Starting Chemo May 2008
Comments
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Otter,
Since it is something that usually disappears after time and not permanent I agreed with the doctor to give it one more try at full dose. I did come prepared with ice packs for feet and hands, the study in France said it made a difference, so I'll see. Even though some skin did peel, I never had a problem walking around like you did. Mine is mostly in the hands and only really bothered me For 2 days, hard to hold a pen and write, hard to open bottles. Big toes didn't effect walking.
Enjoy the day, Karin
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I found the chairs, Cris! Good call. I accidentally sat in the wrong place at first, and had to contend with some stinging (tho harmless) insects, i.e.,
1) news that I will have my ovaries and some more lymph nodes removed prob in September.
2) doctor making it clear (in a good supportive way) that if I have a recurrence or a new primary in the breast, she will press me to have my breasts removed.
3) same vein accidentally tried that was used last time and caused a marble-sized swelling. So another vein was used, near the elbow.
But! My girlfriends/colleagues were wonderful and we had a really really good time. We talked shop, but it was not negative shop.
Privilege #114: Having colleagues who are dear and valued friends, and vice versa.
Glad to hear people are coming through chemo in good shape and/or spirits! (HUrray, Gracie! Cris? Adrienne?)
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lynnjobe,
Get a new oncologist as whether she is lying or not, if you don't have confidence in her, it's not good for you.
To those stepping up to the bar tomorrow -- I am there as well and will be listening for the rain forest noises...am feeling pretty non-plused (non-plussed?) about #3 because it is only 37.5%...I am wanting to move on to July 3 chemo cause it'll be 50%....patience, right? Okay, will check in with you all tomorrow. Ed
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Gracie - Glad to hear it went well and hope it stays that way.
Karin - I will be hoping the first time was the hardest and that things get easier from now on.
Rock - Wow. That's a lot of news to take in. Hope you're doing o.k. with all that. And I agree, great girlfriends/colleagues are priceless!!
Speaking of work (well, sort of), can I just say that given the day I had today, I'm actually looking forward to chemo day and not being at work. And it is not because of the inmates, either.
Yes, and the big day is tomorrow for me along with Eddie, Kristy, Linda and Angels. O.K. women (that's for you, Eddie) off to the rainforest, shall we?
Adrienne - Check in soon!
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Oh, just in case I'm too pooped tomorrow night, don't forget about mominaz on Friday!!
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Ok Ladies ,
I'm all packed for the rainforest, most of you are probably already on your way, i always arrive late living where i do! Please save me a spot and scare away any bugs lurking in the underbrush! I especially hate spiders!!!!
Are there beaches in the rainforest ?It's #3 so I'm half way there, I must admit it has gone pretty fast, so for those just starting there is hope!
Good luck to all of you starting today , tomorrow and those just dealing with the aftermath!!!

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Good luck today Cristine, Eddie, Kristy, Linda and Angels!
Treatment #4 was yesterday. For some reason this one wiped me out and I was hopelessly useless all day. I'm thinking this nurse ran the Cytoxan a little faster then has been done the last 3, as I got a little lighted towards the end and we were done sooner than I thought we'd be. Woke up this morning with a bit more energy but still tired. We'll see how the day goes. The good news is this is the halfway point and no more of that "red devil".
~Adrienne
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On my way out, too.
Angels - I'm with you on the spider thing! Ooooo(shudder)
We will find a spider-less spot!
Adrienne - Sorry it wiped you out. Hopefully, that's the worst of it.
See ya's later...
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I got the early flight back from the forest, they were real speedy today just under two hours and i'm usually there for 4.
Feeling pretty wiped otherwise ok, just knowing i don't have those 3 drugs to do anymore makes it feel like an accomplishment. On to Taxotere, anyone just done it by itself, it always seems to be with another drug? oh well have 3 weeks to read up on that one.
Hope everyone makes it home safely !!
Have a good day

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Adrienne,
Getting cytoxin right now. Asked them to slow it down as last time it went in too fast. The rain forest is good today. Will check in with all of you later. Adrienne, thinking of you in Bremerton. Hope you're all doing well. My WBC were stellar! Woo hoo!
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Hey all,
ed: Sorry but tx #2 really knocked me out. First of all, ds is back in the hospital with acute respiratory distress....he sounded better today, he was running a temp and could not breathe, so he went to Er and they admitted him. Now the dil is cramping and is worried about losing the baby....I told her to stay off her feet and reamin calm...lol..
This round was really rough. I was constipated for 5 1/2 days...yuop tried all the remedies and nothing worked. Iwas in the bathroom so much that I read 3 novels...TMI???? This morning the whole process reversed itself and I started a new book...
.Other than that, I was a little more tired, but I figured out if I cut out the Compizine(sp?) I slept better and was less constipated.
KNow what I really hate? Just when you get the whole thing dialed in and start feeling better, its time for a new round.
Rock: I went out Tuesday hatless, I only have a #2 blade shave, but my daughter had softball practice and needed a ride and dh was busy taking his mom to the drs, so that left me. When we couldn;t find a ride home for her, I decided to wait at the localMexican restaurant with the 16 yo and 5 yo. Completely forgot that I didn;t pack a hat and walked in. There were a couple of stares, but it was so nice to just be there....just to make sure, I took the kids out for ice cream and 2 little kids just about dropped their cones....I asked the 16 yo if I embarassed him and he told me that once he helpe shave it off, it was no longer as big if a deal as he thought it would be....love that kid!
The sad part was that today my 86 yo mil came over and didn;t know that I shaved. She took one look at me and burst into tears. I told her that she took it harder then I did, but she dd say I have a nicely shaped headand that bald looked goodon me. Altho, seriously, what was she supposed to say? YOu look like a SNL skit come to life????:}}}
randie
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The CONEHEADS! That would be me.
As I was sitting in my recliner these past few days, recuperating from this annoying sinus infection, I was trying to think of catchy come-backs for people who give me "that look" or who ask stupid questions.
Q (to parent): Mommy, why doesn't that man have any hair?
A (in as deep a voice as possible): Well, sonny, I work at that nuclear power plant that's just upriver from here...
Q: What is that funny lump in the middle of your chest [chemo port]?
A: You remember that sci-fi movie with Sigourney Weaver in it--Alien, I think it was called? Well, remember that guy they had in sick bay, and he had a lump in the middle of his chest...
Sorry, no beaches in the rain forest. Rain forests are pretty shady, unless you're in a clearing or at the top of a tree.
otter
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I've been back from the rain forest for a while, now - feeling good. I was very sleepy during the treatment (the benadryl, I suppose), but have since perked up. I hope that doesn't mean a sleepless night ahead.
Oh, and while there may not be beaches in the rainforest, there are waterfalls cascading into rocky pools for us to sit and soak in. And if you'd rather go to the beach, well, it's just a short drive down a twisty mountain road. (Guess what? My avatar is Luquillo beach in Puerto Rico, right outside El Yunque rainforest. This whole rainforest discussion has brought back some great memories of my post-diagnosis, pre-treatment vacation.)
Angels, I'm having taxotere by itself (following 4xAC), so I can keep you posted on one woman's experience. This was my first taxotere today.
Rock, I hope you're doing well - both with the BRCA news you've had to absorb as well as the SEs from yesterday's treatment.
Randie, my mother (a bit younger than your mil) also had a really hard time seeing me bald. I took off my baseball cap to give her a quick peek and could tell that she was really uncomfortable - so the cap went back on.
Best wishes to all the rain forest tourists.
Linda
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Randie -- sounds like some tough times/moments. Sounds like you gathered rosebuds, made lemonade, etc. but still... The family health concerns, too. It's different because so far, aside from my Dad's most recent brush with the Grim Reaper, my family is in good shape. But I must say, I appreciate it when my friends confide their "ordinary" problems. Especially because, to a person, they give me a way out of listening to them by saying "Oh, I don't want to complain because compared to cancer and chemo...." But I really DO want to be there for them. So when I read about you "being there" for your dil, well, I thought, "Good on Randie. I hope she was feeling up to it."
Luquillo & El Yunque -- I am going to remember that.Angels, Adrienne, Cris, Kristy, Eddy, Linda, everyone: I raise my glass of protein drink to us! Cheers! And Mominaz -- tomorrow, I will raise another (even larger! colder!) glass to you!
I had a blech day side effects and energy wise, but!!!! I got the BEST NEWS EVER. My little sister is coming in from Alaska on August 25- August 31st, after my chemo and before my surgeries. We're hoping to do a road trip thru Massachusetts and New Hampshire and Vermont. I CAN'T WAIT. (She's going to be in Soldotna anyway and will drop off her dog w/ in-laws on the 23rd, and then go to the airport from there!)
In the shorter term, a good friend will be here in NYC for gay pride and has invited me to a party overlooking the parade, across from Stonewall! So I will be able to take in the action and energy without taking in all the crowd's germs!
God, on days like these it really helps to have things to look -- not just ahead -- but beyond the damn chemos, you know?!
G'night women. And thank you.
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otter, linda and rock.....thanks for the laughs and kind words....
I am kind of getting tired of friends telling me their problems and then following it up with," but then, I think of what you are going thru and blah blah blah"...lol....now I beg them to tell me their problems, its a great distraction and then I can feel that hey all I have to worry about is constipation and not what to serve to my ungrateful inlaws or why I hate my kids boyfriend.....lol...
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Randie,
Sorry about your ds...things will get better for him. I am thinking of you both. Sorry tx #2 knocked you out. I just finished A/C #3 today. Easy day ... no spurting blood.
Other ramblings...
BTW, I asked nurses about ports turning upside down and it is NOT that uncommon. It happens.
May ALL of our ports stay right side up...hopes yours is back ...they are like breech babies perhaps. Rock, I am jealous. Gay pride in New York would be a blast. We are in Seattle and belong to a synagogue that has a lot of glbt members so we are pretty active . . .we like to go to the events, but New York would be wilder and mo' fun. Enjoy. Also...great news about your sister. It'll be a blast.
RanD again...my friends are not doing that. Your frieds should stop...
I am learning people react more to cancer than to us. It is pretty interesting. Sometimes people who say, "we ought to do something," or "is there anything we can do for you?" see you with others doing the something or see the others doing the anything we can do for you. Then, for a moment, it is awkward as they don't know what to say. It's pretty interesting. I am learning a lot and enjoying that part. So, congrats to all of us who made it through today. The cytoxin going in slower did NOT cause a headache. I am thrilled. Loving you all. I'll check in when I am less loopy. Meanwhile,
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Im home from Herceptin today- I found a spot in the rainforest next to a waterfall with a nice hammock.......... and slept through the treatment today!
Kristy
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Kristy...that sounds like the spot for me tomorrow.
Cristine...thank you for thinking of me. Get some rest.
Did I ever mention my name is Christy??? heehee
Rock....I will raise my glass of water and we can toast the day.
I hope everyone who went this week feel better soon.
I love you all...really I do!!!
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Hi all,
Well, today was a dud. Bottom line, I didn't have chemo because my platelets were too low (83 for those interested). Not once was this ever mentioned that it could be a problem, but apparently they know about because they said it's most likely the Carboplatin. What's a little more frustrating was I noticed that my platelets had dropped when I did my blood work on Tuesday. So much so that the lab results tagged it as "low". But no one from the office (where they are supposed to get faxed copies) called or mentioned this could be a problem.
Has anyone else heard this? Dana/EyesOTex, do you have the same concern on Cisplatin? If not, you might ask.
Sooooo...I have to wait until next Thursday to try again (but I'll do my bloodwork Wednesday afternoon so I have a heads up).
Sorry, I want to respond to you all, but I'm too tired (as I went into work for the afternoon) and still somewhat irritated.

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Cris, I'm so sorry about the platelets. I think that all of the chemo's we're on can beat up on platelets as well as red and white blood cells - I don't know if carboplatin/cisplatin are especially hard on them, but they may well be.
Did your docs mention giving you a transfusion? Do they have some threshold count for that (below 50, I'm sure they'd transfuse, because of the serious danger of bleeding, but I'm wondering if they'd also do it in order to proceed with treatments)?
At the very least, they should for sure have told you this was a potential issue!! Maybe they were hoping your counts would come back up in time for your treatment (was it Tuesday's bloodwork where they were 83, or was that from pre-chemo bloodwork yesterday?). If they were 83 on Tuesday, and they want them to be at least 100 for chemo (which I think, but am not sure, is the standard), I can't believe no one told you that a delay was at least a strong possibility. THAT SUCKS! (Another thread, I know.)
You know to stay away from aspirin and ibuprofen, right?
Thinking of you, and trying to summon up my "Anti Pink" superpowers to send gobs of big, clumpy platelets your way.
Linda
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So I woke up at 4am because I apparently had nothing better to do. Stupid steroids. On a brighter note I now have a clean dining room table now. That Grand Central in this house and is ALWAYS in need of clearing off. YEAH!!!! I also have a freshly packed chemo bag for today. If hubby was not sleeping(silly him) I would have gotten more done but I really think I may have seen a side of him I have never seen if I wake him up that early cleaning. heehee. It's now 6am and I am finally getting tired so I may go lay down and try to get some rest. OTOH I will be sleeping on and off for the next few days so maybe staying up might be all that bad. After all I am leaving in 3 hours for tx.
Cristine...I am so sorry you have to wait. I actually put "ask for a list of good count levels" on my list of questions for today. I do my blood work every Wed. and my Dr. office has me call every Thurs. to make sure they have received the results. I am going to ask what would happen if when I call any of the counts are "low".
Take care....
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Cris -- as I said earlier, DAMN.
Christy --Great minds . . . Between 3 and 5:30 I filled a trashbag full of crap this morning from my table -- and I live alone!
Rocks E. Bolo (!!!!)
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Cristine- Sorry you had to put things off, had i known i would of air-mailed some platelets over as i had extra this time! My WBC and Neuts were a little low but enough to forge ahead. I guess thats why we pay these guys the big bucks to make sure things are as safe as they can be for us and to not take any chances. Best to ere on the side of caution than to run ito complications down the rode! IT STILL SUCKS!

Lewing - I would be very interested to follow your experineces with the taxotere, I just got comfortable with the routine with these drugs and se's , so am a little nervous about the change.
Rockthebald- great news your sis is coming for a visit, it sure does make a difference to have something to look forward to....and you will have fun planning your visit with her! I hope your se's are better today.
Felt a little worse yesterday than i have with the other 2 txs not sure why did everything the same as before, had to have my stash of crackers by the bed though last night just in case. Day 3 is usually my down day so I'm hoping that changes to as I am joining my daughter at the park for the Cancer Relay for Life. She is on an all kids team, as her friend the team captain (age 12) is a leukimea survivor, she had quite a ride for a few years earlier and now is living life to the fullest. So I will go down and support them tommorrow, looking forward to it as it is supposed to be in the 80's and the park is right on the lake, should be a wonderful day!
Good luck today Mominaz (Christy) hope things go well for you !
Here's to a good Friday and a relaxing weekend in the sun!
.........
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Ladies, I must tell you what my 18 year old dd has done for me. It requires a bit of back ground info.
Columbus, ohio is where I grew up but moved to Colorado in 1981. My entire family resides in Columbus. One of my sister's was going to come to spend time with me in July, after my last chemo. Her husband lost his job last week and the trip to Colorado was not going to happen.
This past week I've had a very difficult time with round 3, physically and emotionally so I was quite upset about not being able to see my sis.
Yesterday my dd (who works two jobs) informed me that she has arranged for my sis to fly out for a visit, paid for it with her hard earned money but is keeping the arrival date a secret.
Today I am still awed by the depth of her love and her desire to do such a special thing for my sis and I.
I am blessed.
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Robin - You are truly blessed. Your daughters actions are a true reflection of you.
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Robin - That's awesome!!
Linda - My counts on Tuesday were around 113, but that was a significant drop from the last time (180s?). They were 83 yesterday with pre-chemo blood work. And I did know to stay away from ibuprofen (don't take aspirin), but damned if I didn't forget that yesterday. I won't take anymore.
I'm also going to do Taxotere by itself, so I'll be interested in your and Angels' experience.Angels - I would have gladly accepted some platelets from you! Maybe you and Linda can combine your powers...
Rock - So glad you also have your sisters visit to look forward to!!
mominaz/Christy - Do ask them. At least we can learn from each other's letdowns. Hope it goes well for you today.
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Robin -- that is one heckuva daughter you have there. And one heck of a sister to say "yes" to the ticket.
Cris-- I'm not worried-worried about you, because I know you're strong and capable. But jiminy, job crap, with hair loss on the horizon right after this chemo/platelet crap. I'm concerned that well, I just want all of us to know that we don't always have to be together.
I have an idea. Let me know what you think of it. I propose that we give ourselves permission to post something "uncharacteristic" this weekend, and then delete it (immediately, an hour later, the next day, whenever). Yeah, we always have that option, but I propose we use it, at least this weekend. For example, something pettier or more mean-spirited or fearful or angry or whatever feeling it is that we might not normally express and don't want recorded forever. The rest of us can comment, but won't divulge the identity of the poster.
What d'ya think? Or is that just too weird and problematic?
Kinda like:
MY ADMISSION: -- (which I will delete)
Me: [I deleted what I said about being hurt about my Mom not being in touch. Mom's got a lot on her plate and I'm damned lucky to have a Mom who is still in a position to be a source of support and reassurance rather me having to look after her and Dad from afar. Damned lucky.]
Okay -- I'm deleting all of this at some point.. And you don't need to even respond to it. It'd just make me feel better if I felt like other people had feelings they were ashamed to have. But I don't want to put you on the spot.
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Where to begin...
Rock...{{{{{{{Rock}}}}}} Would you post your mom's phone # so we can call her and gently explain what you need, or threaten to go with shovels???? I know, you don't want that... I'm sorry about your test results and subsequent future maiming. that sucks. I felt so bad at the onc's this morning...even before treatment...that I forgto to ask if my BRCA results were back; they should be, though. I don't expect to be + but I have a daughter, soooooooooooooooo. I worry. Anyway, are you trying to tease out our inner Tawandas with this weekend proposal??
To everyone with That Mother: Mine makes me 57 going on 13, especially lately. If I wanted to know every last thing that happened on Rachel Ray or Oprah, wouldn't I watch them???? Now, mine is 87; I am her caretaker or at least driver and shopper, AND she lives right next door to me....
Granted she gets sick when anyone gags and no one would confuse her with Florence Nightengale, but...sheesh, when I had 2 surgeries and 6 round of TAC in 2006, she never even warmed me up a bowl of Campbell's Chicken Noodle! Remind me to delete this!Christine, they warned me about Cisplatin and Gemzar being hard on RBCs and WBCs AND platlets. I'm sorry about your platelets; I didn't have any to spare, though. I've had to move to every two weeks because of counts; had a tx today but now the 4th of July messes me up. The onc is saying we may discontinue the 4th round of this, because it is really kicking my rear. We do lab only the day before the tx. They don't tell me my test values, but this is what my "Red Book" says:
Blood Count NormValues Expected Val/Chemo Danger Val
WBC 5,000-10,000 2,000-5,000 less than 1000
Absolute 1,500-3,000 1,000-2,000 less than 1000
Neutrophil Ct.
Hemoglobin 12-18 9-11 less than 7
Hematocrit 13-52 27-33 less than 20
Platelets 130,000-400,000 75,000-175,000 less than 50
for what it's worth...
Is this use of ellipses making me look weak?????
RobinK, your daughter is AWESOME! and sisters are, too.
RanD, I hope your son is doing better. Prayers for him. Did you say he was in the military? If so, my family and I thank him and you for his service for us and our country.
mominaz, why do my steroids only wake me up and send me to the computer, not make me clean house? hope you had fun in Jamaican rain forest today. i took a little pink drink umbrella for my water.
angelsaboveus, Adrienne, Kristy, Eddie, Linda, and whoever I forgot, hope you're doing well with s/es
Eddie, what did they ever decide about your port?
otter, my heart goes out to you. do you have some support now that tx is over? it is a very hard and uncertain time; we yearn for it but it leaves us feeling desperately unprotected when it happens. Or maybe you are starting on something else; i am too chemobrained to remember. anyway...love from all of us.
well, sorry to have written a book of the Bible. I tried to catch up but what's left of my brain is swimming (HA).
OH, WAYNE, I forgot to welcome you! Please stay with us and keep us posted. We got your back, bro...with shovels.
going to take a pilllllllllllllllll
eyes
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eyes,
yup, both he and his wife are in the service and overseas for the next 2 years. They surprised us with a visit in may right before chemo started, so it was nice....thanks for your thanks, they really have a hard job...
robin: awesome...isn't is amazing what are kids are truly capable of doing?
hope all the se's are doing better for all of you, and if anyone is in no cal and wants to work off their steroid buzz cleaning my houe...come onover...I'll make breakfast!!!
have a good night all..randie
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Bless them both for allowing us to be free...
I am feeling the 'roids already, or I'd be in bed. *sigh* Had tx today but I just don't know if I'll make the full course. Maybe.
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