Bottle 'o Tamoxifen

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  • chabba
    chabba Member Posts: 5,065
    edited March 2011

    Sandee - I'm lopsided too.  Asked my BS about the swelling at my last appointment.  He said it would probably take a couple of years for all the swelling from surgery and rads to go away and gave me a prescription for a bra from a "mastectomy and lumpectomy solution" specialist.  Medicare covers six bras a year at 80% and he said most insurances do too.It is comfortable, good support and no under-wires.

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  • EastCoastGrl
    EastCoastGrl Member Posts: 282
    edited March 2011

    Thanks Tink! :)

    Chabba and Sandee.... I had the reconstructive surgery. My lopsided breasts are what I ended up with after reconstruction. Just had my exchange from the tissue expanders to the implants about 2 weeks ago. (silicone gel implants)

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  • June2268
    June2268 Member Posts: 1,202
    edited March 2011

    ECG I am so sorry you are feeling so bad and yes you know it is from the Tamox as you were feeling great being off it....but all that you had to endure and to end up lopsided just seems so wrong.....did they tell you that might happen?  I think I would be so upset as well.....sending you a great big hug and hope to get this solved very quickly so you can try and move on with your life.....THIS IS WHAT BOTHERS ME MOST ABOUT PEOPLE NOT GETTING HOW MUCH US WOMEN HAVE TO GO THROUGH TO FEEL NORMAL........all this hassle to try and be back to who you were and you end up with more headaches....so depressing!!!!

    Sandeeonherown......Doc did call back he does have diabetes and his liver was high and his white count low, so yes there will be more test I am sure......just another damn expense......

    As for me, just waiting to get and US tomorrow and I cannot stand to feel like fat Junie B anymore......I am huge....so bloated that my jeans hurt me....all this from the past week.....I so wonder what they will come up with if they do......

    Jo I am so excited for you.....you should count the days!  I hope this week is better than last week......

    I miss all you guys but I have to go to sleep......hugs to you all!!!

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited March 2011

    June hope they find out what is going on with you.  Keep us posted.

    Sandee and others with lumps I am also still swollen and also having some muscle contractures ( and I stretch quite a bit with yoga).  I have an appt with my MO on Friday so this will def be a topic of disussion. 

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  • 2ns_Jenn
    2ns_Jenn Member Posts: 119
    edited March 2011

    I have noticed a lot of swelling (and thus lopsided) recently too!  I had my lumpectomy in July and finished my rads in Nov.  Within the last month it has gotten to the point where I am spilling out of my bra.  The scar tissue is also getting harder & bigger.  I have also had quite a few problems with my muscles in my arm and when I stretch certain ways I can feel the muscles under my breast pulling.  I thought this was because I had started working out again and I was doing too much with weights on that arm. 

    I have been really worried about this and was planning to go back to my BS but thought I was just being a worry-wart.  Now to find out that this could go on for a couple years?!  UGH!!

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  • jo1955
    jo1955 Member Posts: 8,543
    edited March 2011

    June - I hope you can find out what is going on and get some relief real soon.

    After reading some of the posts here with issues of swelling and such after lump, I feel guilty that I am doing great, no swelling, no more breast pain.  I get up each morning thinking about what needs to be done that day and not about BC.  I had my lump in Aug and finished rads in Dec.  No appts until June.  Anxiously waiting to leave for my cruise.  I so wish everyone else was doing better.  I can't stand the fact that some are having issues and aren't able to get answers right away.

    Have A Great Day Everyone. 

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  • tinkertude
    tinkertude Member Posts: 2,047
    edited March 2011

    JUNE hope you are feeling better today hugs to you!!!!!!

    JO..I am so happy to hear you are doing well.. it is inspiring... I will get there someday! :)... I dont blame you for being anxious about your cruise that is so exciting...

    I have swelling on one sode of one breast.. my PS told me it could take up to a year to go down I see him on Thursday so will see what he has to say then. Should be sched next surgery too.

    I cant believe tomorow is a year that I had my last mammo.. call back was the 30th but because of a quacky surgeon and screw up didnt get the real biopsy until June wow I am not sure how I got through the next 2 months that followed waiting and going for failed biopsies because of  hematoma from the cysts aspiration I guess we are all alot stronger than we think at times...

    oh yeah and last night one of my bff said to me I hate the fact that you stop us from being close by not sharing whats going on with you... oye... not tonight was all I could think... just not in the mode to make everyone else feel better about what I am experiencing... does that seem selfish? it feels it sometimes...oh well...

    Hope all you wonderful ladies have a great day!!!!

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  • scrapmom40
    scrapmom40 Member Posts: 165
    edited March 2011

    June2268 - I don't check this thread all of the time, but I happened to be reading some of the posts today and came across yours.  I have been on Tamox for almost 3 years (it will be 3 years in July).  I have been experiencing stomach issues on and off for the last year.  I saw your comment: Have any of you tried to diagnose yourself?  The stomach issues I am having are like a constant gnawing achy feeling....also bloated.  I feel like I have to eat and when I do it is worse.....really strange.

    I have the same thing.  I don't have it all the time.  Typically it starts in the morning shortly after I wake up and then it will last all day no matter what I do and then the next day I will wake up and be fine.  I take Pepto Bismal with does help (especially if I take it at night so hopefully when I get up the next day the nausea will be gone).  I was looking online last week to see if it was possibly a long-term effect of chemo (having stomach issues), but I did not find anything conclusive.

    I have had an endoscopy done and they did not find anything (I do have reflux but not the cause of the nausea).  Then they thought it might be that my stomach does not empty in a timely fashion so I had a stomach emptying study done, but that came back fine.  Now I am scheduled for a Colonoscopy in May to see if there might be something intestinal going on.  If that comes back fine, that I don't know what to do next.

    I would be very interested in what you find out from your doctors as to what could be causing the nausea/stomach issues.  I find it extremely frustrating, because nothing seems to help and it seems to come with no ryhme or reason.

    I hope you get some answers.  If so, please share.

     Take care,

    Karen

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  • June2268
    June2268 Member Posts: 1,202
    edited March 2011
    KarenOMG that is so strange that someone else is feeling the same way too.  I am bloated which I never was before and that just started this last week.  The strange thing is that over 3 weeks ago this started and did not last long at all, maybe 4-5 days if that and gone for 2 weeks to have it back for 8 days now straight.  My symptoms are exactly what you are describing and I really am not sure if I want to even continue on this road if this is going to be long term.....I am glad to have found you, but now wondering if this is going to be years in the making for me like you.......I am going in for an US and we will take it from there.  I will keep you posted.....I am so glad in an odd way to find out someone else is experiencing the same thing......you so responded in the nick of time as I see my MO next Monday and I know he will make me feel like it is all in my head......talk to you soon Karen....
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  • surfette
    surfette Member Posts: 232
    edited March 2011

    Hey there everyone, I have a question. I got a special deal on laser hair removal and so I went to the place today and of course they ask you a bunch of questions on a form and one of them is have you had any of these xyz diseases and I marked yes for cancer and they told me that I could not have the laser treatment because cancer is contraindicated for this. I asked them why and they said it just is. I'm wondering if any of you have heard this before? I was told that I could ask my doctor and get a note of approval and I am waiting on that.

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  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited March 2011

    Did someone mention the French Riviera or South America ~ let's runaway !!!

    ECG ~ so sorry you are now dealing with being lopsided after all you have gone through.  I hope you find the right dr to make you happy ~

    June ~ my stomach sometimes feels just like it would if I were going to get my period, yet of course it never comes.  It is sometimes tender to the touch ~ but it goes away.  I am glad all of your other tests were normal and hope you get some answers on your tummy.

    Last week was the week from hell and I am still trying to crawl out of it.  Hurt my back, then had what seemed like the flu, then got a migraine for 2 days.  Just feeling depressed !!!  But this too shall pass.

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  • June2268
    June2268 Member Posts: 1,202
    edited March 2011

    Alicia so sorry you had a week from hell....Migraine on top of everything else.....Damn, when it rains it pours for all of us huh?  Hoping this week is soooooo much better for you.....

    Hi Tink, Jo, Sherri and all you lovely ladies......

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited March 2011

    Hey June

    Alicia you did have a terrible week.  Sounds like this week can only get better.  I think it was Sandee who said she is taking life 24 hours at a time (if I did not get that right you can correct me).  Tomorrow is always a new day.

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  • jo1955
    jo1955 Member Posts: 8,543
    edited March 2011

    Just popping in to say hi to June, Tink, Sherry and all the lovely Tammi ladies.

    Crazy day today at work.  Want to get out of here on time today - my favorite show starts again tonight - Dancing With The Stars.

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  • June2268
    June2268 Member Posts: 1,202
    edited March 2011
    JoI love that show as well but never have the time to watch...I think I will have to DVR it....hope you have a wonderful evening......
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  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited March 2011

    June were you having the ultrasound today or tomorrow?  Hope you get some information soon.  Hoping it is just another lovely SE of tamoxifen.

    JO ~ hoping you get out on time too.  I am actually looking forward to Dancing with the Stars.  I am excited to see Kirstie Alley, Ralph Maccio and Sugar Ray Leonard DANCE ~  should be a good season.

    Sherry ~ thanks I like that 24 hour theory.  For now I am hour to hour.  :)

    ECG ~ I feel sad you are unhappy with your foobies.  Give them time and if they aren't want you want maybe fat grafting can help or get a new pair.  I am on my second pair and am much happier while they will always be far from perfect they are better.  Hang in there. 

    Have a great evening ladies.

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  • jo1955
    jo1955 Member Posts: 8,543
    edited March 2011

    Did ya'll know there is a thread for Dancing With The Stars?  I came across it a couple of weeks ago.  That should be interesting to follow.

    ECG - What a bummer that you are having issues with the foobs.  Hope you can get something done. 

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  • tinkertude
    tinkertude Member Posts: 2,047
    edited March 2011

    I watch that show too!!! lol

    Alicia I hope you are having a better week this week, last week did sound rough! heres to a better week ahead hugs!

    June... sorry yout stomach issues is not resolving quicker hoping you get amswers and soon!

    Hi JO, SHERRY AND ALL THE WONDERFUL TAMMY LADIES!

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  • slinky
    slinky Member Posts: 397
    edited March 2011

    Hi ladies,

     I thought it was the Tamoxifen giving me a rash on my face and around the wound of some healing skin on the cancer side.  My doc looked at it and said I am having an allergic reaction to the Neosporin I have been using on the wound for the past 7 weeks.  I would have never figured that one out!

     Hope everyone is having a great day!

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  • jo1955
    jo1955 Member Posts: 8,543
    edited March 2011

    slinky - Neosporin - Really?  Go figure.  Glad you found out what was causing the rash.  

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  • EastCoastGrl
    EastCoastGrl Member Posts: 282
    edited March 2011

    June, thanks....and you are so right about people not getting all that we go through to feel normal again (if that's even possible..I don't think so for me...maybe one day...) Is today the US day?? If so, I hope everything turned out ok and they find an answer for you. I am the same way with the Tamox. I will take it until I can't. Day by day for me. If SE's become more than i want to deal with, then I will stop. So sorry you are feeling so bad lately. Been thinking about you!

    Alicia, I had the same kind of week....and I swear it does feel like crawling trying to come out of it. Tired of feeling depressed.Frown  I do keep trying to remember the 24 rule....because it is just that..up one day, down the next. Always surprising to me how down I can feel after a fairly good day. Crazy. Hope you crawl up and out quickly!! HUGS

    And thanks so much for the support, yes the foobs are not good. I honestly keep looking at them (staringggg ha, every night and every morning) and thinking maybe I could live with it. But no, they are so way off. If it was small differences I would because I know they won't be perfect and I'm just tired of all of it. But it honestly looks like I have two different size implants in, one is also about 1'1/2 inches lower then the other, very noticable and odd looking ( in the upper pole area) and projects at least an inch outward more. That same one is almost triangle shaped...the other is flat hamburger bun shaped. How's that for a visual? It's quite lovely. WinkLOL I do have to say I feel sort of guilty thinking I should just be happy but it's depressing. My breasts weren't perfect before but they were mine and comfortable and didn't feel weird and foreign to me. (not that I want them back.. dense suckers...I'm still happy with my descision) But now I have something that not only doesn't feel like they're mine but don't even look like breasts to me. I need to have it right for my mind...emotionally... (and hope they will feel more a part of me someday).....sorry for the ramble....

    Hi Tink, Sherry and the rest of theTammy sistahs....hope you have all had a great day!

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  • peg119
    peg119 Member Posts: 281
    edited March 2011

    I stopped getting email notifications when my favorite topics are updated.  Is anyone else having that problem?  I usually go into the forum each day but it does help to get the email reminders.

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited March 2011

    Peg seems everything on the boards has been messed up since the update last week.  I sure hope they get it fixed soon.

    Just got back from my first Relay for Life Survivors dinner.  I was feeling weird about going but now glad I did, it was very uplifting.  Friday night is our local Relay for Life so guess I will go walk the track and be thankful that I am alive. And I'll take all my Tammi sistah's with me in spirit.  Could not do it without you gals.

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  • DiDel
    DiDel Member Posts: 1,329
    edited March 2011

    wheeeew I had a lot of catching up...I've been so busy with work I haven't had much me time.

    ECG if you are not happy have a revision. I had two revisions...first time toooooooooo big and uncomfortable second time...I was lopsided. I had unimx and as my PS says they're sisters not twins...BUT mine were so perfect before I just can't settle for anything less. My PS really took his time on the revision and I couldnt be happier. My PS says its rare to have the exchange and call it a day, another thing they dont tell you. I tell you I would keep going back till you're happy. I also sought the opinion of a second PS just to be sure I wasn't being too picky or silly. If you do a revision make sure your PS lifts you during surgery to see how they look upright. That is important. My PS admitted he didnt the first time but for sure did after that. I felt like emotionally I couldt move on until reconstruction was behind me. I swear after that last surgery I was so happy I just feel like myself again and it's made a huge difference in my mental state. I would consult with another PS if your unsure about a revision.

    Alicia sorry you're feeling blue..hopefully the with spring will come brighter spirits!!!

     Hang in there!

    Diane

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  • June2268
    June2268 Member Posts: 1,202
    edited March 2011

    ECG - hang in there and just remember we are all here for you HUGS!!!

    Sherry good for you.....I like that!!!

    I go in for my US on Friday ARGH!!!  Yes freakin Friday and now I am wondering if they are going to tell me everything is fine after reading what Karen wrote......I know I need to stay positive but I am so sick of test and appt's and altering my life around and apologizing to everyone for always having to take time off......if it comes back negative they already told me they would do an endoscope.....YUCK!!!  On a good note I think my husband might have gotten Monday off so he can go with me to my MO as I am not to fond of him and I am thinking of changing to a women as I will end up seeing them yearly, I might as well be happy right??? 

    After I read what Karen wrote I tried calling the only friend who listens to me constantly and it took me forever to get her, but I just wanted to die and needed to vent to her......if this is what I am in for on Tami......I cannot go through feeling sick all the time....who would have thought that after being on this stinking drug almost a year shit would start kicking in from outta no-where.......

     Hello Tink (sunshine) Jo (Queen of Food) and to all who make this thread a place I cannot live without......

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  • tinkertude
    tinkertude Member Posts: 2,047
    edited March 2011

    June I so hope they can fix this for you and yes your going to be with your onc for along time to come you defitnely should like who your with!!! Im so sorry !!! ((((hugs))))

    what would we do without eachother you ladies are the best! thats me and all you Tinkerbell peeps!!!! lol

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  • Teklya
    Teklya Member Posts: 435
    edited March 2011

    so, tell me should I be having this awful headache??  Is it the tamoxifen, the shingles (almost over) the change in barometirc pressure? being without sleep so often? I feel like I don't even know my own body anymore. 

    I know, I know, just breathe. . .

    Teklya

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited March 2011

    June don't waste time and find another MO.  I was not happy with my first one.  He was a nice enough guy but not right for me.  I asked around and the same name kept popping up so I made the appt and met with him and loved him right off the bat.  After the appt my DH said he was a much better fit for me.  I figure my MO will be with me for life I need one I can feel totally comfortable talking too and does not make me feel awful for searching on the internet and telling him I do so.  He respects that I want to be involved in my own care but he tells me what he thinks is best for me and then we decide how to proceed.  I know that he will listen to me complain about my achey breast and will try to help me resolve the issue and not blow me off.  I see him on Friday.  I really hope they give you some answers on Friday and not make you wait.

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  • Harley44
    Harley44 Member Posts: 5,446
    edited March 2011

    June,

    Maybe it's time to look for a new doctor.  If your current doctor isn't taking your symptoms seriously.

    I am still seeing my 2nd opinion onc.   The 1st one wouldn't listen to me.  He would leave the room while I was in mid-sentence...  It was so infuriating!  

    Good Luck, dear!  I hope you find a doctor who can get to the bottom of what is wrong, and you can get treatment and start feeling better.

    HUGS

    Harley

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  • jo1955
    jo1955 Member Posts: 8,543
    edited March 2011
    June - Sweetie!  No one has to put up with an incompetent doctor.  Find a new MO ASAP, like Harley said one that will listen to you, get to the bottom of what is wrong and get you some much needed treatment.
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