Starting chemo January 2009?

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  • Renrel
    Renrel Member Posts: 497
    edited November 2009

    I went to art therapy today and the theme was time, focusing on how the two of us who attended were around a year into the journey.  I really like the piece I made.  I cut up a calender and pasted one unlable month it in the middle of a piece of paper. Then a clock is pasted on that. The the names of all the months are surrounding the month.  But they are all out of order and some are upside down or sideways.  The most important months, when things started or ended were allowed to cross on to the month.  Then there are days of the week pasted every which way all over the piece.  And for watches in the corners.  It is supposed to symoblize how time was all messed up this year.  Important and  yet meaningless. Fast and slow at the same time. 

    I did two other exciting things while at the hospita.  I bougjht a new bra for the new boobs.  I have been wearing my surgical bras and not only are they not pretty and not as supportive as the doctor wants me to wear but they were not very clean since with only two it is hard to always get them washed when you have to wear them day and night.  If I am too tired to handwash them then I don't.  Sooo yucky, even with out all the creams and stuff  for my ichy skin reaction.  What a bought is a basic comfortable support bra with cups rather than just streching cloth pulled across the boobs.  The second thing I did was check out the exibit of patient art they put up on the 9th floor of the building I get my treatments and support in.  I had an art piece and a writing piece on display.  I thought the exibit would be bigger.  There were only around 10 pieces up.

    I have a question for all of you.  I am having a strange symtom lately.  My taste buds are all weird again.  Not as bad as during chemo but there is yucky taste in my mouth much of the time. Anyone else have this or ever hear of anything like it?   

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited November 2009

    Wow, Renrel, don't know anything about the taste buds.  I'll have to look around and see if it's just everything else- it'll take a year to get back to "normal".  Ha!!

  • BerkeleyKim
    BerkeleyKim Member Posts: 390
    edited November 2009

    Hey Jewels! Reading through the posts, remembering the last year, so happy to have had the support of you all! We HAVE gone through a huge deal. I remember people asking me how I did it--well you just do, and the support here sure helped me.

    A year later I'm feeling almost better than before my surgery--I think my tumors and lymph nodes were wearing me down.My arm's still sore, and I have aches and pains that I hope are just due to Arimidex or the ibandronate bisphos. But I'l able to walk the hills for 2-3 hours, work all day and go to school at night so I guess I've come a long way!

    Found out this last weekend that an ex-neighbor and friend who moved away several years ago (our kids were friends and shared childcare) died after falling down in the post office, breaking her neck, then getting pneumonia. Then I read tonight that a friend of my son during their elementary years (they graduated high school together) just died unexpectedly at 22...what a crazy sad world this can be.

    Cindy--love the kitty. Looks like a younger version of mine (16 years old). I love tabbies.

    Anyone getting the H1N1 vaccine? I'm not sure. My students are just coughing, sneezing, oozing all over me. Yuck. I did get my regular flu shot. So far so good. I really want my kids to get the vaccine (Jess--seems like your dd made a really quick recovery!)

    Off for my nighly walk!

  • Renrel
    Renrel Member Posts: 497
    edited November 2009

    Kim - So hard to hear stories about people passing on before we are ready to let them go.  Glad you are feeling so strong these days!

     My recovery is going well.  The rash is mostly gone and I finished my course of steroids.  Last night was a big milestone- I was allowed to sleep in my stomach.  I usually sleep on my side but since I can roll onto my stomach I was on back sleep since they surgury 2 weeks ago.  I slept with big foam wedges under my head and feet.  It was not bad falling asleep but then I would wake up wanting to change position and roll over, and was not allowed to, so I would stay up instead of just falling right back asleep.  

  • holtbolt
    holtbolt Member Posts: 625
    edited November 2009

    Renrel.. funny u should mention that... I feel like I have a coating all over my tongue and inside of my mouth again.... wth!@  I keep brushing my teeth over and over trying to get rid of it...

    I signed my son up for the H1n1 at school (late November?) but I'm undecided about myself.  Would like to hear too if the Jewels are opting for it....

  • ladyjane54
    ladyjane54 Member Posts: 192
    edited November 2009

    Jess:   Just wondering why you have to wait?

    Patti

  • BerkeleyKim
    BerkeleyKim Member Posts: 390
    edited November 2009

    My tongue feels weird too, starting just a couple weeks ago. TMI--but kinda brownish. Ick. Feels almost like I burned it.Taste buds fine (and enjoyed way too much chocolate over Halloween!). Maybe it's the chemo still...?? I have lost most of my brows again, although the second round of eyelashes are coming back well. Kmmd--hate the thought of a 3rd round!

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited November 2009

    Ladyjane--I have to wait for the final exchange because My radiated breast is too swollen and because of that may slip more quickly into capsular contraction. I hope to have the surgery the last two weeks of December when ,of course , the last days of insurance will sagaciously cover my treatment.  After that, all bets are off. 

    I personally feel my foob is ready and one month isn't going to make that much of a difference.  I will be very glad to get the freakin cocoanut shell offin my chest!!!!!!!!YellYa know whata I mean!?

    BKIM---I so miss those walk /hikes you describe.  Tell us more!!

  • Renrel
    Renrel Member Posts: 497
    edited November 2009

    Sorry you are feeling it too Kim and hotbolt, but it is good to hear someone else having the same symtom.  Makes me more comfortable assuming its a weird chemo thing rather than a rare symtom of bc in the brain.  Are you girls on Tamoxaphen?  Just wondering which miricle drug to blame this one on. 

    Chemo brain hit again.  I scheduled DS booster flu mist too soon, counted the days wrong, so I wasted about 2 hours day going back and forth to the doctors office.  But I did have a nice afternoon with DS.  We finished half of his thank you cards, had sipping chocolet and did a Sodoko puzzle.  In the car he also sang the songs he is learning in music class (very very off key, and I do not have an ear to even know what it means to be in key- but if it hurts to listen to it I figure it is off key).  

    Yesterday I went to parent teacher conference.  As we knew, DS is way beyond the other kids in his academic stuff.  They have gotten him to read to them at a mid first grade level so far but have reached the point that is to hard for him in order to tell us what level he is capable of reading at.  They have not done math evaluations yet but while the rest of kids figure out how many days to the next bundle of 10 days (they count the first 100 days of school), they ask him how many till day 75.  But the important thing, that we could not know going in, is that he is getting along with everyone.  He likes every one and appears to be well liked by his peers, though the whole class apparently is not really jelling and the teachers are trying to figure out how to deal with that.  They seem to be encouraging parents to make playdates.  I get the same feed back from afterschool. So,.so far, so good.  He seems to like the girls more than the boys even though in preschool he favored the boys.  Maybe the girls are more mature and social and academic so he gravates to them?  The one big problem he is having is, while he is a wiz at sounding out stuff and writing his letter for journaling and writers workshop, he suffers from writers block.  Nothing is good enough so he writes nothing, or does not start writing till the end of the 15-20 minutes alotted time.  

    Oh, if any of you are not collecting them for anyone else and would not mind, DS would be thrilled if you would cut out the general mills box tops for him to bring in to his school.  They get 10 cents for each one and if you are already buying the products, and gather enough not to lose money on postage, it is a win/win fundraiser. It is on going so you could mail them to me whenever it made sense to do so. It is not really boxtops, just some of their products have a logo that says boxtops on it and that is what you cut out.  Things like zip lock bags, fiberone cereal, cheerios, bisquick and pillbury muffins.  He counts out what he raises in cents not dollars, so he thinks he is making his school rich with every $1, which is of course a whole 100 cents. If you are willing to register on line this month they will give  his school (Williams elementary in Newton Ma) 5 tops and the site has some excellent coupons for General Mill products (and I am not a big coupon clipper, but 50 cent to $1 coupons for a single item purchase of a product I use anyway catch my eye. ).  And if this is just to much work and bother I totally understand that as well.  

  • holtbolt
    holtbolt Member Posts: 625
    edited November 2009
    Renrel.. I am on Arimidex... I know it's responsible for achey joints but not sure about the weird mouth thing... Smile
  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited November 2009

    Renrel, 

    I'll get box tops around.  I should mail these to his school ????

  • kt57
    kt57 Member Posts: 425
    edited November 2009

    Greetings Jewels,

    My week in Mexico was heavenly!   Absolutely NO aches and pains -- wonder if that was the weather or the tequila!    It was ok to go to the same resort as last year -- where I sat on the beach contemplating a breast biopsy and likely cancer treatment to follow - that unknown fear we all went through.  Thought is might be a little PTSDish, but it was really quite healing - now contemplating surviving and thriving.   Wished you all could be there with me.   We could have celebrated in rare form!

    Holtbolt: February 23!!  You will be ready!   Laughed at you clown hair comment -- I need a perm to get there -- my previously stick straight hair is still that..and I think it is a little finer, maybe an Arimidex SE.   Oh well, it is hair and I am grateful!

    Jess: Sorry about your nails.  Mine haven't fully recovered. Just when I think I am close to having normal nails again, one or two will partially loosen up.  I have been taking biotin and I do believe that helps - my nails feel strong and are growing at good rate.   I am still having some residual neuropathy in my fingertips ( toes are better) and I wonder with the cold weather, if the nerves are contributing to the nail problem...  didn't notice it so much in Mexico.

    Patti:  Your first haircut!  There is progress!  Thinking of doing the same, the back is growing so much faster than the top.  Won't need a trim to the bangs for months. LOL!

    Renrel:  Happy to hear you are recovering well from surgery. 

    kmmd:  Count me in on the January 2010 toast!!!!!   We have earned the celebration!

    I see my med onc this week.  Have my ususal list of questions -- will ask about the H1N1 vaccine - I see on these boards there is a mix in recommendation.  Hope to see my imaging studies MRI and mammo (like I'd know anything when I see them!)  - he's really good at explaining them.   I am more fatiqued in the last month -- think weaning off caffeine has something to do with that -- I am beginning to think small, well- timed doses is more appropriate for my well being.  I am also wondering about my radiated breast - when do the radiation changes stop and stabilize  - it been 5 months and it seems to still be tightening and nerve endings in armpit and down that arm are sore, with shooting sensations sometimes. Stretching a massage do help (so did a week on the beach!) 

     Wed 11/11 - the anniversry of "the call".   That day will be a mix of emotions I  am sure....mostly positive, filled with gratitude.   I am mostly feeling strong and optimistic -- only occasionally I go down the "what if" path....serves no real purpose, but it is human nature to be fearful from time to time.  Haven't had a day when I haven't thought about bc -- looking forward to the time when it isn't so present in my life.  

    Good to stay in touch -- hope you all continue to do well.

  • ladyjane54
    ladyjane54 Member Posts: 192
    edited November 2009

    Kathy:  So glad you had a good time in Mexico.  Sounds wonderful.  I like the sound of "surviving and thriving".  I think that sums up where I am at right now too.

    It is great to be feeling well.  I did not realize just how out of it I was until I started to feel normal again.

    I was told radiated breast could continue to change for up to a year.  I will be having reduction on the right side to make me the same size on both sides once the left one is done shrinking and I was told I should wait until at least 9 months but preferrably 12 months.  I think I will have it done sometime this summer when I am off work.

    "What if'  path is hard to stay off.  As I come up on the 1 year mark from my "call" 11/17,  I think about how shocked I was when they said it was cancer.  I had found the lump myself and was sure they were going to say it was nothing.  One of the things that bc has robbed me of if peace of mind.  I now think everything is something!!!  Know what I mean.

    Well feeling lots of aches and pains lately from the Femara.  Not sure exactly what to do about it. Taking tylenol now which seems to help.

    I am due to have a mammo done and need to schedule it.  My onco told me to do so as soon as I felt I could handle it as I just had surgery to close hole.  Stitches have been removed and I think I could do it soon.  May wait until December. Not looking forward to it.

    Waiting to hear from son in Hawaii on the birth of my second granddaughter this year.  She was due on November 5th.  Seems to be content where she is.   Say a pray or two for a safe delivery and healthy baby for me.

     Hope you are all well and enjoying life again.

    Patti

  • Renrel
    Renrel Member Posts: 497
    edited November 2009

    Wedsnday is the Anniversary of my surgury.  By the end of that day I will be a full year cancer free. 

     I was writing in my journal/blog/carepage, about how these days I am feeling abit like I have a time bomb inside of me. That there are tiny little cancer cells waiting for me to get lazy and make stupid health choices.  The pressure to eat right, sleep enough, by organic, excercise, mediate, maintain and strenth relationships and everything else can be overwhelming at times when is feels as if not doing so is inviting the cancer to grow again.  And as you all know, it is hard to even know what you should and should not be eatting.  So many different ideas and with chemo brain I just can't get myself to read through studies. I just want the quick summary. Which throws me back into the guilt/fear of not doing enough, caring enough to stay alive.  The reality of the cancer and my mortality is hitting me more and more.  The way it did not while I was in treatment.  I would not say I am depressed, but I am not as UP and BRIGHT as I was while I was dealing with chemo and surgery.  Of course I am still in recovery from the second surgery.  I am not being very good. I do reach over my  head and carry more than 10 pounds, but I don't do it alot.  I can feel where the surgery was done if I press down with my arm hard enough to try and scratch crude off of the counter.  

    We had a busy weekend.  My neighborhood has an annual progressive dinner.  Around 100 people participate.  Each course is at someone else's home.  We did wine the last two years so we did not host.  The first year we did not yet own the house and last year I was about to have a bilat masectomy, so this year we volunteered to host the main course.  They say to keep it simple and that take out is even OK.  The idea is to get together with people and meet more of your neighbors and catch up with those you don't see often, not to wow people with your cooking skill.  The last two years we were served Lassanga.  We thought we were keeping it pretty simple with a broiled fish, frattata and vegtable, all dishes we make all the time for ourselves.  But the proved a bit more challenging when we made them bigger.  Finding a pan that was big enough, figuring out how to get everything in the fridge while we were at the first to courses.  But the real challenge was getting all the clutter out of the dining room, since we normally live like pigs.  The room looks so nice now, but that is only because all the clutter was relocated, not actually thrown away or given a place and/or purpose.  It was so nice to take out all my good china and flatware and crystal and serving pieces.  We had a good time.  Sunday we slept late, did a bit of clean up, ran errands and ended the day with a little bit of hiking since the weather was sooo onice.  When we got  home I took a 4 hour nap.  I decided to stay home today and work on more cleaning house stuff instead of going in to the city for yoga and some work.  It was a good thing too because it turns out there was a gas leak on the street in front of my home and my home sits right on the street.  The crew has been here all day putting in a new line to our home and I had to give them access to the basement.  

     

  • Renrel
    Renrel Member Posts: 497
    edited November 2009

    Big milestone today. I am one year cancer free.  Can't wait to be able to say 5 years and 10 years!  One year ago today I sacraficed my breast to save my life.  Three weeks ago today I replaced those much loved breast with slightly larger silicon breasts that I am still growing used to.  I want to thank all of you for helping through this year and I hope to still be a part of all of your lives 50 years from today. 

     TO LIFE!

    Renrel 

  • BerkeleyKim
    BerkeleyKim Member Posts: 390
    edited November 2009

    Renrel--YES!! TO LIFE! I like your perspective on the surgery. My date is tomorrow. I didn't so much feel it was a sacrificial boob but a bomb that I just wanted the heck off my body!

    And your previous post really hit home with me. Not only the bit about the dining table!! (Where is mine...? Buried under piles and piles of stuff.) When we were being treated we were being fixed. I'm trying to convice myself that I've been fixed and that the arimidex and the bisphosphonate trial drug I'm on will help keep me that way, but of course there's that dark, doubting place. I think I'm less in denial now than during treatment about the possibility of recurrence and my risk. That's hard. It's something I need to figure out how to live with. Some days are better than others. The death of the parent of my student really hit hard, I'm realizing.  I lost it last weekend because I wanted to go out of town to relax at Tahoe but no one else did--although they were "willing."  I felt panicked thinking I might not be able to see the mountains again in fall. My husband said well I guess you just need to do everything right now. Right. I realized that I will need to do things with other friends if I want to do them. Kinda sad...

     I'm going camping with a bunch of teacher friends in Big Basin Redwood park this weekend. Decided to invite my husband too, and I guess he's more than "willing" to go--even got some equipment out. Just decided to get a tent cabin rather than a tent. So, I'm trying to live the life I used to live but make sure I get some fun in too!

    Great to have a mid-week day off. Thought about my dad--the WWII vet, whom I miss terribly still.

  • holtbolt
    holtbolt Member Posts: 625
    edited November 2009

    Renrel.. congrats on the one-year mark!!  Mine is sometime this month but I have no idea the date....

    BerkeleyKim... wow... spot on what you said about "willing".... it seems I am the only one with a bucket list.... I want to do all kinds of stuff but everybody else who hasn't been through this is so unenthused about my ideas.. lol.  Oh yeah.. they didn't go through this hideous battle... I guess I can't expect them to know what I'm feeling.... or can I..... ugh.....

  • kt57
    kt57 Member Posts: 425
    edited November 2009

    Made it through my one year date.   As I suspected, it was a mix of emotions.  Mostly it feels darn good to be alive and cancer free!   I saw my med onc yesterday -- set the plan for surveillance.. mammo in March, MRI and maybe mammo in Sept. .. with clinical exams every other month.... I hate being "high-risk"!  I am usually able to put it out of my mind, but it's tough when we talk about  my genetic status and "catching the next one early" if there is a next one.   Then he asked if about my son and what he's decided about testing for this mutation -- med onc doesn't think he has to rush to decide.  If positive, he is a higher risk for breast cancer and prostate cancer in his lifetime -- he's only 21.   Med onc recommends he have annual exams and live healthily....and start screening earlier.and that should be good for now.    I am OK with that -- we don't even know if this mutation is a bad one -- it is suspected to be, but no research has been done on this specific mutation.   I am hoping my aunt in CA will be tested -- she is 88 with no breast cancer - if she has the mutation, then there are better odds that it is not a problematic mutation.   Let me tell ya, it is no small feat to get a relative with dementia in a nursing home genetically tested - in a far away state.  Jumping through many hoops, but I think the ball is rolling in the right direction.

    Hope you are all doing well.

  • jillyG
    jillyG Member Posts: 401
    edited November 2009

    Hi Jewels! I had my one year follow-up mammogram and the radiology clinic called me yesterday and said I need to come back in for more views (of my healthy breast) and that she would have the report to my doc in 30 minutes, that I needed to call there and they will discuss why I have to come back.  Well, let me tell you, I got off the phone, and cried for the next 30 minutes until I talked to my doctor, I think I had myself one foot in the grave.  I just broke down.  My husband came home from work (only works 5 minutes away) and waited with me until I called the doc.  So, she said that there was shadowing and they just want some new pictures to make sure given my history.  But, I had an ultrasound done at the same time and she said the ultrasound came back with nothing, all clear, so I shouldn't worry at all.  I don't know why I panicked, I guess it's just the way the radiology girl put it to me, sounded so important and she booked me in first thing Monday too, so I figured it was something really wrong.  Yep, longest 30 minutes of my life, I wish I hadn't immediately thought the worst.  When I was crying I kept saying to my husband that I don't think I can do chemo again.  In reality, I know that we could all do it again, because we made it through once, we could do it again, but the thought of chemo came rushing back to me in that moment and it was horrible.  Anyway, anyone else have shadowing?  My doc said it's common. 

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited November 2009

    Jilly-I have to say I broke down in tears when the techie came to tell me the results of my one year later digital mammo.  It was quarter panic, quarter dred, quarter relief and quarter hysteria when she said it looked clear.  I don't think we will ever be nonchalant about the whole ordeal ever.  My mom is 14 years out from her dx and she still dreds it.  

    Berkeley Kim--- I hope you had a great time during the weekend in the redwoods.  I know how important those trips are for you.  I so need to do that as well.  I am trying to figure out how to save my nickels and dimes to take dd on a graduation trip somewhere.  AND I still want THE JJS to GO to NAPA!!!!!!!!!!!!!!!!!!!!!!!!!!

    Renrel--I am saving those tops.  I am surprised --I thought I had more to begin with.  Hey, do I have time to do this??

    KT--- I am glad you got through the anniversary.  I am at 13 months.  Still waiting for my exchange  :(

  • jillyG
    jillyG Member Posts: 401
    edited November 2009

    Well, I got my follow-up mammogram today and she left to speak to the radiologist, then came back and said they want to get another ultrasound of one particular area and then she asked me to raise my arm above my head and felt an area which was the area the ultrasound tech then looked at.  I assume they saw something on the mammo for her to pick that one spot and ask to feel it and then to ultrasound it.  I wonder what's going on.  She said the report would be to my doc in 2-3 days.  I can't get hysterical, I just need to wait and see, it's probably nothing, even if it's a lump, 80% are non-cancerous........but that doesn't help us gals that were in the 20% the first time around.   I would be really surprised if I now have cancer in my healthy breast, I would be shocked actually, I'm sure it'll be nothing, just hate to wait 2-3 days to find out.....

  • holtbolt
    holtbolt Member Posts: 625
    edited November 2009

    Jilly.. any news?  Hoping you are doing well and everything is over and the outcome was good...

    Can you believe the new study on mammos?  I am almost speechless.... what a way for all of us to celebrate our 1 year anniversaries.. reading that nonsense.... God help us... 2 bc diagnosis' here... BOTH under the age of 50.... I can only hope insurance companies don't start paying for screenings based on this stupid study... ahhh! 

    I received my packet of info, confirmation, schedule and instructions on my Stage 1 reconstruction surgery at the breast center in NOLA.. I am excited and nervous.....  and now feeling like I need to get it done asap before this supposed healthcare reform knocks me out of it altogether... that may be paranoid but with this latest "study" who knows.......hope all is well with the Jewels!

  • Renrel
    Renrel Member Posts: 497
    edited November 2009

    I am having an off day.  I am tired and have odd aches in various places.  Is it related to chemo?  Surgery?  Being alive and human?  Who knows.  Maybe some of DS flu mist got into my system. he is pretty out of sorts this evening and we think its the flu mist, though I may take in into the doctor tomorrow. He has had a cough, as have DH and I for at least 6 weeks but with no fever and not acting sick till this evening so we have not gone to the doctor.

    I attended a lymphodema informational workshop today.  It was run by a physical therapist trained to work with lymphodema.  I don't have lymphodema but wanted to find out what if any precautions I shoudl be taking given that I have one node out on each side. She told me my risk was very low and there was really nothing I should do differently.  She said it was a good idea to pay attention to my weight, which is not bad at this time, and that stretching exercises like yoga and ti chi are good because the get the lymph circulating.  She gave a good over view of the lymph system and how it works and why lymphodema can happen.  She explained that the nodes purify all the lymph that is natually present in the body (2 liters a day) and that the body is divided into quarters with the lymph going to one of the 4 main node locations. Some people have more nodes to begin with than others, so having 5nodes may be a modest issue for one person and huge for another.  She explained that the body can often figure out how to send the lymph to other nodes if there is a problem with one area. But if it can't than the lymph gets back up and the swelling occurs.  It feels good to understand the system and to know that worrying about it is a waste of time with my low risk.  If it is going to happen it is going to happen.  I can't spend my life in a bubble avoiding situaiton where I might get a cut or burn or insect bite.  

  • kt57
    kt57 Member Posts: 425
    edited November 2009

    Jilly,Hoping your tests turned out ok.  How incredibly scary!

    HoltBolt: You can do this!!  Please keep good notes, in case I need to visit the NOLA doctors someday.  

    Don't know what to think about the new "recommendations".  Sure sounds like a huge step backward. 

  • Renrel
    Renrel Member Posts: 497
    edited November 2009

    Jill - any news!  i am thinking about you.

    Hotbolt - are you doing expander and implant reconstruction?  I am pretty happy with my results so far.  They still feel a bit odd but also kind of nice.  Strange to have clevage after all these years.  

    I just got back from a book club meeting.  We read Olive Kitterage which was a great book.  When I got back I helped DS brush his teeth. I asked if he would always be my little boy.  He said no, but he would always be my son and offered to pinky swear on it.  Got to love these years.  So hard to believe this cuddlely love bunny is one day going to be a grousing teenager who finds me embarrassing and then a college student who never phones home and eventually a man with a family of his own and I will be the one begging for photoes of my distant brood.  

    What plans do you all have for Thanksgiving, other than understanding what it really means to be thankful?  We plan to spend it with the same friends who had us and my parents over last year while I was in recovery from surgury.  This year I should be able to do a bit more cooking than last year.  I am going down to NJ this weekend for my nieces 5th b-day party.  A good chance to see my sisters and their kids who I don't think I have seen since my Fathers 70th b-day last year, just before I started chemo.  So strange that my first chemo infusion was the day after my Father's b-day and my last chem was the day before my mother's b-day.  If it were not for that special b-day party I would not have seen my sisters for over a year since I was not traveling last year. 

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited November 2009

    Hey JJS, how are you all?  I have been faring well. I am still waiting to get the green light for my exchange.  I will be happy to have that part taken care of soon.

    Jilly---How are you?  I hope your mri news come back B9.

  • holtbolt
    holtbolt Member Posts: 625
    edited November 2009

    Renrel - Because of previous radiation, I had to seek out specialists to help me as expander/implant was not an option on the right side anyway (radiated skin won't stretch)... I am having a bilateral SGAP (using tissue flaps from the rear).... have to go to surgeons in New Orleans for this.. not offered in my area...and Ctr for Restorative Breast Surgery is the best from what I've heard...  here is their website if you want some "light reading" lol............

    NOLA group

    wish me luck... it's a 3 stage deal...first one being a 10 day stay in New Orleans... I hear you on the son growing up thing... I have a 13 year old son.. and fyi, last night.. DH and I.. went to the school talent show and we weren't allowed to sit or hang with him and his friends because we are uncool and embarrassing.. LOL

    My family is coming to my house for Thanksgiving... yes, this one will be VERY different from last Thanksgiving...

    Thought I'd share this video (thanks LisaLisa)... LOVE it... makes me happy... thought you guys might like it too..

    http://www.youtube.com/watch?v=OEdVfyt-mLw

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited November 2009

    Holt---Praying for you!  LOL on the 13 year old son thing.  My dd at 17 still knows everything.  She canNOT however, drive a car safely yet and this has created a bit of consternation in our household. 

  • ladyjane54
    ladyjane54 Member Posts: 192
    edited November 2009

    Jilly:  Are you still waiting?  Please let us know what's happening.  Celebrated my 1 year anniversary on the 17th.  We have been busy at school with Thanksgiving feasts so haven't had much time to reflect until now.  Since I work in a Christian school, we have been doing a lot of "Counting our Blessings" activities surrounding the coming of Thanksgiving and I have been brought to tears a couple of times when I think of all I have to be grateful for.  This past year has been a horrible year on the one hand and a tremendous year on the other.  Two new granddaughters ( #1 and 2) born this year. And as I think back to my journey, it seems as if everytime s.omething bad happened, i.e. double pnemonia puts me in hospital for 8 days, get out...boss tells me to stay home until after holiday break so I was free to fly to Texas to see first granddaughter right after her birth.  I could go on and on but it seems to me that everytime this disease tried to beat me God put something or someone in my life to keep me going.  I will never be the same person I was before my dx.  I have changed physically, emotionally and spiritually. Most of the physical changes I could live without.  The emotional and spiritual changes are good. I have new appreciation for life and all the things and people in it. Feeling really well these days expect for some joint pains which I assume is from the Femara but my spirits are high. Almost worried that it is too good to last.

    Realizing in the past few weeks that I totally missed the holidays last year. Even though I did not start chemo until January I have no recollection of the holidays.  Looking forward to them this year especially with new grandbaby in house to celebrate with.

    Another new Granddaughther born on November 16th, Lorelai - 7lbs 12oz. 19 and 1/2 inches long.  This one is my sons

  • kt57
    kt57 Member Posts: 425
    edited November 2009

    HI Jewels,

    I hear ya about not remembering much from the holidays last year...   We were trying to remember who had Thanksgiving last year ... know it wasn't me.  Do remember the oven starting on fire and the element burning out just as I was going to make the pies.. everything else is just a blur.   

    Holtbolt: love the video.  I want to work there! 

    ladyjane: congrats on the new grandbaby to join the others.  Thinking about you dancing at their weddings :)

    Yes we do have a lot to be thankful for this year.  You all are on my list. Have a great holiday! 

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