Chemo Starting Sep 09

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Comments

  • amyooo
    amyooo Member Posts: 77
    edited October 2009

    Toni, I also enjoyed your story and also shared it with my DH. I am sorry to say I think I am the worst about addressing each person individually. I definitely take more than I give here. :(

    Susan, I agree with Onty and Barbara. You have every right to not feel intimidated and to have all your questions answered and BE SEEN on a regular basis. Maybe, just maybe, she was having a really weird day and the person you met that day is not who she really is. Maybe something personal had happened to her that day. Her nurse said it was not like her. So, maybe you can kinda forget that first visit ever happened and start fresh. Give her one more chance. Then if you meet the same person I would fire her right away and get someone new. You owe that to yourself. I see my onc every three weeks and take a list of questions in with me. That is the only way I won't get bogged down in the moment and forget to ask something. Then when I leave, I write down everything that was said so I won't forget. I also take a support person with me so there is a second brain there as well. It can also help you with your intimidation factor, maybe.

    I'll be thinking of you, keep us posted.

    Love to all, Amy

  • vickilynn
    vickilynn Member Posts: 422
    edited October 2009

    Wow - you miss a day, you miss volumes!

    Pamela - I am so sorry to hear what's going on.  I don't have the hormone receptors so I don't understand this 5-year program.  Is it similar to chemo or something totally different?  I trust my onc. too.  I'm glad you have that confidence in yours.  I guess that's a bit rare.  I just trusted God to give me the right doctors and I have trust He knows what He's doing!  So glad you did research on the liver.  It's nothing to mess with!

    Susan - Wish one of us could go as your "Advocate".  There are some dr's that make me feel I'm facing the school principal and I become this timid little school girl again.  Not a very empowering feeling, is it?  My husband has a great way of dealing with that.  He just calls everyone by their first name... it's a great levelor.

    Jane - I know the feeling of not wanting to eat... I have lots of surplus to carry me through though.

    Toni - Glad you'll have a quiet home again... time to kick back and breathe.

    To All:  Feeling a bit better on day #5... I sure admire all of you who keep working (even part-time).  Some days I can't even make it outside. 

    Husband is scheduled for kidney stone surgery on Tuesday afternoon!  Yeah!  He's been in so much pain that we just have a hard time getting anything done between the two of us.  So thankful we do have each other.  We know he'll be feeling much better by the end of next week.

  • Mamamari
    Mamamari Member Posts: 46
    edited October 2009

    Vickilynn...If you miss 2 wks you miss the entire novel!!!

    Sorry Sisters, I am still here, i've just been in LaLa Land...a tigger week followed by a ....week...!

    I've got heaps of catching up to do but just wanted to stop in quickly to say Happy Belated birthday to both Neece and Onty...So sorry I missed them, I hope you both had truly lucious days!

    Everyone else, please bare with me as I catch up on all the news, I'll be back soon! Promise!!! Have thought of you all throughout!

    Smooooches and snuurgles to all!

    Mari

  • vickilynn
    vickilynn Member Posts: 422
    edited October 2009

    Mari - good to hear from you again.  you were missed!

  • GmaToni
    GmaToni Member Posts: 175
    edited October 2009

    Goodmorning Sisters :

    1.) I missed saying Happy Birthday to Onty....Im sorry, Onty :(

    2.) Welcome Back Mari - Yes you were missed, thought you forgot about us - We didnt forget about you - sexy baldness woman. Take Care and take your time....

    Susan - Bless your heart. There is nothing worse than an intimidating doc. I agree w/ Amy. Maybe give her one more shot. I hate to see you go through it again if she hasnt changed but she may have had a bad day. If it happens again....give her the boot. Any doc will be happy to pick up where she left off...been there done that. I am a health professional (think Amy is too) we know how it goes. Although there is no excuse for her first visit w/ you. I wish you the best. Remember...you have beautiful new boobies and you wont take any crap from anyone :)

    Barbara and Pamela - I hope your days are getting better as we go. Love you both.

    Vickilynn - Day #6? Hope is getting better !!! Good for hubby and surgery - OUCH those are painful :(  ER/PR Positive women have tumors that are hormone driven. After chemo I will be given 5 years of a drug that will shut down ER/PR and will swing me into full menopause. My husband is so excited :) I will be a lunatic. Anyhoo, the recur rate should be less w/ this drug. Not sure if periods come back after the 5 years or what. I dont care as long as the cancer doesnt come back.

    Neece - Hope you are well today.

    Actually, I send my love to you all _ I am pooped. No relatives and I am going to wind down and watch movies today.

    Hello to Jane, Barb, flacracker, domegirl, Melinda, RonnieKay, China, and Catherine

    Melinda - Sorry, what was I supposed to PM you again? I could look back but for some reason I cant find it (toxic shock brain)

    PS: I copied this from my friends on another thread but they found a site called  www.imagerebornfoundation.org- its a BC retreat that is free in Park City, Utah. Only takes about 10 girls (maybe more) at a time. Maybe you know someone interested or us or whatever....Frankly, I like the idea of doing something that is not about BC. Like VEGAS !! Okay, kidding.....(kinda)

  • Pamelajo
    Pamelajo Member Posts: 346
    edited October 2009

    Good Morning Girlies!!  Went with hubby to his 30th class reunion "planner" last night.  There was no planning and too many Patron shots.  I'm up and functioning......he's still abed with the "flu"  LOL  poor baby. 

    I've taken this weekend to stop and think about things and I've decided that my Dr would not even suggest taking me off chemo if she thought it was a bad idea.  She's the type that would back it down and tell me I'll get through it if she thought my body could handle it.  I won't know anything for sure till the 29th.  She's giving me an extra week for my liver to heal and my skin to rehydrate.

    Jane....Vegas sounds rockin.  Oh I'd surely get myself into trouble, but it would be sooooooooo worth it.  Count me in Mama.  Thanks for the PM.  I'm gonna be great, regardless of what they decide to do with me.  LOVE LOVE LOVE YOU!

    Toni:  You are the sunshine of my liiiiiiiiiiiiiiiiiiiiiiiiiiiiiife, that's why I'll always be around.  or something like that.  Glad you are getting to relax a little now.  I like my relatives like I like my hamburger........ground up and in the freezer.  My family is full of jerks and nutcases (worse than me, and not in the haha funny way).  I host Christmas for us here at my house, and I've generally worked my way through at least one bottle of red wine before they get here.  Gets me through.  Don't know what I'll do now that I am not supposed to drink much LOL  Sigh.   LOVE YOU LOVE YOU LOVE YOU!!!!

    Vicki:  Good luck with your hubby's surgery.  My brother has those all the time, and he is in such pain with them.  He never had surgery for them, but we've often wondered if it wouldn't be easier on him.  Thanks for the good thoughts.  I know in my heart this will all turn out the way its supposed to.  Frankly, I'm tired of worrying about it.  My cancer was not in the skin or muscle.....it had spread to two lymphnodes, but they checked 20 that were clear.....  I've been scanned, xray'd, nuclear medicined and they can't find anything else anywhere.  Soooo, I was sort of in a grey area for chemo in the first place.  It was "precautionary".  I've got strong faith.  The good Lord will take care of me.  He has my entire life. :)  If things go awry, I'll get to see my boy, and that is going to be a welcome sight for sure.  LOVE AND HUGS!!!!!  Take good care of yourself while hubby is laid up!

    Barb!!!!  You rock my world mama.  :)  Love you  Hope you are feeling awesome.  I'm going to bake some chocolate chip cookies today I think. ;)  Made an apple brown betty yesterday.......oh my gosh, it was YUMMY!!!  I love this time of year.  Great wonderful produce to make yummy goodies out of.  Pumpkins, apples, persimmons......mmmmmmm

    Everyone......Take care of yourselves and know you are rollin around in my thoughts. Hugs and Smooches.

    Pamela

  • BarbAnne41
    BarbAnne41 Member Posts: 380
    edited October 2009

    hey ladies-

    Mari welcome back

    vickilynn- good luck on your hubbys surgery and feeling back to normal

    Pamela- I am so glad you got a break. 

    Toni-I am going on Tamoxifen too-oh what fun.

    Amy, Catherin, Onty, Barb, Flacracker, Jane, Susan  and every other September Sister hope you are well.

    I am weepy today, I don't know why, bought the kind of paper towels that the picture should face correctly in the upright pole dispenser and I have the rack, that set me off, of all things. And I still have this freakin' headache, woke me up this morning at 4:30. Heat makes it worse and cold helps but then feels worse after. Any suggestions would be gratefully accepted.

    Love and Hugs

    Barbara

  • GmaToni
    GmaToni Member Posts: 175
    edited October 2009

    Hey girls I posted a web site earlier and it was wrong - I now fixed it if you want to look at it.

    Barbara - Honey, I think it was Melinda that had a terrible headache for a long time and she took Claritin. The drug they take for the bone pain from the WBC shot. Can you try that? I might be wrong about Melinda but I know the drug is right. Wishing you pain free days ahead. Stop it now - I order you Laughing

  • BarbAnne41
    BarbAnne41 Member Posts: 380
    edited October 2009

    Thanks Toni-

    I did take the Claritin for the Prescribed three days  (day of shot and two days post shot) Which if Melinda had a long headache too after the clatrtin-make me go hmmm, but the no bone pain was worth it. If I eat something cold it alleviates it, I just downed a pint of frozen yogurt and feel sort of normal-weird. I thought it might be  a hair thing too. 

    I also get the feeling that if I could still take Excedrin this would be a non-issue, but since I am only allowed Tylenol, and that isn't as effective, it is what it is.

    I took a Comtrex Sinus last night before bed, but that seemed to make it worse by 1:30 in the morning and I was ravenously hungry too. Standing in the kitchen eating string cheese and MacIntosh apples is not my idea of fun at 1:30 am. 

    Thank you for the order-I will try captain!Smile

    Barbara

  • vickilynn
    vickilynn Member Posts: 422
    edited October 2009

    That Utah retreat looks like a good program but I question when the founder is a plastic surgeon!  I am so skeptical.  But I am glad something is being done.  You're right, though, Toni, i'd rather do something away from BC.  Vegas doesn't appeal however... too much action, not enough relaxing.

    Maybe a Mexican cruise?

  • amyooo
    amyooo Member Posts: 77
    edited October 2009

    Okay, got buzzed yesterday!

    Now may I have cookies?

    Amy

  • vickilynn
    vickilynn Member Posts: 422
    edited October 2009

    Beautiful - you'll have to ask Pamela for cookies - she seems to be the real baker in the crowd!

  • jadams1264
    jadams1264 Member Posts: 417
    edited October 2009

    Hello SOSisters.. so here it is day 10 and I'm still not hungry but my stomach is better and I could certainly lose a lot of pounds and still not be skinny!  Going back to work in the am, going to make it all day and then go to the LGFG program tomorrow evening.  How's that for a plan?

    Amy - welcome to the world of bald and beautiful.  You are gorgeous!

    Vickilynn - I'm not going to wither away anytime soon, just would love to eat something and have it taste good.  My poor DH has kept the local grocery in business trying to tempt me with things to eat.  Please tell your hubby he has a lot of ladies saying prayers for him on Tuesday!  I hope you will be feeling good by then!

    Mari - so glad you posted, we've been missing you!

    Pamelajo - I can see from your post that the warrior spirit has returned in full mode.  You are so right that you and your doctor will know what is right for you!  If you made chocolate chip cookies today will you send me one PLEASE?

    Toni - I am also doing the 5 years of Tomoxfin (sp?).  I had already gone through menopause and was taking a pretty little white pill for hot flashes which I had to go off when they discovered my BC.  I am now having hot flashes like crazy and my doctor told me when I start the tomoxifin they will be worse x 10!  Not to mention the emotional roller coaster - I can hardly wait!  Now that your company is gone are you getting some rest?

    Susan - take a list of questions and a support person with you.  You need to be comfortable with your doctor, if you aren't get someone else.  You need to able to talk with your doctor about so many things and feel they respect you!  I see my doctor every 3 weeks plus he stops by and chats when I'm there for my weekly herceptin.  Will be thinking of you and sending strong support thoughts!

    BarbAnne41 - it's hard too eat and then it doesn't stick around long.  I'm better but nothing tastes good.  I had the weepies myself this am, was cleaning the bathroom mirror, got a good look at my tired self and just had a good cry.  Sometimes you just need to do that, it really helps.  Of course, after crying looking in the mirror was not any better!  My dr lets me take Advil, can you take that, it might be more effective than Tylenol?

    Has anyone heard from Karen?

    To all I haven't mentioned I am thinking of you but too lazy to consult my list!  While I have letters going out tomorrow am about the reunion if you have suggestions, please let me know.  I'm listening!

    Thoughts and prayers are with you!

    Jane

  • Pamelajo
    Pamelajo Member Posts: 346
    edited October 2009

    Lost the buzz to bake today.  We went on a benefit poker fun ride for a cousin of mine who had a bike wreck a few months ago.  He has severe brain damage....  the outpouring of raggedy old bikers giving donations was very touching.  I doubled up on head covering and donned my leathers.  No one knew I was bald, everyone had head wraps on :)  I love bikers.

    (((gives cookies to Amy))))  All I have left are some oatmeal raisin.....  but I'll throw in a side of apple brown betty for you :)  It's yummy.

    Jane, I hope you can eat soon.  I know where you are and I feel for you.  I couldn't taste anything for 2 weeks this last go round.  I just imagined how I thought it would taste and that would make me hungry.

    Headaches suck.  The claritan will help it.....I take claritan day 1 through 8.  I don't skip a dose or I get a headache from hell.  My ear aches too, which is weird. 

    My onc told me I could take execederin as long as I didn't have fever.

    Well ladies, I'm going to drink some coffee and love on hubby a little.  He's been such a great guy today taking along extra clothes for me, giving me his flap hat when my ears got cold, holding my hands to warm them up, buying me warm drinks.  I love that man of mine, yes ma'am I do.

  • Melinda-Tma3
    Melinda-Tma3 Member Posts: 168
    edited October 2009

    Hi SOSisters...been a little low here for a few days....finally coming out of it and had a decent day at my son's football game, visited some friends drank decaf ice tea...have only had water for a week..yuck... So much has been written here...so much I want to address...

    Pamela...your post about being taken off chemo really shook me up...I honestly didn't know how to respond....which I'm sure you know all to well.  I believe you are right to be comfortable with your docs lead and give yourself time to heal...together you will come up with a plan for your future that will work....and we'll be right here to support every step you take.  I'm send hundreds of hugs and also a piece of Nantucket Cranberry Cake....for comfort!

    Susan,

    This is your life....your doc works for YOU..I would be very clear about what you expect the minute your visit starts.  Write down your thoughts every time you think of something...then have a friend/support person who's good at that stuff (or PM me) help you come up with a suitable list of questions to help you feel satisfied.  I agree that someone should accompany you as well through the visit.  They can take notes and help you remember what is discussed afterwards.... 

    Toni..you are so funny! I read everyones funny posts...&  I just laugh out loud...then I take a nap and forget to reply...so to you and everyone else....you are not forgotten....I'm just OUT IF IT>>>> Wink Chemo brain and all...

    BarbAnne....I am the headache queen...The only thing that worked for me was Aleve...nothing else...I also have sinus issues and so it's been ok'd for me by my Onc to take Aleve and Sudafed...this combo has helped me tremendously.... The clariton was really only for me for the neulasta shot...and worked a little for my sinus problem on days 2-4.  Actually my 1st chemo was the worst for my headaches...#2 and #3 haven't been as bad...but they are still there...If you are getting Cytoxin, ask the nurse/onc about slowing it down to 45min to an hour....I've heard it can also cause the head pain.  No matter what...talk to your onc/nurse about this issue...they may be able to prescribe something or fix it sooner...never wait to share the pain!  also..make sure they ok anything suggested here just to be on the safe side. 

    Amyooo and Barb...love the new you...welcome to the club! You are beautiful!

    Vickilynn...you & your husband are such troopers...I hope he's fixed up quick! and feeling great soon so he can pamper you!

    Neece...I really loved your poem...Ok if I post it on the blog?? What a way you have with words....please share more when they come to you.  You are amazing~

    Blog related...Just to update everyone...I'll be posting the blog info early this week...just working out a few bugs between it and my non functioning brain....Here's the question...do you want the blog able to be viewed by anyone or only us....My thoughts on this is that we share....with our families, friends, strangers anyone that we can help to understand our journey....the names being used there are our post names and no one will see any personal info unless it's decided by each of you to do so.   

    I need an email address for anyone who would like to post their own information, pics, stories, thoughts, artwork etc.  I am more than happy to post for any of you as well, if you're not computer saavy....just PM me with the info or I can send you my private email to send to... whichever is easier.  As some point I'll need addresses to send the pendants out, but that will probably be a little while yet...Chemo brain delay....Those can be PM to me as well.   

    I'm sure I didn't respond to a post that touched me....but to each of you....I am reading and have fallen behind....thanks so much for sharing....I look forward everyday to see what's happening in your worlds and praying for good health for each of you...Big hugs and warm hot chocolate cozy days.....with out SE's.....

    Melinda 

  • barbt0323
    barbt0323 Member Posts: 99
    edited October 2009

    Good evening ladies!

    Just a short note to say "hello"  Well, I finally posted my picture as promised. 

    Will catch up with all of you later this week.  Hugs to all of you.

    Barb Cool

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2009

    Amy and Barb, congratulations on being on the bald side.  I just (really, not virtually) pulled persimmon cookies out of the oven.  There are plenty for you two beautiful ladies! 

    Speaking of the persimmon cookies, l had just exactly 2 cups of persimmon mush.  I resorted to the blender, cause I just couldn't get them to mash with a wooden spoon.  The blender worked fine.  They are a little pancake like vs. being cake like, but I think that has to do with my being at high altitude, and the recipe being from Indiana.  I should have adjusted it, but I was too lazy to pull out my bookmark with the adjustments.  They smelled wonderful baking and they taste pretty darned good, so who cares if they are pretty?

    Thank you all for your response to my doctor question.  I am taking all of your advice, writing things down, and taking someone with me.  I love Amy's idea that she was having an off day the first time I met her.  I am going with that thought.  I also love Barb's thought that I be an advocate for my patient self.  If it was one of you I wouldn't hesitate to speak up.  I wish I could take one of you with me, that would be the best.  I don't know if my husband will be able to go with me, but if he can't I will have a friend go.  In some ways I would rather have my friend go.  She is a psychologist, and she is very well spoken, and a great advocate.  I am going to be okay! 

    Mari, welcome back!  You were missed.  We look forward to your great stories soon.

    Vickilynn, I hope all is well with your hubby.  You are both in my thoughts and prayers.

    Jane, bless you for all of your hard work!  I vote for someplace warm, and relaxing.  I would love to do Vegas with you ladies some day, but having quiet down time really appeals.

    Barbara, I am sorry about your headache.  I hope it goes away soon.  I get headaches really easily, and hats don't help.  I think wigs would be worse and that is one of the reasons I haven't brought myself to wear one.  Good luck.

    Pamela, I am so glad you had a great day.  I have never been a biker, but I way respect them.  I have been in South Dakota and eastern Wyoming several times around the Sturgis ride, and some of those people are very cool, and very sweet.  Some are pretty crazy too, but they were all really nice to my kids, and I appreciate that.  I hope you have peace filled, healing days this week.

    Toni, when is your next tx?  I hope you are having a good time resting up after your company.  I can barely handle my immediate family, everyone else needs to stay far away for now.

    Melinda, I sent you my contact info.  Have you set up the blog yet, and will you give us all instructions?  I have been to a few blogs, but I don't understand all of the ins and outs.  I would like to have it available for friends and family.  The girl who made the tree for me would love to read what I said about it.  Is it possible for it to have parts that anyone can see and private parts?  I am so not computer savvy.

    Okay, all ya all, that I didn't name, I still love you I just have lost my cheat sheet, and I am getting too tired to use my chemo brain any more.  My week coming up is a little less stressful than last week, if you don't count my tx on thur. that is.  I will come back and visit you all soon.

    Sweet dreams,

    Susan

  • amyooo
    amyooo Member Posts: 77
    edited October 2009

    When we switch over to the "blog" please make sure I follow you. I am a little confused cuz I thought we were blogging. LOL I guess I'm computer illiterate, too.

    Susan, I am so glad you have a "psych" friend going with you. She can pick up on what is really going on with the onc. Personality vs. Incompitence. Personality you might can over look.

    Thanks for all the cookies and apple brown bettys!!!!

    Amy

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2009

    Hi Amy,

    You are so welcome for the cookies. I too am pretty computer illiterate, but I think we are continuing the discussion board as well as having a blog. The blog is, I think, a little easier for posting creative works and pictures so that is the motivation. I think it will be nice to have but won't replace being on this site. I do think my onc is competent, I just think she is a bit of an odd duck. I am sure all will be fine, I just need to put on my cowgirl boots and be my own advocate. Plus having a friend there will help sort things out. I need to be a little less tense about it too. I am going to ask my friend to chat with me this week too in preparation. Not real therapy, but a good heart to heart will help me a lot.



    I hope you have a great day!



    Hugs,

    Susan

  • positiveme
    positiveme Member Posts: 157
    edited October 2009

    Godd Morning Sisters

    Wow miss 2 days and miss alot. I have to ask everyone. Yesterday day 9 after my second tx and I was totally wiped out. I couldn't get off the couch. This is the first time it happen to me. I seem ok today just alittle tired but at work. This happen to anyone else. I came out of the blue.

    Susan- I had pain in my lower right ribs for 2 days a couple of days back. I just thought is was a se from the shot. They say it can cause bone pain. You really need to Trust your onc. Bringing someone with you is a great idea. Not all dr's have personalities but TRUST and communication are key. Be stong and get all your answers. If it doesn't go well find another dr.

    Pamelajo- I am happy to see you trust and have confidence in your onc. I am sure the two of your will come up with a plan that will give you a long happy life. My onc said I will be on Tamoxifen for 5 to 10 years because my tumor was highly receptive to estrogen.

    Vickilynn- I will keep your DH in my thoughts and prayers. After tomorrow no more pain.

    Mammari- Glad to hear from you.

    jadams- You will have a great time at the LGFB class. I use alot of the freebies I was given. The cosmetics and lotions are great.

    Ok- I am not computer savvy. So I will need step by step instructions if we start a blog. I assume this is a fourm and a blog is different?

    Wishing all of you a quiet week. Anyone having chemo this week?

    THINK POSITIVE

    chat with you soon

  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited October 2009

    Yuck just when I thought I had seen the worst of AC #2, I have fever of 100.6 and purple colored tongue. Called the doc and will be going in to see her in a couple of hours. Anyone else have this purple tongue before?

  • vickilynn
    vickilynn Member Posts: 422
    edited October 2009

    Onty - sorry to hear of your troubles!  Don't know about the purple tongue.  The fever doesnt sound good either!

  • amyooo
    amyooo Member Posts: 77
    edited October 2009

    Onty- I'm glad you are going in to see the MD. The one week I had fever they called me in, too. You don't want to wait to see if it willl pass.

    Keep us posted, Amy

  • Melinda-Tma3
    Melinda-Tma3 Member Posts: 168
    edited October 2009

    Onty...Keep us posted...I've only had the white tongue and weird rash under my tongue...(I'm having the hardest time spelling toungeu) Smile Fever is nothing to mess with...hope you get fixed up and tell us what's going on! Happy Belated B-day to you too! 

    Big hug!

    Melinda  

  • Melinda-Tma3
    Melinda-Tma3 Member Posts: 168
    edited October 2009
     Just a little early today......Hope you all have a Tigger day tomorrow! Mel
  • GmaToni
    GmaToni Member Posts: 175
    edited October 2009

    Hello Again My Friends -

    I asked a good friend of mine on the boards here how she inserts pictures on BC.org. She told me and I forgot. I know I got to the website, downloaded a few pics even and still couldnt figure out how to use it. If I could remember the website you use maybe I could start over again.

    MELINDA - Hmmmm, bet you know what it is ??

    Thanks girl - it just makes everything look so colorful and fun. I remember when I first joined BC.org, a wonderful woman sent me a box of virtual tissues - it was great. I laughed and cried all at the same time. Considering the pic was a box of Kleenex brand tissues being brought to me w/ a crane (I think it was a crane - long time ago)

    Onty - My thoughts are w/ you today (bet your appt is over by now)  and always.

    Catherine - I would imagine fatigue can come out of the blue at any time. If it continues or gets worse 9+ days into your Tx, call the onc o-kay? Remember, our Nadir is days 5-9 so it could have been the last of the WBC's coming back for the fight :)

    To all with Tx's this week - I love ya - to all recovering - I love ya and MY next yukky one is Oct 27th.

    IM NOT GOING !!!! WAHHHHH !!!! Thats it !! For Halloween Im dressing up as a woman NOT going to her chemo Tx. Whatya think ??

    Well, Im gonna go try and do something w/ these veggies and chicken (sorry vegans - Im trying 70/30 to start) in my fridge - please come to dinner if you can............Gosh, Id love that.

  • Melinda-Tma3
    Melinda-Tma3 Member Posts: 168
    edited October 2009

    Toni! I'm dressing up as your twin and going with you for Halloween! Anyone else want to meet in Halloween world with us??? Oh...BTW,...my costume has long beautiful hair to my butt! Smile

    My last A/C is the 26th...1 week from today...I'm just starting to feel human again....I don't want to go...but I'm happy it's the last...soooooo I'll go.....but not looking forward to another week of yuck! but I'll go.....just to get it over with....so I'll go..... 

    For pictures...I copied the picture to my computer  and then clicked on the tree picture up next to the smiley face option....then found my picture and it posted pretty slick! ...Let me know...I'm offering free picture posting lessons tomorrow afternoon ....Wink   I think you can post from a site too...just haven't done it yet.... 

    Have a good nights sleep tonight everyone...We're one day closer to our goal! Sweet dreams!

    Melinda 

  • vickilynn
    vickilynn Member Posts: 422
    edited October 2009

    Metallic taste in mouth?  I've had it for 4 days and it's yuck.  I did go online to see if there was a solution and it said lemon was a good counter to it.  So I brewed me a cup of Lemon Zinger, added a bit of honey, and I must say it worked... but only while I was drinking it!  So if you need a temporary help, try that.  Anyone have any other longer-lasting cures for this metal mouth?  Reminds me of when I had braces.

  • jadams1264
    jadams1264 Member Posts: 417
    edited October 2009

    Hello SOSisters...made it all day at work, actually felt good and then went to LGFG.  Was interesting and I got a lot of makeup.  The wigs weren't for me but the only other lady who showed up took one.

    Pamelajo - your motorcycle ride sounded like fun.  Isn't it great to get out and do things?  My taste buds returned a little today.  Actually had a salad for lunch and it was good!  Those 11 pounds will be back in no time.

    Melinda - thank you so much for doing the blog.  You are one talented lady!  Glad you are on the upswing!

    Barbt0323 - bald is beautiful!  You are gorgeous!  How is your week going, feeling okay?

    Susan - so glad to hear you are taking your friend with you.  I know you will have a much better experience this time!  Will you send me a cookie, I don't care if it's pretty!

    Amy - we are all going to still be right here!  When Melinda sends you the email address you can see what the blog is all about but we'll all still be posting right here too!

    Catherine - sorry you had such a rough day.  Too come out of the blue must have surprised you, we just don't know from one day to the next do we?

    Onty - what did the doctor say?

    Vickilynn - thinking about you tomorrow!

    Toni - count me in for Halloween!

    To everyone else, hope you are having a good week and having no side effects!

    Thoughts & prayers are with you!

    Jane

  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited October 2009

    Dear all,

    Thank you for inquiring of my health.

    The fever subsided to 99.1 with Tylenol Extra Strength 1000 mg. It again reached 101 late this evening and I am popping Tylenol for that.

    Purple tongue and mouth lining and tiny bumps are oral mucositis for which I was given magic mouthwash. It helped me eat.

    There is no inflammation or redness in throat and the cough is probably an unrelated side effect.

    My WBC's are 1.6 today which apparently is normal 7 days after Neulasta. They should recover by next chemo a week from now.

    My oncologist was super booked so they had her "Physician's Assistant" (PA) see me. Is a Physician Assistant trained any differently than a Registered Nurse? I am just wondering whether next time I have any symptoms and they schedule me with the PA, should I even bother going in or just do a phone consult.... ?

    I also noticed dark lines on my finger nails today. These are chemo marks which are expected to go away when the nail grows out or drops off on Taxol :(

    Love

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