MIDDLE-AGED WOMEN 40-60ish

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  • carollynn79
    carollynn79 Member Posts: 654
    edited February 2013

    hi everyone, I am practicing on the keyboards, right handed of course!  The wine is being chilled and is ready to pour!  Looks like a long winter so will find me a nice beach to dream on for a bit!

    El glad you are coming along, praying that all further surgeries, treatments go well for you, we will be there with you!

    I would have to ask teh ground hog to share, we actualy have problems with them here, and have one that loves to sunbath in the summer in the birdbath, go figure!!

    I have always used Flickr for photos but having trouble anyone else having issues posting pictures from Flickr/

    Hope everyone had a relaxing weekend, it is 15 out so heading out for an indoor farm market at the Flower Shop, local vendors will have cheese, artisan oatmeal, jams, breads etc.  Have to go pick up tamox so might as well do something fun!  Wings and nachos for Superbowlgoodies!

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  • Loral
    Loral Member Posts: 932
    edited February 2013

    Hello, I showed up to say Hi, finally went back to work this week after my long bout with the flu and pneumonia.

    I love the groundhog, even if he loves to eat all my flowers off my hanging baskets that I have on my deck in the summer.

    Glad to hear so many of you are doing so well. Have a great week-end. 

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  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited February 2013

    Happy Groundhog Day!  I love to sing, not sure if I'm worth listening to or not, but I have fun!  Can I join the band? 

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited February 2013

    I played flute and piccolo in our high school orchestra. I also play guitar. Count me in!!!! Can`t sing for shit, but love singing..... go figure.

    Meece, I too, remember a flash of our `real`dear elimar on Groundhog Day last year. But someone teased her so bad about her beautiful eyes that she went back into hiding!

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  • Meece
    Meece Member Posts: 19,483
    edited February 2013

    Oh, if you count high school band, I could add my clarinet skills to the band.

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  • MameMe
    MameMe Member Posts: 425
    edited February 2013

    Hi Ladies, I am loving the development of the band, and the groundhog antics! I am at home now after my first week back at work, post-surgery, and damned glad of it. I slept til 1pm yesterday, and needed it. Now to get more work weeks in before rads start up, as I am pretty sure I will take short term med. leave with partial pay then. The rads center is an hour away on sometimes terrible roads this time of year. if I can get the one week twice-a-day program, that will solve several problems, but I don't know yet if I "qualify" for that.

    I have an appointment to meet with an oncologist 2/12, who ordered the oncotype dx test. My insurance leaves over $1,000 for me to pay, which got me questioning the whole medical/ industrial complex again. I tend to go into a heightened state of outrage about costs of high tech dx and tx every now and then, realizing the motivation of the manufacturers is to sell their product and make a profit. Having a CA dx puts us consumers in a wicked vulnerable place, where we are unlikely to say, " Gee, I think I'll skip it for now, thanks." The docs have to guard against under-treatment or they could get sued. What's a girl to do? Well, plunge into the research and figure out as much as possible what benefit the costly test would provide.

    On the company site, Oncotype Dx tells docs that they can reduce unnecessary chemo in almost 30% of ER positive, Her 2 negative, grade 1 or 2 patients. But that group already seldom is prescribed chemo anyway. These are the things that I get annoyed with and that erode my faith in highly promoted/marketed diagnostic tools.

    However, I have read some recent stuff that suggests ER+/PR- with high proliferation rates and her2 neg, seem to be harder to treat. Recent stuff is implying that the critical factor in the Luminal B group might be the negative PR. It looks like I am in that group, so may find the Oncotype more than just a restatement of data that is already known, making it more worth it than not.
    As distracted as I get with my fits of outrage and my conspiracy theories, I am extremely willing to do well researched and beneficial treatments if I can know the reasons for it, and will gain more than I will lose as a result of doing so. I had unquestioned Luminal A cancer in 2003, and did limit treatment and I feel ok about that choice. Its not the same animal this time around. Plus, I decided recently that I want to live to age 93, and with vitality, at that!
    We have a little sun this morning, which brightens and cheers, hope you all have some of that, too.
    All best, Mame



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  • lostinmo
    lostinmo Member Posts: 922
    edited February 2013

    Happy Goundhog Day! You guys move so fast on here that I can't keep up!  Maybe I just move to slow.

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  • fmakj
    fmakj Member Posts: 1,278
    edited February 2013

    Poking my head out of my burrow to say "HI" to everyone!!  Hope everyone enjoys their weekend! 

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited February 2013

    Hi there, fmakj!  I always just assume you are out there lurking now.  You will have to let me know when you stop.  Have you noticed that this thread has quite the Canadian contingent as we have picked up a few new ones lately?

    MameMe,  From the basic pathology, it wasn't likely that I would be given chemo for my B/C, but I wanted that OncoscoreDx to be the final word on it.  As it was, I was an 18 (and passed on chemo) but if it had been a couple points higher, I think I might have considered it.  I just wanted ALL the info. I could get.  I know that Genomics does work with people who have trouble paying for the test, so they might be able to work out something that could lower your cost.

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  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited February 2013

    MameMe-Genomics never billed me for anything that my insurance didn't pay & I actually don't think they paid anything. I don't ever remember a "billing notice" re" my onco test.

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  • annemarieh
    annemarieh Member Posts: 140
    edited February 2013

    Hey Ladies~ The only bill I got was a co-pay. I too wanted all of the facts. I was only an 11, but here I sit with TEs, getting exchange on Wed. Oh well! This is the life I now lead! Carry on!! (OMG I WANT crunchy Cheetosssssss)!!

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  • MameMe
    MameMe Member Posts: 425
    edited February 2013

    Annemarie, I would leap at any possible diagnostic tool with a triple neg. situation like yours. It sounds really involved and challenging to go thought a BMX and then recon. You have guts!

    Eli and Eph, I am hoping for a break if I go ahead with the test. I spoke with the company and they laid out the gap plan they have, so I need to talk with DH about last year's taxes. I think we will need to do a lot of math before we will know if they will help out.

    Have a good Sat. night everybody,

    Mame

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  • annemarieh
    annemarieh Member Posts: 140
    edited February 2013

    MameMe...OMG!! NO! I need to fix that!!! omg! I'm not triple neg. oh crap! I am ER/PR +!Sorry!!

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  • MameMe
    MameMe Member Posts: 425
    edited February 2013

    A miracle cure! ; )

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  • MameMe
    MameMe Member Posts: 425
    edited February 2013

    Sending virtual crate of favorite crunchy Cheetos to annemarie, even though its Sunday. Our virtual PO is always open, no lines, no waiting...

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited February 2013

    It's Super Bowl Sunday, everybody should be stocked up.  Just don't pay those WalMart prices!

                                   

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  • powermom
    powermom Member Posts: 195
    edited February 2013

    Okay, now you've done it! Gotta have Cheetos when I go to

    the store.

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  • carollynn79
    carollynn79 Member Posts: 654
    edited February 2013

    Darn forgot the cheetos!oh well will take a bag from above!!  We are going to enjoy good food and friends for superbowl, bbq and asian wings, queso with tortilla chips, egg rols and macaroni salad, what a combo but there is a favorite in there for everyone!!  Will have to make a batch of Sangria too!!

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  • Meece
    Meece Member Posts: 19,483
    edited February 2013

    I was starting to get jealous of Annamarieh because they usually don't give TNs the oncotype test.  They didn't give me one and I found out that was why.

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  • odie16
    odie16 Member Posts: 1,882
    edited February 2013

    Carrollynn 79,



    Pass the Sangria please.....lol



    Or a good recipe, ha ha!!!!!



    Hope everyone enjoys the game and that I win lots in the football pool....

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  • jocanuck1951
    jocanuck1951 Member Posts: 1,003
    edited February 2013

    jeez, pass those cheetos!  xoxox

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  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited February 2013

    I'm heading over to a friend's house to watch SB!  There's just going to be 3 of us there so we were just gonna get a pizza.  Now the hostess has informed me she's made some dip for chip & veggies, and she's made a cake.  The other gal is bringing broasted chicken & potatoes!  I was gonna take Costco's Asian rice cracker mix--I think the 3 of us will be gaining some serious weight this afternoon!  

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  • annemarieh
    annemarieh Member Posts: 140
    edited February 2013

    Eli!!!! You're my hero!!!!! LOVE THE PICTURE!!! Already popped the Cup Cake Chard...mmmmm Waiting for DH to get home grom work! (and painted my fingers and toes for exchange on Wed)

    Quick non-SB question...Do I wear a button down shirt as I did for BMX? Should I wear my undies I got at VS, that say on the bum...Give me your candy? For PS/anasthesia???

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  • annemarieh
    annemarieh Member Posts: 140
    edited February 2013

    Jo~ Love the new pic!!!  :)

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  • jocanuck1951
    jocanuck1951 Member Posts: 1,003
    edited February 2013

    Thanks Annemarieh, just trying to keep up with you gals! Hubby is retiring, I'm sooo happy! We're watching the game. Xoxoxox

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  • heartnsoul76
    heartnsoul76 Member Posts: 1,648
    edited February 2013

    Barbe - The flute was the main instrument in one of my all time favorite rock bands, Jethro Tull. So we can definitely use a flautist when we play "Locomotive Breath". Check out the flute at approx 2:50 http://www.youtube.com/watch?v=uCcwNoVSt2E

    carollynn - I hear the piano in the beginning of that song, then Eph can come in with her electric guitar... then BAM! we're rocking!

    And Meece, we'll need your clarinet when we do "Glow Worm" for sure. 

    Native, Barbe and all - we'll just sing our hearts out and we'll sound great. My ex-DH believed if you sang loudly, no one could hear if you were off-key. Once it took me forever to get him up on the stage on Karaoke night (about 6 drinks worth) and he picked "Twist & Shout" by the Beatles. The crowd loved it - haha!

    We'll definitely need our groupies - you'll have to psychologically pump up the crowd into believing we're awesome.  Important job - I don't like rotten tomatoes!

    I'm getting kind of anxious to spend my money after all and get that practice drum set. I'm feeling a desperate need for a hobby lately.

    I totally can not get into the Super Bowl, or as my son calls it "superb owl".  My Atlanta Falcons just missed being there by a few seconds, so depressing.

    Elimar - so happy to hear that you are feeling more and more like your old self! Sounds like you're rebounding quickly. Maybe surgery won't be necessary?  And if so, I bet you'll heal from that beautifully, too! 

    Mame - 93 sounds like a good age to me! Your decisions are so hard right now - I know with all the careful research and thought you're putting into it you'll make a good decision.

    I was totally pre-occupied with other stuff on Groundhog Day - I like your idea of making it into something big and silly, Elimar, and calling old friends up.  Now I feel like I need a yard flag that says "Happy Groundhog Day"!

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  • barsco1963
    barsco1963 Member Posts: 2,119
    edited February 2013

    Not much of a football fan myself. Kind of wish I was. The food sounds fantastic. I am spending my evening with The Simpsons - mindless entertainment for a Sunday evening.

    Odie - good luck with the football pool!

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  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited February 2013

    Just roll me straight to my bed; I'm a blimp!  

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  • Cynthia56
    Cynthia56 Member Posts: 27
    edited February 2013

    Annemarieh, definitely wear your new VS panties to surgery!  I wore my cheetah bra/panty set, nobody saw it but me, but it made me feel good inside!

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  • Dianarose
    Dianarose Member Posts: 2,407
    edited February 2013

    http://articles.latimes.com/2013/feb/01/opinion/la-ed-medical-sunshine-20130201

    More keeps coming out of just how much money some of us make for our doctors. My MO wanted me to go on a trial that he said would not help me, but might help others. I passed.

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