hired what seems like a gazilliion new people and Black Friday is right around the corner!
Thoughts and prayers are with you. Have a wonderful Thanksgiving!!
Jane
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Yes! Happy Thanksgiving to you all... hoping Neece will check in even though it's not Thanksgiving in Australia!!! Saw photos of the amazing solar eclipse they had.
It's raining steadily but we're warm and dry and blessed.
Here's a list of reasons I'm thankful... though I could do a more, you're all up there on the top of the list!
So thankful for all of you Sisters, and your encouragement and friendship and love.
I'm thankful for our church family here who loves to sit around and visit after Sun. Services - eating my oatmeal chocolate chip cookies, drinking cocoa and coffee and just visiting. What a great way to spend a Sunday.
I'm thankful to have celebrated 40 years with my husband this month!
I'm thankful to be able to say, "I'm going into the other room now" and it doesn't have to be the bathroom. Trailer life was... at times... limiting. HAH! But now, I can actually go into the bedroom and close the door if I want... though I really don't want.
I'm thankful I get to be with at least one son and wife and 2 grandkids for Thanksgiving.
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Just spent time on the phone with a friend who was just diagnosed with IBC (inflammatory breast cancer) - a rare one. She wanted honesty about chemo, etc. It took DH and me on a journey of memories we really didn't want to relive.
But then I came on BC.org and found a discussion board post from a woman celebrating 9 years after dx with IBC and she had a great message of hope which I just sent on to my friend.
I forgot - I'm also thankful to BC.org for helping me along this journey and connecting me with all of you.
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Belated Happy Thanksgiving everyone!
Ronnie, I was heartbroken to hear your sad news. They say miscarriages are meant to be in most cases, but it sure doesn't feel that way. How are you feeling?
Vicki, it sounds like you've found the perfect place. It will be wonderful to get regular updates from you again. I'm so glad your Doc saw improvement and decided not to do the biopsy...ouch.
Jane, I had to laugh when you said you were going shopping....given that you work in a department store, but then your job isn't shopping is it? I hope all your holiday hires do great jobs and make your life easy. Your lovely DD sure didn't look old to me!
Barbara, I'm so glad everything is good with you. I was cooking the other day and for some reason I had a vision of you boiling your bras. Glad those days are over! My DS has NO list for Christmas and only one thing on his list for his birthday next week. I just buy stuff he needs or things I think he'll like and hope for the best.
Gil, I hope you had a good Thansgiving! Did your sons make it home?
Patty -
Posted just before going out the door (with turkey in hand) to our daughter's house for Thanksgiving dinner and lost it...I was so bummed, but my message was basically how I'm incredibly thankful for all of you!
Vickilynn...CONGRATS on 40 years of marriage...we're 10 months behind you! It seems like a lifetime...which it pretty much is
Gladly, it's been a nice lifetime, right Thanks for your thoughts for Meg. It was a pretty rough week as she progressed through what was a bit too reminiscent of labor. But she got through it without a d & c, which means they can start trying again a bit sooner. Let me hear those chants!
Oh Patty, you're right...I remember the misery w/itching for our BarbAnne...so glad for so many things we happily recovered from. At the time, it seemed life would never be normal again...and look at us now
I also remember how we made each other laugh over the most daunting things. Only among sisters, that's for sure!!!!We're off to shop for our SIL's birthday present. Thinking of you shopping for DS Patty...and wishing SIL had no list! He has quite spendy taste, which is really odd because he grew up shopping at thrift stores...I guess that may say it all. OH WELL, he's finally getting the fingerless gloves at Filson he's had on his bday and xmas list for 4 years straight. How can they charge so much for something that's cut off?????
Jane...hope you survived black Friday! Our only stop was Kohl's and Starbuck's. I'll probably be cybershopping. I did it last year w/my broken elbow and ankle and it was sooooooo easy
Love to all!
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Where are my SOS ?????
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Hi Ladies-
Work, holiday, the mass of December birthdays, DD turns 19 today, you know the drill.
Glad your family is on the mend Ronnie, I'm chanting as we speak. I cyber shopped this year too, Holy Cow that was so much easier, and I sat online in PJs with a plate of food. My only frustration was shopping on Kohls the scarf and travel mug i had in my cart were sold out by the time I went to do a final check out...boo...hiss...but it was still super fun, and A LOT more relaxing than standing in line.
Patty, HAHAHA that is funny. In fact I do still struggle with the itch, on the cancer boob, they are fairly certain its the Tamoxifen. It flares up in hot humid, dry col, and when I'm under stress. But I have an arsenal of creams and do my best. I feel for you having a close to Christmas birthday, but it sounds like you have a plan, I think I let my DD become too much of a commercialized princess, but HEY look at all that good I do for the US economy.
Vicki I am grateful you have a door to shut too. The way my DH and DD argue and throw me in the middle all the time, I need to have another room to go to. Congrats on your anniversary. I have about 20 more years to catch up, and believe when i say I am not sure if I will make it. Pesky DH. Oh I almost forgot with chanting for Ronnie I will pray for your friend too, that can be a frightening time.
Jane thinking of you and your holiday madness. Hope you are hanging in there.
Hugs to all my sister, those checking in and those not.
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BarbAnne...Happy Birthday to our DD! I feel like we're all mothers to her!!! Did you read the info on Tamoxifen...gotta keep taking that itchy stuff...we want you to live forever!!!! I guess the good results apply to Femara too and all I can say is that I'm so glad they made it generic! I have a friend that just got diagnosed with chronic myelogenous leukemia (DH's mom died of acute) and they say it's totally manageable with the $5400 a month pills, that thankfully, with insurance, cost $10 a month! She'll take them for life.
I know it's such a busy time for everyone...but thinking of you all with LOVE!
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Hello SOSisters....wow, Black Friday, 6 day work weeks, crazy schedules - that's where I've been. We have all of our hiring done except 2 slots so things will get back to normal for me while it picks up for everyone else in the store.
VickiLynn - it's Sunday afternoon and I wonder if you are enjoying your church family and having cookies. Remember how Pamela Jo used to send us all cookies when we were feeling low? Even though they were virtual I must have eaten many because I'm am so darn fat these days I can't hardly stand myself. I'm blaming it on the Tomoxifin for lack of a better excuse. How are you enjoyig the house? Thought you might get a chance to post more often. We miss your wonderful posts. DH and I celebrated 34 years on 11/22. Don't know where the time goes, but so blessed to have this man in my life.
Patty - have you gotten a list from DS yet? What a remarkable child who doesn't want something. I got a list from both grandson and grandaughter, and several hints from DD! I have been itching and reading your posts about BarbAnne boiling her bras made me wonder if it wasn't the Tomoxifin, never thought about it. It's manageable though and in the scheme of things a minor irittant. Are you ready for the holidays?
RonnieKay - I cyber shopped while I was doing chemo. It was so much easier that I still do quite a bit of my shopping online. Be warned, we have crooks here following the UPS truck dressed in brown uniforms, the UPS driver drops of the package and the crooks follow and pick them up! Not sure how many times this has happened, but makes you think twice about having stuff dropped at the door. How is your DL and son doing? Sorry I haven't posted for a while, busy, busy my only excuse and not a really good one at that!
BarbAnne - don't you wonder where the time goes? DD is 19, you'll turn around and she'll be in her 30's. Time goes by so fast, I regret not smelling the roses more often years ago! Hope things will slow down a bit for you, you and DH need to go on a romantic vacation - leave the worries behind.
To all my sisters not posting - we miss you and hope you are doing okay. Sure would love if you would check in, even just a short post, just so we know you are okay.
Take care dear sisters. My thoughts and prayers are with you!
Jane
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Yes, Jane --- Cookies and soup after church and cookies tonight! We had a joint Christmas Carol sing at the church 8 miles south of here. It was a good evening of music and food (!) and fellowship.
Had not heard about copycat UPS thieves!!! Good thing to look out for. Of course in Coffee Creek when the UPS truck comes it's sort of like on The Music Man "Oh ho the Wells Fargo Wagon is a comin' down the street"... everybody knows him by name and there's only 1 that drives all the way up here!
I'm going to be teaching Christmas music at the Coffee Creek Elementary School next week! The whole school is putting on a Christmas program on the following week and I was asked to lead the music. Yep... all fourteen K-8th graders will be participating : )
Very sad to hear that a good friend has IBC BC - A very rare and aggressive cancer. She just started chemo and I tried to encourage her... those memories are a bit muddied (I'm thankful for that) but amazed at the feelings they stirred within me. Her cancer has possibly already metastasized to her liver. I told her how important it is to have a support group going through it with her... and I shared how you all and many others on this site helped me through the days!!!!
Her hair is already starting to come out and I shared some of my favorite hair-loss stories from you... dropping the wig in the toilet... heads shaved by friends or husbands... and my own lint roller cure for fuzzy head! she laughed out loud and that was so good for her!!!
Thank you for being an important part of my life. Like RonnieKay says - we feel like we know your families, your children, your DHs, your struggles and your joys. Let's keep that going!!!
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Oh Jane...I totally believe femara's dulled my conscience as far as food goes, I just can't stop. Went out for Chinese with friends at lunch today and ate everything. I'm not much of a "luncy" type person so when I go out I have no control. Last Friday I ate a sandwich at my desk (I start at 6 and am off at 12:30, so lunch is sometimes at 9-10 o'clock), then ate "lunch" at Spaghetti Factory...OMG. I felt ill, but still ate it. I joke (and want to cry) that I may need another tummy tuck before long
Omg..my retired DH works part time at UPS (.5 miles from our place) and he tells me about the crooks that follow the drivers, and the investigators that follow the crooks. Our daughter had her Christmas cards stolen from the front porch (picture cards) last year and a couple months ago a package of clothing stolen. With what was in the box, the thieves were able to gather enough info to open credit card accounts at Bloomingdales (not even on the west coast) and Target...luckily they aren't responsible but what a mess! I'm glad you're able to breathe a little at work, Jane. I just spent about 8 hours trying to find a Butterscotch pony for grandaughter. I became totally distraught when I thought they were all sold out...I really need to get a grip on the real meaning of Christmas!!!!
Oh Vickilynn...I love that you're spreading your love for Jesus with the children in town!! I'm sure this Christmas will hold special joy for you and I'm so happy for that. I'm praying for your friend...oh darn, I hate cancer.
DD just got her period after miscarriage. She said it was like nothing was ever different with her body. We're hoping they don't wait too long to try again, but they're still pretty raw from the few weeks of joy they'd felt.
OK gals...I put on a "sort of" real bra today. I've had sports bras, unibras, bras stuffed w/stuff, etc. It feels so good and I actually had someone say I needed to pull up my shirt because she could see my cleavage (don't even know how to spell it since I've NEVER in my life had someone notice cleavage before!). So...feeling pretty good about my new boobies, even though they will always feel strange.
My DIL's mother just broke her hip. It makes me so sad that she has no idea how to advocate for herself and has no real family support as DIL is in California and her brother is not much help. She's not been healthy most of her life, making this so much more critical...(drugs and alcohol were her earlier life, our DIL was raised the first 10 years by an aunt), so it breaks my heart that she's going through this by herself. DIL and Grandaughter may be coming to WA but she's about 6 hours from us so they'll be so close but so far away. We all know how you have to advocate for yourself nowdays...this gal has no idea how to do that.
Thinking of you all....grandsons coming for dinner so better get the mac & cheese on (that'll take about 10 min!). Love you!
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Ronnie, I'm glad to see that your "knitted knockers" are a thing of the past. Hooray for cleavage! Let me know when DD is ready to start trying and I'll get back to chanting!
It is good to hear you are surviving the season, Jane. The stores here are so crazy and the traffic even worse. I honestly dread leaving home. I do some internet shopping (lots during chemo!) but my strategy is to start keeping my eye out for gifts starting in about October. If I see something I think so-and-so will like, I buy it. In this way my shopping is pretty much done by Thanksgiving. Despite having no list.. I've got a pile of stuff for DS. Including all kinds of winter clothing for our trip to Colorado over New Year's when he is planning to learn to snowboard. It was 14 degrees in Breckenridge, CO yesterday. We Southern Californian's shiver when it gets below 70. Brrrrrrrr...
Barbara, I got a nice image of you shopping while curled over a hot toddie in your jammies. Maybe I'll try more of that next year. Holidays and birthdays at the same time are a nightmare! Happy birthday to your DD.
I'm so glad school kids still get to sing holiday carols, Vicki. They are my favorite part of Christmas!
Patty
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Hello SOSisters....I posted yesterday and it's gone never to be seen again! Glad to see everyone is doing okay and getting ready for Christmas.
VickiLynne - glad you are able to post now. We did miss you when you didn't have access. Sounds like you are having a great time and enjoying your home and community. What a wonderful way to celebrate the season. Kids make it so magical. We adopted 18 homeless children, all of our associates bought them gifts. It was such a warm feeling to watch them open their gifts, something they may not see on Christmas Day. They ranged in age from 6-10 and were so appreciative of everything they received. Makes you want to bring them all home, feed them, spoil them.
Ronnie Kay - I have clevage (due to being fat!) If I were to get back to my correct weight I suspect mine would disappear. I'd rather be thin and will be looking at Weight Watchers after Christmas. Sorry to here about DIL's mother, went through the broken hip thing with both my mother and aunt. What is really scary is they weren't so much older than I am now! However thanks to Tomoxifen my bones are in good shape. Hmmmm, hot flashes equals good bones? Are you ready for the holidays?
Patty - I'm like you when it comes to holiday shopping. Knowing first hand how crazy it gets and working 6 days and crazy hours, I start in October. In fact, I tell the grandkids if I don't have a list by Halloween their out of luck getting anything they want
. I hope you have a great time on your winter vacation, I never tried skiing, I'd have to stay inside if I was there by the fire. I'm a warm weather gal myself. Trying to talk DH into going to Key West in March. It will be in the 80's!Don't know about the rest of you but I sure would like to hear from our long, lost sisters. Know it's a busy time of year but a short post would be wonderful!
Take care dear sisters. Thoughts and prayers are with you!
Jane
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Oh Patty....I remember buying winter clothes & snowboards when we moved to Portland from San Diego..Burton everything...ouch! But then again, there were wet suits and boogie boards down there. Have a marvelous time in CO...what an awesome way to celebrate the New Year. You're the best Mom!!! Better be careful, he may get hooked & then you'll be heading to Big Bear on a regular basis!
Jane...I didn't remember you switched to Tamoxifen. Good for you & Patty on being smart shoppers. I always think I'll have so much more money in December when I think about buying presents in Oct/Nov...I really have no idea where I think that windfall's coming from..LOL! We're having a very quiet Christmas w/DD & SIL, other daughter's family will go to in-laws' in Oregon (their turn) & son's family is in CA so we'll go to dinner & a movie.
Talked to my friend's sister in Australia on facetime at work today. Made me think of Neece..again. Just hoping our sisters are doing well. Life is so precious and just want to hear that they're ok. Remember Denver Diva and Pamela, Melinda & so many others. Still am in a fog about the tragedy in Ct...as I'm sure most people are. I find myself being nervous about "strange" people at church (we go to the cathedral in downtown Seattle which is welcome to all people, as it should be), keeping my office door locked in the am hours at work before the building opens to the public, worrying that the people doing yoga at the new studio by our place are open to cars driving by...how nutty am I. It may sound stupid, but I think so many families pay so little attention to each other because they're so engrossed in electronics. We went to our daughter's concert (she's directing an orchestra for one of the youth symphonies) and there was a long line of people waiting for the doors to open. It was in a concert/convention center so there were seats, tables around the line. Families were gathered around, no one communicating w/each other...each person iphoning/ipadding. It made me nauseaus. I totally wanted to scream "Talk to each other!" They were parents and children of all ages. Am I just getting old????? Maybe some of these people going crazy need some attention...me and ranting. Anyhoo....prayers for peace and understanding
LOVE TO ALL!
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Dear Sisters...I know all the talk of the Mayan calendar yadda, yadda, and the world ending...it sort of ended for me today
I had my 6 month checks and they found tumors in my liver. Blood tests showed raised enzymes and it was confirmed from the ct scan. Bone density is great, but next week finds me having bone & brain scans to see if bc matastecized to those places as well. We're all numb. I get my port - for life - next week and will be on chemo for life...until the drugs or the cancer take me to my Maker. It's not good I had the ct scan in June before diep surgery and it was perfectly normal, so this is very fast growing and they're getting started on treatment asap. Our son's family jumped in the car (from Long Beach, CA) and are on their way up here. I was going Jan 4th to be there for Josie's 5th birthday. The oncologist said to consider not going back to work, make precious time count. They say treatment shouldn't make me sick, nor lose my hair. Oh Dear Lord...I pray for miracles Love to all. -
Ronnie Kay - I read your post and am in shock. I don't know what to say. What can I do for you besides pray? I just sobbed when I read your post, DH says to please tell you his prayers are with you too. And yes, we believe in miracles. I've told you about my friend, they gave her 6 months. Her tumors are shrinking and she is doing so good, this was over a year ago! When will you start chemo? I so wish I was close by, I would come sit with you while you do your chemo, tell you stupid jokes and cuss about this damn cancer! Know that all my thoughts and prayers are with you! I love you Ronnie Kay, you hang in there!
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Hello September Sisters...I've been trying to keep up with everything and wanted to stop in and wish you all a wonderful Christmas! Please know I think of you all often. I don't post much but I get email updates regularly~ I've been working hard on my jewelry line...In January I will publish my new Website and the line is called "Bandana Girl Jewelry" Imperfectly Perfect Jewelry ~ Embracing our imperfections...I have some of it on my Etsy site http://www.etsy.com/shop/BandanaGirlJewelry. Each item that is ordered, ships with a colorful bandana for them to wear or share with someone that has touched them with cancer and 10% of my profits are donated to my local breast health center and American Cancer Society. Both were so helpful in my fight ~
Ronnie Kay...I am so so sorry to hear this update. I will pray for you ~ You are in my thoughts and sending big bear hugs to you...I will check in more often....I think this is what we all fear, it's always in the back of our minds ~ I just can't believe it! Damn Cancer....God I hate it!
Wishing you all the best... Lot's of hugs and love ~
Melinda
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I have no words to say... I love you Ronnie!
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Don and I prayed for you and Tom - God's peace and strength for the journey. hugs.
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OMG...You are what I needed! I love you all! Through our laughs, tears, hope and prayers, you're so important to me, so I'm staying put. Just tell me "enough" if I start singing the blues too much. JANE...haven't had a good shower breakdown yet..too numb, but I feel it coming
Melinda...I can't believe you're there! We've wondered about all our sisters & it was so wonderful to see your post! I haven't updated my picture for a couple years, I think, so that's my project now. I will check out your etsy site. Hope your business is rewarding, successful and fun!
Vickilynn...Tom sends his love back...I thank God he knows how much you all mean to me.
We had little Hank and Josie with us at mass yesterday. Hank, 3 different times, knelt on the bench and said, "I'm saying wishes for you Grandma." And whenever I'd look over at them, he'd give me the thumbs up. How can I not live to see these angels grow up!!! Hope springs eternal!!!
Merry Christmas my dear Sisters.
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RonnieKay - you are in my thoughts and prayers. I think I am numb with you but also so angry! You are going to have all of us with you during this journey you will be taking. You know we will be with you every step of the way because that's what our being sisters is all about! I refuse to believe that you won't be able to see Hank and Josie grow up. You know how many advances are going on with all the cancer research. My friend who is doing so well went to Duke for an experimental drug trial. She is a walking miracle. How is DH handling this news? My DH just held me while I cried at your news. He knows how much all my sisters mean to me. Go ahead and get that shower cry out of the way, it will make you feel better! I'm praying for you Ronnie Kay! Merry Christmas dear sister!!
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Ronnie I am so very sorry and will keep praying, We are the September Sister and our chants = miracles. START CHANTING NOW!!! Hugs to you and hugs to your family Love you Ronnie
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Hugs and merry Chrsitmas to all my sisters.
Thanks Jane for the heads up, and Patty for the card, and Melinda for checking in.
Love to you all-especially to you Ronnie!
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We got more snow than we bargained for! 4 days worth and over 3'... plus no electricity except for a couple hours yesterday and then off again until noon today.
It's hard to say "Merry Christmas" when our hearts are heavy for RonnieKay, but I do pray peace for each of you!
I ended up catching a cold from the elementary school kids I helped with music for their Christmas program, so I'm staying home for Christmas. We had been invited to some new friends' home - but the MIL lives there and she is very fragile and in her 80's... so it was best if I stay away with my "bug".
And I have something funny to share - all our appliances are electric (except for our heater which is propane, so we stayed nice and warm during those 4 days) but we had no stove or oven to use. My DH was very creative and he used 3 candles under a rack to heat our soup for us... literally dinner by candlelight! And this morning he wanted to fix me scrambled eggs with ham so he took his butane torch and held it under the frying pan until the eggs were done. Then he zapped the toast with the torch. What a guy!
Ronnie - you know we love you and we want to support you through every part of your journey. Have a blessed time with family.
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Hello SOSisters..... I hope each of you had a wonderful Christmas. Today was return and exchange day. Back to my regular hours tomorrow. All our seasonal hires have been after me to stay, their last day will be the 29th. So many people need jobs, says a lot about the economy .
So I know we are all chanting for Ronnie Kay and our prayers are with her. Between all of us we will expect nothing less than a miracle!
VickiLynn your candlelight dinner sounds very romantic. I am not a fan of cold weather, can't imagine not having any heat!
Patty hope you are enjoying your vacation. We'll want to hear all the details.
BarbAnne hope you got to relax over the holidays. When do you go back to work? How is dd doing with work and school?
Melinda it was so good to see your post. Glad you are doing well. Please post more often. We like hearing from all of our sisters.
RonnieKay you will need to let us know how you are doing and what we can do for you. I know you will get more info as you go for various appts. Remember that miracles happen every day. This from the sister who spent 3 weeks in cardiac ICU and was hooked up to a gazillions machines . I am continually chanting and praying for you.
Thoughts and prayers to each of you . Take care.
Jane
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