I'm bitchy, I moan, I groan.....anyway.
Comments
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Oh, Sue, what an SOI! Four days!
Hi, Stella--glad to meet you. Please post often, and be sure to say hello to any of your family members we might happen to know (hint).
No IOS's here, except for all the danged snow that's fallen since 8 a.m. The locals keep exclaiming, "Oh, isn't the snow pretty!". I do think it sux.
Hugs to all...
otter
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Otter--you are getting snow!?!?!?!???? That's unnatural!
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Otter, is AL Alabama or Alaska?
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Sharon, AL = Alabama, AK = Alaska. But I'm in Oklahoma right now. No matter--it still shouldn't be snowing this much, this far south, this late in the season. <sigh>
otter
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Otter - Bummer, for sure! Pleeeeeease don't send that stuff in this direction!! (Northeast)!
Susan
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Oh, Stella. Welcome, welcome. I have to get over to Nicki's blog & visit. Hugs to you both. I'm glad you dropped in.
Hugs all & lets keep those IOS's down to a minimum.
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Yikes otter! Looks like the tree was in bloom....global warming my a$$.
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For anyone who doesn't have oceanfront property, global warming would be a good thing. Especially anyone who is seeing snow at this time of the year!
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THIS SUX!!!!!!!!!!!!!
All I could see last night was the pain in my knees and toes. This morning, the world is lots brighter, not just because the snow made it that way! I had Neulasta for 4 chemo sessions. Neupogin for 1 (when I was in the hospital) Neulasta started out as "twinges" the first time, and then, each time I had chemo, the pain in my legs got progressivly worse. I don't want to scare anyone, but please realize that this could happen! I've tried EVERYTHING over the last few months, including Claritin, Vicodin, and last night, if I could have found something illegal, I would have taken it!!!! Now enter another player into this mess...STEROIDS! I told Onc months ago that I should have an alert on my chart about "no steroid use, unless ABSOLUTELY NECESSARY". I had to take it to tolerate the Taxotere, and I was willing to do so, just to get the "best" poison in me to fight this. With steroids, I get weepy, ringing in my ears (loud), angry, hyped-up, depressed, FAT, anything unpleasant or untoward that this drug can cause. What did he give me after all this? MORE stinkin' steroids!!!! Did they work? Somewhat, but not enough to justify weathering the storm of steroids in my head for 1 week. I am weaning myself off this toxic drug now as quickly as possible. I am done with my tx's, and I am seriously considering changing oncs. He did not listen to me, gave me the "steroids or nothing" treatment last week...also he's the same one who wants me to keep my port in for 2 years. Yeah.....right! That won't be happenin'
Anyway, a big WHA SUX!!!??? to all of you! Love your forum!
Hugs, Carol
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Hey all! No suckage today - at least not yet. BUT I have an SOI to report. My ds made the Dean's List in his first semester at college. I know that it may seem small but he is in the Honors College in his university and this momma's PROUD!
Gentle hugs to all,
Trish
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Momma Trish is proud and every right to be!
Job well done.
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SOI from me....the insurance company paid out!!!
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Sad news to report... A friend of ours lost her battle with metastatic melanoma tonight. She had a mole removed two years ago with no follow up treatment recommended. She didn't give it another thought until she had unexplained bone pain. Dx 3 months before me, her condition has kept me grounded throughout my treatment. There were times that I wanted to kick and scream like a two year old but I saw how barbaric her treatment was so I chose to grin and bare mine. (This wasn't always a good thing because sometimes I really needed to vent but I was concerned that our friends would compare our conditions and I would look like a whiner.)
Her chemo required her to be hospitalized for a week and the radiation, used to slow down the 17 inch tumor on her back, looked like a third degree burn. Her body couldn't tolerate the chemo so she was unable to complete a full cycle.
She left behind two sons 18 and 12.
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Ah Renee! Gentle hugs.
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berry - welcome...
Trish - yeah....
Stell...thanks for the update...say hi for us all...
Otter...I'll take that snow
Renee...I'm so, so sorry...not matter how you slice it that SUX
KAK, Traci, Barbe, Sharon, Lovin, Mz, Sue, and anyone else I'm forgetting...HUGS and a big that sux...I've been up since 1:30am trying to a) stop the hot flashes b) stop the nausea c) go back to sleep...doesn't look like any of that's going to happen but thank GOD I have been set up to work from home so I neither have to go into the office nor feel guilty that I am staying home...
I hope it's an IOS free day for all...I'll fly by later I'm sure
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Renee, sad news about your friend. It must surely be taking it's toll on you. I'm really sorry. Gentle hugs
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Hugs and good wishes for everyone. Sorry to hear of the IOS (issues of suckiness): pain, loss of friend, flashes, nausea, insomnia and whatever else I missed. BIG congrats to ds for Trish. The trash truck is here, roaring and banging around so I guess time to BE up. Is there any place where they pick trash up at a more "normal" hour of the day??? I have been up due to stomping from upstairs neighbors. Happy Monday morning !!!!
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Renee, sorry about your friend. Treatment for melanoma is in the dark ages compared to breast cancer. Hopefully they'll make more progress there in the future
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Renee, so so sorry to hear about your friend. Navygirl is so right...no matter how its sliced it sux. My prayers and hugs are with you sweetie.
MommaTrish that is SO wonderful! My ds made dean's list his first term and that meant so much more to me that all the other times since. He had a rough start, was very far from home but really did great. First year, Honors College....how very proud you must be!.
Navy, hope today will be better and you have time for a short nap. Computers and home/office hook ups are so great!
Momma- yea to the insurance company.
Carol- hang in there babe, welcome.
Hope today is a great day for all IOSfree.
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WhaSux?
Welcome newcomers-Stellaaaaaa! Rebecca & carol !!
Dancing for the good news! & A mighty THAT SUX THE BIG ONE for all the IOS's......
I am not feeling too well & will make this short so I might catch a nap--(It's probably due to the abrupt change in schedule & lack of sleep from my retreat weekend)
HUGS all! Be well & stay strong
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Back!
No nap & feeling physically crumby, spiritually exhausted & mentally fuzzy......I hope venting here will relieve some of my woes:
I got a call from the volunteer co-ordinator at the shelter. There is a VERY abrasive woman there-another volunteer who apparently complained about me to her! I think this woman is very threatened by me & the fact that the staff seems to like me & is teaching me to do things they are not teaching her. Add to that the fact that I think she is a very sad sorta person & you get the picture....so I did not take the co-ordinator' suggestion that I stop going on the days she is there! I am taking this as a challenge to win her over!! I DO dislike her aggressive nature, so this is going to be a tall order the next time she gets in my face! I will let y'all know how it goes & hope bitchin about her here will allow me to remain MUTE on the subject while I am there! Some situations just SUCK!!!
Be well & stay strong
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Ah Saint, I've worked with so many women like that! They are afraid of our confidence, try to tell us we are "aggressive". I hate that! I'm not aggressive, I'm confident and sure and if I don't know something I'm not afraid to ask! I can also admit my mistakes, which believe it or not, a lot of people can't handle!
I wish you all the luck in the world to win her over. I'm just hoping there's no blood-shed! Remember, you are the bigger person.....breathe....
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Renee - so sorry about your friend. I bet you were such a comfort to her.
Saint - Don'tcha wonder why, on top of everything else, you have to suffer fools, or biatches?
Navygirl- hope you're feeling better
Carol - that really sux! This is a great forum!
I'm in a no suck zone right now. The usual crap, but all insignificant. Just saw the trailor (sp) for "Where The Wild Things Are"!! It looks awesome! Can't wait until Oct.!!
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Hi all,
Sue, your having surgery 4/15?? I had no idea.....Listen, I'm 30 minutes away girl.....anything...anything....I can do, dog walk, dh walk, whatever, don't hesitate to call.
(((((((Carol))))))) Sorry about your crap girl. Welcome to the bitch thread. I can't see where you are from, but you most definitely will find others in your area...maybe they can refer you to a different onc....
Renee...sorry about your friend.
Stella, please tell Nikki we love her. Hugs to you too......
Trish, congrats on your braineack son!!! Of course, look at the Mom he's got!!!
Bonnie....sorry you are feeling well and can't sleep.... ((((hugs)))))
Dream, love ya girl. I read somewhere else that you were gonna be offline for awhile....you'll be missed.
((((Otter)))) good to see you!! Keep the snow over there k? It missed us by a mile. Was 30 here yesterday.
Everybody else..... (((((((((((((((((((((((hugs)))))))))))))))))))))
Traci
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I'm with Stella on that one. That gal doesn't have a chance Saint.......you go girl.
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What sux? Hernia's suk, constipation with a hernia suks, puppies that chew you bluetooth when you aren't looking suk, nausea sux and people who stir up trouble when they are supposed to be doing something good suk! (((Saint)))
What doesn't suk? Not having to shower before you go to work, being able to watch Regis and Kelly while working, puppies who settle down for a nap next to you don't suk and still being in your pj's and slippers at 9am doesn't suk!
I hope everyone is having an IOS free day...check with you all later...
HI Traci! Hi Nicki! Hi everyone else!!!
Where is WISH????
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Renee, I'm so sorry abuot your friend. My uncle died of melanoma about a year ago. It's really sneaky.
Carol, two meds that are NOT steroids that might help you are neurontin and lyrica. They are especially good for nerve pain/numbness/tingling, that kind of stuff.
Just doing a quickie, so hugs & a THAT SUX to everyone.
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Just got Tridural for pain. I was using Tramacet but was taking 2 at a time with no real help. This new one I have to take every day and it is a timed release. I took it 1/2 hour ago and can feel it already! My doctor also just told me I have a very large kidney stone. Specialist is set for June something. (Got a call in February to set the appointment after a kidney ultra sound, but I hadn't heard what the test had showed until today!)
I have a HUGE IOS!!!!!!!!!!! I was shorted $1,600 on my pay today and have to put a stop-payment on my mortgage! I am SO pissed! There goes my credit rating (again!). It never fu&($*#&(ing ends, does it? It would have been a lot easier to "lie down and die" with this cancer diagnosis and let everything just fall to pieces because I couldn't keep up anymore. I'm getting pretty tired of hanging on.......
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I am also in this boat. I am easily angered and easily set off to cry. I rushed thru surgery, chemo and now on tamoxefen. Lymphadema on surgery side which is constantly aching and swelling. I feel like I have been shorted and I still don't understand the path report. I have major mind farts. I can't say a simple sentence without forgetting the word or not getting it out. Everyone at home thinks that because chemo and reconstruction is thru that I should be A-OK. I don't feel A-0K.
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dsub ...welcome and THAT SUX! It's so unfortunate that our friends and family don't understand that just because the treatment plan is done...doesn't mean we are 100% ok and back to the way things were before we were diagnosed. I don't know anyone (literally) who is the same...emotionally, physically, mentally most of us are changed. Most of us deal with physical issues we did not have before hand and we all worry about "what if". Let it lose baby, we get it!
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