Starting chemo January 2009?
Comments
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Phyllis, happy birthday and congrats on finishing rads, that is awesome.You're done! Tamoxifen is easy, hopefully you won't have many se's. I had hot flashes for about a month, and then they went away, but I do have other side effects like vaginal discharge (TMI, sorry) which is quite annoying and I have just started getting bone and joint pain, especially in my back, sometimes in the hands. All in all, happy with it though. 4.5 yrs left........
Happy Thanksgiving weekend to you all.......it's Thanksgiving in Canada tomorrow, so plenty of turkey happening this weekend up here in the great white north lol.
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I suppose if my hair was not a curly afro I might have bangs.....but it's hair right! I promised I would never complain about my hair if it ever came back Well I have hair and I complain about it! I need to remember how I felt with no hair.....
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HB
I sort of have bangs--my bone straight thick hair grew back in crazy thick curls--- and the bangs are just big curls on my forehead.... I haven't had it cut at all--just colored-- and the curls just keep coming. what is so funny about that is that my mother spent years in my childhood trying to get my hair to be curly---all to no avail. Now she loves it---- lol
I am heading towards the 1 year anniversary (10/29) and every doctor's appt known to man (dermatologist, pcp, mammogram, radiologist, surgeon). It is likely that my radiologist and surgeon will now drop out of the rotation and I will just see the onc 2x per year... along with pcp, gyn, etc. I will get an mri in May (1 year after treatment ended) and probably for another couple of years. I agree- going back to any of these visits really undoes me--- at my sept onc meeting, everything was great--but I still couldn't go back to work---learned my lesson-so now I take the day off.....but I figure it is a small price to pay for good health!!!
I came onto this part of the site late--how did the name "jewels"originate?
carols
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Hi Carol. I know what you mean about going to every doctor known to man. I still need to make appointments for the dentist and should see an allergist, but I am putting that off as long as possible.
I have no bangs either and I am not loving this look. Holtbolt, you look nice in your visor. I am not confident in my look so much as I am tired of fighting it. Like Alo, I am happy to have hair even if it looks terrible. Kmmd - I love the song. Just think how sweet it will be when the bangs do grow in. This gives me an appreciation for how beautiful Hallie Barry is to be able to rock this look so well. For all the suffering of chemo, the hardest thing for me was being hairless.
As for needles - go ahead. The IV bruises on my hands from my 10/21 reconstruction lasted about 2 weeks and it was fine with me. I don't give a hoot.
Holtbolt - good luck ziplining with your buddies! You are a brave soul! And strong - waiting for recon takes patience. It is something to look forward too though isn't it? I am having my areolae tattooed on Oct. 22nd and I am excited and looking forward to it. It's the finishing touch. I started my recon almost a year ago. In fact, Oct. 17 is my lumpectomy anniversary. You will get there and it will be so worth it.
Kim - that's a bummer about your lashes. Long days and weeks also wear me out more than they used to also. I'm glad to hear you hiked a bit. I hope in a few more months that wears off for both of us. Enjoy Dylan with your family! That is exciting!
Happy belated birthday Phyllis!! Congrats on finishing rads!!!!!!!!!
Patti - I would hope having the wound closed surgically will be easier than tending it so often. It seems to me to be worthwhile even though the prospect of another surgery can be worrisome. I hope that goes well for you. It's so wonderful that you get to bond with your grandchild. She's a doll.
kt57 - Happy Anniversary!!! and Happy Belated Birthday too! What a nice son you have. I'm glad your hearing is coming back. Mine hasn't been good either and silly me, I never attributed it to chemo. I've been achy too and my finger tips are still slightly tingly. If I still have those symptoms in six months I'll worry but for now I guess it's par for the course. I'm tired, tired, tired of worrying! It snowed here too, on Saturday! And I have been keeping my AC on! That's right. The building I moved to is so warm, it's a bit much for me.
Jilly, I hope you enjoyed Thanksgiving. Yum! I am looking forward to ours. There is a small farm nearby where I can order a truly well cared for, free range turkey. I plan to do that soon. I started tamox about the same time as you and life is one long hot flash for me, but to be honest I barely notice it. I've grown accustomed to wearing layers and turning the AC and fan on and off constantly.
I have my Hyundai. It's a very basic and non-descript ride. I like it. I hope it will serve me well for a while. I am sad that my relationship ended but I am adjusting. Everyday, the path ahead looks a little more inviting. My weekend consited of some cleaning and little else but it was calm and I took a nice walk Sunday morning. I read a biography of Jeannette Walls, some comic essays by David Sedaris and I just started The Wind Up Bird Chronicle. I think it will be good.
Hope everyone is have the good kind of Monday, not the kind that gave Monday its reputation.
Nancy
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Hi Jewels:
Well, today is my birthday -- got out of bed with a "this is the first day of the rest of my life" attitiude and I decided to go "topless". The wig is history. Do wish it was warmer than 30 degrees outside - my DH says it will make my hair grow faster..LOL! Guess it works for the woodland creatures, why not me!
Have a great week everyone!
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Hello everyone. Kt--happy birthday , and doesn't it feel GREAT to have that wig off??? Omigosh I was so happy when I could take the wig off and walk around without feeling like I had to duck out of the way from anyone walking down the hallway.
Bkim--I do hope you feel better and have more energy soon. Glad you enjoyed your hike.
Yof the Hat-- How are you liking your new apartment?
kmmd--yes, the song is great and I have to laugh as I try to tweak a bit of length onto my bangs! Still not there yet
I had my six month mammogram and all is clear!!!!!! I found out right then and there. Now I just gotta wait for the wbcs to go up and then I am off to Mackinac Island. Can't wait. I decided to take Friday off and enjoy the drive.Michigan is so beautiful in the fall.
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Kathy... Happy Birthday!!!
Being liberated from wigs is a great present!! Last week I got a box and packed up all the wigs, wig brushes, wig shampoos and all scarves and styrofoam heads... it was a big deal for me... not having the blank stares of those styrofoam heads looking at me when I walked into the bedroom.... 
Nancy.. how is your kitty? I have 2 cats and I know they hate change.... I hope he or she has adjusted to your new place.. and thanks for the encouraging words about reconstruction... as luck would have it.. the surgeons in New Orleans where I will have my SGAP (someday) are coming through Indianapolis and Tuesday night I have reserved space to go and hear what they have to say... I hope to learn more about the SGAP and work toward a new surgery date in 2010...
Alo... I shouldn't complain about my hair... I remember before it came back I read on this site someone posted that they had Taxotere and their hair NEVER came back.. and I remember suddenly being terrified of that... so yeah, I'm thankful it's coming in on 2nd thought...
Carol... I'm not sure who came up with January Jewels? Anybody? Man, that seems like a long time ago...
Welp... I have a blood draw and 3 month follow up with my onc tomorrow at 12:30... hopefully all looks ok... I am asking her to include a draw to check hormone levels just to prove to me that my estrogen is nearly gone since the ovarian removal. Having something in writing that says I have very little estrogen would be nice....
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KT--Just popping in to say HAPPY BIRTHDAY!!! Yes!! Hope your first day of the rest of your life was great--and wigfree!
kim
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Happy b-day KT! May this be the start of a wonderful day and a very long and happy life.
We had a busy weekend. DS turned 6 on Sunday and we had a big party. 23 kids running around the gym of our community center followed by a Mad Science show and cake. I had hoped it would be a chance to meet and get to know the parents of the kids Gabe will be in school with for the next 12 yrs or so but I was totally occupied in keeping the kids under semi control. I don't know what we are going to do with another 23+ toys. DS has only opened 8 so far.
Tomorrow I have a CT of my chest just to make sure that something they saw before I had surgury was just a bit of scar tissue for some old broncottis or something. Before I go to that appointment I have to go to DS Kindergarden class and read a book we are donating for his b-day. They don't alllow any food celebrations (ie cake, ice cream, ect) so they came up with this book donation thing. I will have to do it as fast as I can and I will still be late for my appointment which really annoys me because both things deserve more mindfulness and respect then I can give them. Then thursday I have my pre-op for my exchange surgury which is a week from Wednsday. I have done no research since the original surgury and feel kind of stupid about that but I just don't have the energy.
We have constuction going on on our house. We could not decide on the wood for our stairs when we moved in and did remodeling so just put in a plywood stair to hold the space. Now we are finally getting real wood put in. It should be so much nicer when it is done and I really hope it is done before my surgury.
I want to get some spring bulbs in the ground but I think it may be to cold and wet this weekend. I wish I got up early and did it since I had the day off for Columbus day. I want something to look forward to, always.
Time for bed, I am sooo tired today.
Renrel
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Hi ladies! I'm glad everyone is doing well. I had a great weekend with my DH. Stayed at a beautiful B&B. We'e been there before. Sad to say, the owners have it up for sale. The economy has hit them hard this year and they want to move back to their hometown in Michigan. Their kids and grandkids live there. We went to an antique festival and bought a couple of things. The weather was beautiful.
As for the hair and bangs, I have none either. My hair seemed to be growing, now its at a standstill. All my lashes are in. I'm so happy. My eyebrows still aren't all grown in yet. I've been feeling good since my last rad. Not too tired. The skin is starting to peel and itch. Its hard to wear a bra.I still see the physical therapist once a week. My arm is still not up to par yet. Just started the tomoxifen yesterday. We'll see what happens. Its hard keeping up with all my meds. Synthroid in the morning, tomoxifen, mid morning, viactiv lunch and dinner, vitamin D(prescription) before dinner, boniva 1hr before bed and zocor at bedtime. I feel like an old lady! lol
yearrofthehat-have you tried vitamin Bcomplex for your neuropathy? It works well. Mine is almost gone. Lost a couple of toenails but thats about it. My fingers are slightly tingly. I hope you enjoy your Hyundai. I have a SantaFe and love it.
ky-Happy belated B-Day!
jillyg-I hope you had a great Thanksgiving. Looking forward to ours.
Good luck on everyone having tests done. Have a great week.
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Oh and Vitamin B-complex in the morning!. whew!
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Oh and Vitamin B-complex in the morning!. whew!
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Hello everyone. I hope all is well. Good news is I have a job this year. Bad news???? SO far NONE!!! My mammo is clear and I will be shocked if the wbc comes back low again. I seem to have energy. Hey, has your doc suggested you NOT have the h1n1 vaccine? Mine said to hold off till the blood work comes back better...I am surprised by this. Anyone?????
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Hello everyone. I hope all is well. Good news is I have a job this year. Bad news???? SO far NONE!!! My mammo is clear and I will be shocked if the wbc comes back low again. I seem to have energy. Of course I know that isn't the only symptom, but gosh, I feel pretty upbeat. Hey, has your doc suggested you NOT have the h1n1 vaccine? Mine said to hold off till the blood work comes back better...Then I hear on the radio that people who are immuno suppressed or chemo compromised should get a shot. Anyone?????
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Jess, yeah, so happy for you
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Jess, I don't think we are immunocompromised anymore. But it's best to check with your onc. I have a follow-up in Nov...I will ask about H1N1 vaccine then. We don't have the vaccine here yet -- not much H1N1 either -- but we did have a two Fall events that brought thousands of people into our community, so I think that is going to change. Happy to hear you are working for a while and your mammo is clear!
Phyllis, I laughed and your pills throughout the day plan. I have a little jar I take to work -- and munch on pills all morning!
Holtbolt: Hope your appointment well. Is this your ziplining weekend? Stay safe and fly like the wind.
jillyG: Still eating turkey? sounded so good Ii made a turkey breast this week. Our Thanksgiving is a ways off. Although I try to be thankful every day ... lots to appreciate these days -- esp the cancer-free part.
Renrel: I love your DS stories. I'm planning a birthday party for mine next weekend - his 21st. The years have flown by... I cherish those little boy memories.
Thanks everyone for the birthday wishes. It was a wonderful day...a whole new perspective on getting older -- what a beautiful thing! My brother-in-law hosted a surprize party for me -- he had two heart valves replaced emergently a year and a half ago - he understands the joy of celebrating another year of life! Both my brothers called. My son called -- taking a break from studying - music to a tuition-paying mother's ears! My workgroup got a cake for me - they are so very supportive of me. I am truly blessed.
And --- no wig all week! The CEO of our hospital has been asking for a while if my wig is my real hair ( I had a really great wig) -- I have been saying, "Trust me, you'll know when it's my real hair!" Tuesday he came into our morning meeting and said, "I like the look!" -- Told him he'd know!
And get this---- now keep in mind I work in a small hospital (everybody knows everybody's business) and every day this week, someone has come up to me and said they didn't know about my bc. I loved the one who said, "Wow. you cut your hair so short!" to which I said, "Actually, it's pretty long now." It has been good for a few more hugs and words of support.... think I have more energy for that now than early on...esp now that i have beat this beast!
Well, I hope you all continue to do well.
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Hi Jewels:
Just got back from walking in the Making Strides in Golden Gate Park with 3 other survivors and some guys. We wore pink and black wigs. Beautiful fall weather, followed up by a great brunch in the Mission (huevos rancheros, yum).
Saw my school team with their pink wigs-at least 8 teachers, principal, afterschool care director. So great!
Made out a quilt square in honor of January Jewels 2008 chemo team. We rock! Walked in memory of Ghlislaine (mom of one of my youngest dd's friends), Grandma Mary, Aunt Vicky, and Leila--the parent of one of my students I had for 2 years. She just died 10-8, and my heart breaks for her young boys. She was such a life force that I can't believe she's gone. Missed her service to walk. I'm not sure I could have handled it anyhow. Her prognosis was many percentage points better than mine, so besides grief at her passing I'm feeling uncertain. Realizing the "crap shoot" nature of this beast, and the need to embrace each minute. The walk was very positive for me, though. And I decided to embrace the pink if that's what gets people to donate money for a cure.
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Kim - I am misty reading about your walk and all that it means for you. It is scary to think about what can happen. I'm so glad the walk was positive for you. I need to find a way to contribute.
Kathy - Congratulations on going with your real hair and congratulations on another year. I'm glad your son is doing well. There are comments on my hair daily. I don't often explain. Most people are just passing through the office to get their mail and I don't know them very well.
Jess - I am glad to hear about your job and your mammo!! And you have energy to boot. It's great that you are starting to feel better.
Lisa - Hope you are feeling well.
The kitty is great. He was a rescue and the runt of the litter. A friend found them all in an empty house and took them all in. I adopted my little guy and have had him for ten years. He's my little buddy and is doing well. He's a hunter but mostly he just wants his mom so he's been OK with being inside.
The apartment is good and peaceful. I'm buying things for it here and there. It would be nice to be more settled but it has also been fun putting this place together.
I can't believe how much rest I need at the end of a very easy week. I slept as though I'd been running marathons all week and the aches are still there. I'm not sure if they're from chemo or the Tamoxifen. They feel just like the Taxol aches.
My hair is curly. It was always curly was but has never been two inches long. It's kind of clownish but it seems pretty healthy. I look forward to seeing how it is in another year.
I will have the areolae tattooed on this Thursday. Everything is healing well so I'll go ahead and have that done. I am excited.
Hope you all are well.
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quick post since I should be doing something other than posting. I have my exchange surgury on Wednsday. I have been getting ready with accupuncture, reiki, gi Gong and Yoga. I am nervous and a bit out of sorts. I think I am processing some of the emotions that never hit the surface last year. My parent are coming up for at least a few days to help. They will stay longer if I need them. I taking off from work for at least a week and a half, maybe as much as 3 weeks. Depends how it goes.
I would love to share more but I need to got do some real life stuff. Hang tough Jewels. Each day is a gift to be unwrapped slowly and with respect and deep contemplation.
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Good luck Renrel, we'll be thinking of you. I bet you find your preparations are very helpful.
Hope everyone is well. Jess, missing you on the motivation board, come back and join us!
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Kim, glad your walk went well. I am walking this coming Saturday in Daytona Beach. I am getting excited. I have begun walking a bit around the neighborhood the last week to get ready. Hope I make it all 3 miles. With bad back and other things going on I have not walked a lot. I am going to do my best.
I am so sorry about your DD's friend's mom. I know it is difficult not to go to the dark side when things like that happen. Try to stay positive though. Everyone is different. You WILL be fine.
I have put away my wigs. It was tough initially, but I really don't think much about it anymore. No bangs here, a little curl in the back.
Good to hear everyone seems to be doing well. I see the PS next month to begin my reconstruction process. I am anxious to get that behind me also.
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Hello everyone. GAD, my dd has swine flu!!! It is NOT fun. The biggest problem is her fever is hard to settle and it has hit her age group very hard. I take ONe day off from work and go away to have adult fun and I come home and she is sick!! No guilt here, eh????
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Renrel--Tomorrow will be another big step on the road to recovery! Hope all goes well. I'm still thinking about the recon thing...
Brenda--You can do it!! Have fun. I think our walk was just short of 5 miles, but it seemed so much shorter with all the people and the "cheerleaders" along the way. The next day I was sore but shook it off by going on a bit of a shorter walk!
Brenda and KT--Isn't it nice to ditch the wigs! I like your survivor attitudes!!!
Nancy-good luck with the tatoo! You're brave! I know what you mean about fatigue. I try to make plans for Fri night but just collapse. Have learned to love Netflicks!
Jess--OH NO!I hope she feels well soon. NO GUILT!! We certainly can't keep our kids from being coughed on by other sickies! Many of my students have been very sick, and although they haven't been tested I bet they've had it. I'm so worried for my dd in Oxford. There are 2 kids who have been quaranteened in the Stanford dorm due to possible HINI. I think if she gets sick I'd just have to fly on over there.
Well, picture day at school today and I officially lost my eyelashes for the 2nd time.BUT the good news is that the new ones were already growing in (about 1/8") so there's hope.
Got a regular flu shot at the oncs on Monday. I got a big bruise. That has never happened before, but my platelet counts were ok.
Gotta finish a final draft for class tomorrow.Good night!
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Jess, don't feel guilty, hope she recuperates quickly
BerkleyKim, that's what I noticed with the 2nd time, they were growing in a little, so although short, it wasn't as noticeable as the first time. Going through the 3rd round now and they're staggering so it is much less noticeable, they just look very thin.
My eyes are doing better with the Tamox vacation, hope going back on again doesn't cause any more problems. Trying to keep my head on straight. This hip and neck pain just never got better so I have a bone scan scheduled for Friday. I know its 99% sure its nothing and we're just being careful, but can't help the butterflies.
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No, I really don't feel guilty...just probably my preacher father and preacher wife whispering to me in the background , "don't have fun, just pray!" LOL. btw, DD is much better. Her fever skyrocketed to 103 in about 40 minutes, even after the tamiflu and motrin. Not good. Called the hospital and they said to quarantine her at home because they didn't want her to get an additional flu and said she would be better off at home. They then told me to wear a mask around her, plus the usual wash hands, disinfect and all that. After a double dose of motrin, she broke out in the crazy sweat and has been much better. Went through the day and had another fever hit , but went back to normal tonight.
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Jess, happy to hear DD is doing better.
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Quick post to let you know my reconstruction surgery went well. Straight forward with no complications. Doc said I have good symatry but I have not peeked yet. I am in moderate pain, mostly at the bottom of my ribs on my side, not sure why there. Maybe the drain holes are in that area and I stil have nerves there? Anyway not a biggy. I am taking percetts and they make me so tried. I have mostly been sleeping. I try to read and fall sleep with the book in my hands. ONe of the meds gives me the worst dry mouth and my breast are all ready ichy. Those are really my only complaints at the moment, so I'd say I am doing great. My parents are up and taking car of most house and child stuff from me. I am going to get off the computer now. Typing is not great for my physical recover, other than helping with my mental, spirtual and emptional healing.
Renrel
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Renrel, wonderful news about your surgery. I meet with my plastic surgeon on Nov 26th, can't wait to hear what he has in store for me. I think once I have reconstruction I will feel a little more like my journey with this beast is complete, can't feel that yet with only one breast staring at my in the mirror.
Jess, I hope your daughter makes a fast recovery. Canada just approved the H1N1 vaccine yesterday, so they are going to be starting clinics for that. I wonder if I should get it?
Kim, awesome about the quilt square, we all do rock don't we. We are some brave ladies! What a year we've gotten through.
I've got a bunch of follow-ups scheduled, I guess they seem to be coming in around my 1 year cancerversary on Nov 3rd. My first mammo on the healthy breast is coming up and they are also doing an ultrasound on both sides.
Have a great day Jewels!
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Renrel: happy to hear things went well.
JillyG, good luck with your upcoming appts, always gives the butterflies, my SIL said its been 8 years for her and they never went away, still gets them everytime an appt or mmg comes up
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Renrel: Been thinking about you -- so happy to hear it went well.
Kim: thanks for the quilt square --- we are a group of strong, resilient women. We've sure been through alot together.
Jess; how;s your dtr? we are just begiinning to see H1N1 here....a couple pretty sick people -- but they recovered just fine. Handwashing everyone!!! That's really important. Thank goodness we won;t have low WBCs this flu season.
kmmd: prayers for 100% normal tomorrow!
Nancy: hope your tattoo went well today.
Two cancer deaths on my world --- 53 year old man with esophagus/liver cancer - his parents lived across the street and his kids played with mine when they were little. A really good man. The other was a lovely woman I knew only four hours as we shared a room during my 2nd chemo -- she was so positive and hopeful-- it was her second bout of metastatic colon/liver/brain cancer. I remember being grateful that I only had breast cancer and real chance at a cure. It's just so hard to see cancer take wonderful people.. and then the fear and "what ifs" creep into my thoughts and it takes tremendous energy to suppress the negative thoughts......hope this lessens with time.
On a positive note: My DS is home from college for a long weekend and his 21st birthday. Next week my DH and I are off to Mexico for a week -- the same resort as last year -- where I contemplated and mentally prepared myself for the worst after an abnormal mammogram --- thoughts of biopsies and surgery, chemo and rads -- well I did it and we will celebrate!!
Stay strong Jewels
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