Any Northern Virginia ladies on this discussion board?

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  • danix5
    danix5 Member Posts: 755
    edited March 2009

    I see Dr Wilkenson also1  Do you like her?  I do so far having some problems with her wanting me to see endro dr for high testosterone levels.  I do not want anymore dr's!

    I am in surgical meno and testosterone levels are rising, confusing!

    DaniKiss

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  • PinkyLee
    PinkyLee Member Posts: 648
    edited March 2009

    I live in Warrenton and had surgery at Prince William by Dr. Wampler for BM immediate expanders from Dr. Hess.  Had exchange at Fair Oaks.  Feeling better about howw they look.  Will go back in May for nipple surgery. 

    I am kind off in the middle of the two of you.  Danix and AnnaM.  I also know Monique lives near Fair Oaks.

    She was kind enough to come see me at my exchange.  It was very thoughful.

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  • AnnaM
    AnnaM Member Posts: 1,387
    edited March 2009

    Oh, PinkyLee! I just this minute got back from Warrenton. Went there with a friend to visit your cute little quilt shop and we had lunch there. Such a nice town!

    Hi, Danix. Yes, I like Dr. W. My previous oncologist (Broome) moved her office and I couldn't follow, so she recommended Wilkinson. When I started seeing W. she did put me through some uncomfortable rounds (ultrasound, needle biopsy) because she didn't like the feel of one of my lymph nodes. Luckily, it was nothing and my breast surgeon said that node has been the same since my initial surgery. It seems my doctors don't ever communicate. Whenever I hear people talking about all their doctors getting together and deciding on a course of action I wonder why none of my doctors ever talk to each other. Ah well.

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  • GramE
    GramE Member Posts: 5,056
    edited March 2009

    Pinkstock is a gathering, set for the end of July.  This is # 3.  Pictures are on another thread.

    OK here is the stuff... more or less Friday July 31, 2009 - Sunday August 2, 2009 
    Please print and mail ...information form.... 

    PINKSTOCK will be located in the Town of Ischua, N.Y. 
    At Mary Beth's house on Steward Rd 
    email me at pinkstock07@yahoo.com 

    This will be a weekend of just plain fun...,You can take a trip to the Casino in Salamanca, or for those that need to Saturday relaxing, crocheting and visiting. Sunday well some must leave so this will be a day of goodbyes.. we do have an auction and you can bring stuff if you want… a basket exchange too- just make sure they are packable, or I’ll mail them home for the flyers…. In 07 most brought little goodie bags from their area to share.. anyway..happy planning 

    Bring your tents, campers, chairs, and your significant other if you want...I have a hot tub, and may set up the sprinkler in case it gets hot so swim suits should be packed oh yeah and a bouncy house for the little ones 

    I have 5 acres and a large barn just in case..I have lined up few campers to share for those that need, and can get tents for the braver of souls, we have a few air mattresses...a porta potty, with sink will be on site to alleviate the line at my house, I do have showers and inside plumbing…. 

    The menu is well, camping fair BBQ chicken, burgers, hot dogs, Salads: taco, potato, macaroni, fresh fruit, maybe some meatballs and rigatoni ,.. pancakes, eggs, and what ever anyone else can think of all ideas greatly appreciated and needed 

    Ok now for the registration stuff. 
    I need to know how many are coming.. 
    #_________ adults 
    #________ children ____ages 
    Arrival Date.__________________ 
    Departure Date_______________ 
    Special needs________________________ 
    Do you need a tent, or a camper space or do you want to try borrow one?_________________________ 
    Are you staying at a hotel?________ , if so which one so I can give directions 

    Please if you can, any help with financing it would be appreciated, last year most sent $75 per attendee, this helps with the food and supplies .. thank you what ever is left over we will donate 

    The evenings can be cool and we have a nice breeze, .mosquito's so bring your favorite stuff..some time we have them sometimes we don't .I will email you back my addy and phone #... 
    general directions 

    WARNINGS...don't SPEED thru Friendship...lol...the State police will get you everytime...lol... 

    AND DO NOT USE GPS OR GOOGLE TO FIND MY HOUSE...use the below directions... Another NOTE.. there are MANY dead spots with No Cell signal, so make sure your directions don’t fly out the window… 

    from the north(Buffalo)....190 to route 400 south, which ends and then turns into Route 16 south, which takes you into HINSDALE...go under the expressway(route 86) and take the first Right onto Gile Hollow...Turn left onto Maple Hill Rd…(up a hill) then look for the signs... 

    (Binghamton) east ...Route 86 to the Hinsdale Exit...left onto Route 16...first right onto Gile Hollow follow the pink ribbons 

    (Erie, Pa.)west...Route 86 to Allegany Exit...follow the signs to the Allegany Limestone School (and the pink ribbons)turn onto the the Five Mile Road...do not turn off.(+\-13 miles) to the top of the hill...(mountain)...turn left onto Steward Rd...second house on left.... 

    South (Pa)....inside joke...(you can't get here from there)...anyway somehow get to Route 86...then follow either east or west directions....why is there no easy way thru Pa...? 
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  • jlp
    jlp Member Posts: 54
    edited March 2009

    Hello NoVa ladies, just found you!

    I live in Round Hill (between Leesburg and Winchester just off route 7). I work in Reston so I've had my surgery at Reston Hospital Center with Dr Ken Mason, and will go there for radiation as well, but I'm getting chemo at Lansdowne with Dr Ajay Dar - first chemo (TACx6) is 1st April.

    Lou.

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  • AnnaM
    AnnaM Member Posts: 1,387
    edited March 2009

    HI, Lou. Sorry you had a reason to join this group, but happy to have you here.

    I live in Leesburg, also just off Route 7! Right around the corner, in fact.

    Anna

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  • didle20Diane
    didle20Diane Member Posts: 404
    edited April 2009

    Hi there......I live near South Riding and Stone Ridge.....my onco is Dr. Byrne in Fairfax and my surgeon was Dr. Ahmed for my mast......delayed recon until after chemo.   Does this group get together at all?

    Hope all are doing well....

    hugs,

    Diane

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  • PinkyLee
    PinkyLee Member Posts: 648
    edited April 2009

    Welcome to both of you.

    I live in Warrenton right on 29S.  I think a couple of the ladies met in Alexandria for a parade, but some of us were not up to it at that point.

    I would love to get together for a lunch or something. 

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  • didle20Diane
    didle20Diane Member Posts: 404
    edited April 2009

    That would be great.....I have 2 more chemos but when I am done and feeling myself again I would love to get together.....

    hugs,

    Diane

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  • lastminuteD
    lastminuteD Member Posts: 333
    edited April 2009

    Hey All!

    I've been MIA AGAIN!  Work has been horrendous and mom FINALLY got into a trial over at NIH.  She is their first metastatic bile duct cancer trial patient.  So far, so good - minimal nausea but her counts are bottoming out this week.

    Lou - the group at Reston Hospital Radiation department are AWESOME!!  I did rads Nov 07 - Jan 08 there.  Who have you met with?

    Diane - several group gatherings have been attempted and happened.  Nancy has been awesome at coordinating.  Anyone can pick a date, time and place........................

    Bonnie - at least you and I didn't get sick after eating that pizza!! Gotta find the happy!

    Happy Easter everyone!

    Dawn

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  • danix5
    danix5 Member Posts: 755
    edited April 2009

    Reeney77- Just checkin gin to see how you are doing with treatments!

    AKAnancy- How are you doing?

    I will check back and see if there is a meeting time scheduled.

    I am doing the Network of Strength walk on Mother's Day anyone else partcipating?

    DaniKiss

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  • debbie53
    debbie53 Member Posts: 27
    edited April 2009

    Hello everyone from the Metro region

    I am newly diagnosed (3/13) .

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  • navygirl
    navygirl Member Posts: 886
    edited April 2009

    Hi Debbie...I don't live to far from you - I'm in Rockville. I use Georgetown for all my treatments/tests. What are they recommending for treatment? Did you do the oncotype testing?

    I'm glad you found the site and this thread...there is a lot of information to be taken from here. I know you're scared...but you're exactly right, it's mostly the unknown. I think most of us feel better once treatments start!

    Welcome to the party !Tongue out

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  • reeney77
    reeney77 Member Posts: 53
    edited April 2009

    hey ladies. so this week is my second treatment. first one went ok - it's more the neulasta shot that causes trouble more than the chemo. but the shot kept my white counts at a good level so not taking the chances of not getting it.

    took me about a week to feel normal again. wasn't expecting it to take that long.

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  • didle20Diane
    didle20Diane Member Posts: 404
    edited April 2009

    reeney77 You will do great!  See you on the March Chemo boards.

    hugs,

    Diane

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  • jlp
    jlp Member Posts: 54
    edited April 2009

    Hi NoVa Ladies,

    Tomorrow is my second chemo. First one went well but I did suffer with low white count (got antibiotics and avoided any infection Smile) and did not feel back to normal until 8 days after treatment. This time I have the antibiotic rx already....

    lastminuteD - I have seen Dr Jeff Moulds at Reston Radiation Oncology. The nurses there were great!

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  • theres126
    theres126 Member Posts: 28
    edited April 2009

    Hi Debbie-

    I'm a patient of Dr. Wright as well - just passed my 3 year survivor anniversary!  I really like her a lot - she's always been so positive and encouraging and calmed all my fears. And, I never, ever, feel rushed at my appointments - ever three years out!

    How do you like her?  I grew up in Rockville, but live in Fredericksburg, VA.  

     Good luck with your treatments, and let me know how you like Dr. Wright!

    Theresa

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  • GramE
    GramE Member Posts: 5,056
    edited April 2009
    If anyone wants to meet at Mexicali Blues in Arlington on Sunday, April 26 at noon, there will be 5 of us going for lunch.   It is very close to the Clarendon metro stop.   PM me if you want more info.   We all met at chemo at Georgetown and 4 of us still get treatments there.  
     
    To PM (private message), click on my name, which is in blue, on the right hand side is a "send private message".    
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  • GramE
    GramE Member Posts: 5,056
    edited April 2009

    Welcome,  to you new gals.  I had a brain fart and got the cart before the horse.   Check out the many threads here and you will find many caring, supportive and knowledgeable ladies.

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  • danix5
    danix5 Member Posts: 755
    edited May 2009

    anyone going to the network of strength walk tomorrow?  I will be there with my daughter and good friend.

    DaniKiss

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  • danix5
    danix5 Member Posts: 755
    edited May 2009

    Come on aren't any N.VA ladies going to this walk in DC?

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  • GramE
    GramE Member Posts: 5,056
    edited May 2009

    Hi Dani:  I opted to go to a concert and dinner with my only son and daughter in law.   However, I did volunteer as a greeter for the Avon Walk a couple of weeks ago.   IF my toe nails ever grow, I will think about doing part of the actual walk, but for now, no long walks for me.   

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  • danix5
    danix5 Member Posts: 755
    edited May 2009

    Hey Nancy,

    The walk was beautiful DC was so nice that day!  Glad you spent time with your son and dil for Mother's Day!

    This walk is what I called "my wimpy" walk only 3 miles, I liked it not really for the walk being short I can walk, but I did not want to raise over 2000, for Avon or Komen.  Too hard in this financial situation the country is in!  We had to raise only 100 each!

    I let you know when I am back up in Alexandria!

    dani

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  • EngTchr
    EngTchr Member Posts: 184
    edited July 2009

    Nobody has posted on this thread for a while.  Maybe you're all finished with treatment and feeling good now.  Hope so!

    Anybody recently diagnosed in the northern VA area?  I started TCH June 17th. 

    Becky

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  • didle20Diane
    didle20Diane Member Posts: 404
    edited July 2009

    Hi welcome!  I finished chemo in May.  Where do you live?  I have met one person through the BC site that lives in Ashburn.  I live in Aldie near South Riding.

    Sorry you had to join us.....

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  • LynnVA
    LynnVA Member Posts: 174
    edited July 2009

    Hello all,

    Just saying Hi, not northern VA more Central VA, Charlottesville area but travel to Fredericksburg all the time danix5.  Currently doing rads at Martha Jefferson and Recon at Uva.

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  • didle20Diane
    didle20Diane Member Posts: 404
    edited July 2009

    Hi Lynn,

    VA is VA :)  Welcome to the thread.  Hope your treatments are going well.

    Diane

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  • EngTchr
    EngTchr Member Posts: 184
    edited July 2009

    Hi Diane and Lynn,

     I live in Herndon and am having all my treatments in Reston. Did you do chemo Lynn or just radiation?  I have my second chemo coming up July 8th.  Happy to be feeling good this weekend!  My hair started falling out yesterday.  I'm going to a wig place in Fairfax with a group of friends today to get it shaved and buy a wig.  You look really good, Diane! 

    Becky

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2009

    Hi all,

     I live between Manassas and Woodbridge.  Have 2 more chemo tx left 7/6 & 7/20, no rads.  Have my exchange surgery tentatively scheduled for 8/10.  Just saw peach fuzz on my head yesterday - SOOOO excited! I didn't know there was a thread for NoVA.  Glad to have found it!  HUGS, Dawn

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  • GramE
    GramE Member Posts: 5,056
    edited July 2009

    Hi and welcome to the newbies.   I have my last Herceptin on July 16 and get the port out on July 20 - the end of "active" treatment.   It has been a long and exhausting year since I began chemo, but I can see the light at the end of the tunnel.   

    I live in Alexandria and go to the  Lombardi Cancer Center at Georgetown University Hospital.

    Nancy 

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